Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 Hi, Don't feel dumb! I had pretty much the same experience when my son was diagnosed. It was 4 years before I even found this website and started researching how to make sure his needs were being met. No one actually told me that there were things I should learn and that I would need to be informed in order to advocate for my son. It seems that there is not that great a system for pulling together all the pieces of the puzzle (ie school needs, medical needs, equipment needs, emotional needs). You are so far ahead. I found the listen up website to be a wonderful resource for information. Just ask away and read away and soon you will be feeling much more confident. There is a file in the files section of common abbreviations, terms, etc. Also, the links section has links to some really great websites. Good Luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Diane, I used to live in Indiana. How close is Valparaiso to Indianapolis? I can offer you a great resource if you are close enough, or willing to drive. AB 8/99 Holly AB 12/99 I feel really dumb I must admit to you all, I feel really dumb about the entire loss of hearing issues with my daughter because I don't feel as though I have been properly informed. After was diagnoised with hearing loss, they fitted her with aids and said off you go! They showed us how to care for them but that was it. I don't know if I should be enrolling her in any type of classes to help her improve the use of her aids, I don't know if sign language is something that I need to look into, etc. I read the posts on here with the abreviations and have no clue as to what you all are saying! I've asked the audiologist what they think and they are just so casual about it all; oh, she is just fine they say. I want to make her hearing impaired world as easy as possible. Any suggestions would be greatly apprecaited! FYI - I live in Northwest Indiana (Valparaiso). Thanks! Diane All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Diane, I used to live in Indiana. How close is Valparaiso to Indianapolis? I can offer you a great resource if you are close enough, or willing to drive. AB 8/99 Holly AB 12/99 I feel really dumb I must admit to you all, I feel really dumb about the entire loss of hearing issues with my daughter because I don't feel as though I have been properly informed. After was diagnoised with hearing loss, they fitted her with aids and said off you go! They showed us how to care for them but that was it. I don't know if I should be enrolling her in any type of classes to help her improve the use of her aids, I don't know if sign language is something that I need to look into, etc. I read the posts on here with the abreviations and have no clue as to what you all are saying! I've asked the audiologist what they think and they are just so casual about it all; oh, she is just fine they say. I want to make her hearing impaired world as easy as possible. Any suggestions would be greatly apprecaited! FYI - I live in Northwest Indiana (Valparaiso). Thanks! Diane All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Diane, I used to live in Indiana. How close is Valparaiso to Indianapolis? I can offer you a great resource if you are close enough, or willing to drive. AB 8/99 Holly AB 12/99 I feel really dumb I must admit to you all, I feel really dumb about the entire loss of hearing issues with my daughter because I don't feel as though I have been properly informed. After was diagnoised with hearing loss, they fitted her with aids and said off you go! They showed us how to care for them but that was it. I don't know if I should be enrolling her in any type of classes to help her improve the use of her aids, I don't know if sign language is something that I need to look into, etc. I read the posts on here with the abreviations and have no clue as to what you all are saying! I've asked the audiologist what they think and they are just so casual about it all; oh, she is just fine they say. I want to make her hearing impaired world as easy as possible. Any suggestions would be greatly apprecaited! FYI - I live in Northwest Indiana (Valparaiso). Thanks! Diane All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Diane, Don't feel dumb. Pretty much everything that I learned, I learned from talking to other parents or from reading posts on list-serves like this one. I also asked a lot of questions in the beginning. If no one takes the time to explain things to you, how would you know? I'm sure you're like many of the rest of us here in that we've never really known a deaf or hard of hearing person before, our children are the first. There are a couple of books that are great for parents. Of course the exact titles seem to be escaping from my aging mind. One is by Sue Schwartz " Choices in Deafness " . The other one I think is called " You and your Deaf Child " . I'm not that far from you, but I'm in Illinois just over the border. (I go out to Valpo to see shows at the Oprea House). If you would like to get together sometime near the mall, I would be happy to. Just email me off list. Debbie, mom to , 7 (today!) , moderate SNHL and , 3 hearing dtl1995 dll@...