Re: Gluten Intolerant but not celiac

[Guest guest]

>

> I'm gluten intolerant but not celiac. It happens.

> Amy (Arkansas)

Amy,

Can you explain the difference between gluten intolerant and Celiac.

My doctor said I have Celiac sprue not Celiac disease. Everything

I've been able to find indicates the same problems for each, and

ususally refer to the same thing.

My doctor stresses that I must stay on a gluten free diet to avoid the

damage. I've had my second biopsy and it indicates that the villi is

healing but there's still inflamation even after a year and my blood

levels are not as low as he would like.

I've been searching for over a year now and can't seem to find

anything explains the difference, if there is one.

Any help you can give to explain this or let me know where to go to

find answers would be greatly appreciated.

I do know that since I've been gluten free, I've not had any pain.

Shirley

[Guest guest]

Shirley,

The difference between celiac sprue and celiac disease is the age of

your doctor!

Seriously, I've heard a number of well respected doctors say the two

are one and the same, but that sprue is simply the older name of the

condition. Of course, several of them also said that gluten

intolerance that isn't celiac is simply celiac caught too early for

major damage to show in the villi.

The fact that you mention having a follow-up biopsy also makes me

wonder how old your doctor is, as that is not common practise

anymore.

But your doctor is right no matter what he calls the condition; a

strict gluten-free diet is the only effective treatment.

Maureen

p.s. there is a subtype of sprue, sometimes called refractory sprue,

in which even a GF diet is not enough to promote healing, and there

may be further complications

> >

> > I'm gluten intolerant but not celiac. It happens.

> > Amy (Arkansas)

>

> Amy,

>

> Can you explain the difference between gluten intolerant and

Celiac.

>

> My doctor said I have Celiac sprue not Celiac disease. Everything

> I've been able to find indicates the same problems for each, and

> ususally refer to the same thing.

>

> My doctor stresses that I must stay on a gluten free diet to avoid

the

> damage. I've had my second biopsy and it indicates that the villi

is

> healing but there's still inflamation even after a year and my

blood

> levels are not as low as he would like.

> Shirley

>

[Guest guest]

>

>

> My doctor said I have Celiac sprue not Celiac disease.

Celiac sprue = celiac disease = non-tropical sprue

ALL THE SAME THING

Tropical sprue is different. It's caused by ... TADA ... going to

the tropics. Here's some info:

http://www.emedicine.com/med/topic2162.htm

And then there is some kind of gluten intolerance that's not officially

celiac... It's a mystery to me, but I seem to have it. And who cares?

The treatment is the same. Gluten free diet.

Hope this helps.

Esther

ps - LOVED the answer that the only difference between celiac

sprue and celiac disease is the age of the doctor! That made me

laugh. Perhaps, also, where the medical degree was obtained could

make a difference as to which term the good doc prefers.

[Guest guest]

> > I'm gluten intolerant but not celiac. It happens.

> > Amy (Arkansas)

Gluten Sensitive Enteropathy is the current lingo.

Alias Failure To Thrive, 1950s (Gluten sensitive)

Alias Sprue

Alias Celiac Sprue

Alias Celiac Disease

Alias Coelic Disease

Alias Sillyak Disease (lol)

Alias Transglutaminase Autoimmunity, Associated with Dermatitis

Herpetiformis ->100%

Associated with Eosinophilic Gastroenteritis and Irritable Bowel

appearance of food allergies

Associated with late onset female Anemia

Associated with multiple autoimmunity or Lupus.

Associated with Non-Hodgkins Lymphoma or Small gut lymphoma.

Associated with delayed gastric emptying, maladsorption.

Associated with non-DR mediated rheumatoid arthritis.

Implicated as a major factor in:

Dermatitis Herpetiformis

Anti-mitochondrial disease

Autoimmune hepatis

Autoimmune thyroiditis

's Disease

IOW old literature describing cases of any of the associated diseases

as subsets were unwittingly describing celiac disease.

As our knowledge of celiac disease has evolved so has the

nomenclature, however the clinical knowledge of these disease

may not be in step with the literature.

You can have celiac disease and not be gluten senstitive if:

1. You have down syndrome.

2. You have congenital micro-morphological defects of the small

bowel.

3. You have an active/chronic enteric infection (rotavirus,

enterovirus).

[And gluten activity could aggrevate these conditions, or

perpetuate them]

Gluten Sensitivity occurs in three forms.

