Re: Types of Apraxia - New to the Group

[Guest guest]

Certainly no 2 kids are the same. I'm just sharing what has worked for

my children. ASD and apraxia would be a lot easier to deal with if

every child responded in the same way to each intervention!

Individuality isn't always a positive, right? Unfortunately we can

try to learn from each other, but essentially finding what works for

each child is trial and error.

My kids were both inconsistent, and they both had trouble with

language production, but ABA was a godsend for them both. There are of

course a lot of variables in any ABA program - the qualifications and

experience of the therapists, how well the therapists (and the case

supervisor) understand your child, how good the programming is, etc. I

don't know anything about Kaufman, but my daughter had very good

results with the Kaufman kit. The cards gave her gradual refinements

in her approximations for a variety of words. This was very helpful

and reduced her frustration.

> >

> > I'm sorry to hear that your son had a bad experience with ABA. It was

> > the one therapy that helped my daughter overcome her apraxia - our

> > approach was modified so that she didn't feel pressured to do things

> > she couldn't do yet. She really needed the intensity and reinforcement

> > that she got in ABA. Have you tried the Kaufman kit? Our case

> > supervisor used it and I was very impressed. It really helps a child

> > make incremental improvements in artic.

> >

> >

> >

>

[Guest guest]

hello every one testing to see if this message goes though

when my son 2 or all most 3 the doctor said he had apraxia

<sdawneb@...> wrote:

Hi ,

I went to the baby department of my local Wal-Mart and found a child

potty seat that sits on the toilet seat. It was right by the little

potties. It has handles on the side and my son loves it.

Bowden

> >

> > Hi Joni -

> >

> > You're not being nosey. I'm happy to share. I also wish I could

read

> > more from parents with teenagers and older children with

apraxia. I

> have

> > felt very alone with this problem. When was diagnosed 10

years

> ago,

> > information was very scarce. It has been a struggle to

understand

> how to

> > help because apraxia is still not as well understood as

autism

> or

> > down syndrome, for example.

> >

> > When was 6 he was fully verbal, but his speech was not easy

for

> > most people to understand. He was completely toliet trained at 4,

> > because of a skilled behavioral consultant and weeks of intense

> work in

> > the bathroom for 8 hours a day. (I can give you some suggestions

if

> you

> > are interested.) was very social at 6, and well liked by

other

> > kids. He fit in pretty well, even though he was not as mature

for

> his

> > age. He was in a general education classroom with a

> paraprofessional.

> > His behavior was excellent. He followed rules and routines well.

> This

> > was accomplished through years of working with him in a home-

based

> > program and a pre-school with a private aide. He was very

> uncoordinated,

> > and could not dress himself, play sports or games requiring

> sequencing

> > of movements. He was hypotonic from birth, and had a major right

> head

> > tilt, which is now completely gone. He was not able to cut with

> > scissors, draw or write other than scribbling, but he talked

about

> what

> > he was trying to draw or write a lot. His teachers and the IEP

team

> > thought his reading was on right on target for his age, and that

I

> was

> > too worried about that. (He loved books, and he is still is a

book

> > fanatic.) As it turned out, I was right. We were all " fooled " by

his

> > ability to " read " . It was very strange. He could look at the

> pictures,

> > tell the story and answer questions correctly. He could even

> predict and

> > infer. It appeared that he was actually reading. But as it

turned

> out,

> > he was not truly reading. We finally figured out that he is

severely

> > dyslexic when he was in 3rd grade.

> >

> > has never not been in speech therapy, but I began taking

> out

> > of school for tutoring and therapies when he was in 3rd grade. He

> > learned academic skills through specialized programs, with very

> skilled

> > teachers. One of the best things we did was to go to the Hope

> Center in

> > Wisconsin for the Dyslexia program. It is quite

alternative -

> but

> > very effective for . Three years ago, when was entering

6th

> > grade, I finally decided that I had to start a school because no

one

> > seemed to know how to teach children with complex learning

> disabilities.

> > We use a wide variety of techniques there. He loves the

computer,

> and

> > taught himself to use a mouse whe he was 3. His typing is very

> slow -

> > but he searches the internet very quickly for things he wants to

> read

> > about! Learning is best achieved through motivation, and by

keeping

> the

> > anxiety level low.

> >

> > By the way, what is SID?

> >

> > Bonnie

> >

> > > >Hi Bonnie,

> > > Thanks for sharing! I was very interested to read your post. I

> have a

> > > daughter that is severely dyspraxic who will be 6 in February.

On

> > > this message board I typically dont see much posted from

parents

> > > who's children are teenagers.

> > > Even with therapy and supplements I wonder what is ahead of us

for

> > > Gracie in her teen years. It is a very slow road for us.

Gracie

> only

> > > says usually 1-2 words at a time, mostly nouns some verbs.

Still

> is

> > > unable to dress herself, unable 90% of the time to use the

toilet,

> > > unable to feed herself with utensils still uses her hands to

eat,

> > > unable to ride a bike or big toy. She also has been diagnosed

with

> > > SID, ADHD, Hypotonia.

> > > I would love to hear from you more about where your son was at

> > > developmentally at this younger age and what types of therapy

you

> > > have found that really worked for him. Also what types of

things

> do

> > > you do now to help him to compensate for his disablilities if

any.

> > > Such as you say he loves to read but cannot write, does using

the

> > > computer to write help him, or is that not an option for him?

I

> guess

> > > I'm very curious to know what life looks like for a teenager

with

> > > this type of disablilty and how you handle things.

> > >

> > > Thank you so much for your post, I look forward to hearing

more

> from

> > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > Thanks,

> > > Joni

> > >

> >

> >

> >

> >

[Guest guest]

We started using the Kaufman cards with my daughter right after she

turned 2. Her speech therapist did not use them - our ABA case

supervisor suggested we get them, and all our ABA therapists used them

with her. A parent could easily use them, but given the intensity of

her therapy I did not myself use them much with her. My daughter loved

her ABA sessions and her therapists - after her program ended, she

cried we explained that she didn't need to work with them any more.

I know that my children's therapists (speech and OT) are not supposed

to suggest any diagnosis to us. I think it can be frustrating at times

for an SLP if they think the dx is incorrect. I think it's a legal

issue, since they are not doctors. A SLP told me that at some point

any way... I'll ask my son's SLP about this issue tomorrow.

> > > >

> > > > I'm sorry to hear that your son had a bad experience with ABA.

> It was

> > > > the one therapy that helped my daughter overcome her apraxia -

> our

> > > > approach was modified so that she didn't feel pressured to do

> things

> > > > she couldn't do yet. She really needed the intensity and

> reinforcement

> > > > that she got in ABA. Have you tried the Kaufman kit? Our case

> > > > supervisor used it and I was very impressed. It really helps a

> child

> > > > make incremental improvements in artic.

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

,

How old was your child when you started her on the Kaufman Kit?

Were you able to do it yourself or did you have an SLP trained in

the method? I'm wondering if there is a particular age that is best

to start this type of therapy. Anyone else with ideas about this

feel free to comment too.

Just as an aside, I'm pretty surprised Kaufman missed an

apraxia dx; she is supposed to be one of the experts. That is very

frustrating, I'm sure.

Kristi

> > >

> > > I'm sorry to hear that your son had a bad experience with ABA.

It was

> > > the one therapy that helped my daughter overcome her apraxia -

our

> > > approach was modified so that she didn't feel pressured to do

things

> > > she couldn't do yet. She really needed the intensity and

reinforcement

> > > that she got in ABA. Have you tried the Kaufman kit? Our case

> > > supervisor used it and I was very impressed. It really helps a

child

> > > make incremental improvements in artic.

