What now?.......Recommendations for Dr's

[Guest guest]

Hi all

I have been MIA from the list recently due to the crazy therapiy,

IEP, and Dr visit life we lead ;o)

My ds, Will, now 3 has been making such great progess he has been

moved out of the " autism " classroom (YEAH!!!) after they finally

started to see what I have known all along (the problem here is not

autism). He is now in a generic spec-ed classrom where he recieves

ST 5d/week (20min sessions) and we do private OT/ST once a week.

A behavioral psychologist has classified him as PDD-NOS because his

language delays are affecting all other areas of his development.

(it does boggle my mind that he gets " marked down " for not being

able to dress himself or use scissors - i dress him because it is

faster......and as for scissors I am ok if he takes a few more years

to gain that skill!!!!)

The developmental pediatrician (supposedly a great one - but the

only one around here) is hesitant to say apraxia because Will does

not fit the classic picture (no hypotonia).

My reg pediatrician is a great guy but frankly clueless about

developmental issues.

So where do I go from here? Will is making progress but I still feel

like a piece of the puzzle is missing. The PDD diagnosis is crap

(kinda like, Yeah we know something is wrong but we don't know

what). I have been told that a language disorder can not be

diagnosed until around age 6 - evidently the testing is very long

and rigorous.

We are wroking on the bio-med approach but I won'tget into that

today.

Should we bite the bullet & go see Dr Agin?

Does anyone know of another apraxia or language specialist in the

midwest? (or anywhere for that matter)

My gut tells me that we are looking at some sort of language delay

combined with apraxia. We have a very strong family history (as in

all males in my husbands family) of various forms of dyslexia and

ADD.

Any & all input is greatly appreciated.

Martha

[Guest guest]

Martha

I guess my biggest question is does Will seem social? and not only

with family? That would really drive the next step for me.

Labels are there to help determine treatment. I try to pay

attention to what issues my child has/ does not have. Otherwise

you'll go crazy!

By the way, where are you? Maybe folks near you can be of help.

Kathleen

>

> Hi all

>

> I have been MIA from the list recently due to the crazy therapiy,

> IEP, and Dr visit life we lead ;o)

> My ds, Will, now 3 has been making such great progess he has been

> moved out of the " autism " classroom (YEAH!!!) after they finally

> started to see what I have known all along (the problem here is

not

> autism). He is now in a generic spec-ed classrom where he recieves

> ST 5d/week (20min sessions) and we do private OT/ST once a week.

>

> A behavioral psychologist has classified him as PDD-NOS because

his

> language delays are affecting all other areas of his development.

> (it does boggle my mind that he gets " marked down " for not being

> able to dress himself or use scissors - i dress him because it is

> faster......and as for scissors I am ok if he takes a few more

years

> to gain that skill!!!!)

> The developmental pediatrician (supposedly a great one - but the

> only one around here) is hesitant to say apraxia because Will does

> not fit the classic picture (no hypotonia).

> My reg pediatrician is a great guy but frankly clueless about

> developmental issues.

>

> So where do I go from here? Will is making progress but I still

feel

> like a piece of the puzzle is missing. The PDD diagnosis is crap

> (kinda like, Yeah we know something is wrong but we don't know

> what). I have been told that a language disorder can not be

> diagnosed until around age 6 - evidently the testing is very long

> and rigorous.

> We are wroking on the bio-med approach but I won'tget into that

> today.

> Should we bite the bullet & go see Dr Agin?

>

> Does anyone know of another apraxia or language specialist in the

> midwest? (or anywhere for that matter)

> My gut tells me that we are looking at some sort of language delay

> combined with apraxia. We have a very strong family history (as in

> all males in my husbands family) of various forms of dyslexia and

> ADD.

> Any & all input is greatly appreciated.

> Martha

>

[Guest guest]

Martha

I guess my biggest question is does Will seem social? and not only

with family? That would really drive the next step for me.

Labels are there to help determine treatment. I try to pay

attention to what issues my child has/ does not have. Otherwise

you'll go crazy!

By the way, where are you? Maybe folks near you can be of help.