1. Subclinical. E.i. your doctor doesn't know how to diagnose or you

fail to appear in a clinic. Aclinical would be a subset of these

that fail, in their lifetime to show any outward clinical signs

and celiac was not a primary cause of death. Subclinical also

can _now_ be defined as having a gluten sensitivity and elevated

intraepitheal lymphocytes (meaning the IEL decline with cessation

of gluten consumption), even if all biopsies are negative for

flattening or plaques. IOW IEL are expected to naturally progress

to Clinical CD if no remediating measures are taken.

2. Allegic. Exercise induced enteropathy is allergic response that

occurs during exercise when partially digest gliadins are

aspirated into the lungs. This is not an enteropathy but is

associated with enteropathy.

3. Clinical. You wake up and go to the clinic or your doctor wakes up

and gives you a diagnosis, it becomes an enteropathy. Alternatively

your doctor doesn't wake up, you get typed for A-Gliadin-Abs, A-tTG-

Abs, you get a HLA typing done and you are DQ2.5, DQ8, or

DQ2.2/DQ7.55 and stop eating gluten clears up a number of your

clinical symptoms.

It is important now, based on the latest science to realize that

neither anti-gluten IgE (allergy) or IgA/IgG are required for GSE.

The cellular immunity to gluten is transfer via T-cell reactions

and crosslinking to tTG and therefore tissue transglutaminase is the

primary autoimmune target that mediates the cellular distruction via

attraction of Eosinophiles. Although it is now clear that gluten can

aid in the presentation of several cellular markers (a possible

explanation for inflamatory neuritis seen in CD) and has an avid

affinity for dietary collagen (a possible explanation for the

problems in DH as well as with rheumatoid arthritis), most of the GI

affects are mediated via tTG autoimmunity, since tTG attacks killer

cells to the GI tissue and can crosslinks readily with dietary

proteins without the aid of gluten.

[Guest guest]

> > I'm gluten intolerant but not celiac. It happens.

> > Amy (Arkansas)

Gluten Sensitive Enteropathy is the current lingo.

Alias Failure To Thrive, 1950s (Gluten sensitive)

Alias Sprue

Alias Celiac Sprue

Alias Celiac Disease

Alias Coelic Disease

Alias Sillyak Disease (lol)

Alias Transglutaminase Autoimmunity, Associated with Dermatitis

Herpetiformis ->100%

Associated with Eosinophilic Gastroenteritis and Irritable Bowel

appearance of food allergies

Associated with late onset female Anemia

Associated with multiple autoimmunity or Lupus.

Associated with Non-Hodgkins Lymphoma or Small gut lymphoma.

Associated with delayed gastric emptying, maladsorption.

Associated with non-DR mediated rheumatoid arthritis.

Implicated as a major factor in:

Dermatitis Herpetiformis

Anti-mitochondrial disease

Autoimmune hepatis

Autoimmune thyroiditis

's Disease

IOW old literature describing cases of any of the associated diseases

as subsets were unwittingly describing celiac disease.

As our knowledge of celiac disease has evolved so has the

nomenclature, however the clinical knowledge of these disease

may not be in step with the literature.

You can have celiac disease and not be gluten senstitive if:

1. You have down syndrome.

2. You have congenital micro-morphological defects of the small

bowel.

3. You have an active/chronic enteric infection (rotavirus,

enterovirus).

[And gluten activity could aggrevate these conditions, or

perpetuate them]

Gluten Sensitivity occurs in three forms.

1. Subclinical. E.i. your doctor doesn't know how to diagnose or you

fail to appear in a clinic. Aclinical would be a subset of these

that fail, in their lifetime to show any outward clinical signs

and celiac was not a primary cause of death. Subclinical also

can _now_ be defined as having a gluten sensitivity and elevated

intraepitheal lymphocytes (meaning the IEL decline with cessation

of gluten consumption), even if all biopsies are negative for

flattening or plaques. IOW IEL are expected to naturally progress

to Clinical CD if no remediating measures are taken.

2. Allegic. Exercise induced enteropathy is allergic response that

occurs during exercise when partially digest gliadins are

aspirated into the lungs. This is not an enteropathy but is

associated with enteropathy.

3. Clinical. You wake up and go to the clinic or your doctor wakes up

and gives you a diagnosis, it becomes an enteropathy. Alternatively

your doctor doesn't wake up, you get typed for A-Gliadin-Abs, A-tTG-

Abs, you get a HLA typing done and you are DQ2.5, DQ8, or

DQ2.2/DQ7.55 and stop eating gluten clears up a number of your

clinical symptoms.

