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Re: felbamate

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A meg is a Magnetoencephalography. It records the magnectic

activity in your brain, which is given off by electical impulses.

Any activity your body does give off these impulses. They will try

and figure out where her seizures are coming from. Only a couple of

these machines in the country. I guess it could be considered

experimental. Leah has absence seizure, we are on keppra and are

about to try the felbamate. Worried about the felbamate. Did your

child do OK. What is a doose.

Barbara -

--

In ketogenic , lts4307@a... wrote:

> What's a meg test? Jackie is on Felbamate (the liquid) and on

depakote. SHe is a doose kid, and is also on Omega 3,6,9, and some

magnesium. Many of the doose kids seem to respond well to the drug,

it has limited side effects, and has a long half life. We're still

chasing seizure freedom, but have seen a reduction in the number.

>

>

> mother of Jackie

> age 8

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Barbara,

My son has been on Felbatol since January and with it and the Atkins diet,

we have 98% seizure control. We have breakthrough head drops with sneaking of

food or illness on occasion but he is doing great. No side effects other

than insomnia and we give his entire dose in the am and he sleeps great now.

Good luck

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---

How old is your son?

In ketogenic , lloydandleslie@a... wrote:

> Barbara,

> My son has been on Felbatol since January and with it and the

Atkins diet,

> we have 98% seizure control. We have breakthrough head drops with

sneaking of

> food or illness on occasion but he is doing great. No side

effects other

> than insomnia and we give his entire dose in the am and he sleeps

great now.

>

> Good luck

>

>

>

>

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