Re: Thyroid / Saro- off topic

[Guest guest]

, it was so long ago I can't remember the details.

I had to take some radioactive iodine stuff and they did an X-ray and

found that part of my thyroid was missing. They said it was because

it was attacked by antibodies. They never tried to identify any missing

protein.

So if they do anything like that with you I could ask my GP again.

First of all I had a slight swelling in the front of my neck. They also said

I had a nodule. I was given thyroid tablets which were later tailed off.

It was only on further testing they found that part of the gland was missing

on one side. However they didn't put me on tablets again saying that

I seemed to coping well enough. Then when Rohan was about 2 yrs old

I was feeling so tired that even strangers noticed.

Thyroid levels were far too low then and I was put on thyroid tablets

again. A few years ago they increased the dose and now I have regular

checks. Their attitude is it's autoimune and we can't do anything about it.

BTW I have some white patches on my legs which is also autoimmune.

I must read up on Lupus.

what is the arm lump you had removed? I had a small lump on the

back of my arm between the wrist and elbow which removed a long

time ago. I was told it was a fibrous lump and nothing to worry about.

Saro

& Hill wrote:

> How did they know it was autoimmune thyroiditis Saro, do you know? I

developed an enlarged thryoid along with these nodule things, and I have to have

all these blood tests done (yuk, putting them off...) where they are looking to

try and identify what protein I might be missing or something like that causing

the auto immune goings on. All a bit new to me, this stuff, not sure I like what

I am reading to be honest!

> The arm lump they removed was apparently a 'lupus profundus' lump, and the

rest of the tests they are doing are to see if I might be developing full blown

SLE, but the guy yesterday said he didn't think I had it, so fingers crossed,

but the lupus lump and thyroid woes happening together seem mighty suspicious to

me...

> I am on thryroxine now for life too because my whole thryoid gland was

removed

> Blood test last Fri showed levels are still out of whack, which is good in a

way - probably explains why I am still feeling a bit 'blah', and cripes - talk

about weight gain lately

> Increased the thryroxine on Mon, so hopefully they might start to even out

soon. Don't know how you get on, but I am so bad at remembering to take all

these damn pills - I hardly ever get 's wrong, but a diff story with my

own ones

> What with the thyroxine, calcium, rocalitrol, and then 's meds and

supplements, my house is is just one big pharmacy!

> 's thyroid tests have been up and down over the yrs, but like you I

didn't get very far with trying to go down that track, this guy's attitude was a

bit - 'moving on, back to you.....'

> Incidentally, the thryoid guy who took mine out said that the blood levels

are an indication only, that what is 'normal' for one person, may not be right

for someone else, a bit like the kids and their AED levels I spose? Mine were

showing in the low/normal range for ages, but because they were within the

actual ref ranges no one was really concerned, yet I had pretty definite

symptoms of hypothyroidism that whole time looking back.

> The internist thing - I think an 'intern' is a consultant's assistant (lol,

only know the term from watching ER...) but intern 'ist' is something dfferent?

Not sure tho as we use neither term here, our consultant's assistant is called a

registrar too.

>

>

>

> ----- Original Message -----

> From: Jay

>

>

> Hi ,

> I was interested to read of possible tests for thyroid/lupus.

> I do have autoimmune thyroiditis (sp). I have wandered lots

> of times whether some of Rohan's problems are related to this.

> Since part of my thyroid is now missing I have to be on

> thyroid tablets for ever. I have mentioned my problem to

> Rohan's dr.s but no one said anything. They probably think

> 'there goes that neurotic mum, again!' and they are probably right.

> BTW they checked Rohan's thyroid function as he's always

> tired these days (probably due to Keppra) and it was OK.

>

> About the internist, I thought they were like a registrar

> to the consultant. I mean an assistant.

>

> Saro

>

>

>

>

>

>

[Guest guest]

, it was so long ago I can't remember the details.

I had to take some radioactive iodine stuff and they did an X-ray and

found that part of my thyroid was missing. They said it was because

it was attacked by antibodies. They never tried to identify any missing

protein.