> wrote: I must admit to you all, I feel really dumb about the entire loss of hearing issues with my daughter because I don't feel as though I have been properly informed. After was diagnoised with hearing loss, they fitted her with aids and said off you go! They showed us how to care for them but that was it. I don't know if I should be enrolling her in any type of classes to help her improve the use of her aids, I don't know if sign language is something that I need to look into, etc. I read the posts on here with the abreviations and have no clue as to what you all are saying! I've asked the audiologist what they think and they are just so casual about it all; oh, she is just fine they say. I want to make her hearing impaired world as easy as possible. Any suggestions would be greatly apprecaited! FYI - I live in Northwest Indiana (Valparaiso). Thanks! Diane Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Diane Sorry, I have been on vacation and did not see your post. I see that you are in Indiana. Indiana has really good programs, from what I can recall, for deaf children. Your school district should be setting you up with early intervention. . It is up to you and your family if you want to sign or not. I personally do, and I also think it is a good way to provide your child with communication while you decide what is the best communication path to follow. You can use it as a bridge and then not use it as your family becomes more comfortable with oral methods, or you can continue signing and incorporate speech if you want...and meet people you might not have met. There are a lot of options out there. Best wishes to you, If no one takes the time to explain things to you, how would you know? I'm sure you're like many of the rest of us here in that we've never really known a deaf or hard of hearing person before, our children are the first. There are a couple of books that are great for parents. Of course the exact titles seem to be escaping from my aging mind. One is by Sue Schwartz " Choices in Deafness " . The other one I think is called " You and your Deaf Child " . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 - Indianapolis is 2 1/2 hours from us! I feel really dumb > > > I must admit to you all, I feel really dumb about the entire loss of > hearing issues with my daughter because I don't feel as though I have > been properly informed. After was diagnoised with hearing loss, > they fitted her with aids and said off you go! They showed us how to > care for them but that was it. I don't know if I should be enrolling > her in any type of classes to help her improve the use of her aids, I > don't know if sign language is something that I need to look into, > etc. I read the posts on here with the abreviations and have no clue > as to what you all are saying! I've asked the audiologist what they > think and they are just so casual about it all; oh, she is just fine > they say. I want to make her hearing impaired world as easy as > possible. Any suggestions would be greatly apprecaited! FYI - I live > in Northwest Indiana (Valparaiso). Thanks! Diane > > > > > > > > All messages posted to this list are private and confidential. Each post is the > intellectual property of the author and therefore subject to copyright > restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Debbie - that would be great if you ever come this way, let me know and we can do lunch with the kids! I just feel like they rushed us through this entire situation and now that I found this group, I feel very stupid about the entire situation. Should I have gotten her enrolled in sign language? Should I have done something more? She speaks very well; you would never know she had a hearing loss at all. She seems to be doing fine with her aids but is there something more I should be doing for her? I asked the audiologist again; they said she is just fine. That is not what I asked!! I just get so frustrated! I'll have to run to the bookstore and pick up a copy of those books. Maybe that will help me. As far as her school, the teachers have been wonderful. They offered the device that the teacher would wear in order for to hear him/her but it has not been needed as of yet. I need to remind that if she can't hear her teacher to say something to her. Thanks for the response! Diane Re: I feel really dumb > Diane, > Don't feel dumb. Pretty much everything that I learned, I learned from talking to other parents or from reading posts on list-serves like this one. I also asked a lot of questions in the beginning. If no one takes the time to explain things to you, how would you know? I'm sure you're like many of the rest of us here in that we've never really known a deaf or hard of hearing person before, our children are the first. There are a couple of books that are great for parents. Of course the exact titles seem to be escaping from my aging mind. One is by Sue Schwartz " Choices in Deafness " . The other one I think is called " You and your Deaf Child " . > I'm not that far from you, but I'm in Illinois just over the border. (I go out to Valpo to see shows at the Oprea House). If you would like to get together sometime near the mall, I would be happy to. Just email me off list. > > Debbie, mom to , 7 (today!) , moderate SNHL and , 3 hearing > > dtl1995 dll@...