> > >

> > >

> > >

> >

>

[Guest guest]

Hi I work for the company Your Baby Can Read! I came across your

group and I am very inspired by your posts. I tried to post earlier

today but I was unable to get it through. We have an early reading

program that teaches reading through multi-sensory stimulation. The

program consists of 5 DVDs and supporting Sliding Word and Picture

Cards, it was developed by a doctor for children 3 months to 5

years.

The program has helped many children with Dyslexia, Autism, Down

syndrome. I think that it could be a great addition and very helpful

for your children too, because it stimulates communication, this is

why it is helpful for children with Downs. Your Baby Can Read!

introduces the written word at the same time it introduces the

object, it also shows reading from left to right using

illustrations, the child is then asked to do an object, engaging all

of the senses. If any of you would like to receive a Free Starter

Disk, please email me with your email address

atyourbabycanread@... and we will be more

than happy to get this wonderful program out to you. If you would

like to check out our web site it is at www.teachyourbaby.com. You

will find parent testimonials and videos of children reading.

Sincerely,

You Baby Can Read Staff

> > >

> > > Hi Joni -

> > >

> > > You're not being nosey. I'm happy to share. I also wish I

could

> read

> > > more from parents with teenagers and older children with

> apraxia. I

> > have

> > > felt very alone with this problem. When was diagnosed 10

> years

> > ago,

> > > information was very scarce. It has been a struggle to

> understand

> > how to

> > > help because apraxia is still not as well understood as

> autism

> > or

> > > down syndrome, for example.

> > >

> > > When was 6 he was fully verbal, but his speech was not

easy

> for

> > > most people to understand. He was completely toliet trained at

4,

> > > because of a skilled behavioral consultant and weeks of

intense

> > work in

> > > the bathroom for 8 hours a day. (I can give you some

suggestions

> if

> > you

> > > are interested.) was very social at 6, and well liked by

> other

> > > kids. He fit in pretty well, even though he was not as mature

> for

> > his

> > > age. He was in a general education classroom with a

> > paraprofessional.

> > > His behavior was excellent. He followed rules and routines

well.

> > This

> > > was accomplished through years of working with him in a home-

> based

> > > program and a pre-school with a private aide. He was very

> > uncoordinated,

> > > and could not dress himself, play sports or games requiring

> > sequencing

> > > of movements. He was hypotonic from birth, and had a major

right

> > head

> > > tilt, which is now completely gone. He was not able to cut with

> > > scissors, draw or write other than scribbling, but he talked

> about

> > what

> > > he was trying to draw or write a lot. His teachers and the IEP

> team

> > > thought his reading was on right on target for his age, and

that

> I

> > was

> > > too worried about that. (He loved books, and he is still is a

> book

> > > fanatic.) As it turned out, I was right. We were all " fooled "

by

> his

> > > ability to " read " . It was very strange. He could look at the

> > pictures,

> > > tell the story and answer questions correctly. He could even

> > predict and

> > > infer. It appeared that he was actually reading. But as it

> turned

> > out,

> > > he was not truly reading. We finally figured out that he is

> severely

> > > dyslexic when he was in 3rd grade.

> > >

> > > has never not been in speech therapy, but I began taking

>

> > out

> > > of school for tutoring and therapies when he was in 3rd grade.

He

> > > learned academic skills through specialized programs, with

very

> > skilled

> > > teachers. One of the best things we did was to go to the Hope

> > Center in

> > > Wisconsin for the Dyslexia program. It is quite

> alternative -

> > but

> > > very effective for . Three years ago, when was

entering

> 6th

> > > grade, I finally decided that I had to start a school because

no

> one

> > > seemed to know how to teach children with complex learning

> > disabilities.

> > > We use a wide variety of techniques there. He loves the

> computer,

> > and

> > > taught himself to use a mouse whe he was 3. His typing is very

> > slow -

> > > but he searches the internet very quickly for things he wants

to

> > read

> > > about! Learning is best achieved through motivation, and by

> keeping

> > the

> > > anxiety level low.

> > >

> > > By the way, what is SID?

> > >

> > > Bonnie

> > >

> > > > >Hi Bonnie,

> > > > Thanks for sharing! I was very interested to read your post.

I

> > have a

> > > > daughter that is severely dyspraxic who will be 6 in

February.

> On

> > > > this message board I typically dont see much posted from

> parents

> > > > who's children are teenagers.

> > > > Even with therapy and supplements I wonder what is ahead of

us

> for

> > > > Gracie in her teen years. It is a very slow road for us.

> Gracie

> > only

> > > > says usually 1-2 words at a time, mostly nouns some verbs.

> Still

> > is

> > > > unable to dress herself, unable 90% of the time to use the

> toilet,

> > > > unable to feed herself with utensils still uses her hands to

> eat,

> > > > unable to ride a bike or big toy. She also has been

diagnosed

> with

> > > > SID, ADHD, Hypotonia.

> > > > I would love to hear from you more about where your son was

at

> > > > developmentally at this younger age and what types of

therapy

> you

> > > > have found that really worked for him. Also what types of

> things

> > do

> > > > you do now to help him to compensate for his disablilities

if

> any.

> > > > Such as you say he loves to read but cannot write, does

using

> the

> > > > computer to write help him, or is that not an option for

him?

> I

> > guess

> > > > I'm very curious to know what life looks like for a teenager

> with

> > > > this type of disablilty and how you handle things.

> > > >

> > > > Thank you so much for your post, I look forward to hearing

> more

> > from

> > > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > > Thanks,

> > > > Joni

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi ,

I went to the baby department of my local Wal-Mart and found a child

potty seat that sits on the toilet seat. It was right by the little

potties. It has handles on the side and my son loves it.

Bowden

> >

> > Hi Joni -

> >

> > You're not being nosey. I'm happy to share. I also wish I could

read

> > more from parents with teenagers and older children with

apraxia. I

> have

> > felt very alone with this problem. When was diagnosed 10

years

> ago,

> > information was very scarce. It has been a struggle to

understand

> how to

> > help because apraxia is still not as well understood as

autism

> or

> > down syndrome, for example.

> >

> > When was 6 he was fully verbal, but his speech was not easy

for

> > most people to understand. He was completely toliet trained at 4,

> > because of a skilled behavioral consultant and weeks of intense

> work in

> > the bathroom for 8 hours a day. (I can give you some suggestions

if

> you

> > are interested.) was very social at 6, and well liked by

other

> > kids. He fit in pretty well, even though he was not as mature

for

> his

> > age. He was in a general education classroom with a

> paraprofessional.

> > His behavior was excellent. He followed rules and routines well.

> This

> > was accomplished through years of working with him in a home-

based

> > program and a pre-school with a private aide. He was very

> uncoordinated,

> > and could not dress himself, play sports or games requiring

> sequencing

> > of movements. He was hypotonic from birth, and had a major right

> head

> > tilt, which is now completely gone. He was not able to cut with

> > scissors, draw or write other than scribbling, but he talked

about

> what

> > he was trying to draw or write a lot. His teachers and the IEP

team

> > thought his reading was on right on target for his age, and that

I

> was

> > too worried about that. (He loved books, and he is still is a

book

> > fanatic.) As it turned out, I was right. We were all " fooled " by

his

> > ability to " read " . It was very strange. He could look at the

> pictures,

> > tell the story and answer questions correctly. He could even

> predict and

> > infer. It appeared that he was actually reading. But as it

turned

> out,

> > he was not truly reading. We finally figured out that he is

severely

> > dyslexic when he was in 3rd grade.

> >

> > has never not been in speech therapy, but I began taking

> out

> > of school for tutoring and therapies when he was in 3rd grade. He

> > learned academic skills through specialized programs, with very

> skilled

> > teachers. One of the best things we did was to go to the Hope

> Center in

> > Wisconsin for the Dyslexia program. It is quite

alternative -

> but

> > very effective for . Three years ago, when was entering

6th

> > grade, I finally decided that I had to start a school because no

one

> > seemed to know how to teach children with complex learning

> disabilities.

