Re: Confused, tired and dejected in North Carolina

[Guest guest]

Hi,

my daughter is also very small, she is 21/2 and has always been under the 3rd

percentile in the growth chart.The pediatrician was not too concerned but I

insisted for some testing to be done. I turned out that she has growth hormone

deficiency , witch is fairly easy to " fix " with daily injections and is going to

help her overall strength(she also has low muscle tone). Please do listen to

your gut feelings, I hope you'll find your answers.

Take care

Cristina

Re: [ ] Re: Confused, tired and dejected in North

Carolina

maybe you should switch pedatrician because when my daughter was 9 months she

was 16 pds (off the chart) any way her pediatricain became really concern and

had her go in for tests. To make a long story short she had acid reflux which

she takes zantac and rickets which takes vitamin d medicine and she had to get a

feeding tube so that she could pick up weight. She is doing very well now!

The one thing my daughter pediatrician stressed is that when a child is not

where they are suppose to be in there weight and, when they are behind in the

weight it does affect their development if not caught in time. I'm telling you

this because you know your child better than anyone and you have advocate for

them and be their voice. because they cannot tell you when something is wrong

and yes if you have to switch pediatrician try to find someone who has the same

care and concern for your child as you do

(pardon the grammatical errors, I'm rushing on my way out the door just wanted

to let you know that you are not alone)

take care

[Guest guest]

Hi,

my daughter is also very small, she is 21/2 and has always been under the 3rd

percentile in the growth chart.The pediatrician was not too concerned but I

insisted for some testing to be done. I turned out that she has growth hormone

deficiency , witch is fairly easy to " fix " with daily injections and is going to

help her overall strength(she also has low muscle tone). Please do listen to

your gut feelings, I hope you'll find your answers.

Take care

Cristina

Re: [ ] Re: Confused, tired and dejected in North

Carolina

maybe you should switch pedatrician because when my daughter was 9 months she

was 16 pds (off the chart) any way her pediatricain became really concern and

had her go in for tests. To make a long story short she had acid reflux which

she takes zantac and rickets which takes vitamin d medicine and she had to get a

feeding tube so that she could pick up weight. She is doing very well now!

The one thing my daughter pediatrician stressed is that when a child is not

where they are suppose to be in there weight and, when they are behind in the

weight it does affect their development if not caught in time. I'm telling you

this because you know your child better than anyone and you have advocate for

them and be their voice. because they cannot tell you when something is wrong

and yes if you have to switch pediatrician try to find someone who has the same

care and concern for your child as you do

(pardon the grammatical errors, I'm rushing on my way out the door just wanted

to let you know that you are not alone)

take care

[Guest guest]

I would take her to a developmental pediatrician for a complete evaluation.

I agree that there is something " else " going on and so, insists for a

referral for an child development specialist.

My son was not talking at all...did not have 2 words and would say " Dee "

for everything. He never pointed either. At 2 yrs, I demanded a referral to

a speech pathologist. She immediately said he was behind a good year in

speech development. We were told about the Early Intervention program where

he qualified for at home therapy for Speech and Occupational Therapy for

his low upper truncal muscle tone. At 3 yrs old, he entered the

Develpmental Delay program run by our local public school systems...He was

also officially diagnosed by a developmental pediatrician at 3 yrs old with

Severe oral and verbal Apraxia, Sensory Integration Disorder and Hypotonia.

She recommended he be given EFA's and EPA and lots of Speech Therapy along

with OT.

I currently give him - 2 ProEFA's, 1 ProEPA and 400IU Vitamin E ..He speaks

in sentences, though behind about a year. He is 5 yrs old today and

progressing daily!

[Guest guest]

Sorry for another post so soon. She does point - to things in books -

just not at objects around her. And I also wanted to mention that she

is tiny. Wearing 12 month old clothes at 2 years. Not on the charts. I

have no idea if this physical issue goes hand-in-hand with any

potential diagnoses.

>

> How is that for an introduction? :-)

>

> Sorry, I am sure you've all been here at some stage, and some are

> probably still struggling.

>

> My daughter turned two last week. She was adopted from Russia at 12

> months of age and has had a variety of issues from the outset. Our

> first hurdle was eating issues and she was in feeding therapy for 5

> months.

>

> She was also in physical therapy for nearly twelve months due to

> walking delays.

>

> She's been in speech therapy for 5 months. She has perhaps 20 words

> she uses regularly but is not stringing two together. Her receptive

> language seems delayed too.

>

> has an IEP and is being retested for ST and OT next week.

>

> My consternation is that her symptoms are being " treated " in isolation

> but not being considered together as a whole for the possibility of

> one underlying condition. Everyone keeps harping back to her condition

> when we got her from Russia and that we must expect delays. However,

> all the kids her age that came home at the same time are just fine.

> And I feel strongly that something is going on with my daughter that

> is being ignored. There seem to be too many strange things about her

> behavior for them to all be isolated.