So if they do anything like that with you I could ask my GP again.

First of all I had a slight swelling in the front of my neck. They also said

I had a nodule. I was given thyroid tablets which were later tailed off.

It was only on further testing they found that part of the gland was missing

on one side. However they didn't put me on tablets again saying that

I seemed to coping well enough. Then when Rohan was about 2 yrs old

I was feeling so tired that even strangers noticed.

Thyroid levels were far too low then and I was put on thyroid tablets

again. A few years ago they increased the dose and now I have regular

checks. Their attitude is it's autoimune and we can't do anything about it.

BTW I have some white patches on my legs which is also autoimmune.

I must read up on Lupus.

what is the arm lump you had removed? I had a small lump on the

back of my arm between the wrist and elbow which removed a long

time ago. I was told it was a fibrous lump and nothing to worry about.

Saro

& Hill wrote:

> How did they know it was autoimmune thyroiditis Saro, do you know? I

developed an enlarged thryoid along with these nodule things, and I have to have

all these blood tests done (yuk, putting them off...) where they are looking to

try and identify what protein I might be missing or something like that causing

the auto immune goings on. All a bit new to me, this stuff, not sure I like what

I am reading to be honest!

> The arm lump they removed was apparently a 'lupus profundus' lump, and the

rest of the tests they are doing are to see if I might be developing full blown

SLE, but the guy yesterday said he didn't think I had it, so fingers crossed,

but the lupus lump and thyroid woes happening together seem mighty suspicious to

me...

> I am on thryroxine now for life too because my whole thryoid gland was

removed

> Blood test last Fri showed levels are still out of whack, which is good in a

way - probably explains why I am still feeling a bit 'blah', and cripes - talk

about weight gain lately

> Increased the thryroxine on Mon, so hopefully they might start to even out

soon. Don't know how you get on, but I am so bad at remembering to take all

these damn pills - I hardly ever get 's wrong, but a diff story with my

own ones

> What with the thyroxine, calcium, rocalitrol, and then 's meds and

supplements, my house is is just one big pharmacy!

> 's thyroid tests have been up and down over the yrs, but like you I

didn't get very far with trying to go down that track, this guy's attitude was a

bit - 'moving on, back to you.....'

> Incidentally, the thryoid guy who took mine out said that the blood levels

are an indication only, that what is 'normal' for one person, may not be right

for someone else, a bit like the kids and their AED levels I spose? Mine were

showing in the low/normal range for ages, but because they were within the

actual ref ranges no one was really concerned, yet I had pretty definite

symptoms of hypothyroidism that whole time looking back.

> The internist thing - I think an 'intern' is a consultant's assistant (lol,

only know the term from watching ER...) but intern 'ist' is something dfferent?

Not sure tho as we use neither term here, our consultant's assistant is called a

registrar too.

>

>

>

> ----- Original Message -----

> From: Jay

>

>

> Hi ,

> I was interested to read of possible tests for thyroid/lupus.

> I do have autoimmune thyroiditis (sp). I have wandered lots

> of times whether some of Rohan's problems are related to this.

> Since part of my thyroid is now missing I have to be on

> thyroid tablets for ever. I have mentioned my problem to

> Rohan's dr.s but no one said anything. They probably think

> 'there goes that neurotic mum, again!' and they are probably right.

> BTW they checked Rohan's thyroid function as he's always

> tired these days (probably due to Keppra) and it was OK.

>

> About the internist, I thought they were like a registrar

> to the consultant. I mean an assistant.

>

> Saro

>

>

>

>

>

>

[Guest guest]

, it was so long ago I can't remember the details.

I had to take some radioactive iodine stuff and they did an X-ray and

found that part of my thyroid was missing. They said it was because

it was attacked by antibodies. They never tried to identify any missing

protein.

So if they do anything like that with you I could ask my GP again.

First of all I had a slight swelling in the front of my neck. They also said

I had a nodule. I was given thyroid tablets which were later tailed off.