Kathleen

>

> Hi all

>

> I have been MIA from the list recently due to the crazy therapiy,

> IEP, and Dr visit life we lead ;o)

> My ds, Will, now 3 has been making such great progess he has been

> moved out of the " autism " classroom (YEAH!!!) after they finally

> started to see what I have known all along (the problem here is

not

> autism). He is now in a generic spec-ed classrom where he recieves

> ST 5d/week (20min sessions) and we do private OT/ST once a week.

>

> A behavioral psychologist has classified him as PDD-NOS because

his

> language delays are affecting all other areas of his development.

> (it does boggle my mind that he gets " marked down " for not being

> able to dress himself or use scissors - i dress him because it is

> faster......and as for scissors I am ok if he takes a few more

years

> to gain that skill!!!!)

> The developmental pediatrician (supposedly a great one - but the

> only one around here) is hesitant to say apraxia because Will does

> not fit the classic picture (no hypotonia).

> My reg pediatrician is a great guy but frankly clueless about

> developmental issues.

>

> So where do I go from here? Will is making progress but I still

feel

> like a piece of the puzzle is missing. The PDD diagnosis is crap

> (kinda like, Yeah we know something is wrong but we don't know

> what). I have been told that a language disorder can not be

> diagnosed until around age 6 - evidently the testing is very long

> and rigorous.

> We are wroking on the bio-med approach but I won'tget into that

> today.

> Should we bite the bullet & go see Dr Agin?

>

> Does anyone know of another apraxia or language specialist in the

> midwest? (or anywhere for that matter)

> My gut tells me that we are looking at some sort of language delay

> combined with apraxia. We have a very strong family history (as in

> all males in my husbands family) of various forms of dyslexia and

> ADD.

> Any & all input is greatly appreciated.

> Martha

>

[Guest guest]

Kathleen -

My ds is VERY social, that is why he was moved out of the autism classroom

after only 3 1/2 mo and only 4wks after being placed with more peer models. I

can take him to any playground in the city & he immediately makes friends. He

just does not warm as quickly to adults - especially when they are administering

evaluations.

This was actually a very valuable lesson for me & the teachers. At the start

of the school year Will was only going to preschool with other " IEP " kids. As

you can guess the other kids were not very interested in engaging Will either so

it did not appear that he was social. Well, he was doing so well that in Oct we

extended his day to add more time for therapies and to be there when the peer

models were there in the afternoon. Within 2 weeks they were calling to schedule

an IEP review because it was clear that Will was interacting so well with

" normal " children that he was ready to move up to the next " level " of

interventional preschool.

I have seen several examples of this - when placed with lower functioning kids

Will does not do well, he imitates their behavior. The most recent example is

that the child that he sits next to on the buss has CP (I think) and is

constantly banging his head. Guess what? Will now bangs his head in the carseat

when he is mad. GREAT.

Martha

katedb2003 <madenbleyker@...> wrote:

Martha

I guess my biggest question is does Will seem social? and not only

with family? That would really drive the next step for me.

Labels are there to help determine treatment. I try to pay

attention to what issues my child has/ does not have. Otherwise

you'll go crazy!

By the way, where are you? Maybe folks near you can be of help.

Kathleen

>

> Hi all

>

> I have been MIA from the list recently due to the crazy therapiy,

> IEP, and Dr visit life we lead ;o)

> My ds, Will, now 3 has been making such great progess he has been

> moved out of the " autism " classroom (YEAH!!!) after they finally

> started to see what I have known all along (the problem here is

not

> autism). He is now in a generic spec-ed classrom where he recieves

> ST 5d/week (20min sessions) and we do private OT/ST once a week.

>

> A behavioral psychologist has classified him as PDD-NOS because

his

> language delays are affecting all other areas of his development.

> (it does boggle my mind that he gets " marked down " for not being

> able to dress himself or use scissors - i dress him because it is

> faster......and as for scissors I am ok if he takes a few more

years

> to gain that skill!!!!)

> The developmental pediatrician (supposedly a great one - but the

> only one around here) is hesitant to say apraxia because Will does

> not fit the classic picture (no hypotonia).