It is important now, based on the latest science to realize that

neither anti-gluten IgE (allergy) or IgA/IgG are required for GSE.

The cellular immunity to gluten is transfer via T-cell reactions

and crosslinking to tTG and therefore tissue transglutaminase is the

primary autoimmune target that mediates the cellular distruction via

attraction of Eosinophiles. Although it is now clear that gluten can

aid in the presentation of several cellular markers (a possible

explanation for inflamatory neuritis seen in CD) and has an avid

affinity for dietary collagen (a possible explanation for the

problems in DH as well as with rheumatoid arthritis), most of the GI

affects are mediated via tTG autoimmunity, since tTG attacks killer

cells to the GI tissue and can crosslinks readily with dietary

proteins without the aid of gluten.

[Guest guest]

> > I'm gluten intolerant but not celiac. It happens.

> > Amy (Arkansas)

Gluten Sensitive Enteropathy is the current lingo.

Alias Failure To Thrive, 1950s (Gluten sensitive)

Alias Sprue

Alias Celiac Sprue

Alias Celiac Disease

Alias Coelic Disease

Alias Sillyak Disease (lol)

Alias Transglutaminase Autoimmunity, Associated with Dermatitis

Herpetiformis ->100%

Associated with Eosinophilic Gastroenteritis and Irritable Bowel

appearance of food allergies

Associated with late onset female Anemia

Associated with multiple autoimmunity or Lupus.

Associated with Non-Hodgkins Lymphoma or Small gut lymphoma.

Associated with delayed gastric emptying, maladsorption.

Associated with non-DR mediated rheumatoid arthritis.

Implicated as a major factor in:

Dermatitis Herpetiformis

Anti-mitochondrial disease

Autoimmune hepatis

Autoimmune thyroiditis

's Disease

IOW old literature describing cases of any of the associated diseases

as subsets were unwittingly describing celiac disease.

As our knowledge of celiac disease has evolved so has the

nomenclature, however the clinical knowledge of these disease

may not be in step with the literature.

You can have celiac disease and not be gluten senstitive if:

1. You have down syndrome.

2. You have congenital micro-morphological defects of the small

bowel.

3. You have an active/chronic enteric infection (rotavirus,

enterovirus).

[And gluten activity could aggrevate these conditions, or

perpetuate them]

Gluten Sensitivity occurs in three forms.

1. Subclinical. E.i. your doctor doesn't know how to diagnose or you

fail to appear in a clinic. Aclinical would be a subset of these

that fail, in their lifetime to show any outward clinical signs

and celiac was not a primary cause of death. Subclinical also

can _now_ be defined as having a gluten sensitivity and elevated

intraepitheal lymphocytes (meaning the IEL decline with cessation

of gluten consumption), even if all biopsies are negative for

flattening or plaques. IOW IEL are expected to naturally progress

to Clinical CD if no remediating measures are taken.

2. Allegic. Exercise induced enteropathy is allergic response that

occurs during exercise when partially digest gliadins are

aspirated into the lungs. This is not an enteropathy but is

associated with enteropathy.

3. Clinical. You wake up and go to the clinic or your doctor wakes up

and gives you a diagnosis, it becomes an enteropathy. Alternatively

your doctor doesn't wake up, you get typed for A-Gliadin-Abs, A-tTG-

Abs, you get a HLA typing done and you are DQ2.5, DQ8, or

DQ2.2/DQ7.55 and stop eating gluten clears up a number of your

clinical symptoms.

It is important now, based on the latest science to realize that

neither anti-gluten IgE (allergy) or IgA/IgG are required for GSE.

The cellular immunity to gluten is transfer via T-cell reactions

and crosslinking to tTG and therefore tissue transglutaminase is the

primary autoimmune target that mediates the cellular distruction via

attraction of Eosinophiles. Although it is now clear that gluten can

aid in the presentation of several cellular markers (a possible

explanation for inflamatory neuritis seen in CD) and has an avid

affinity for dietary collagen (a possible explanation for the

problems in DH as well as with rheumatoid arthritis), most of the GI

affects are mediated via tTG autoimmunity, since tTG attacks killer

cells to the GI tissue and can crosslinks readily with dietary

proteins without the aid of gluten.

[Guest guest]

Hi Everyone-

I guess I agree with most of you. Celiac Disease in

all of my books and references, is always defined in

parentheses as " also known as Celiac Sprue, Sprue,

Non-Tropical Sprue and Gluten Intolerance " . I think

of the all as one and the same.