>

> If anyone reading this has any suggestions of what I should be asking

> about/looking for/demanding be tested I'd very much appreciate your

> opinions. Here is a little smorgasboard of my daughters untypical 2

> year old behavior:

>

> Gagging and stuffing her mouth

> Only 20 words and using " Mommy " inappropriately for nearly everything

> Not putting two words together yet

> Clumsy

> Mouthing everything still (including cat fur constantly)

> Rough

> doesn't understand no (in fact seems bemused about a lot of commands,

> for instance doesn't understand the concept of " mine " )

> no pointing

> shrieking

>

> I've wondered about autism but I know its early to detect. she has had

> spotty eye contact (it is improved and may have been attachment

> related) but she is very empathetic, affectionate, imitative,

> interested in everthing and everyone and seeks out joint play with her

> older brother constantly.

>

> I've seen information about apraxia and dyspraxia but cannot make head

> nor tail of it. Its been a long year and I think my IQ has lessened

> relative to the amount of new information we have received from all of

> her therapists.

>

> Any help appreciated. Anyone with referrals for specialists in NC also

> appreciated.

>

> Thanks

>

>

[Guest guest]

Request an OT eval for Sensory Integration Disorder. You might also seek a

referal to a neurologist for a complete comprehensive eval.

[btate2@...] wrote:

How is that for an introduction? :-)

Sorry, I am sure you've all been here at some stage, and some are

probably still struggling.

My daughter turned two last week. She was adopted from Russia at 12

months of age and has had a variety of issues from the outset. Our

first hurdle was eating issues and she was in feeding therapy for 5

months.

She was also in physical therapy for nearly twelve months due to

walking delays.

She's been in speech therapy for 5 months. She has perhaps 20 words

she uses regularly but is not stringing two together. Her receptive

language seems delayed too.

has an IEP and is being retested for ST and OT next week.

My consternation is that her symptoms are being " treated " in isolation

but not being considered together as a whole for the possibility of

one underlying condition. Everyone keeps harping back to her condition

when we got her from Russia and that we must expect delays. However,

all the kids her age that came home at the same time are just fine.

And I feel strongly that something is going on with my daughter that

is being ignored. There seem to be too many strange things about her

behavior for them to all be isolated.

If anyone reading this has any suggestions of what I should be asking

about/looking for/demanding be tested I'd very much appreciate your

opinions. Here is a little smorgasboard of my daughters untypical 2

year old behavior:

Gagging and stuffing her mouth

Only 20 words and using " Mommy " inappropriately for nearly everything

Not putting two words together yet

Clumsy

Mouthing everything still (including cat fur constantly)

Rough

doesn't understand no (in fact seems bemused about a lot of commands,

for instance doesn't understand the concept of " mine " )

no pointing

shrieking

I've wondered about autism but I know its early to detect. she has had

spotty eye contact (it is improved and may have been attachment

related) but she is very empathetic, affectionate, imitative,

interested in everthing and everyone and seeks out joint play with her

older brother constantly.

I've seen information about apraxia and dyspraxia but cannot make head

nor tail of it. Its been a long year and I think my IQ has lessened

relative to the amount of new information we have received from all of

her therapists.

Any help appreciated. Anyone with referrals for specialists in NC also

appreciated.

Thanks

[Guest guest]

I would take her to a developmental pediatrician for a complete evaluation.

I agree that there is something " else " going on and so, insists for a

referral for an child development specialist.

My son was not talking at all...did not have 2 words and would say " Dee "

for everything. He never pointed either. At 2 yrs, I demanded a referral to

a speech pathologist. She immediately said he was behind a good year in

speech development. We were told about the Early Intervention program where

he qualified for at home therapy for Speech and Occupational Therapy for

his low upper truncal muscle tone. At 3 yrs old, he entered the

Develpmental Delay program run by our local public school systems...He was

also officially diagnosed by a developmental pediatrician at 3 yrs old with

Severe oral and verbal Apraxia, Sensory Integration Disorder and Hypotonia.

She recommended he be given EFA's and EPA and lots of Speech Therapy along

with OT.

I currently give him - 2 ProEFA's, 1 ProEPA and 400IU Vitamin E ..He speaks

in sentences, though behind about a year. He is 5 yrs old today and

progressing daily!

[Guest guest]

maybe you should switch pedatrician because when my daughter was 9 months she

was 16 pds (off the chart) any way her pediatricain became really concern and

had her go in for tests. To make a long story short she had acid reflux which

she takes zantac and rickets which takes vitamin d medicine and she had to get a

feeding tube so that she could pick up weight. She is doing very well now!

The one thing my daughter pediatrician stressed is that when a child is not

where they are suppose to be in there weight and, when they are behind in the

weight it does affect their development if not caught in time. I'm telling you

this because you know your child better than anyone and you have advocate for

them and be their voice. because they cannot tell you when something is wrong

and yes if you have to switch pediatrician try to find someone who has the same

care and concern for your child as you do

(pardon the grammatical errors, I'm rushing on my way out the door just wanted

to let you know that you are not alone)

take care

[Guest guest]

You might want her tested for Autism. Some of the things she does are part

of signs of Autism, but there have to be lots of sign that go together, not

just one or two.

I work with children with Autism 3-5 years old, and all of them look

straight in our eyes. The usual problem is speech and behavior. Your

daughter might be (if it is autism) high functioning, and she could catch up

if she receives early intervention.

Talk to your doctor about the symptoms and the different syndromes.