> > We use a wide variety of techniques there. He loves the

computer,

> and

> > taught himself to use a mouse whe he was 3. His typing is very

> slow -

> > but he searches the internet very quickly for things he wants to

> read

> > about! Learning is best achieved through motivation, and by

keeping

> the

> > anxiety level low.

> >

> > By the way, what is SID?

> >

> > Bonnie

> >

> > > >Hi Bonnie,

> > > Thanks for sharing! I was very interested to read your post. I

> have a

> > > daughter that is severely dyspraxic who will be 6 in February.

On

> > > this message board I typically dont see much posted from

parents

> > > who's children are teenagers.

> > > Even with therapy and supplements I wonder what is ahead of us

for

> > > Gracie in her teen years. It is a very slow road for us.

Gracie

> only

> > > says usually 1-2 words at a time, mostly nouns some verbs.

Still

> is

> > > unable to dress herself, unable 90% of the time to use the

toilet,

> > > unable to feed herself with utensils still uses her hands to

eat,

> > > unable to ride a bike or big toy. She also has been diagnosed

with

> > > SID, ADHD, Hypotonia.

> > > I would love to hear from you more about where your son was at

> > > developmentally at this younger age and what types of therapy

you

> > > have found that really worked for him. Also what types of

things

> do

> > > you do now to help him to compensate for his disablilities if

any.

> > > Such as you say he loves to read but cannot write, does using

the

> > > computer to write help him, or is that not an option for him?

I

> guess

> > > I'm very curious to know what life looks like for a teenager

with

> > > this type of disablilty and how you handle things.

> > >

> > > Thank you so much for your post, I look forward to hearing

more

> from

> > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > Thanks,

> > > Joni

> > >

> >

> >

> >

> >

[Guest guest]

hello every one testing to see if this message goes though

when my son 2 or all most 3 the doctor said he had apraxia

<sdawneb@...> wrote:

Hi ,

I went to the baby department of my local Wal-Mart and found a child

potty seat that sits on the toilet seat. It was right by the little

potties. It has handles on the side and my son loves it.

Bowden

> >

> > Hi Joni -

> >

> > You're not being nosey. I'm happy to share. I also wish I could

read

> > more from parents with teenagers and older children with

apraxia. I

> have

> > felt very alone with this problem. When was diagnosed 10

years

> ago,

> > information was very scarce. It has been a struggle to

understand

> how to

> > help because apraxia is still not as well understood as

autism

> or

> > down syndrome, for example.

> >

> > When was 6 he was fully verbal, but his speech was not easy

for

> > most people to understand. He was completely toliet trained at 4,

> > because of a skilled behavioral consultant and weeks of intense

> work in

> > the bathroom for 8 hours a day. (I can give you some suggestions

if

> you

> > are interested.) was very social at 6, and well liked by

other

> > kids. He fit in pretty well, even though he was not as mature

for

> his

> > age. He was in a general education classroom with a

> paraprofessional.

> > His behavior was excellent. He followed rules and routines well.

> This

> > was accomplished through years of working with him in a home-

based

> > program and a pre-school with a private aide. He was very

> uncoordinated,

> > and could not dress himself, play sports or games requiring

> sequencing

> > of movements. He was hypotonic from birth, and had a major right

> head

> > tilt, which is now completely gone. He was not able to cut with

> > scissors, draw or write other than scribbling, but he talked

about

> what

> > he was trying to draw or write a lot. His teachers and the IEP

team

> > thought his reading was on right on target for his age, and that

I

> was

> > too worried about that. (He loved books, and he is still is a

book

> > fanatic.) As it turned out, I was right. We were all " fooled " by

his

> > ability to " read " . It was very strange. He could look at the

> pictures,

> > tell the story and answer questions correctly. He could even

> predict and

> > infer. It appeared that he was actually reading. But as it

turned

> out,

> > he was not truly reading. We finally figured out that he is

severely

> > dyslexic when he was in 3rd grade.

> >

> > has never not been in speech therapy, but I began taking

> out

> > of school for tutoring and therapies when he was in 3rd grade. He

> > learned academic skills through specialized programs, with very

> skilled

> > teachers. One of the best things we did was to go to the Hope

> Center in

> > Wisconsin for the Dyslexia program. It is quite

alternative -

> but

> > very effective for . Three years ago, when was entering

6th

> > grade, I finally decided that I had to start a school because no

one

> > seemed to know how to teach children with complex learning

> disabilities.

> > We use a wide variety of techniques there. He loves the

computer,

> and

> > taught himself to use a mouse whe he was 3. His typing is very

> slow -

> > but he searches the internet very quickly for things he wants to

> read

> > about! Learning is best achieved through motivation, and by

keeping

> the

> > anxiety level low.

> >

> > By the way, what is SID?

> >

> > Bonnie

> >

> > > >Hi Bonnie,

> > > Thanks for sharing! I was very interested to read your post. I

> have a

> > > daughter that is severely dyspraxic who will be 6 in February.

On

> > > this message board I typically dont see much posted from

parents

> > > who's children are teenagers.

> > > Even with therapy and supplements I wonder what is ahead of us

for

> > > Gracie in her teen years. It is a very slow road for us.

Gracie

> only

> > > says usually 1-2 words at a time, mostly nouns some verbs.

Still

> is

> > > unable to dress herself, unable 90% of the time to use the

toilet,

> > > unable to feed herself with utensils still uses her hands to

eat,

> > > unable to ride a bike or big toy. She also has been diagnosed

with

> > > SID, ADHD, Hypotonia.

> > > I would love to hear from you more about where your son was at

> > > developmentally at this younger age and what types of therapy

you

> > > have found that really worked for him. Also what types of

things

> do

> > > you do now to help him to compensate for his disablilities if

any.

> > > Such as you say he loves to read but cannot write, does using

the

> > > computer to write help him, or is that not an option for him?

I

> guess

> > > I'm very curious to know what life looks like for a teenager

with

> > > this type of disablilty and how you handle things.

> > >

> > > Thank you so much for your post, I look forward to hearing

more

> from

> > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > Thanks,

> > > Joni

> > >

> >

> >

> >

> >

[Guest guest]

We started using the Kaufman cards with my daughter right after she

turned 2. Her speech therapist did not use them - our ABA case

supervisor suggested we get them, and all our ABA therapists used them

with her. A parent could easily use them, but given the intensity of

her therapy I did not myself use them much with her. My daughter loved

her ABA sessions and her therapists - after her program ended, she

cried we explained that she didn't need to work with them any more.

I know that my children's therapists (speech and OT) are not supposed

to suggest any diagnosis to us. I think it can be frustrating at times

for an SLP if they think the dx is incorrect. I think it's a legal

issue, since they are not doctors. A SLP told me that at some point

any way... I'll ask my son's SLP about this issue tomorrow.

> > > >

> > > > I'm sorry to hear that your son had a bad experience with ABA.

> It was

> > > > the one therapy that helped my daughter overcome her apraxia -

> our

> > > > approach was modified so that she didn't feel pressured to do

> things

> > > > she couldn't do yet. She really needed the intensity and

> reinforcement

> > > > that she got in ABA. Have you tried the Kaufman kit? Our case

> > > > supervisor used it and I was very impressed. It really helps a

> child

> > > > make incremental improvements in artic.

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Hi I work for the company Your Baby Can Read! I came across your

group and I am very inspired by your posts. I tried to post earlier

today but I was unable to get it through. We have an early reading

program that teaches reading through multi-sensory stimulation. The

program consists of 5 DVDs and supporting Sliding Word and Picture

Cards, it was developed by a doctor for children 3 months to 5

years.

