Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 Hi everyone, it has been a long time since I posted an update on . Mike had been doing great - (two days away from 5 months seizure free) when he started seizing again May 20th this year. He has been on the keto diet for just over 3 years now. Mike is also currently med free (YAY!) I have been scouring notes and trying to come up with why this happened, and at first, I assumed it was because his last clonaz dose was May 7th and this was just fall out. He did great for 2 weeks, then we adjusted cals and everything hit the fan. We put the cals back, no change. Around this time (after the seizures started again) I added jello, ketchup, fruit spread, and a small amount of candy (one gummy bear every 4-5 days) all sweetned with splenda. It looked like he was getting better, then he would get worse again. His seizures calmed a little and started coming in cycles - looking back at his notes, they started to correspond with how much splenda he was getting. He has been totally off all splenda since Monday (was off most of it before then but hubby wasnt reading labels and was still giving the ketchup) He had a horrible day that first day off it, but today was day 3 and we hardly saw any activity today. I am really beginning to think that splenda was the culprit for my son. Has anyone had these problems with Splenda? Are there other sweetners that are better/worse that I should use/avoid? Thanks for reading. Jenn mom to - 7 yrs old - keto kid for 3yrs currently med free (and NO asthma troubles since reducing the clonaz!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 I was giving my son Fruit 2o and it's sweetened w/ Splenda, I swear it caused him problems. Have not tried again. Barb Swoyer, Jake's mom Splenda question - bit long Has anyone had these problems with Splenda? Are there other sweetners that are better/worse that I should use/avoid? Thanks for reading. Jenn mom to - 7 yrs old - keto kid for 3yrs currently med free (and NO asthma troubles since reducing the clonaz!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Ugh that is another thing I will have to quit -forgot about that one, but Mike hasnt had it in at least a month - will strike it off my shopping list - thanks for the heads up. Jenn Re: Splenda question - bit long I was giving my son Fruit 2o and it's sweetened w/ Splenda, I swear it caused him problems. Have not tried again. Barb Swoyer, Jake's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Ugh that is another thing I will have to quit -forgot about that one, but Mike hasnt had it in at least a month - will strike it off my shopping list - thanks for the heads up. Jenn Re: Splenda question - bit long I was giving my son Fruit 2o and it's sweetened w/ Splenda, I swear it caused him problems. Have not tried again. Barb Swoyer, Jake's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Ugh that is another thing I will have to quit -forgot about that one, but Mike hasnt had it in at least a month - will strike it off my shopping list - thanks for the heads up. Jenn Re: Splenda question - bit long I was giving my son Fruit 2o and it's sweetened w/ Splenda, I swear it caused him problems. Have not tried again. Barb Swoyer, Jake's mom Quote Link to comment Share on other sites More sharing options...
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