> wrote: > I must admit to you all, I feel really dumb about the entire loss of > hearing issues with my daughter because I don't feel as though I have > been properly informed. After was diagnoised with hearing loss, > they fitted her with aids and said off you go! They showed us how to > care for them but that was it. I don't know if I should be enrolling > her in any type of classes to help her improve the use of her aids, I > don't know if sign language is something that I need to look into, > etc. I read the posts on here with the abreviations and have no clue > as to what you all are saying! I've asked the audiologist what they > think and they are just so casual about it all; oh, she is just fine > they say. I want to make her hearing impaired world as easy as > possible. Any suggestions would be greatly apprecaited! FYI - I live > in Northwest Indiana (Valparaiso). Thanks! Diane > > > > > > > > Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw > > > > > > > > --------------------------------- > Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 If there are programs for deaf children in the area, boy I sure can't find them. I've looked online for days and found an auditory - verbal therapy services center in Merrillville which is about 25-30 minutes from my house. I've left messages inquiring about their facility, etc. with no return call as of yet. I'll give them a week and then call back again. Is this something I should be looking into? was diagnosed with congenital sensorineural deafness at the age of 8. I actually had the info on it and showed the doctor and he said yes, that is what she has. Needless to say, that is as far as its gone. Now I am reading things about kidney problems due to hearing loss on this website. Should I be concerned with this? Who should I be address these issues with? I just feel very lost. There are no other children in 's school with a hearing loss like hers. The ones that do have hearing loss have downs syndrome and their parents aren't sure where I should go either with my questions. Then I also read on here that I should have gotten a CT scan or an MRI? No one even brought those up to me! Should I have this done now? Is it necessary now? Sorry for the long response. I just feel very lost in my daughter's silent world! Diane Re: I feel really dumb > Diane > > Sorry, I have been on vacation and did not see your post. I see that > you are in Indiana. Indiana has really good programs, from what I > can recall, for deaf children. > > Your school district should be setting you up with early > intervention. . It is up to you and your family if you want to sign > or not. I personally do, and I also think it is a good way to > provide your child with communication while you decide what is the > best communication path to follow. You can use it as a bridge and > then not use it as your family becomes more comfortable with oral > methods, or you can continue signing and incorporate speech if you > want...and meet people you might not have met. > > There are a lot of options out there. Best wishes to you, > > > If no one takes the time to explain things to you, how would you > know? I'm sure you're like many of the rest of us here in that > we've never really known a deaf or hard of hearing person before, > our children are the first. There are a couple of books that are > great for parents. Of course the exact titles seem to be escaping > from my aging mind. One is by Sue Schwartz " Choices in Deafness " . > The other one I think is called " You and your Deaf Child " . > > > > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 I will email you on this later, but in the meantime if I were you I would contact Indiana School for the Deaf. Maybe not today. I am going to contact somebody I know who is moving to Indiana. Another resource for you right now is American Society for Deaf Children at http://www.deafchildren.org. ASDC also has a list serve, but this list has teachers, therapists, deaf adults on it. Sometimes it can be controversial. I am suggesting it because you sound like you can use immediate support and i think there are people from Indiana on the list. There is a link to the list there. By the way, the only reason we got a CT scan was because Hayley had seizures, and then later we got one when we decided on a cochlear impplant for her. > > > > If there are programs for deaf children in the area, boy I sure can't find > them. I've looked online for days and found an auditory - verbal therapy > services center in Merrillville which is about 25-30 minutes from my house. > I've left messages inquiring about their facility, etc. with no return call > as of yet. I'll give them a week and then call back again. Is this > something I should be looking into? > > was diagnosed with congenital sensorineural deafness at the age of 8. > I actually had the info on it and showed the doctor and he said yes, that is > what she has. Needless to say, that is as far as its gone. Now I am > reading things about kidney problems due to hearing loss on this website. > Should I be concerned with this? Who should I be address these issues with? > I just feel very lost. There are no other children in 's school with > a hearing loss like hers. The ones that do have hearing loss have downs > syndrome and their parents