The program has helped many children with Dyslexia, Autism, Down

syndrome. I think that it could be a great addition and very helpful

for your children too, because it stimulates communication, this is

why it is helpful for children with Downs. Your Baby Can Read!

introduces the written word at the same time it introduces the

object, it also shows reading from left to right using

illustrations, the child is then asked to do an object, engaging all

of the senses. If any of you would like to receive a Free Starter

Disk, please email me with your email address

atyourbabycanread@... and we will be more

than happy to get this wonderful program out to you. If you would

like to check out our web site it is at www.teachyourbaby.com. You

will find parent testimonials and videos of children reading.

Sincerely,

You Baby Can Read Staff

> > >

> > > Hi Joni -

> > >

> > > You're not being nosey. I'm happy to share. I also wish I

could

> read

> > > more from parents with teenagers and older children with

> apraxia. I

> > have

> > > felt very alone with this problem. When was diagnosed 10

> years

> > ago,

> > > information was very scarce. It has been a struggle to

> understand

> > how to

> > > help because apraxia is still not as well understood as

> autism

> > or

> > > down syndrome, for example.

> > >

> > > When was 6 he was fully verbal, but his speech was not

easy

> for

> > > most people to understand. He was completely toliet trained at

4,

> > > because of a skilled behavioral consultant and weeks of

intense

> > work in

> > > the bathroom for 8 hours a day. (I can give you some

suggestions

> if

> > you

> > > are interested.) was very social at 6, and well liked by

> other

> > > kids. He fit in pretty well, even though he was not as mature

> for

> > his

> > > age. He was in a general education classroom with a

> > paraprofessional.

> > > His behavior was excellent. He followed rules and routines

well.

> > This

> > > was accomplished through years of working with him in a home-

> based

> > > program and a pre-school with a private aide. He was very

> > uncoordinated,

> > > and could not dress himself, play sports or games requiring

> > sequencing

> > > of movements. He was hypotonic from birth, and had a major

right

> > head

> > > tilt, which is now completely gone. He was not able to cut with

> > > scissors, draw or write other than scribbling, but he talked

> about

> > what

> > > he was trying to draw or write a lot. His teachers and the IEP

> team

> > > thought his reading was on right on target for his age, and

that

> I

> > was

> > > too worried about that. (He loved books, and he is still is a

> book

> > > fanatic.) As it turned out, I was right. We were all " fooled "

by

> his

> > > ability to " read " . It was very strange. He could look at the

> > pictures,

> > > tell the story and answer questions correctly. He could even

> > predict and

> > > infer. It appeared that he was actually reading. But as it

> turned

> > out,

> > > he was not truly reading. We finally figured out that he is

> severely

> > > dyslexic when he was in 3rd grade.

> > >

> > > has never not been in speech therapy, but I began taking

>

> > out

> > > of school for tutoring and therapies when he was in 3rd grade.

He

> > > learned academic skills through specialized programs, with

very

> > skilled

> > > teachers. One of the best things we did was to go to the Hope

> > Center in

> > > Wisconsin for the Dyslexia program. It is quite

> alternative -

> > but

> > > very effective for . Three years ago, when was

entering

> 6th

> > > grade, I finally decided that I had to start a school because

no

> one

> > > seemed to know how to teach children with complex learning

> > disabilities.

> > > We use a wide variety of techniques there. He loves the

> computer,

> > and

> > > taught himself to use a mouse whe he was 3. His typing is very

> > slow -

> > > but he searches the internet very quickly for things he wants

to

> > read

> > > about! Learning is best achieved through motivation, and by

> keeping

> > the

> > > anxiety level low.

> > >

> > > By the way, what is SID?

> > >

> > > Bonnie

> > >

> > > > >Hi Bonnie,

> > > > Thanks for sharing! I was very interested to read your post.

I

> > have a

> > > > daughter that is severely dyspraxic who will be 6 in

February.

> On

> > > > this message board I typically dont see much posted from

> parents

> > > > who's children are teenagers.

> > > > Even with therapy and supplements I wonder what is ahead of

us

> for

> > > > Gracie in her teen years. It is a very slow road for us.

> Gracie

> > only

> > > > says usually 1-2 words at a time, mostly nouns some verbs.

> Still

> > is

> > > > unable to dress herself, unable 90% of the time to use the

> toilet,

> > > > unable to feed herself with utensils still uses her hands to

> eat,

> > > > unable to ride a bike or big toy. She also has been

diagnosed

> with

> > > > SID, ADHD, Hypotonia.

> > > > I would love to hear from you more about where your son was

at

> > > > developmentally at this younger age and what types of

therapy

> you

> > > > have found that really worked for him. Also what types of

> things

> > do

> > > > you do now to help him to compensate for his disablilities

if

> any.

> > > > Such as you say he loves to read but cannot write, does

using

> the

> > > > computer to write help him, or is that not an option for

him?

> I

> > guess

> > > > I'm very curious to know what life looks like for a teenager

> with

> > > > this type of disablilty and how you handle things.

> > > >

> > > > Thank you so much for your post, I look forward to hearing

> more

> > from

> > > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > > Thanks,

> > > > Joni

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

HEY ALL... I can tell you this is a great program. I saw it on an

infomercial back in Feb 06, my boy was 3.3 then. When my mother in

law came over bragging about her daughters 3 year old the other day

I pulled out those laminated cards and my boy preceeded to site READ

(no pictures on these cards) every word. Words like happy,

chimpanzee, calf, shoulders. It's pretty cool how this works, he

was clued to those videos, and followed them with imitation.

Question for the Staff. We've been all the way through the reveiw

DVD and he's quite " done " with the program. Whats next? Is there a

follow up or continued program?

Please let me know..

> > > >

> > > > Hi Joni -

> > > >

> > > > You're not being nosey. I'm happy to share. I also wish I

> could

> > read

> > > > more from parents with teenagers and older children with

> > apraxia. I

> > > have

> > > > felt very alone with this problem. When was diagnosed

10

> > years

> > > ago,

> > > > information was very scarce. It has been a struggle to

> > understand

> > > how to

> > > > help because apraxia is still not as well understood as

> > autism

> > > or

> > > > down syndrome, for example.

> > > >

> > > > When was 6 he was fully verbal, but his speech was not

> easy

> > for

> > > > most people to understand. He was completely toliet trained

at

> 4,

> > > > because of a skilled behavioral consultant and weeks of

> intense

> > > work in

> > > > the bathroom for 8 hours a day. (I can give you some

> suggestions

> > if

> > > you

> > > > are interested.) was very social at 6, and well liked

by

> > other

> > > > kids. He fit in pretty well, even though he was not as

mature

> > for

> > > his

> > > > age. He was in a general education classroom with a

> > > paraprofessional.

> > > > His behavior was excellent. He followed rules and routines

> well.

> > > This

> > > > was accomplished through years of working with him in a home-

> > based

> > > > program and a pre-school with a private aide. He was very

> > > uncoordinated,

> > > > and could not dress himself, play sports or games requiring

> > > sequencing

> > > > of movements. He was hypotonic from birth, and had a major

> right

> > > head

> > > > tilt, which is now completely gone. He was not able to cut

with

> > > > scissors, draw or write other than scribbling, but he talked

> > about

> > > what

> > > > he was trying to draw or write a lot. His teachers and the

IEP

> > team

> > > > thought his reading was on right on target for his age, and

> that

> > I

> > > was

> > > > too worried about that. (He loved books, and he is still is

a

> > book

> > > > fanatic.) As it turned out, I was right. We were

all " fooled "

> by

> > his

> > > > ability to " read " . It was very strange. He could look at the

> > > pictures,

> > > > tell the story and answer questions correctly. He could even

> > > predict and

> > > > infer. It appeared that he was actually reading. But as it

> > turned

> > > out,

> > > > he was not truly reading. We finally figured out that he is

> > severely

> > > > dyslexic when he was in 3rd grade.