Barbara in SoCal

__________________________________________________

[Guest guest]

>

> Celiac Disease in

> all of my books and references, is always defined in

> parentheses as " also known as Celiac Sprue, Sprue,

> Non-Tropical Sprue and Gluten Intolerance " . I think

> of the all as one and the same.

>

That very last bit is the stumbling block for me. Or, perhaps

more accurately and precisely, for the nurse practioner at my

gastro's office. She refuses to say " Esther has celiac " . She

keeps on saying " non-celiac gluten intolerance " . She just

can't seem to imagine that two independent experts could miss

celiac on biopsy slides. Or, that biopsies could miss proof

of celiac. Or, that celiac could be so early, mild, patchy,

or of uncommon type that the biopsies are revealing something

the experts have failed to see.

I don't know precisely what stops her from saying " Esther has

celiac. " But she won't say it.

She keeps saying " non-celiac gluten intolerance " .

But my primary care doctor says " celiac " without missing a

beat. Why? Biopsies be d-mned. The blood tests went from high

to zero on a gluten-free diet. And perhaps more poignantly,

I went from constantly sick and declining miserably to WELL

on a gluten-free diet!

My primary care doc says " celiac " . And I even *ALMOST* have

him in the habit of Rxing only GF medicines. :-) ALMOST. I still

have to double- or triple-check all RXes (blood pressure meds

and the like).

Esther in RI

[Guest guest]

Ester,

My PCP is the same, HE also refuses and says, (when I refer to myself as Celiac) "No, gluten intolerant." "Who gave you the Celiac diagnoses?" Ugh. Honestly, now that I look back on it, I don't CARE if I am called gluten intolerant .... it could *hurt* me in the long run to be 'Celiac' (insurances or something. The doc (different than PCP) that diagnosed me does *NOT* do genetic testing via insurances ....they only do it privately and do not keep records in your chart. YOU keep them...from what I understand.)

Does it REALLY matter about the 'name'? it is basically the same thing...and one of my other doctors, says it is just a different 'phase' of the disease? I am not sure I agree with that, as I was VERY malnourished for many years (14+ years, and the FIRST sign was extreme fatigue AND a sudden HUGE (pregnant looking) belly! ) It was my non insurance doc that even identified it!

And like you, Ester, I went from VERY ill...for 14 years (progressive downward spiral!) to Wow! within TWO weeks! And now, at a year later....I am amazingly well...in comparison to many years not able to DO much of anything! I had not worked (could not sit or stand for more than a couple hours without HUGE pain, and needing sleep) in FOUR years! I still have a long way to go...but geez, considering where I was, and for how long!? I am doing awesome!

One thing about my PCP, he says, "You know more about it than I do, so I will believe that you know this is 'best' for you." At least he ADMITS it! That is awesome to me. That is in regard to both thyroid AND ahem, Celiac (gluten intolerance ). I told him about the Clan drug list (he was *not* interested....boohoo.) Figures *I* can do the research myself...UGH. Knowing I do a ton of it anyways. I mostly identified my own diagnoses last year....the alternative MD that is not my insurance covered doc came up with one extra .... the Celiac (and thank God she did!)

Oh well, you can't have it all with all doctors! At least my PCP doesn't constantly fight me on stuff...only sometimes!

>>I don't know precisely what stops her from saying "Esther hasceliac." But she won't say it.She keeps saying "non-celiac gluten intolerance".But my primary care doctor says "celiac" without missing a beat. Why? Biopsies be d-mned. The blood tests went from highto zero on a gluten-free diet. And perhaps more poignantly,I went from constantly sick and declining miserably to WELLon a gluten-free diet! My primary care doc says "celiac". And I even *ALMOST* havehim in the habit of Rxing only GF medicines. :-) ALMOST. I stillhave to double- or triple-check all RXes (blood pressure medsand the like). <<

"We could learn a lot from crayons: some are sharp, some are pretty, some are dull, some have weird names, and all are different colors....but they all exist very nicely in the same box." ~unknown~

[Guest guest]

Hi Everyone,

I am relatively new to this group, but want to share that I have very

much appreciated reading through the posts and have been making my way

through back posts. I have many questions, but don't want to repeat

what has been asked in the relative past. However, I though I would

jump in on this gluten intolerant but not celiac because I think that

it is a huge grey area that does a lot of folks a disservice by their

not getting the help and guidance they need. I would fall under what

would be known as gluten intolerant but not celiac. If I understand

things, I may be " sub " celiac and if I hadn't found out early enough I

would have developed celiac. I don't know if I completely buy that,

or, from what the recent posts are suggesting the testing is not that

accurate.

