Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 I found in the File archive a list of Hopkins approved products. Is there any other list our there? I have not been provided with anything but what foods can and can't eat, but nothing really about shampoo, lotions, etc. still has one more molar to cut, so I was glad to see we could give him the swab orajel, I had already read the gel version and noticed sorbitol in it so was just hoping this tooth would just come in with no problem. Also, Desitin or other diaper ointments. began the diet on Monday, Dec. 6th. He had a bowel movement the following Monday which started out solid, but 4 more diapers came with an hour and half and they were not solid and acidic. He asked for bottom medicine and I reached for the Desitin Cream. I read the label and saw nothing, but the next day found the file and stated that the cream was a No, No. He had a great day on Monday, no seizure activitiy, drops or tremors after 10am until he woke up the next morning. But, I had used the Desitin after all 5 diaper changes and now wonder if that could have been a potential setback or just a coincedence. On Wednesday of last week while in the hospital we had a terrible day, 3 generalized seizures and several tremors, atonic and muscle jerks. had woke up great that morning enough we decided to take him down to the bathtub and give him a bath. His skin was dry so I lathered him up all over with & Baby Lotion, the pink stuff and then within an hour, the seizure activity broke through. We asked the Dietician and she said that it should have been ok, but I didn't notice this on the list of Approved Items, but did notice baby oil. Again, all may be a coincedence, but we want to put the best foot forward to give this diet a chance. Several post I have read have been so successful and with going into Ketosis so easily, I believe we will too once we have all the meds out of his system. We stopped the Depakote entirely while in the hospital and have weaned the Clorazapate/Tranzene to just a 1/4 pill twice a day from (1/4 pill 3 times daily and occassionally a 1/2 pill rather than the 1/4 when his activity picked up over Thanksgiving) and plan to not give it tonight and try once a day for the next few days. We haven't changed the Zonegran at all at this point, will hopefully find out Monday at our followup what are next step will be about decreasing this med. Thanks again for all the helpful information. JANA Quote Link to comment Share on other sites More sharing options...
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