Re: Social Security Question

[Guest guest]

For a child to get SSI here in California it is based

on the parents income. I am not sure if it is like

this in other states as well since it is a Federal

program. Depending on what the parents income is each

month determines the amount the child will get for a

particular month. The max. income over here is pretty

low. It doesn't hurt to try. You can call and start

the application process on the phone.

le

[Guest guest]

There are a lot of " gotchas " with this but it never hurts to check into it - we

did back when our kids were younger and didn't qualify. Most states usually

have an agency or group who can help wade through the social security quagmire

- in New Hampshire it's Granite State Independent living

Barbara

--- You wrote:

Hi everyone

I just wanted to say that the few days I been on this list reading everyone's

posts has been amazing. There is a wealth of information here, I hope I can

take it all in.

Someone asked me if we are getting social security disability for Grace. I

never even thought about it or that it was something we should consider but

they

said it would help with all her extra expenses and/or for her education. Is

this something most people do or does she even qualify for this? I don't

know anything about it.

Thanks

Kathleen and Grace (7 months with mod-sev bilateral SN loss)

--- end of quote ---

[Guest guest]

When we tried to sign Jaden up I called the 800 phone

number and started the whole process over the phone

with someone, I think I even did most of it online.

They sent me paperwork with an appointment and then

that's where the " gotchas " came in. They want proof of

income, trusts, deeds, bank accounts, birth

certificates, this, that, and the other. But if your

family qualifies then good, I would at least try.

le

[Guest guest]

Here in Florida is the same. They go by the parent's income month by month. Also

keep in mind if you do qualify to make sure you are getting the right amount.

Don't assume they are correct. They use send us checks for almost a year when

my daughter Alyanna was 2 years old (she is now 7) because they told us we

qualified but they where wrong because they only checked for the 1st month and

they told me I was the one that had to notify them monthly of our income. Now

they are telling us they over paid us so we have to pay them back. But just

because I had a bad experience it won't hurt to try. Good Luck!!!

in Florida

Kbkcreations@... wrote:

Hi everyone

I just wanted to say that the few days I been on this list reading everyone's

posts has been amazing. There is a wealth of information here, I hope I can

take it all in.

Someone asked me if we are getting social security disability for Grace. I

never even thought about it or that it was something we should consider but they

said it would help with all her extra expenses and/or for her education. Is

this something most people do or does she even qualify for this? I don't

know anything about it.

Thanks

Kathleen and Grace (7 months with mod-sev bilateral SN loss)

[Guest guest]

OMG! Same thing happened here. We did receive for

Jaden a few years back and we are still paying them

back for over payments. I think I still owe them about

$2500. It was really a royal pain in the rear! I look

at it more like a loan with us having to pay back so

much!

le

[Guest guest]

Thanks for all you help, I think we'll skip it all together, seem more

trouble than its worth.

Kathleen and Grace (7 months with mod/sev bilateral SN loss)

[Guest guest]

What state are you in?

Apparently me experience is the exception because we have had great

success. I live in PA. We called SS but were verbally denied over the

phone because of our income (which we knew would happen). That was

good because then we could apply for Medicaid under the disabled child

waiver. In PA, if you have a disabled child (and hearing impairment

counts), then you can apply for JUST your child and they are approved

REGARDLESS of your income. They have picked up everything for Andy's

hearing that hasn't been covered by our primary insurance. I didn't

think of using it for anything else but they also cover all copays and

prescriptions for him. They also will retroactively cover 3 months

from when your application was approved IF you haven't paid it (they

won't pay you back). So, our insurance covered a SMALL percentage of

Andy's hearing aids. duPont (Children's hospital we go through), held

the bill and once we got approved for Medicaid, sent it to them and

they paid it.

I know it isn't always this easy in all states. When I asked one of

the reps at the Medicaid office why the process was so smooth. He

laughed and said that no one can debate that hearing impairment is a

disability so it just sails through. Again, I know this isn't the case

everywhere but I'm having good success here in PA.

>

> OMG! Same thing happened here. We did receive for

> Jaden a few years back and we are still paying them

> back for over payments. I think I still owe them about

> $2500. It was really a royal pain in the rear! I look

> at it more like a loan with us having to pay back so

> much!

> le

>

[Guest guest]

Here in CA it's called MediCal. Jaden is ineligible

for cash SSI because of our income but, like you said,

is eligible for medical coverage due to his

disability. Through MediCal it's called California

Children's Services, or CCS, and they cover anything

that has to do with Jaden's hearing loss. I'm sure the

money through SSI has the same deciding factors in

each state but the medical coverage for them is

different state to state.

le

[Guest guest]

I've lived in both states (CA for most of my life and now PA) and in

PA, it's pretty good coverage...probably the best I've heard of. My

income is such that we don't need to use the PA system but I have

been advised that I should - so that Hayley is in the system when

she leaves HS and gets coverage for certian things that way.

>

> Here in CA it's called MediCal. Jaden is ineligible

> for cash SSI because of our income but, like you said,

> is eligible for medical coverage due to his

> disability. Through MediCal it's called California

> Children's Services, or CCS, and they cover anything

> that has to do with Jaden's hearing loss. I'm sure the

> money through SSI has the same deciding factors in

> each state but the medical coverage for them is

> different state to state.

> le

>

[Guest guest]

Thanks ! Not to worry, I'm not giving up on anything I feel Grace

does or will need. I just see from the responses that our income level will be

too high to qualify. Thanks again!!

Kathleen and Grace (7 months with mod/sev bilateral SN loss)

[Guest guest]

>

> Thanks for all you help, I think we'll skip it all together, seem more

> trouble than its worth.

>

> Kathleen and Grace (7 months with mod/sev bilateral SN loss)

>

>

>

[Guest guest]

>

> Thanks for all you help, I think we'll skip it all together, seem more

> trouble than its worth.

>

> Kathleen and Grace (7 months with mod/sev bilateral SN loss)

>

>

>

[Guest guest]

Your income level doesn't matter for Medicaid, only SS. YOu have to

get denied for social security (based on income) than you can get

medicaid for your child. Our income is too high as well for SS, there

is no income barrier for medicaid if you are applying for your

disabled child only. I don't mean to harp on it but I don't want you

to lose out on some great help.

>

> Thanks ! Not to worry, I'm not giving up on anything I feel

Grace

> does or will need. I just see from the responses that our income

level will be

> too high to qualify. Thanks again!!

>

> Kathleen and Grace (7 months with mod/sev bilateral SN loss)

>

>

>