Re: Apraxia , ProEFA and Sleep Disturbances??

January 1, 2007

I am new to this group. Can someone tell me exact what is ProEFA?

My son has not been diagnosed with Apraxia as of yet. He does have CBPS

Which is going to be an issue for his speech if there is any at all.

He is 17 months and doesn't say too much. We kind of got him to say what I

think was " elmo " but not positive, and he hasn't said it again since.

He goes to speech therapy 2 x a week among other therapies. I am wondering

if there are other ways to help this area.

<http://www.babyjellybeans.com/web/do/site?ID=5864>

http://www.babyjellybeans.com/web/do/site?ID=5864

_____

From:

[mailto: ] On Behalf Of mp8kdh

Sent: Monday, January 01, 2007 8:46 PM

Subject: [ ] Apraxia , ProEFA and Sleep Disturbances??

I am new to the group and apologize if this issue has already been

addressed. I am desperate! My 4 year-old son has Apraxia (verbal). I

am thrilled to report that with intense private and public school

speech therapy (primarily Kaufman Method) over the last 11 months, he

is talking - a lot with a high degree of intelligibility. I started

him on ProEFA in August and did notice a difference - his physical

movements became more fluid and his articulation improved within 3

weeks after commencement. However, at about the same time his sleep

patterns became terrible. He wakes frequently at night and seems

wired - wanting to talk, to go downstairs, to go outside, etc. His

diet is excellent, he is on no other medication (herbal or otherwise)

and his personality is even, not all at hyper. He just can't seem to

settle during the night, though we give the supplement in the morning.

Going to sleep is not an issue. Since any naps during the day are

brief, the child is perpetually exhausted. Has anyone had any similar

experience? Also, what happens if you stop the ProEFA, is there

regression? My whole family says to choose speech over sleep, but I

have to think the lack of sleep is going to be problematic, especially

with Kindergarden on the horizon. Any advice is appreciated. Thanks,

Kim.

January 1, 2007

Kim.

Has this been ongoing since you started the efa's back in August?

My daughter acts like this when we have increased, or when we

restart after runnng out. We recently experienced this. She's been

taking them for about a week now, and for the last several nights

she wakes up in the middle of the night, but we can get her to go

back in her bed and " rest " . And during the day she is very

hyper.Constantly on the go. To the point where she is " flapping " her

arms and legs-

On the go- but staying in the same spot on the rug. know what i

mean.

How many EFA capsules does he take in the am?

Dawn in NJ

>

> I am new to the group and apologize if this issue has already been

> addressed. I am desperate! My 4 year-old son has Apraxia

(verbal). I

> am thrilled to report that with intense private and public school

> speech therapy (primarily Kaufman Method) over the last 11 months,

he

> is talking - a lot with a high degree of intelligibility. I

started

> him on ProEFA in August and did notice a difference - his physical

> movements became more fluid and his articulation improved within 3

> weeks after commencement. However, at about the same time his

sleep

> patterns became terrible. He wakes frequently at night and seems

> wired - wanting to talk, to go downstairs, to go outside, etc.

His

> diet is excellent, he is on no other medication (herbal or

otherwise)

> and his personality is even, not all at hyper. He just can't seem

to

> settle during the night, though we give the supplement in the

morning.

> Going to sleep is not an issue. Since any naps during the day are

> brief, the child is perpetually exhausted. Has anyone had any

similar

> experience? Also, what happens if you stop the ProEFA, is there

> regression? My whole family says to choose speech over sleep, but

I

> have to think the lack of sleep is going to be problematic,

especially

> with Kindergarden on the horizon. Any advice is appreciated.

Thanks,

> Kim.

>

January 1, 2007

,

Pro-EFA, is the " pro " fessional grade of EFA. EFA is essential fatty

acids. Omega 3,6, which is fish oil. And Omega 9, from borage oil.

Here is the companies website for lots of info. Although this

product can be purcahsed elsewhere. And also, there are TONS of

archives on the EFA topic.

http://www.nordicnaturals.com/

As far as his communication delay, have you thought about using sign

language?

I can tell you, we used it with my now 5 1/2 year old. It was the

best thing I could have done for us. Vist SigningTime.Com for

awesome dvd's.

Dawn in NJ

>

> I am new to this group. Can someone tell me exact what is ProEFA?