It was only on further testing they found that part of the gland was missing

on one side. However they didn't put me on tablets again saying that

I seemed to coping well enough. Then when Rohan was about 2 yrs old

I was feeling so tired that even strangers noticed.

Thyroid levels were far too low then and I was put on thyroid tablets

again. A few years ago they increased the dose and now I have regular

checks. Their attitude is it's autoimune and we can't do anything about it.

BTW I have some white patches on my legs which is also autoimmune.

I must read up on Lupus.

what is the arm lump you had removed? I had a small lump on the

back of my arm between the wrist and elbow which removed a long

time ago. I was told it was a fibrous lump and nothing to worry about.

Saro

& Hill wrote:

> How did they know it was autoimmune thyroiditis Saro, do you know? I

developed an enlarged thryoid along with these nodule things, and I have to have

all these blood tests done (yuk, putting them off...) where they are looking to

try and identify what protein I might be missing or something like that causing

the auto immune goings on. All a bit new to me, this stuff, not sure I like what

I am reading to be honest!

> The arm lump they removed was apparently a 'lupus profundus' lump, and the

rest of the tests they are doing are to see if I might be developing full blown

SLE, but the guy yesterday said he didn't think I had it, so fingers crossed,

but the lupus lump and thyroid woes happening together seem mighty suspicious to

me...

> I am on thryroxine now for life too because my whole thryoid gland was

removed

> Blood test last Fri showed levels are still out of whack, which is good in a

way - probably explains why I am still feeling a bit 'blah', and cripes - talk

about weight gain lately

> Increased the thryroxine on Mon, so hopefully they might start to even out

soon. Don't know how you get on, but I am so bad at remembering to take all

these damn pills - I hardly ever get 's wrong, but a diff story with my

own ones

> What with the thyroxine, calcium, rocalitrol, and then 's meds and

supplements, my house is is just one big pharmacy!

> 's thyroid tests have been up and down over the yrs, but like you I

didn't get very far with trying to go down that track, this guy's attitude was a

bit - 'moving on, back to you.....'

> Incidentally, the thryoid guy who took mine out said that the blood levels

are an indication only, that what is 'normal' for one person, may not be right

for someone else, a bit like the kids and their AED levels I spose? Mine were

showing in the low/normal range for ages, but because they were within the

actual ref ranges no one was really concerned, yet I had pretty definite

symptoms of hypothyroidism that whole time looking back.

> The internist thing - I think an 'intern' is a consultant's assistant (lol,

only know the term from watching ER...) but intern 'ist' is something dfferent?

Not sure tho as we use neither term here, our consultant's assistant is called a

registrar too.

>

>

>

> ----- Original Message -----

> From: Jay

>

>

> Hi ,

> I was interested to read of possible tests for thyroid/lupus.

> I do have autoimmune thyroiditis (sp). I have wandered lots

> of times whether some of Rohan's problems are related to this.

> Since part of my thyroid is now missing I have to be on

> thyroid tablets for ever. I have mentioned my problem to

> Rohan's dr.s but no one said anything. They probably think

> 'there goes that neurotic mum, again!' and they are probably right.

> BTW they checked Rohan's thyroid function as he's always

> tired these days (probably due to Keppra) and it was OK.

>

> About the internist, I thought they were like a registrar

> to the consultant. I mean an assistant.

>

> Saro

>

>

>

>

>

>

[Guest guest]

> About the internist, I thought they were like a registrar to

> the consultant. I mean an assistant.

Not over here........we have neither registrar's nor consultants

Nope its some of type of dr, just not sure exactly what he does. Then

again, I geuss we could say that about a lot of them LOL

>

> >

> > Saro

> >

> >

> >

> >

> >

> >

[Guest guest]

> About the internist, I thought they were like a registrar to

> the consultant. I mean an assistant.