On 12/26/06, mustanglippy2003 <btate2@...> wrote:

>

> Sorry for another post so soon. She does point - to things in books -

> just not at objects around her. And I also wanted to mention that she

> is tiny. Wearing 12 month old clothes at 2 years. Not on the charts. I

> have no idea if this physical issue goes hand-in-hand with any

> potential diagnoses.

>

>

> >

> > How is that for an introduction? :-)

> >

> > Sorry, I am sure you've all been here at some stage, and some are

> > probably still struggling.

> >

> > My daughter turned two last week. She was adopted from Russia at 12

> > months of age and has had a variety of issues from the outset. Our

> > first hurdle was eating issues and she was in feeding therapy for 5

> > months.

> >

> > She was also in physical therapy for nearly twelve months due to

> > walking delays.

> >

> > She's been in speech therapy for 5 months. She has perhaps 20 words

> > she uses regularly but is not stringing two together. Her receptive

> > language seems delayed too.

> >

> > has an IEP and is being retested for ST and OT next week.

> >

> > My consternation is that her symptoms are being " treated " in isolation

> > but not being considered together as a whole for the possibility of

> > one underlying condition. Everyone keeps harping back to her condition

> > when we got her from Russia and that we must expect delays. However,

> > all the kids her age that came home at the same time are just fine.

> > And I feel strongly that something is going on with my daughter that

> > is being ignored. There seem to be too many strange things about her

> > behavior for them to all be isolated.

> >

> > If anyone reading this has any suggestions of what I should be asking

> > about/looking for/demanding be tested I'd very much appreciate your

> > opinions. Here is a little smorgasboard of my daughters untypical 2

> > year old behavior:

> >

> > Gagging and stuffing her mouth

> > Only 20 words and using " Mommy " inappropriately for nearly everything

> > Not putting two words together yet

> > Clumsy

> > Mouthing everything still (including cat fur constantly)

> > Rough

> > doesn't understand no (in fact seems bemused about a lot of commands,

> > for instance doesn't understand the concept of " mine " )

> > no pointing

> > shrieking

> >

> > I've wondered about autism but I know its early to detect. she has had

> > spotty eye contact (it is improved and may have been attachment

> > related) but she is very empathetic, affectionate, imitative,

> > interested in everthing and everyone and seeks out joint play with her

> > older brother constantly.

> >

> > I've seen information about apraxia and dyspraxia but cannot make head

> > nor tail of it. Its been a long year and I think my IQ has lessened

> > relative to the amount of new information we have received from all of

> > her therapists.

> >

> > Any help appreciated. Anyone with referrals for specialists in NC also

> > appreciated.

> >

> > Thanks

> >

> >

>

>

>

[Guest guest]

A lot of people have responded with great advice, but I just thought

I would share what we did with my son. We took him to a place for a

developmental evaluation which included a team of 5 people - a

developmental pediatrician, SLP, OT, PT and psychologist. We had 5

professionals observing/testing from different perspectives. Then

they all met and discussed our son and came up with a diagnosis,

which is apraxia.

> >

> >

> > >

> > > How is that for an introduction? :-)

> > >

> > > Sorry, I am sure you've all been here at some stage, and some

are

> > > probably still struggling.

> > >

> > > My daughter turned two last week. She was adopted from Russia

at 12

> > > months of age and has had a variety of issues from the outset.

Our

> > > first hurdle was eating issues and she was in feeding therapy

for 5

> > > months.

> > >

[Guest guest]

The best place I can send you--www.drneubrander.com. I wish

I had found it when my son was so young. Time is precious.

Kathleen

>

> How is that for an introduction? :-)

>

> Sorry, I am sure you've all been here at some stage, and some are

> probably still struggling.

>

> My daughter turned two last week. She was adopted from Russia at 12

> months of age and has had a variety of issues from the outset. Our

> first hurdle was eating issues and she was in feeding therapy for 5

> months.

>

> She was also in physical therapy for nearly twelve months due to

> walking delays.

>

> She's been in speech therapy for 5 months. She has perhaps 20 words

> she uses regularly but is not stringing two together. Her receptive

> language seems delayed too.

>

> has an IEP and is being retested for ST and OT next week.

>

> My consternation is that her symptoms are being " treated " in

isolation

> but not being considered together as a whole for the possibility of

> one underlying condition. Everyone keeps harping back to her

condition

> when we got her from Russia and that we must expect delays.

However,

> all the kids her age that came home at the same time are just fine.

> And I feel strongly that something is going on with my daughter

that

> is being ignored. There seem to be too many strange things about

her

> behavior for them to all be isolated.

>

> If anyone reading this has any suggestions of what I should be

asking

> about/looking for/demanding be tested I'd very much appreciate your

> opinions. Here is a little smorgasboard of my daughters untypical 2

> year old behavior:

>

> Gagging and stuffing her mouth

> Only 20 words and using " Mommy " inappropriately for nearly

everything

> Not putting two words together yet

> Clumsy

> Mouthing everything still (including cat fur constantly)

> Rough

> doesn't understand no (in fact seems bemused about a lot of

commands,

> for instance doesn't understand the concept of " mine " )

> no pointing

> shrieking

>

> I've wondered about autism but I know its early to detect. she has

had

> spotty eye contact (it is improved and may have been attachment

> related) but she is very empathetic, affectionate, imitative,

> interested in everthing and everyone and seeks out joint play with

her

> older brother constantly.