> > > >

> > > > has never not been in speech therapy, but I began

taking

> >

> > > out

> > > > of school for tutoring and therapies when he was in 3rd

grade.

> He

> > > > learned academic skills through specialized programs, with

> very

> > > skilled

> > > > teachers. One of the best things we did was to go to the

Hope

> > > Center in

> > > > Wisconsin for the Dyslexia program. It is quite

> > alternative -

> > > but

> > > > very effective for . Three years ago, when was

> entering

> > 6th

> > > > grade, I finally decided that I had to start a school

because

> no

> > one

> > > > seemed to know how to teach children with complex learning

> > > disabilities.

> > > > We use a wide variety of techniques there. He loves the

> > computer,

> > > and

> > > > taught himself to use a mouse whe he was 3. His typing is

very

> > > slow -

> > > > but he searches the internet very quickly for things he

wants

> to

> > > read

> > > > about! Learning is best achieved through motivation, and by

> > keeping

> > > the

> > > > anxiety level low.

> > > >

> > > > By the way, what is SID?

> > > >

> > > > Bonnie

> > > >

> > > > > >Hi Bonnie,

> > > > > Thanks for sharing! I was very interested to read your

post.

> I

> > > have a

> > > > > daughter that is severely dyspraxic who will be 6 in

> February.

> > On

> > > > > this message board I typically dont see much posted from

> > parents

> > > > > who's children are teenagers.

> > > > > Even with therapy and supplements I wonder what is ahead

of

> us

> > for

> > > > > Gracie in her teen years. It is a very slow road for us.

> > Gracie

> > > only

> > > > > says usually 1-2 words at a time, mostly nouns some verbs.

> > Still

> > > is

> > > > > unable to dress herself, unable 90% of the time to use the

> > toilet,

> > > > > unable to feed herself with utensils still uses her hands

to

> > eat,

> > > > > unable to ride a bike or big toy. She also has been

> diagnosed

> > with

> > > > > SID, ADHD, Hypotonia.

> > > > > I would love to hear from you more about where your son

was

> at

> > > > > developmentally at this younger age and what types of

> therapy

> > you

> > > > > have found that really worked for him. Also what types of

> > things

> > > do

> > > > > you do now to help him to compensate for his disablilities

> if

> > any.

> > > > > Such as you say he loves to read but cannot write, does

> using

> > the

> > > > > computer to write help him, or is that not an option for

> him?

> > I

> > > guess

> > > > > I'm very curious to know what life looks like for a

teenager

> > with

> > > > > this type of disablilty and how you handle things.

> > > > >

> > > > > Thank you so much for your post, I look forward to hearing

> > more

> > > from

> > > > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > > > Thanks,

> > > > > Joni

> > > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

" I know that my children's therapists (speech and OT) are not supposed

to suggest any diagnosis to us. I think it can be frustrating at times

for an SLP if they think the dx is incorrect. I think it's a legal

issue, since they are not doctors. "

This is what I thought too, but then the neurologist we took my son

to said it seemed like my son had apraxia/dyspraxia, but that an SLP

would have to make the dx, so I don't know. At any rate, I could see

an OT/SLP resisting making diagnoses outside the scope of their field

(autism for example), but Kaufman is supposed to be an apraxia

expert, so it seems like she could have at least suggested the

possibility. Maybe she just didn't see it at that time. Who knows.

> > > > >

> > > > > I'm sorry to hear that your son had a bad experience with

ABA.

> > It was

> > > > > the one therapy that helped my daughter overcome her

apraxia -

> > our

> > > > > approach was modified so that she didn't feel pressured to

do

> > things

> > > > > she couldn't do yet. She really needed the intensity and

> > reinforcement

> > > > > that she got in ABA. Have you tried the Kaufman kit? Our

case

> > > > > supervisor used it and I was very impressed. It really

helps a

> > child

> > > > > make incremental improvements in artic.

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

HEY ALL... I can tell you this is a great program. I saw it on an

infomercial back in Feb 06, my boy was 3.3 then. When my mother in

law came over bragging about her daughters 3 year old the other day

I pulled out those laminated cards and my boy preceeded to site READ

(no pictures on these cards) every word. Words like happy,

chimpanzee, calf, shoulders. It's pretty cool how this works, he

was clued to those videos, and followed them with imitation.

Question for the Staff. We've been all the way through the reveiw

DVD and he's quite " done " with the program. Whats next? Is there a

follow up or continued program?

Please let me know..

> > > >

> > > > Hi Joni -

> > > >

> > > > You're not being nosey. I'm happy to share. I also wish I

> could

> > read

> > > > more from parents with teenagers and older children with

> > apraxia. I

> > > have

> > > > felt very alone with this problem. When was diagnosed

10

> > years

> > > ago,

> > > > information was very scarce. It has been a struggle to

> > understand

> > > how to

> > > > help because apraxia is still not as well understood as

> > autism

> > > or

> > > > down syndrome, for example.

> > > >

> > > > When was 6 he was fully verbal, but his speech was not

> easy

> > for

> > > > most people to understand. He was completely toliet trained

at

> 4,

> > > > because of a skilled behavioral consultant and weeks of

> intense

> > > work in

> > > > the bathroom for 8 hours a day. (I can give you some

> suggestions

> > if

> > > you

> > > > are interested.) was very social at 6, and well liked

by

> > other

> > > > kids. He fit in pretty well, even though he was not as

mature

> > for

> > > his

> > > > age. He was in a general education classroom with a

> > > paraprofessional.

> > > > His behavior was excellent. He followed rules and routines

> well.

> > > This

> > > > was accomplished through years of working with him in a home-

> > based

> > > > program and a pre-school with a private aide. He was very

> > > uncoordinated,

> > > > and could not dress himself, play sports or games requiring

> > > sequencing

> > > > of movements. He was hypotonic from birth, and had a major

> right

> > > head

> > > > tilt, which is now completely gone. He was not able to cut

with

> > > > scissors, draw or write other than scribbling, but he talked

> > about

> > > what

> > > > he was trying to draw or write a lot. His teachers and the

IEP

> > team

> > > > thought his reading was on right on target for his age, and

> that

> > I

> > > was

> > > > too worried about that. (He loved books, and he is still is

a

> > book

> > > > fanatic.) As it turned out, I was right. We were

all " fooled "

> by

> > his

> > > > ability to " read " . It was very strange. He could look at the

> > > pictures,

> > > > tell the story and answer questions correctly. He could even

> > > predict and

> > > > infer. It appeared that he was actually reading. But as it

> > turned

> > > out,

> > > > he was not truly reading. We finally figured out that he is

> > severely

> > > > dyslexic when he was in 3rd grade.

> > > >

> > > > has never not been in speech therapy, but I began

taking

> >

> > > out

> > > > of school for tutoring and therapies when he was in 3rd

grade.

> He

> > > > learned academic skills through specialized programs, with

> very

> > > skilled

> > > > teachers. One of the best things we did was to go to the

Hope

> > > Center in

> > > > Wisconsin for the Dyslexia program. It is quite

> > alternative -

> > > but

> > > > very effective for . Three years ago, when was

> entering

> > 6th

> > > > grade, I finally decided that I had to start a school

because

> no

> > one

> > > > seemed to know how to teach children with complex learning

> > > disabilities.

> > > > We use a wide variety of techniques there. He loves the

> > computer,

> > > and

> > > > taught himself to use a mouse whe he was 3. His typing is

very

> > > slow -

> > > > but he searches the internet very quickly for things he

wants

> to

> > > read

> > > > about! Learning is best achieved through motivation, and by

> > keeping

> > > the

> > > > anxiety level low.