aren't sure where I should go either with my > questions. Then I also read on here that I should have gotten a CT scan or > an MRI? No one even brought those up to me! Should I have this done now? > Is it necessary now? > > Sorry for the long response. I just feel very lost in my daughter's silent > world! > > Diane > > Re: I feel really dumb > > > > Diane > > > > Sorry, I have been on vacation and did not see your post. I see that > > you are in Indiana. Indiana has really good programs, from what I > > can recall, for deaf children. > > > > Your school district should be setting you up with early > > intervention. . It is up to you and your family if you want to sign > > or not. I personally do, and I also think it is a good way to > > provide your child with communication while you decide what is the > > best communication path to follow. You can use it as a bridge and > > then not use it as your family becomes more comfortable with oral > > methods, or you can continue signing and incorporate speech if you > > want...and meet people you might not have met. > > > > There are a lot of options out there. Best wishes to you, > > > > > > If no one takes the time to explain things to you, how would you > > know? I'm sure you're like many of the rest of us here in that > > we've never really known a deaf or hard of hearing person before, > > our children are the first. There are a couple of books that are > > great for parents. Of course the exact titles seem to be escaping > > from my aging mind. One is by Sue Schwartz " Choices in Deafness " . > > The other one I think is called " You and your Deaf Child " . > > > > > > > > > > > > > > > > > > > All messages posted to this list are private and confidential. Each post > is the intellectual property of the author and therefore subject to > copyright restrictions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 , I can't thank you enough for your help. You have no idea what this means to me - wait, yes you do don't you! Thanks again! Diane Re: I feel really dumb > > > > > > > Diane > > > > > > Sorry, I have been on vacation and did not see your post. I see > that > > > you are in Indiana. Indiana has really good programs, from what I > > > can recall, for deaf children. > > > > > > Your school district should be setting you up with early > > > intervention. . It is up to you and your family if you want to > sign > > > or not. I personally do, and I also think it is a good way to > > > provide your child with communication while you decide what is the > > > best communication path to follow. You can use it as a bridge and > > > then not use it as your family becomes more comfortable with oral > > > methods, or you can continue signing and incorporate speech if you > > > want...and meet people you might not have met. > > > > > > There are a lot of options out there. Best wishes to you, > > > > > > > > > If no one takes the time to explain things to you, how would you > > > know? I'm sure you're like many of the rest of us here in that > > > we've never really known a deaf or hard of hearing person before, > > > our children are the first. There are a couple of books that are > > > great for parents. Of course the exact titles seem to be escaping > > > from my aging mind. One is by Sue Schwartz " Choices in Deafness " . > > > The other one I think is called " You and your Deaf Child " . > > > > > > > > > > > > > > > > > > > > > > > > > > > > All messages posted to this list are private and confidential. > Each post > > is the intellectual property of the author and therefore subject to > > copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Diane, I know how hard this is. If it is ok, I will e-mail you directly the name and phone number of an amazing Cert. AVT in Indy. Both of my daughters where diagnosed in Indy, and she was and after all these years still is one of the most important people in our lives. She will be able to help you know what options are available in Indiana. AB 8/99 Holly AB 8/99 Re: I feel really dumb - Indianapolis is 2 1/2 hours from us! I feel really dumb > > > I must admit to you all, I feel really dumb about the entire loss of > hearing issues with my daughter because I don't feel as though I have > been properly informed. After was diagnoised with hearing loss, > they fitted her with aids and said off you go! They showed us how to > care for them but that was it. I don't know if I should be enrolling > her in any type of classes to help her improve the use of her aids, I > don't know if sign language is something that I need to look into, > etc. I read the posts on here with the abreviations and have no clue > as to what you all are saying! I've asked the audiologist what they > think and they are just so casual about it all; oh, she is just fine > they say. I want to make her hearing impaired world as easy as > possible. Any suggestions would be greatly apprecaited! FYI - I live > in Northwest Indiana (Valparaiso). Thanks! Diane > > > > > > > > All messages posted to this list are private and confidential. Each post is the > intellectual property of the author and therefore subject to copyright > restrictions. > Quote Link to comment Share on other sites More sharing options...
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