>

> I've seen information about apraxia and dyspraxia but cannot make

head

> nor tail of it. Its been a long year and I think my IQ has lessened

> relative to the amount of new information we have received from

all of

> her therapists.

>

> Any help appreciated. Anyone with referrals for specialists in NC

also

> appreciated.

>

> Thanks

>

>

[Guest guest]

Your dd sounds a lot like my ds (now age 3).

> She's been in speech therapy for 5 months. She has perhaps 20 words

> she uses regularly but is not stringing two together. Her receptive

> language seems delayed too.

Yup, my ds started ST around 22 months and didn't start putting two

words together until around 33 months. His receptive is delayed too.

> Gagging and stuffing her mouth

my ds still stuffs sometimes, doesn't gag anymore (he even went

through a stage of stuffing his fingers down his throat to make

himself gag)

> Only 20 words and using " Mommy " inappropriately for nearly

everything

my ds used " mommy " to mean he wanted something/anything for a long

time

> Clumsy

> Mouthing everything still (including cat fur constantly)

yes- well, not the cat fur, but his poor stuffed bear!

> Rough

yes! my ds even as a baby loved rough play!

> doesn't understand no (in fact seems bemused about a lot of

commands,

> for instance doesn't understand the concept of " mine " )

yes- took ds a long time to understand no, it was all a game to him,

didn't understand mommy's upset about this, etc. started

understanding " mine " in the last 6 months about

> no pointing

> shrieking (ds doesn't have this one)

>

> I've wondered about autism

I also thought when ds was the age your dd is now, that he was

possibly very high functioning ASD; however, we've now pretty much

ruled that out (joint play, imaginative play, pointing, etc.)

> I've seen information about apraxia and dyspraxia but cannot make

head

> nor tail of it.

Well, unfortunately I'm with you here too. Finally, after a 3 mo.

wait, we got into the developmental pediatrician and this was the dx

she gave. I'm not completely sure this is accurate for my ds,

because he does have receptive delays and no one here has ever

mentioned that. My son's need for rough play and mouthing things, as

well as gagging/stuffing, I believe is because he has some kind of

SID- he craves sensory input & it takes more input than the typical

kid for him. I don't know if I'll ever get a " this is why this is

happening " answer (most kids with developmental delays don't get that

answer- I have my theores of course) we just have to figure out what

we can do to help our kids make the progress they need to. I am

getting ready to start enzymes & supplements that I hope will help

ds. Going to look at different ST options, because just

regular " imitative " ST is not as helpful for a/dyspraxia.

Hope it helps just to know you're not alone!

, mom to Nate, age 3 (also adopted, but local/infant adoption)

[Guest guest]

maybe you should switch pedatrician because when my daughter was 9 months she

was 16 pds (off the chart) any way her pediatricain became really concern and

had her go in for tests. To make a long story short she had acid reflux which

she takes zantac and rickets which takes vitamin d medicine and she had to get a

feeding tube so that she could pick up weight. She is doing very well now!

The one thing my daughter pediatrician stressed is that when a child is not

where they are suppose to be in there weight and, when they are behind in the

weight it does affect their development if not caught in time. I'm telling you

this because you know your child better than anyone and you have advocate for

them and be their voice. because they cannot tell you when something is wrong

and yes if you have to switch pediatrician try to find someone who has the same

care and concern for your child as you do

(pardon the grammatical errors, I'm rushing on my way out the door just wanted

to let you know that you are not alone)

take care

[Guest guest]

You might want her tested for Autism. Some of the things she does are part

of signs of Autism, but there have to be lots of sign that go together, not

just one or two.

I work with children with Autism 3-5 years old, and all of them look

straight in our eyes. The usual problem is speech and behavior. Your

daughter might be (if it is autism) high functioning, and she could catch up

if she receives early intervention.

Talk to your doctor about the symptoms and the different syndromes.

On 12/26/06, mustanglippy2003 <btate2@...> wrote:

>

> Sorry for another post so soon. She does point - to things in books -

> just not at objects around her. And I also wanted to mention that she

> is tiny. Wearing 12 month old clothes at 2 years. Not on the charts. I

> have no idea if this physical issue goes hand-in-hand with any

> potential diagnoses.

>

>

> >

> > How is that for an introduction? :-)

> >

> > Sorry, I am sure you've all been here at some stage, and some are

> > probably still struggling.

> >

> > My daughter turned two last week. She was adopted from Russia at 12

> > months of age and has had a variety of issues from the outset. Our

> > first hurdle was eating issues and she was in feeding therapy for 5

> > months.

> >

> > She was also in physical therapy for nearly twelve months due to

> > walking delays.

> >

> > She's been in speech therapy for 5 months. She has perhaps 20 words

> > she uses regularly but is not stringing two together. Her receptive

> > language seems delayed too.

> >

> > has an IEP and is being retested for ST and OT next week.

> >

> > My consternation is that her symptoms are being " treated " in isolation

> > but not being considered together as a whole for the possibility of

> > one underlying condition. Everyone keeps harping back to her condition

> > when we got her from Russia and that we must expect delays. However,

> > all the kids her age that came home at the same time are just fine.