I found out I was gluten intolerant 28 years ago when I was 20 year

old. A few months after I had major surgery and I just was not

getting better, pale, was losing weight, had hives, etc. A doctor

looked at one of the hives on my face and said " get off wheat " . I did

and it was miraculous. I have never experienced anything so profound

withdrawing a food and I have had lots of experience. I completely

eliminated gluten (I found I could not tolerate rye, barley, oats,

etc.) for the next 5 years. Unfortunately, I started having problems

and could not tolerate corn, soy, fish and eggs at that time. I have

had lifelong food intolerances. I say intolerances because despite

many skin testings I have NEVER shown allergic to wheat, corn, soy,

eggs, fish, beans, chocolate, peanuts, beans, cinnamon, pineapple,

bananas, strawberries, etc - foods I know I have had sensitivities to.

The only way I can identify foods is by testing them with an

elimination diet.

I have been bothered by a severe persistent cough for almost 10 years

that has been worsening. I am told I have " multiple causes " which I

am trying to address. The most significant help I have gotten is by

eliminating any foods from my diet that I have EVER reacted to in my

life. What I can eat is a smaller list than what I cannot eat. Maybe

I exagerate, but not by much :-) I have become interested in what

they call " leaky gut syndrome "

There is a Dr. Fasana at the University of land who has linked

celiac and leaky gut. Unfortunately, he only treats celiacs and I

would have to test positive and, why would I make myself sick to

prove a diagnosis. So, I am looking for a health practioner

(traditional of complementary) who addressed " food intolerances " .

Does anyone know someone? I live in Cumberland, MD, but would be

willing to travel to town, WV, Winchester, VA, Pittsburgh, PA,

Baltimore of D.C. I would even consider Piladelphia where I have

family. Does anyone know of anybody.

Sorry to be so long winded.

Debby

>

> Hi Everyone-

>

> I guess I agree with most of you. Celiac Disease in

> all of my books and references, is always defined in

> parentheses as " also known as Celiac Sprue, Sprue,

> Non-Tropical Sprue and Gluten Intolerance " . I think

> of the all as one and the same.

>

> Barbara in SoCal

>

> __________________________________________________

>

[Guest guest]

Hi Everyone,

I am relatively new to this group, but want to share that I have very

much appreciated reading through the posts and have been making my way

through back posts. I have many questions, but don't want to repeat

what has been asked in the relative past. However, I though I would

jump in on this gluten intolerant but not celiac because I think that

it is a huge grey area that does a lot of folks a disservice by their

not getting the help and guidance they need. I would fall under what

would be known as gluten intolerant but not celiac. If I understand

things, I may be " sub " celiac and if I hadn't found out early enough I

would have developed celiac. I don't know if I completely buy that,

or, from what the recent posts are suggesting the testing is not that

accurate.

I found out I was gluten intolerant 28 years ago when I was 20 year

old. A few months after I had major surgery and I just was not

getting better, pale, was losing weight, had hives, etc. A doctor

looked at one of the hives on my face and said " get off wheat " . I did

and it was miraculous. I have never experienced anything so profound

withdrawing a food and I have had lots of experience. I completely

eliminated gluten (I found I could not tolerate rye, barley, oats,

etc.) for the next 5 years. Unfortunately, I started having problems

and could not tolerate corn, soy, fish and eggs at that time. I have

had lifelong food intolerances. I say intolerances because despite

many skin testings I have NEVER shown allergic to wheat, corn, soy,

eggs, fish, beans, chocolate, peanuts, beans, cinnamon, pineapple,

bananas, strawberries, etc - foods I know I have had sensitivities to.

The only way I can identify foods is by testing them with an

elimination diet.

I have been bothered by a severe persistent cough for almost 10 years

that has been worsening. I am told I have " multiple causes " which I

am trying to address. The most significant help I have gotten is by

eliminating any foods from my diet that I have EVER reacted to in my

life. What I can eat is a smaller list than what I cannot eat. Maybe

I exagerate, but not by much :-) I have become interested in what

they call " leaky gut syndrome "

There is a Dr. Fasana at the University of land who has linked

celiac and leaky gut. Unfortunately, he only treats celiacs and I

would have to test positive and, why would I make myself sick to

prove a diagnosis. So, I am looking for a health practioner

(traditional of complementary) who addressed " food intolerances " .