>

> My son has not been diagnosed with Apraxia as of yet. He does

have CBPS

>

> Which is going to be an issue for his speech if there is any at

all.

>

> He is 17 months and doesn't say too much. We kind of got him to

say what I

> think was " elmo " but not positive, and he hasn't said it again

since.

>

> He goes to speech therapy 2 x a week among other therapies. I am

wondering

> if there are other ways to help this area.

>

> <http://www.babyjellybeans.com/web/do/site?ID=5864>

> http://www.babyjellybeans.com/web/do/site?ID=5864

>

> _____

>

> From:

> [mailto: ] On Behalf Of mp8kdh

> Sent: Monday, January 01, 2007 8:46 PM

>

> Subject: [ ] Apraxia , ProEFA and Sleep

Disturbances??

>

> I am new to the group and apologize if this issue has already been

> addressed. I am desperate! My 4 year-old son has Apraxia (verbal).

I

> am thrilled to report that with intense private and public school

> speech therapy (primarily Kaufman Method) over the last 11 months,

he

> is talking - a lot with a high degree of intelligibility. I

started

> him on ProEFA in August and did notice a difference - his physical

> movements became more fluid and his articulation improved within 3

> weeks after commencement. However, at about the same time his

sleep

> patterns became terrible. He wakes frequently at night and seems

> wired - wanting to talk, to go downstairs, to go outside, etc. His

> diet is excellent, he is on no other medication (herbal or

otherwise)

> and his personality is even, not all at hyper. He just can't seem

to

> settle during the night, though we give the supplement in the

morning.

> Going to sleep is not an issue. Since any naps during the day are

> brief, the child is perpetually exhausted. Has anyone had any

similar

> experience? Also, what happens if you stop the ProEFA, is there

> regression? My whole family says to choose speech over sleep, but

I

> have to think the lack of sleep is going to be problematic,

especially

> with Kindergarden on the horizon. Any advice is appreciated.

Thanks,

> Kim.

>

January 1, 2007

Kim and Dawn,

When I read, " To the point where she is " flapping " her arms and legs-

On the go- but staying in the same spot on the rug. know what i

mean. "

--it reminded me of my son.

I don't know if either of your kids have sensory issues or not, but

I'm remembering from past posts that EFAs can induce sensory

behaviors. This has been our experience as well. I could not use

Pro-EFA alone on my son as his sensory seeking behaviors worsened.

It wasn't until we began using 800IUs of Vitamin E daily that I could

add the Pro-EFA. On 200 IUs and 400 IUs the completely resolved

sensory-seeking behavior would fully return even if I gave him just

one capsule. I'm giving him 2 Pro-EFAs per day now and even on

800IUs I am seeing occasional, mild sensory-seeking behavior that was

not there at all before the Pro EFA. But nothing that would cause me

to stop the EFAs.

EFAs oxidize Vitamin E, so if you are not using Vitamin E, the EFAs

could be depleting the child's Vitamin E stores and inducing sensory

issues that were not previously there.

I mention this because when my son's proprioceptive-seeking behaviors

were at their peak it would take forever to get him to sleep as he

was constantly " on the move " - day and night. Even as an infant in

his Baby Bjorn he would kick his arms and legs constantly and HAD to

be held if you expected him to sleep at all (he needed the deep

pressure sensation). Before I knew about sensory integration I would

leave his room complaining that he was " doing everything to keep from

falling asleep " . He had very restless limbs, needing to kick and

push against his bed rails (or me). Now I know that his body was

just craving that type of sensory input, poor little guy. He

normally slept through the night, however.

But when I first began EFA supplementation and things got worse, he

began waking in the night with the restless legs. We were on a

brushing/compression program through OT. He would wake and I could

tell from his movements that he needed to be brushed, so I brushed

him and he would fall back to sleep immediately. I stopped the EFA,

began the Vitamin E one day and then literally overnight all

proprioceptive-seeking behaviors stopped.

Just thought I'd share as it sounds a lot like what we experienced.

> >

> > I am new to the group and apologize if this issue has already

been

> > addressed. I am desperate! My 4 year-old son has Apraxia

> (verbal). I

> > am thrilled to report that with intense private and public school

> > speech therapy (primarily Kaufman Method) over the last 11

months,

> he

> > is talking - a lot with a high degree of intelligibility. I

> started

> > him on ProEFA in August and did notice a difference - his

physical

> > movements became more fluid and his articulation improved within

3

> > weeks after commencement. However, at about the same time his

> sleep

> > patterns became terrible. He wakes frequently at night and seems

> > wired - wanting to talk, to go downstairs, to go outside, etc.