> > And I feel strongly that something is going on with my daughter that

> > is being ignored. There seem to be too many strange things about her

> > behavior for them to all be isolated.

> >

> > If anyone reading this has any suggestions of what I should be asking

> > about/looking for/demanding be tested I'd very much appreciate your

> > opinions. Here is a little smorgasboard of my daughters untypical 2

> > year old behavior:

> >

> > Gagging and stuffing her mouth

> > Only 20 words and using " Mommy " inappropriately for nearly everything

> > Not putting two words together yet

> > Clumsy

> > Mouthing everything still (including cat fur constantly)

> > Rough

> > doesn't understand no (in fact seems bemused about a lot of commands,

> > for instance doesn't understand the concept of " mine " )

> > no pointing

> > shrieking

> >

> > I've wondered about autism but I know its early to detect. she has had

> > spotty eye contact (it is improved and may have been attachment

> > related) but she is very empathetic, affectionate, imitative,

> > interested in everthing and everyone and seeks out joint play with her

> > older brother constantly.

> >

> > I've seen information about apraxia and dyspraxia but cannot make head

> > nor tail of it. Its been a long year and I think my IQ has lessened

> > relative to the amount of new information we have received from all of

> > her therapists.

> >

> > Any help appreciated. Anyone with referrals for specialists in NC also

> > appreciated.

> >

> > Thanks

> >

> >

>

>

>

[Guest guest]

A lot of people have responded with great advice, but I just thought

I would share what we did with my son. We took him to a place for a

developmental evaluation which included a team of 5 people - a

developmental pediatrician, SLP, OT, PT and psychologist. We had 5

professionals observing/testing from different perspectives. Then

they all met and discussed our son and came up with a diagnosis,

which is apraxia.

> >

> >

> > >

> > > How is that for an introduction? :-)

> > >

> > > Sorry, I am sure you've all been here at some stage, and some

are

> > > probably still struggling.

> > >

> > > My daughter turned two last week. She was adopted from Russia

at 12

> > > months of age and has had a variety of issues from the outset.

Our

> > > first hurdle was eating issues and she was in feeding therapy

for 5

> > > months.

> > >

[Guest guest]

The best place I can send you--www.drneubrander.com. I wish

I had found it when my son was so young. Time is precious.

Kathleen

>

> How is that for an introduction? :-)

>

> Sorry, I am sure you've all been here at some stage, and some are

> probably still struggling.

>

> My daughter turned two last week. She was adopted from Russia at 12

> months of age and has had a variety of issues from the outset. Our

> first hurdle was eating issues and she was in feeding therapy for 5

> months.

>

> She was also in physical therapy for nearly twelve months due to

> walking delays.

>

> She's been in speech therapy for 5 months. She has perhaps 20 words

> she uses regularly but is not stringing two together. Her receptive

> language seems delayed too.

>

> has an IEP and is being retested for ST and OT next week.

>

> My consternation is that her symptoms are being " treated " in

isolation

> but not being considered together as a whole for the possibility of

> one underlying condition. Everyone keeps harping back to her

condition

> when we got her from Russia and that we must expect delays.

However,

> all the kids her age that came home at the same time are just fine.

> And I feel strongly that something is going on with my daughter

that

> is being ignored. There seem to be too many strange things about

her

> behavior for them to all be isolated.

>

> If anyone reading this has any suggestions of what I should be

asking

> about/looking for/demanding be tested I'd very much appreciate your

> opinions. Here is a little smorgasboard of my daughters untypical 2

> year old behavior:

>

> Gagging and stuffing her mouth

> Only 20 words and using " Mommy " inappropriately for nearly

everything

> Not putting two words together yet

> Clumsy

> Mouthing everything still (including cat fur constantly)

> Rough

> doesn't understand no (in fact seems bemused about a lot of

commands,

> for instance doesn't understand the concept of " mine " )

> no pointing

> shrieking

>

> I've wondered about autism but I know its early to detect. she has

had

> spotty eye contact (it is improved and may have been attachment

> related) but she is very empathetic, affectionate, imitative,

> interested in everthing and everyone and seeks out joint play with

her

> older brother constantly.

>

> I've seen information about apraxia and dyspraxia but cannot make

head

> nor tail of it. Its been a long year and I think my IQ has lessened

> relative to the amount of new information we have received from

all of

> her therapists.

>

> Any help appreciated. Anyone with referrals for specialists in NC

also

> appreciated.

>

> Thanks

>

>

[Guest guest]

Hey, the following link will take you a to the diagnostic criteria

for Autism. Maybe you will find this helpful or make you better

informed when you do talk to a dev. pediatrician. FYI - My son is

also 2 1/2 and he still over stuffs his mouth and mouths things. I

think these are related to oral motor issues though. He also

doesn't really put 2 words together yet either. I don't think he

really gets " mine " yet either. He started getting " No " when I

started being consistent in enforcing consequences (time outs). He

was more clumsy I think before we started the fish oils. He also

struggles with hearing issues (not from ear infections but a rare

disorder that some say causes him to hear sometimes and not

others). He doesn't fit within the critera for the spectrum. I

still plan to take him to a dev. ped. next year though.

http://www.ascend-er.com/A55916/ASCEND.nsf/Diagnosis?OpenForm

There are five disorders under the umbrella of Autism or Pervasive

Developmental Disorder (PDD), a category of neurological disorders

characterized by " severe and pervasive impairment in several areas

of development, including social interaction, communication skills

and behaviors that are repetitive or reflect a restricted range of

interests or activities. " The five disorders under PDD are Autistic

Disorder, Asperger's Disorder, Childhood Disintegrative Disorder

(CDD), Rett's Disorder, and PDD-Not Otherwise Specified (PDD-NOS).