> > > >

> > > > By the way, what is SID?

> > > >

> > > > Bonnie

> > > >

> > > > > >Hi Bonnie,

> > > > > Thanks for sharing! I was very interested to read your

post.

> I

> > > have a

> > > > > daughter that is severely dyspraxic who will be 6 in

> February.

> > On

> > > > > this message board I typically dont see much posted from

> > parents

> > > > > who's children are teenagers.

> > > > > Even with therapy and supplements I wonder what is ahead

of

> us

> > for

> > > > > Gracie in her teen years. It is a very slow road for us.

> > Gracie

> > > only

> > > > > says usually 1-2 words at a time, mostly nouns some verbs.

> > Still

> > > is

> > > > > unable to dress herself, unable 90% of the time to use the

> > toilet,

> > > > > unable to feed herself with utensils still uses her hands

to

> > eat,

> > > > > unable to ride a bike or big toy. She also has been

> diagnosed

> > with

> > > > > SID, ADHD, Hypotonia.

> > > > > I would love to hear from you more about where your son

was

> at

> > > > > developmentally at this younger age and what types of

> therapy

> > you

> > > > > have found that really worked for him. Also what types of

> > things

> > > do

> > > > > you do now to help him to compensate for his disablilities

> if

> > any.

> > > > > Such as you say he loves to read but cannot write, does

> using

> > the

> > > > > computer to write help him, or is that not an option for

> him?

> > I

> > > guess

> > > > > I'm very curious to know what life looks like for a

teenager

> > with

> > > > > this type of disablilty and how you handle things.

> > > > >

> > > > > Thank you so much for your post, I look forward to hearing

> > more

> > > from

> > > > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > > > Thanks,

> > > > > Joni

> > > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi ,

I will definitely check that out...thanks for your reply!!

> > >

> > > Hi Joni -

> > >

> > > You're not being nosey. I'm happy to share. I also wish I could

> read

> > > more from parents with teenagers and older children with

> apraxia. I

> > have

> > > felt very alone with this problem. When was diagnosed 10

> years

> > ago,

> > > information was very scarce. It has been a struggle to

> understand

> > how to

> > > help because apraxia is still not as well understood as

> autism

> > or

> > > down syndrome, for example.

> > >

> > > When was 6 he was fully verbal, but his speech was not

easy

> for

> > > most people to understand. He was completely toliet trained at

4,

> > > because of a skilled behavioral consultant and weeks of intense

> > work in

> > > the bathroom for 8 hours a day. (I can give you some

suggestions

> if

> > you

> > > are interested.) was very social at 6, and well liked by

> other

> > > kids. He fit in pretty well, even though he was not as mature

> for

> > his

> > > age. He was in a general education classroom with a

> > paraprofessional.

> > > His behavior was excellent. He followed rules and routines

well.

> > This

> > > was accomplished through years of working with him in a home-

> based

> > > program and a pre-school with a private aide. He was very

> > uncoordinated,

> > > and could not dress himself, play sports or games requiring

> > sequencing

> > > of movements. He was hypotonic from birth, and had a major

right

> > head

> > > tilt, which is now completely gone. He was not able to cut with

> > > scissors, draw or write other than scribbling, but he talked

> about

> > what

> > > he was trying to draw or write a lot. His teachers and the IEP

> team

> > > thought his reading was on right on target for his age, and

that

> I

> > was

> > > too worried about that. (He loved books, and he is still is a

> book

> > > fanatic.) As it turned out, I was right. We were all " fooled "

by

> his

> > > ability to " read " . It was very strange. He could look at the

> > pictures,

> > > tell the story and answer questions correctly. He could even

> > predict and

> > > infer. It appeared that he was actually reading. But as it

> turned

> > out,

> > > he was not truly reading. We finally figured out that he is

> severely

> > > dyslexic when he was in 3rd grade.

> > >

> > > has never not been in speech therapy, but I began taking

>

> > out

> > > of school for tutoring and therapies when he was in 3rd grade.

He

> > > learned academic skills through specialized programs, with very

> > skilled

> > > teachers. One of the best things we did was to go to the Hope

> > Center in

> > > Wisconsin for the Dyslexia program. It is quite

> alternative -

> > but

> > > very effective for . Three years ago, when was

entering

> 6th

> > > grade, I finally decided that I had to start a school because

no

> one

> > > seemed to know how to teach children with complex learning

> > disabilities.

> > > We use a wide variety of techniques there. He loves the

> computer,

> > and

> > > taught himself to use a mouse whe he was 3. His typing is very

> > slow -

> > > but he searches the internet very quickly for things he wants

to

> > read

> > > about! Learning is best achieved through motivation, and by

> keeping

> > the

> > > anxiety level low.

> > >

> > > By the way, what is SID?

> > >

> > > Bonnie

> > >

> > > > >Hi Bonnie,

> > > > Thanks for sharing! I was very interested to read your post.

I

> > have a

> > > > daughter that is severely dyspraxic who will be 6 in

February.

> On

> > > > this message board I typically dont see much posted from

> parents

> > > > who's children are teenagers.

> > > > Even with therapy and supplements I wonder what is ahead of

us

> for

> > > > Gracie in her teen years. It is a very slow road for us.

> Gracie

> > only

> > > > says usually 1-2 words at a time, mostly nouns some verbs.

> Still

> > is

> > > > unable to dress herself, unable 90% of the time to use the

> toilet,

> > > > unable to feed herself with utensils still uses her hands to

> eat,

> > > > unable to ride a bike or big toy. She also has been diagnosed

> with

> > > > SID, ADHD, Hypotonia.

> > > > I would love to hear from you more about where your son was at

> > > > developmentally at this younger age and what types of therapy

> you

> > > > have found that really worked for him. Also what types of

> things

> > do

> > > > you do now to help him to compensate for his disablilities if

> any.

> > > > Such as you say he loves to read but cannot write, does using

> the

> > > > computer to write help him, or is that not an option for him?

> I

> > guess

> > > > I'm very curious to know what life looks like for a teenager

> with

> > > > this type of disablilty and how you handle things.

> > > >

> > > > Thank you so much for your post, I look forward to hearing

> more

> > from

> > > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > > Thanks,

> > > > Joni

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

" I know that my children's therapists (speech and OT) are not supposed

to suggest any diagnosis to us. I think it can be frustrating at times

for an SLP if they think the dx is incorrect. I think it's a legal

issue, since they are not doctors. "

This is what I thought too, but then the neurologist we took my son

to said it seemed like my son had apraxia/dyspraxia, but that an SLP

would have to make the dx, so I don't know. At any rate, I could see

an OT/SLP resisting making diagnoses outside the scope of their field

(autism for example), but Kaufman is supposed to be an apraxia

expert, so it seems like she could have at least suggested the

possibility. Maybe she just didn't see it at that time. Who knows.

> > > > >

> > > > > I'm sorry to hear that your son had a bad experience with

ABA.

> > It was

> > > > > the one therapy that helped my daughter overcome her

apraxia -

> > our

> > > > > approach was modified so that she didn't feel pressured to

do

> > things

> > > > > she couldn't do yet. She really needed the intensity and

> > reinforcement

> > > > > that she got in ABA. Have you tried the Kaufman kit? Our

case

> > > > > supervisor used it and I was very impressed. It really

helps a

> > child

> > > > > make incremental improvements in artic.

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi ,

I will definitely check that out...thanks for your reply!!

> > >

> > > Hi Joni -

> > >

> > > You're not being nosey. I'm happy to share. I also wish I could

> read

> > > more from parents with teenagers and older children with

> apraxia. I

> > have

> > > felt very alone with this problem. When was diagnosed 10

> years

> > ago,

> > > information was very scarce. It has been a struggle to

> understand

> > how to

> > > help because apraxia is still not as well understood as

> autism

> > or

> > > down syndrome, for example.

