Re: Re: LAUGHING SEIZURES? , 's mom

[Guest guest]

google " gelastic seizures "

Barb Swoyer, Jake's mom

Re: LAUGHING SEIZURES? , 's mom

>

>

> I read your post and couldn't help to find interesting something

> that you called " Laughing seizures " . just began the diet on

> December 6th, had our first seizure on October 24th. He has laughed

> in his sleep a couple of times since then, but we thought he was

> just dreaming. Can you share more regarding this? They were just

> giggles for a few seconds then he fell back to sleep?

>

> JANA

>

>

> > re: lack of height, my son did not grow in height for the first

> two years on

> > the diet, (he was 17 mos old when we started). It wasn't until we

> raised

> > protein that we saw growth in height.

> > Barb Swoyer, Jake's mom

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

> last resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-unsubscribe

> >

> >

> >

> >

> >

[Guest guest]

My son was originally diagnosed with gelastic seizures because he first

presented with laughter in his sleep as well. Most gelastics are caused

by a small tumor in the hypothalamus called a hypothalic hamartoma.

This used to be inoperable but now is not. Surgery was pioneered in

Australia and is now performed at Barrow's Neurological Institute in

Arizona. If you need any more information on gelastics caused by HH,

check out the HHUGS website. It is amazing! My son did not have HH and

his seizures happened to be focal and go by the laughing part of the

brain. At times I wished it was HH so we could operate and potentially

cure his seizures. If anyone needs more info or Doctor contacts at

Barrows, please let me know!!

~

Re: Re: LAUGHING SEIZURES? , 's mom

google " gelastic seizures "

Barb Swoyer, Jake's mom

Re: LAUGHING SEIZURES? , 's mom

>

>

> I read your post and couldn't help to find interesting something

> that you called " Laughing seizures " . just began the diet on

> December 6th, had our first seizure on October 24th. He has laughed

> in his sleep a couple of times since then, but we thought he was

> just dreaming. Can you share more regarding this? They were just

> giggles for a few seconds then he fell back to sleep?

>

> JANA

>

>

> > re: lack of height, my son did not grow in height for the first

> two years on

> > the diet, (he was 17 mos old when we started). It wasn't until we

> raised

> > protein that we saw growth in height.

> > Barb Swoyer, Jake's mom

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

> last resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-unsubscribe

> >

> >

> >

> >

> >

[Guest guest]

Thanks for sharing. It will be on " the list " when we see the neuro next month.

.

" Hamilton, " kelly.hamilton@...> wrote:My son was originally diagnosed

with gelastic seizures because he first

presented with laughter in his sleep as well. Most gelastics are caused

by a small tumor in the hypothalamus called a hypothalic hamartoma.

This used to be inoperable but now is not. Surgery was pioneered in

Australia and is now performed at Barrow's Neurological Institute in

Arizona. If you need any more information on gelastics caused by HH,

check out the HHUGS website. It is amazing! My son did not have HH and

his seizures happened to be focal and go by the laughing part of the

brain. At times I wished it was HH so we could operate and potentially

cure his seizures. If anyone needs more info or Doctor contacts at

Barrows, please let me know!!

~

Re: Re: LAUGHING SEIZURES? , 's mom

google " gelastic seizures "

Barb Swoyer, Jake's mom

Re: LAUGHING SEIZURES? , 's mom

>

>

> I read your post and couldn't help to find interesting something

> that you called " Laughing seizures " . just began the diet on

> December 6th, had our first seizure on October 24th. He has laughed

> in his sleep a couple of times since then, but we thought he was

> just dreaming. Can you share more regarding this? They were just

> giggles for a few seconds then he fell back to sleep?

>

> JANA

>

>

> > re: lack of height, my son did not grow in height for the first

> two years on

> > the diet, (he was 17 mos old when we started). It wasn't until we

> raised

> > protein that we saw growth in height.

> > Barb Swoyer, Jake's mom

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

> last resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-unsubscribe

> >

> >

> >

> >

> >