It has become popular to refer to the range of Pervasive

Developmental Disorders or Autism as Autism Spectrum Disorders. Each

of these disorders has specific diagnostic criteria as outlined by

the American Psychiatric Association (APA) in its Diagnostic &

Statistical Manual of Mental Disorders (DSM-IV-TR).

Hope this is helpful.

Christy

[Guest guest]

Your dd sounds a lot like my ds (now age 3).

> She's been in speech therapy for 5 months. She has perhaps 20 words

> she uses regularly but is not stringing two together. Her receptive

> language seems delayed too.

Yup, my ds started ST around 22 months and didn't start putting two

words together until around 33 months. His receptive is delayed too.

> Gagging and stuffing her mouth

my ds still stuffs sometimes, doesn't gag anymore (he even went

through a stage of stuffing his fingers down his throat to make

himself gag)

> Only 20 words and using " Mommy " inappropriately for nearly

everything

my ds used " mommy " to mean he wanted something/anything for a long

time

> Clumsy

> Mouthing everything still (including cat fur constantly)

yes- well, not the cat fur, but his poor stuffed bear!

> Rough

yes! my ds even as a baby loved rough play!

> doesn't understand no (in fact seems bemused about a lot of

commands,

> for instance doesn't understand the concept of " mine " )

yes- took ds a long time to understand no, it was all a game to him,

didn't understand mommy's upset about this, etc. started

understanding " mine " in the last 6 months about

> no pointing

> shrieking (ds doesn't have this one)

>

> I've wondered about autism

I also thought when ds was the age your dd is now, that he was

possibly very high functioning ASD; however, we've now pretty much

ruled that out (joint play, imaginative play, pointing, etc.)

> I've seen information about apraxia and dyspraxia but cannot make

head

> nor tail of it.

Well, unfortunately I'm with you here too. Finally, after a 3 mo.

wait, we got into the developmental pediatrician and this was the dx

she gave. I'm not completely sure this is accurate for my ds,

because he does have receptive delays and no one here has ever

mentioned that. My son's need for rough play and mouthing things, as

well as gagging/stuffing, I believe is because he has some kind of

SID- he craves sensory input & it takes more input than the typical

kid for him. I don't know if I'll ever get a " this is why this is

happening " answer (most kids with developmental delays don't get that

answer- I have my theores of course) we just have to figure out what

we can do to help our kids make the progress they need to. I am

getting ready to start enzymes & supplements that I hope will help

ds. Going to look at different ST options, because just

regular " imitative " ST is not as helpful for a/dyspraxia.

Hope it helps just to know you're not alone!

, mom to Nate, age 3 (also adopted, but local/infant adoption)

[Guest guest]

christyzeigler <christyzeigler@...> wrote: Hey, the following

link will take you a to the diagnostic criteria

for Autism. Maybe you will find this helpful or make you better

informed when you do talk to a dev. pediatrician. FYI - My son is

also 2 1/2 and he still over stuffs his mouth and mouths things. I

think these are related to oral motor issues though. He also

doesn't really put 2 words together yet either. I don't think he

really gets " mine " yet either. He started getting " No " when I

started being consistent in enforcing consequences (time outs). He

was more clumsy I think before we started the fish oils. He also

struggles with hearing issues (not from ear infections but a rare

disorder that some say causes him to hear sometimes and not

others). He doesn't fit within the critera for the spectrum. I

still plan to take him to a dev. ped. next year though.

http://www.ascend-er.com/A55916/ASCEND.nsf/Diagnosis?OpenForm

There are five disorders under the umbrella of Autism or Pervasive

Developmental Disorder (PDD), a category of neurological disorders

characterized by " severe and pervasive impairment in several areas

of development, including social interaction, communication skills

and behaviors that are repetitive or reflect a restricted range of

interests or activities. " The five disorders under PDD are Autistic

Disorder, Asperger's Disorder, Childhood Disintegrative Disorder

(CDD), Rett's Disorder, and PDD-Not Otherwise Specified (PDD-NOS).

It has become popular to refer to the range of Pervasive

Developmental Disorders or Autism as Autism Spectrum Disorders. Each

of these disorders has specific diagnostic criteria as outlined by

the American Psychiatric Association (APA) in its Diagnostic &

Statistical Manual of Mental Disorders (DSM-IV-TR).

Hope this is helpful.