> My reg pediatrician is a great guy but frankly clueless about

> developmental issues.

>

> So where do I go from here? Will is making progress but I still

feel

> like a piece of the puzzle is missing. The PDD diagnosis is crap

> (kinda like, Yeah we know something is wrong but we don't know

> what). I have been told that a language disorder can not be

> diagnosed until around age 6 - evidently the testing is very long

> and rigorous.

> We are wroking on the bio-med approach but I won'tget into that

> today.

> Should we bite the bullet & go see Dr Agin?

>

> Does anyone know of another apraxia or language specialist in the

> midwest? (or anywhere for that matter)

> My gut tells me that we are looking at some sort of language delay

> combined with apraxia. We have a very strong family history (as in

> all males in my husbands family) of various forms of dyslexia and

> ADD.

> Any & all input is greatly appreciated.

> Martha

>

__________________________________________________

[Guest guest]

Kathleen -

My ds is VERY social, that is why he was moved out of the autism classroom

after only 3 1/2 mo and only 4wks after being placed with more peer models. I

can take him to any playground in the city & he immediately makes friends. He

just does not warm as quickly to adults - especially when they are administering

evaluations.

This was actually a very valuable lesson for me & the teachers. At the start

of the school year Will was only going to preschool with other " IEP " kids. As

you can guess the other kids were not very interested in engaging Will either so

it did not appear that he was social. Well, he was doing so well that in Oct we

extended his day to add more time for therapies and to be there when the peer

models were there in the afternoon. Within 2 weeks they were calling to schedule

an IEP review because it was clear that Will was interacting so well with

" normal " children that he was ready to move up to the next " level " of

interventional preschool.

I have seen several examples of this - when placed with lower functioning kids

Will does not do well, he imitates their behavior. The most recent example is

that the child that he sits next to on the buss has CP (I think) and is

constantly banging his head. Guess what? Will now bangs his head in the carseat

when he is mad. GREAT.

Martha

katedb2003 <madenbleyker@...> wrote:

Martha

I guess my biggest question is does Will seem social? and not only

with family? That would really drive the next step for me.

Labels are there to help determine treatment. I try to pay

attention to what issues my child has/ does not have. Otherwise

you'll go crazy!

By the way, where are you? Maybe folks near you can be of help.

Kathleen

>

> Hi all

>

> I have been MIA from the list recently due to the crazy therapiy,

> IEP, and Dr visit life we lead ;o)

> My ds, Will, now 3 has been making such great progess he has been

> moved out of the " autism " classroom (YEAH!!!) after they finally

> started to see what I have known all along (the problem here is

not

> autism). He is now in a generic spec-ed classrom where he recieves

> ST 5d/week (20min sessions) and we do private OT/ST once a week.

>

> A behavioral psychologist has classified him as PDD-NOS because

his

> language delays are affecting all other areas of his development.

> (it does boggle my mind that he gets " marked down " for not being

> able to dress himself or use scissors - i dress him because it is

> faster......and as for scissors I am ok if he takes a few more

years

> to gain that skill!!!!)

> The developmental pediatrician (supposedly a great one - but the

> only one around here) is hesitant to say apraxia because Will does

> not fit the classic picture (no hypotonia).

> My reg pediatrician is a great guy but frankly clueless about

> developmental issues.

>

> So where do I go from here? Will is making progress but I still

feel

> like a piece of the puzzle is missing. The PDD diagnosis is crap

> (kinda like, Yeah we know something is wrong but we don't know

> what). I have been told that a language disorder can not be

> diagnosed until around age 6 - evidently the testing is very long

> and rigorous.

> We are wroking on the bio-med approach but I won'tget into that

> today.

> Should we bite the bullet & go see Dr Agin?

>

> Does anyone know of another apraxia or language specialist in the

> midwest? (or anywhere for that matter)

> My gut tells me that we are looking at some sort of language delay

> combined with apraxia. We have a very strong family history (as in

> all males in my husbands family) of various forms of dyslexia and

> ADD.

> Any & all input is greatly appreciated.

> Martha

>

__________________________________________________