Does anyone know someone? I live in Cumberland, MD, but would be

willing to travel to town, WV, Winchester, VA, Pittsburgh, PA,

Baltimore of D.C. I would even consider Piladelphia where I have

family. Does anyone know of anybody.

Sorry to be so long winded.

Debby

>

> Hi Everyone-

>

> I guess I agree with most of you. Celiac Disease in

> all of my books and references, is always defined in

> parentheses as " also known as Celiac Sprue, Sprue,

> Non-Tropical Sprue and Gluten Intolerance " . I think

> of the all as one and the same.

>

> Barbara in SoCal

>

> __________________________________________________

>

[Guest guest]

Hi Everyone,

I am relatively new to this group, but want to share that I have very

much appreciated reading through the posts and have been making my way

through back posts. I have many questions, but don't want to repeat

what has been asked in the relative past. However, I though I would

jump in on this gluten intolerant but not celiac because I think that

it is a huge grey area that does a lot of folks a disservice by their

not getting the help and guidance they need. I would fall under what

would be known as gluten intolerant but not celiac. If I understand

things, I may be " sub " celiac and if I hadn't found out early enough I

would have developed celiac. I don't know if I completely buy that,

or, from what the recent posts are suggesting the testing is not that

accurate.

I found out I was gluten intolerant 28 years ago when I was 20 year

old. A few months after I had major surgery and I just was not

getting better, pale, was losing weight, had hives, etc. A doctor

looked at one of the hives on my face and said " get off wheat " . I did

and it was miraculous. I have never experienced anything so profound

withdrawing a food and I have had lots of experience. I completely

eliminated gluten (I found I could not tolerate rye, barley, oats,

etc.) for the next 5 years. Unfortunately, I started having problems

and could not tolerate corn, soy, fish and eggs at that time. I have

had lifelong food intolerances. I say intolerances because despite

many skin testings I have NEVER shown allergic to wheat, corn, soy,

eggs, fish, beans, chocolate, peanuts, beans, cinnamon, pineapple,

bananas, strawberries, etc - foods I know I have had sensitivities to.

The only way I can identify foods is by testing them with an

elimination diet.

I have been bothered by a severe persistent cough for almost 10 years

that has been worsening. I am told I have " multiple causes " which I

am trying to address. The most significant help I have gotten is by

eliminating any foods from my diet that I have EVER reacted to in my

life. What I can eat is a smaller list than what I cannot eat. Maybe

I exagerate, but not by much :-) I have become interested in what

they call " leaky gut syndrome "

There is a Dr. Fasana at the University of land who has linked

celiac and leaky gut. Unfortunately, he only treats celiacs and I

would have to test positive and, why would I make myself sick to

prove a diagnosis. So, I am looking for a health practioner

(traditional of complementary) who addressed " food intolerances " .

Does anyone know someone? I live in Cumberland, MD, but would be

willing to travel to town, WV, Winchester, VA, Pittsburgh, PA,

Baltimore of D.C. I would even consider Piladelphia where I have

family. Does anyone know of anybody.

Sorry to be so long winded.

Debby

>

> Hi Everyone-

>

> I guess I agree with most of you. Celiac Disease in

> all of my books and references, is always defined in

> parentheses as " also known as Celiac Sprue, Sprue,

> Non-Tropical Sprue and Gluten Intolerance " . I think

> of the all as one and the same.

>

> Barbara in SoCal

>

> __________________________________________________

>

[Guest guest]

There is a Dr. Fasana at the University of land who has linkedceliac and leaky gut. Unfortunately, he only treats celiacs and Iwould have to test positive and, why would I make myself sick toprove a diagnosis. So, I am looking for a health practioner(traditional of complementary) who addressed "food intolerances". Does anyone know someone? I live in Cumberland, MD, but would bewilling to travel to town, WV, Winchester, VA, Pittsburgh, PA,Baltimore of D.C. I would even consider Piladelphia where I havefamily. Does anyone know of anybody.Sorry to be so long winded.DebbyHave you read the book, "Enzymes and Autism and Other Neurological Conditions," by Defilice? I recently read it, and it has a marvelous discussion about Leaky Gut, people developing new food intolerances on restrictive diets, and she even covers Celiac disease. She used enzyme therapy to benefit her autistic

spectrum children, but found that many people with leaky gut/celiac/food intolerances also did extremely well on the therapy as well. We have recently (6 weeks ago) added enzyme therapy, and it has allowed me to add several foods back into our youngest daughters' diet. She still cannot eat gluten (of course) and milk products, but it's so nice to be able to eat a full complement of veggies and fruits again ! Rebekah

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