Christy

__________________________________________________

[Guest guest]

Hey, the following link will take you a to the diagnostic criteria

for Autism. Maybe you will find this helpful or make you better

informed when you do talk to a dev. pediatrician. FYI - My son is

also 2 1/2 and he still over stuffs his mouth and mouths things. I

think these are related to oral motor issues though. He also

doesn't really put 2 words together yet either. I don't think he

really gets " mine " yet either. He started getting " No " when I

started being consistent in enforcing consequences (time outs). He

was more clumsy I think before we started the fish oils. He also

struggles with hearing issues (not from ear infections but a rare

disorder that some say causes him to hear sometimes and not

others). He doesn't fit within the critera for the spectrum. I

still plan to take him to a dev. ped. next year though.

http://www.ascend-er.com/A55916/ASCEND.nsf/Diagnosis?OpenForm

There are five disorders under the umbrella of Autism or Pervasive

Developmental Disorder (PDD), a category of neurological disorders

characterized by " severe and pervasive impairment in several areas

of development, including social interaction, communication skills

and behaviors that are repetitive or reflect a restricted range of

interests or activities. " The five disorders under PDD are Autistic

Disorder, Asperger's Disorder, Childhood Disintegrative Disorder

(CDD), Rett's Disorder, and PDD-Not Otherwise Specified (PDD-NOS).

It has become popular to refer to the range of Pervasive

Developmental Disorders or Autism as Autism Spectrum Disorders. Each

of these disorders has specific diagnostic criteria as outlined by

the American Psychiatric Association (APA) in its Diagnostic &

Statistical Manual of Mental Disorders (DSM-IV-TR).

Hope this is helpful.

Christy

[Guest guest]

Hi -

I have 2 children and they have both been dxed with ASD. My youngest

was also dxed with apraxia. First of all, be aware that autism

presents differently in girls than boys, and unfortunately that means

girls are often diagnosed later, which is harmful for their longterm

prognosis. My daughter at age 2 had only one word (the name of a

cartoon character), she was socially withdrawn except with her brother

(her daycare provider told me that she was " just shy " , which she

isn't). Her eye contact was not good and she did not point. If you

look at research on the CHAT screening test for autism, this is one of

the key characteristics of autism. She did not have as many obvious

behaviors compared to her brother. She often did not respond

appropriately to instructions/questions at home. Ask your ped. to do

the CHAT screen for her.

Regardless of whether she meets all the diagnostic criteria for autism

now, I would watch her closely. Both my children developed additional

symptoms as time went on (before we began treatment other than ST and

OT). The first thing I noticed with my son was echolalia, but

initially he was still typical in other ways, and he also used

language appropriately most of the time. This went on for about 6

months, and then after an illness(at age 3) we saw a dramatic

regression and loss of skills. I still kick myself, because if I had

picked up on the ASD earlier, he might well have overcome his issues

completely by now (age 7). Because of my increased knowlegde of

autism, my daughter was diagnosed at a young age (a month after she

turned 2), and we immediately began ABA and biomed intervention.

Any way, listen to your gut about what is going on, and get a second

opinion if you feel uncertain. Do some nutritional testing with a Dan

doc (e.g., the Metametrix ION, much more comprehensive than the

testing that has been recently discussed on this group), and consider

ABA. Keep in mind that girls can present differently from boys.

good luck

>

> How is that for an introduction? :-)

>

> Sorry, I am sure you've all been here at some stage, and some are

> probably still struggling.

>

> My daughter turned two last week. She was adopted from Russia at 12

> months of age and has had a variety of issues from the outset. Our

> first hurdle was eating issues and she was in feeding therapy for 5

> months.

>

> She was also in physical therapy for nearly twelve months due to

> walking delays.

>

> She's been in speech therapy for 5 months. She has perhaps 20 words

> she uses regularly but is not stringing two together. Her receptive

> language seems delayed too.

>

> has an IEP and is being retested for ST and OT next week.

>

> My consternation is that her symptoms are being " treated " in isolation

> but not being considered together as a whole for the possibility of

> one underlying condition. Everyone keeps harping back to her condition

> when we got her from Russia and that we must expect delays. However,

> all the kids her age that came home at the same time are just fine.

> And I feel strongly that something is going on with my daughter that

> is being ignored. There seem to be too many strange things about her

> behavior for them to all be isolated.

>

> If anyone reading this has any suggestions of what I should be asking

> about/looking for/demanding be tested I'd very much appreciate your

> opinions. Here is a little smorgasboard of my daughters untypical 2

> year old behavior:

>

> Gagging and stuffing her mouth

> Only 20 words and using " Mommy " inappropriately for nearly everything

> Not putting two words together yet

> Clumsy

> Mouthing everything still (including cat fur constantly)

> Rough

> doesn't understand no (in fact seems bemused about a lot of commands,

> for instance doesn't understand the concept of " mine " )

> no pointing

> shrieking

>

> I've wondered about autism but I know its early to detect. she has had

> spotty eye contact (it is improved and may have been attachment

> related) but she is very empathetic, affectionate, imitative,

> interested in everthing and everyone and seeks out joint play with her

> older brother constantly.

>

> I've seen information about apraxia and dyspraxia but cannot make head

> nor tail of it. Its been a long year and I think my IQ has lessened

> relative to the amount of new information we have received from all of

> her therapists.

>

> Any help appreciated. Anyone with referrals for specialists in NC also

> appreciated.