> His

> > diet is excellent, he is on no other medication (herbal or

> otherwise)

> > and his personality is even, not all at hyper. He just can't seem

> to

> > settle during the night, though we give the supplement in the

> morning.

> > Going to sleep is not an issue. Since any naps during the day

are

> > brief, the child is perpetually exhausted. Has anyone had any

> similar

> > experience? Also, what happens if you stop the ProEFA, is there

> > regression? My whole family says to choose speech over sleep,

but

> I

> > have to think the lack of sleep is going to be problematic,

> especially

> > with Kindergarden on the horizon. Any advice is appreciated.

> Thanks,

> > Kim.

> >

>

January 1, 2007

Thanks for the reply.

I will look into that. He recoginizes about 5 signs that we do to him all

the time. (Eat, drink, mom, dad, more)

But because of his condition, he doesn't use his arms or hands much so

signing is out for now. I was hoping that would be his form of

communication but I was told we should look into other things.

You're right signing time videos are awesome. We watch them all the time!

_____

From:

[mailto: ] On Behalf Of jerzmomof4

Sent: Monday, January 01, 2007 10:20 PM

Subject: [ ] Re: Apraxia , ProEFA and Sleep Disturbances??

,

Pro-EFA, is the " pro " fessional grade of EFA. EFA is essential fatty

acids. Omega 3,6, which is fish oil. And Omega 9, from borage oil.

Here is the companies website for lots of info. Although this

product can be purcahsed elsewhere. And also, there are TONS of

archives on the EFA topic.

http://www.nordicna <http://www.nordicnaturals.com/> turals.com/

As far as his communication delay, have you thought about using sign

language?

I can tell you, we used it with my now 5 1/2 year old. It was the

best thing I could have done for us. Vist SigningTime.Com for

awesome dvd's.

Dawn in NJ

>

> I am new to this group. Can someone tell me exact what is ProEFA?

>

> My son has not been diagnosed with Apraxia as of yet. He does

have CBPS

>

> Which is going to be an issue for his speech if there is any at

all.

>

> He is 17 months and doesn't say too much. We kind of got him to

say what I

> think was " elmo " but not positive, and he hasn't said it again

since.

>

> He goes to speech therapy 2 x a week among other therapies. I am

wondering

> if there are other ways to help this area.

>

> <http://www.babyjell <http://www.babyjellybeans.com/web/do/site?ID=5864>

ybeans.com/web/do/site?ID=5864>

> http://www.babyjell <http://www.babyjellybeans.com/web/do/site?ID=5864>

ybeans.com/web/do/site?ID=5864

>

> _____

>

> From: <mailto: %40>

> [mailto: <mailto: %40>

] On Behalf Of mp8kdh

> Sent: Monday, January 01, 2007 8:46 PM

> <mailto: %40>

> Subject: [ ] Apraxia , ProEFA and Sleep

Disturbances??

>

> I am new to the group and apologize if this issue has already been

> addressed. I am desperate! My 4 year-old son has Apraxia (verbal).

I

> am thrilled to report that with intense private and public school

> speech therapy (primarily Kaufman Method) over the last 11 months,

he

> is talking - a lot with a high degree of intelligibility. I

started

> him on ProEFA in August and did notice a difference - his physical

> movements became more fluid and his articulation improved within 3

> weeks after commencement. However, at about the same time his

sleep

> patterns became terrible. He wakes frequently at night and seems

> wired - wanting to talk, to go downstairs, to go outside, etc. His

> diet is excellent, he is on no other medication (herbal or

otherwise)

> and his personality is even, not all at hyper. He just can't seem

to

> settle during the night, though we give the supplement in the

morning.

> Going to sleep is not an issue. Since any naps during the day are

> brief, the child is perpetually exhausted. Has anyone had any

similar

> experience? Also, what happens if you stop the ProEFA, is there

> regression? My whole family says to choose speech over sleep, but

I

> have to think the lack of sleep is going to be problematic,

especially

> with Kindergarden on the horizon. Any advice is appreciated.

Thanks,

> Kim.

>

January 2, 2007