> > >

> > > When was 6 he was fully verbal, but his speech was not

easy

> for

> > > most people to understand. He was completely toliet trained at

4,

> > > because of a skilled behavioral consultant and weeks of intense

> > work in

> > > the bathroom for 8 hours a day. (I can give you some

suggestions

> if

> > you

> > > are interested.) was very social at 6, and well liked by

> other

> > > kids. He fit in pretty well, even though he was not as mature

> for

> > his

> > > age. He was in a general education classroom with a

> > paraprofessional.

> > > His behavior was excellent. He followed rules and routines

well.

> > This

> > > was accomplished through years of working with him in a home-

> based

> > > program and a pre-school with a private aide. He was very

> > uncoordinated,

> > > and could not dress himself, play sports or games requiring

> > sequencing

> > > of movements. He was hypotonic from birth, and had a major

right

> > head

> > > tilt, which is now completely gone. He was not able to cut with

> > > scissors, draw or write other than scribbling, but he talked

> about

> > what

> > > he was trying to draw or write a lot. His teachers and the IEP

> team

> > > thought his reading was on right on target for his age, and

that

> I

> > was

> > > too worried about that. (He loved books, and he is still is a

> book

> > > fanatic.) As it turned out, I was right. We were all " fooled "

by

> his

> > > ability to " read " . It was very strange. He could look at the

> > pictures,

> > > tell the story and answer questions correctly. He could even

> > predict and

> > > infer. It appeared that he was actually reading. But as it

> turned

> > out,

> > > he was not truly reading. We finally figured out that he is

> severely

> > > dyslexic when he was in 3rd grade.

> > >

> > > has never not been in speech therapy, but I began taking

>

> > out

> > > of school for tutoring and therapies when he was in 3rd grade.

He

> > > learned academic skills through specialized programs, with very

> > skilled

> > > teachers. One of the best things we did was to go to the Hope

> > Center in

> > > Wisconsin for the Dyslexia program. It is quite

> alternative -

> > but

> > > very effective for . Three years ago, when was

entering

> 6th

> > > grade, I finally decided that I had to start a school because

no

> one

> > > seemed to know how to teach children with complex learning

> > disabilities.

> > > We use a wide variety of techniques there. He loves the

> computer,

> > and

> > > taught himself to use a mouse whe he was 3. His typing is very

> > slow -

> > > but he searches the internet very quickly for things he wants

to

> > read

> > > about! Learning is best achieved through motivation, and by

> keeping

> > the

> > > anxiety level low.

> > >

> > > By the way, what is SID?

> > >

> > > Bonnie

> > >

> > > > >Hi Bonnie,

> > > > Thanks for sharing! I was very interested to read your post.

I

> > have a

> > > > daughter that is severely dyspraxic who will be 6 in

February.

> On

> > > > this message board I typically dont see much posted from

> parents

> > > > who's children are teenagers.

> > > > Even with therapy and supplements I wonder what is ahead of

us

> for

> > > > Gracie in her teen years. It is a very slow road for us.

> Gracie

> > only

> > > > says usually 1-2 words at a time, mostly nouns some verbs.

> Still

> > is

> > > > unable to dress herself, unable 90% of the time to use the

> toilet,

> > > > unable to feed herself with utensils still uses her hands to

> eat,

> > > > unable to ride a bike or big toy. She also has been diagnosed

> with

> > > > SID, ADHD, Hypotonia.

> > > > I would love to hear from you more about where your son was at

> > > > developmentally at this younger age and what types of therapy

> you

> > > > have found that really worked for him. Also what types of

> things

> > do

> > > > you do now to help him to compensate for his disablilities if

> any.

> > > > Such as you say he loves to read but cannot write, does using

> the

> > > > computer to write help him, or is that not an option for him?

> I

> > guess

> > > > I'm very curious to know what life looks like for a teenager

> with

> > > > this type of disablilty and how you handle things.

> > > >

> > > > Thank you so much for your post, I look forward to hearing

> more

> > from

> > > > you. I hope I'm not being too nosey!! Just tell me if I am!

> > > > Thanks,

> > > > Joni

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

My son is 16 yrs old and has " Infantile Autistic Disorder " w all the

symptoms that you mentioned here. You are very knowledgeable and

thank you for sharing this info. I never thought of Apraxia in those

terms, but I now do.

Happy New year to you Bonnie and family.

> able to make his mouth, hands or eyes do what his brain is

thinking. In

> short - he has multiple learning issues, difficulty with fine and

gross

> motor tasks and articulation problems. I have never seen anyone else

> with his type of " disability " , although I have seen many kids with

all

> types of special needs. He is is not considered cognitively

impaired or

> autistic, but he has been diagnosed with PDD, NOS. He is " severely

> learning disabled " . He is very talkative, but he perseverates. He

still

> cannot do many types of things independently. He is very social, but

> cannot keep pace with peers' speech so he's either silly or shy. He

> knows the forms of letters and numbers. He has a great vocabulary.

He

> reads, but has huge problems with tracking. His comprehension and

memory

> are excellent, but he cannot write. He loves books, and knows what

he

> wants to say and write.

>

> I'm wondering of anyone has a child with a similar diagnosis or set

of

> isssues.

>

> My understanding is that apraxia has several different forms,

including:

>

> Limb-kinetic apraxia - inability to make precise or exactmovements

with

> a finger, an arm or a leg.

> Ideomotor apraxia - inability to carry out a command from thebrain

to

> mimic limb or head movements performed or suggested by others.

> Conceptual apraxia - a moreprofound malfunctioning in which the

function

> of tools is no longerunderstood.

> Ideational apraxia is the inability to create a plan for a specific

> movement.

> Buccofacial apraxia - inability to coordinate and carry out facial

and

> lip movements such aswhistling, winking, coughing etc on command.

> Constructional apraxia - affects the person's ability to draw or

> copy simple diagrams or to construct simple figures.

> Oculomotor apraxia - patients find it difficult to move their eyes.

> Apraxia of Speech - a motor speech disorder. Apraxia of speech may

also

> be called verbal apraxia,developmental apraxia of speech, or verbal

> dyspraxia. Difficulty programming and planningspeech movements.

>

> Bonnie Mc

>

>

>

>

>

>

[Guest guest]

Apraxia is a symptom that may occur in many conditions. Elderly have

Apraxia, when they have Strokes sometimes.

Have you done any genetic testing on him at all?

Please reply.

my son has both Autism and MR (for his MR is not testable). You can

use a Dx code of 319.0 (DSM4). How is your child doing in school

setting? Is he in a public school or special school?

[Guest guest]

My son's 0-3 TEAM was great. They did not tell me how bad my son's

condition was, but kind of indicated that he had Infantile Autism. One

of the Speech Pathologists was great. She observed all the symptoms,

noted them down for me so that I could take them to an expert for

correct Dx. I also took the nurse from that program to visit the

specialist so that she could also vouch and explain things to that

specialist first hand. Thank GOD, they were there for me, esp for my

child.

I expect those 0-3 yr Early Intervention group or TEAM to do that for

all parents. whatever they observe or note, they must write it down

w/o a diagnosis so that a parent can take them to a specialist and

give out a correct or accurate Dx. Diagnoses can change over years in

some kids, because of interventions by parents and SD, etc.

[Guest guest]

My son is 16 yrs old and has " Infantile Autistic Disorder " w all the

symptoms that you mentioned here. You are very knowledgeable and

thank you for sharing this info. I never thought of Apraxia in those

terms, but I now do.

Happy New year to you Bonnie and family.