Not over here........we have neither registrar's nor consultants

Nope its some of type of dr, just not sure exactly what he does. Then

again, I geuss we could say that about a lot of them LOL

>

> >

> > Saro

> >

> >

> >

> >

> >

> >

[Guest guest]

> About the internist, I thought they were like a registrar to

> the consultant. I mean an assistant.

Not over here........we have neither registrar's nor consultants

Nope its some of type of dr, just not sure exactly what he does. Then

again, I geuss we could say that about a lot of them LOL

>

> >

> > Saro

> >

> >

> >

> >

> >

> >

[Guest guest]

,

I think an internist is a doctor who is interning with a regular doctor so he

can also become a doctor. He has already completed the University and needs

some practical experience.

Hallie

Re: Thyroid / Saro- off topic

> About the internist, I thought they were like a registrar to

> the consultant. I mean an assistant.

Not over here........we have neither registrar's nor consultants

Nope its some of type of dr, just not sure exactly what he does. Then

again, I geuss we could say that about a lot of them LOL

>

> >

> > Saro

> >

> >

> >

> >

> >

> >

[Guest guest]

There are interns and residents on thier way to becoming full-fledged

MDs. But this is something different. Perhaps only in Canada??

Hallie wrote:

> ,

> I think an internist is a doctor who is interning with a regular

> doctor so he can also become a doctor. He has already completed the

> University and needs some practical experience.

> Hallie

> Re: Thyroid / Saro- off topic

>

>

> > About the internist, I thought they were like a

> registrar to

> > the consultant. I mean an assistant.

>

> Not over here........we have neither registrar's nor consultants

> Nope its some of type of dr, just not sure exactly what he does.

> Then

> again, I geuss we could say that about a lot of them LOL

>

>

> >

> > >

> > > Saro

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Did a search on internists. Came up with this.

http://www.lcmc.com/Dr.%20Profiles/medicalterms/internalmedicine.htm

Re: Thyroid / Saro- off topic

>

>

> > About the internist, I thought they were like a

> registrar to

> > the consultant. I mean an assistant.

>

> Not over here........we have neither registrar's nor consultants

> Nope its some of type of dr, just not sure exactly what he does.

> Then

> again, I geuss we could say that about a lot of them LOL

>

>

> >

> > >

> > > Saro

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Yeah, I have some skin patches too, the guy I saw last week said it looks like

any of the lupus signs I have are skin only at this point, and that I will

probably end up at a dermatologist and endocrinologist. Mum has quite bad

psoriasis and fibromyalgia, so it looks like I am about to blame her for the

auto immune genetic stuff

The lump in my arm was really deep down, like not near the surface, found it

in Jan soon after got out of hospital, and er ignored it.....then noticed

it was getting bigger in July, and that the flesh around it (upper arm on the

outside just below my shoulder) was kind of starting to 'dip', that's when I got

moving to find out what it was.

The surgeon had already booked me in for the thyroidectomy and said he would

remove the arm lump at the same time and have everything biopsied. So I was

fearing the big C everywhere of course, because the thyroid nodules and gland

had grown so big....but then the pathology report came back with nothing

malignant thyroid wise, and that the arm lump was this lupus thing - lupus

profundus, or panniculitis, could be discoid lupus, could be pre-curser to SLE,

or it could be a symptom that I already had SLE. So that's why I had to move on

to the next step and have all those tests arranged.

The surgeon originally suspected a fibrous lump with mine too, but the flesh

dipping around it meant he was a bit concerned about what could cause atrophy

(yuk), hence the pathology request. There were absolutely no signs on my 'outer'

skin near the lump, no outward lump, no skin abnormalities or spots, it formed

down at the very deepest layer of the dermis, which is why I had to go looking

to even find it in the first place. Makes me wonder if there are any more

floating around! But I am not too keen on finding out quite yet....

----- Original Message -----

From: Jay

BTW I have some white patches on my legs which is also autoimmune.

I must read up on Lupus.

what is the arm lump you had removed? I had a small lump on the

back of my arm between the wrist and elbow which removed a long

time ago. I was told it was a fibrous lump and nothing to worry about.

Saro