>

> Thanks

>

>

[Guest guest]

christyzeigler <christyzeigler@...> wrote: Hey, the following

link will take you a to the diagnostic criteria

for Autism. Maybe you will find this helpful or make you better

informed when you do talk to a dev. pediatrician. FYI - My son is

also 2 1/2 and he still over stuffs his mouth and mouths things. I

think these are related to oral motor issues though. He also

doesn't really put 2 words together yet either. I don't think he

really gets " mine " yet either. He started getting " No " when I

started being consistent in enforcing consequences (time outs). He

was more clumsy I think before we started the fish oils. He also

struggles with hearing issues (not from ear infections but a rare

disorder that some say causes him to hear sometimes and not

others). He doesn't fit within the critera for the spectrum. I

still plan to take him to a dev. ped. next year though.

http://www.ascend-er.com/A55916/ASCEND.nsf/Diagnosis?OpenForm

There are five disorders under the umbrella of Autism or Pervasive

Developmental Disorder (PDD), a category of neurological disorders

characterized by " severe and pervasive impairment in several areas

of development, including social interaction, communication skills

and behaviors that are repetitive or reflect a restricted range of

interests or activities. " The five disorders under PDD are Autistic

Disorder, Asperger's Disorder, Childhood Disintegrative Disorder

(CDD), Rett's Disorder, and PDD-Not Otherwise Specified (PDD-NOS).

It has become popular to refer to the range of Pervasive

Developmental Disorders or Autism as Autism Spectrum Disorders. Each

of these disorders has specific diagnostic criteria as outlined by

the American Psychiatric Association (APA) in its Diagnostic &

Statistical Manual of Mental Disorders (DSM-IV-TR).

Hope this is helpful.

Christy

__________________________________________________

[Guest guest]

Hi -

I have 2 children and they have both been dxed with ASD. My youngest

was also dxed with apraxia. First of all, be aware that autism

presents differently in girls than boys, and unfortunately that means

girls are often diagnosed later, which is harmful for their longterm

prognosis. My daughter at age 2 had only one word (the name of a

cartoon character), she was socially withdrawn except with her brother

(her daycare provider told me that she was " just shy " , which she

isn't). Her eye contact was not good and she did not point. If you

look at research on the CHAT screening test for autism, this is one of

the key characteristics of autism. She did not have as many obvious

behaviors compared to her brother. She often did not respond

appropriately to instructions/questions at home. Ask your ped. to do

the CHAT screen for her.

Regardless of whether she meets all the diagnostic criteria for autism

now, I would watch her closely. Both my children developed additional

symptoms as time went on (before we began treatment other than ST and

OT). The first thing I noticed with my son was echolalia, but

initially he was still typical in other ways, and he also used

language appropriately most of the time. This went on for about 6

months, and then after an illness(at age 3) we saw a dramatic

regression and loss of skills. I still kick myself, because if I had

picked up on the ASD earlier, he might well have overcome his issues

completely by now (age 7). Because of my increased knowlegde of

autism, my daughter was diagnosed at a young age (a month after she

turned 2), and we immediately began ABA and biomed intervention.

Any way, listen to your gut about what is going on, and get a second

opinion if you feel uncertain. Do some nutritional testing with a Dan

doc (e.g., the Metametrix ION, much more comprehensive than the

testing that has been recently discussed on this group), and consider

ABA. Keep in mind that girls can present differently from boys.

good luck

>

> How is that for an introduction? :-)

>

> Sorry, I am sure you've all been here at some stage, and some are

> probably still struggling.

>

> My daughter turned two last week. She was adopted from Russia at 12

> months of age and has had a variety of issues from the outset. Our

> first hurdle was eating issues and she was in feeding therapy for 5

> months.

>

> She was also in physical therapy for nearly twelve months due to

> walking delays.

>

> She's been in speech therapy for 5 months. She has perhaps 20 words

> she uses regularly but is not stringing two together. Her receptive

> language seems delayed too.

>

> has an IEP and is being retested for ST and OT next week.

>

> My consternation is that her symptoms are being " treated " in isolation

> but not being considered together as a whole for the possibility of

> one underlying condition. Everyone keeps harping back to her condition

> when we got her from Russia and that we must expect delays. However,

> all the kids her age that came home at the same time are just fine.

> And I feel strongly that something is going on with my daughter that

> is being ignored. There seem to be too many strange things about her

> behavior for them to all be isolated.

>

> If anyone reading this has any suggestions of what I should be asking

> about/looking for/demanding be tested I'd very much appreciate your

> opinions. Here is a little smorgasboard of my daughters untypical 2

> year old behavior:

>

> Gagging and stuffing her mouth

> Only 20 words and using " Mommy " inappropriately for nearly everything

> Not putting two words together yet

> Clumsy

> Mouthing everything still (including cat fur constantly)

> Rough

> doesn't understand no (in fact seems bemused about a lot of commands,

> for instance doesn't understand the concept of " mine " )

> no pointing

> shrieking

>

> I've wondered about autism but I know its early to detect. she has had

> spotty eye contact (it is improved and may have been attachment

> related) but she is very empathetic, affectionate, imitative,

> interested in everthing and everyone and seeks out joint play with her

> older brother constantly.

>

> I've seen information about apraxia and dyspraxia but cannot make head

> nor tail of it. Its been a long year and I think my IQ has lessened

> relative to the amount of new information we have received from all of

> her therapists.

>

> Any help appreciated. Anyone with referrals for specialists in NC also

> appreciated.

>

> Thanks

>

>