> able to make his mouth, hands or eyes do what his brain is

thinking. In

> short - he has multiple learning issues, difficulty with fine and

gross

> motor tasks and articulation problems. I have never seen anyone else

> with his type of " disability " , although I have seen many kids with

all

> types of special needs. He is is not considered cognitively

impaired or

> autistic, but he has been diagnosed with PDD, NOS. He is " severely

> learning disabled " . He is very talkative, but he perseverates. He

still

> cannot do many types of things independently. He is very social, but

> cannot keep pace with peers' speech so he's either silly or shy. He

> knows the forms of letters and numbers. He has a great vocabulary.

He

> reads, but has huge problems with tracking. His comprehension and

memory

> are excellent, but he cannot write. He loves books, and knows what

he

> wants to say and write.

>

> I'm wondering of anyone has a child with a similar diagnosis or set

of

> isssues.

>

> My understanding is that apraxia has several different forms,

including:

>

> Limb-kinetic apraxia - inability to make precise or exactmovements

with

> a finger, an arm or a leg.

> Ideomotor apraxia - inability to carry out a command from thebrain

to

> mimic limb or head movements performed or suggested by others.

> Conceptual apraxia - a moreprofound malfunctioning in which the

function

> of tools is no longerunderstood.

> Ideational apraxia is the inability to create a plan for a specific

> movement.

> Buccofacial apraxia - inability to coordinate and carry out facial

and

> lip movements such aswhistling, winking, coughing etc on command.

> Constructional apraxia - affects the person's ability to draw or

> copy simple diagrams or to construct simple figures.

> Oculomotor apraxia - patients find it difficult to move their eyes.

> Apraxia of Speech - a motor speech disorder. Apraxia of speech may

also

> be called verbal apraxia,developmental apraxia of speech, or verbal

> dyspraxia. Difficulty programming and planningspeech movements.

>

> Bonnie Mc

>

>

>

>

>

>

[Guest guest]

Apraxia is a symptom that may occur in many conditions. Elderly have

Apraxia, when they have Strokes sometimes.

Have you done any genetic testing on him at all?

Please reply.

my son has both Autism and MR (for his MR is not testable). You can

use a Dx code of 319.0 (DSM4). How is your child doing in school

setting? Is he in a public school or special school?

[Guest guest]

My son's 0-3 TEAM was great. They did not tell me how bad my son's

condition was, but kind of indicated that he had Infantile Autism. One

of the Speech Pathologists was great. She observed all the symptoms,

noted them down for me so that I could take them to an expert for

correct Dx. I also took the nurse from that program to visit the

specialist so that she could also vouch and explain things to that

specialist first hand. Thank GOD, they were there for me, esp for my

child.

I expect those 0-3 yr Early Intervention group or TEAM to do that for

all parents. whatever they observe or note, they must write it down

w/o a diagnosis so that a parent can take them to a specialist and

give out a correct or accurate Dx. Diagnoses can change over years in

some kids, because of interventions by parents and SD, etc.

[Guest guest]

Thanks. When I asked my son's previous doctor about apraxia, he said

that all people with autism have some form(s) of apraxia.

Bonnie

>

> My son is 16 yrs old and has " Infantile Autistic Disorder " w all the

> symptoms that you mentioned here. You are very knowledgeable and

> thank you for sharing this info. I never thought of Apraxia in those

> terms, but I now do.

>

> Happy New year to you Bonnie and family.

>

>

>

> > able to make his mouth, hands or eyes do what his brain is

> thinking. In

> > short - he has multiple learning issues, difficulty with fine and

> gross

> > motor tasks and articulation problems. I have never seen anyone else

> > with his type of " disability " , although I have seen many kids with

> all

> > types of special needs. He is is not considered cognitively

> impaired or

> > autistic, but he has been diagnosed with PDD, NOS. He is " severely

> > learning disabled " . He is very talkative, but he perseverates. He

> still

> > cannot do many types of things independently. He is very social, but

> > cannot keep pace with peers' speech so he's either silly or shy. He

> > knows the forms of letters and numbers. He has a great vocabulary.

> He

> > reads, but has huge problems with tracking. His comprehension and

> memory

> > are excellent, but he cannot write. He loves books, and knows what

> he

> > wants to say and write.

> >

> > I'm wondering of anyone has a child with a similar diagnosis or set

> of

> > isssues.

> >

> > My understanding is that apraxia has several different forms,

> including:

> >

> > Limb-kinetic apraxia - inability to make precise or exactmovements

> with

> > a finger, an arm or a leg.

> > Ideomotor apraxia - inability to carry out a command from thebrain

> to

> > mimic limb or head movements performed or suggested by others.

> > Conceptual apraxia - a moreprofound malfunctioning in which the

> function

> > of tools is no longerunderstood.

> > Ideational apraxia is the inability to create a plan for a specific

> > movement.

> > Buccofacial apraxia - inability to coordinate and carry out facial

> and

> > lip movements such aswhistling, winking, coughing etc on command.

> > Constructional apraxia - affects the person's ability to draw or

> > copy simple diagrams or to construct simple figures.

> > Oculomotor apraxia - patients find it difficult to move their eyes.

> > Apraxia of Speech - a motor speech disorder. Apraxia of speech may

> also

> > be called verbal apraxia,developmental apraxia of speech, or verbal

> > dyspraxia. Difficulty programming and planningspeech movements.

> >

> > Bonnie Mc

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks. When I asked my son's previous doctor about apraxia, he said

that all people with autism have some form(s) of apraxia.

Bonnie

>

> My son is 16 yrs old and has " Infantile Autistic Disorder " w all the

> symptoms that you mentioned here. You are very knowledgeable and

> thank you for sharing this info. I never thought of Apraxia in those

> terms, but I now do.

>

> Happy New year to you Bonnie and family.

>

>

>

> > able to make his mouth, hands or eyes do what his brain is

> thinking. In

> > short - he has multiple learning issues, difficulty with fine and

> gross

> > motor tasks and articulation problems. I have never seen anyone else

> > with his type of " disability " , although I have seen many kids with

> all

> > types of special needs. He is is not considered cognitively

> impaired or

> > autistic, but he has been diagnosed with PDD, NOS. He is " severely

> > learning disabled " . He is very talkative, but he perseverates. He

> still

> > cannot do many types of things independently. He is very social, but

> > cannot keep pace with peers' speech so he's either silly or shy. He

> > knows the forms of letters and numbers. He has a great vocabulary.

> He

> > reads, but has huge problems with tracking. His comprehension and

> memory

> > are excellent, but he cannot write. He loves books, and knows what

> he

> > wants to say and write.

> >

> > I'm wondering of anyone has a child with a similar diagnosis or set

> of

> > isssues.

> >

> > My understanding is that apraxia has several different forms,

> including:

> >

> > Limb-kinetic apraxia - inability to make precise or exactmovements

> with

> > a finger, an arm or a leg.

> > Ideomotor apraxia - inability to carry out a command from thebrain

> to

> > mimic limb or head movements performed or suggested by others.

> > Conceptual apraxia - a moreprofound malfunctioning in which the

> function

> > of tools is no longerunderstood.

> > Ideational apraxia is the inability to create a plan for a specific

> > movement.

> > Buccofacial apraxia - inability to coordinate and carry out facial

> and

> > lip movements such aswhistling, winking, coughing etc on command.

> > Constructional apraxia - affects the person's ability to draw or

> > copy simple diagrams or to construct simple figures.

> > Oculomotor apraxia - patients find it difficult to move their eyes.

> > Apraxia of Speech - a motor speech disorder. Apraxia of speech may

> also

> > be called verbal apraxia,developmental apraxia of speech, or verbal

> > dyspraxia. Difficulty programming and planningspeech movements.

> >

> > Bonnie Mc

> >

> >

> >

> >

> >

> >