Guest guest Posted December 20, 2006 Report Share Posted December 20, 2006 > interesting about the port wine stain - Josh has cafe au lait spots on his back on one his leg - we were told they were due to some neural development that was either delayed or non-existent during prenatal period. I wonder if there is some connection - anyone else out there with kids with these type of spots? > > sherry > That is interesting info- I wish I could find out more about that. Ds has a brown spot (I don't know if it's called cafe au lait) on his side that therapists/dr's have always said, " Hmm " but never gone farther than that. He had two other spots that have mostly faded now, plus a mongolian spot on his foot. , mom to Nate, age 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2006 Report Share Posted December 20, 2006 > interesting about the port wine stain - Josh has cafe au lait spots on his back on one his leg - we were told they were due to some neural development that was either delayed or non-existent during prenatal period. I wonder if there is some connection - anyone else out there with kids with these type of spots? > > sherry > That is interesting info- I wish I could find out more about that. Ds has a brown spot (I don't know if it's called cafe au lait) on his side that therapists/dr's have always said, " Hmm " but never gone farther than that. He had two other spots that have mostly faded now, plus a mongolian spot on his foot. , mom to Nate, age 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2006 Report Share Posted December 20, 2006 ph has a large cafe au lait spot on his back and several smaller ones on his shoulder. Often 1 or 2 don't really mean anything...while they can be associated with several neurological conditions as well. If there is just an hand-full of kids with these skin lesions...it doesn't mean much. However if it seems the majority of children with apraxia had 1 or more cafe au lait spots...it would be more interesting. -claudia > > interesting about the port wine stain - Josh has cafe au lait spots > on his back on one his leg - we were told they were due to some neural > development that was either delayed or non-existent during prenatal > period. I wonder if there is some connection - anyone else out there > with kids with these type of spots? > > > > sherry > > > > That is interesting info- I wish I could find out more about that. Ds > has a brown spot (I don't know if it's called cafe au lait) on his side > that therapists/dr's have always said, " Hmm " but never gone farther > than that. He had two other spots that have mostly faded now, plus a > mongolian spot on his foot. > > , mom to Nate, age 3 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 My understanding is, number 7. If the child has 7 or more birthmarks then it can be a genetic disorder. If it is less than 7 not to worry. The other one is the shape. One is the like the coast of Maine, with too many edges and one is like the coast of California, smooth. The coast of Maine is really nothing. But if it is smooth then it could be genetic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 ph has a large cafe au lait spot on his back and several smaller ones on his shoulder. Often 1 or 2 don't really mean anything...while they can be associated with several neurological conditions as well. If there is just an hand-full of kids with these skin lesions...it doesn't mean much. However if it seems the majority of children with apraxia had 1 or more cafe au lait spots...it would be more interesting. -claudia > > interesting about the port wine stain - Josh has cafe au lait spots > on his back on one his leg - we were told they were due to some neural > development that was either delayed or non-existent during prenatal > period. I wonder if there is some connection - anyone else out there > with kids with these type of spots? > > > > sherry > > > > That is interesting info- I wish I could find out more about that. Ds > has a brown spot (I don't know if it's called cafe au lait) on his side > that therapists/dr's have always said, " Hmm " but never gone farther > than that. He had two other spots that have mostly faded now, plus a > mongolian spot on his foot. > > , mom to Nate, age 3 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 what are cafe au lait spots? our son silas has two if they are what i think they are... do they look like coffe stains? he has one on his but and one on his elbow. > ph has a large cafe au lait spot on his back and several smaller > ones on his shoulder. Often 1 or 2 don't really mean > anything...while they can be associated with several neurological > conditions as well. If there is just an hand-full of kids with > these skin lesions...it doesn't mean much. However if it seems the > majority of children with apraxia had 1 or more cafe au lait > spots...it would be more interesting. -claudia > > > > interesting about the port wine stain - Josh has cafe au lait > spots > > on his back on one his leg - we were told they were due to some > neural > > development that was either delayed or non-existent during > prenatal > > period. I wonder if there is some connection - anyone else out > there > > with kids with these type of spots? > > > > > > sherry > > > > > > > That is interesting info- I wish I could find out more about > that. Ds > > has a brown spot (I don't know if it's called cafe au lait) on his > side > > that therapists/dr's have always said, " Hmm " but never gone > farther > > than that. He had two other spots that have mostly faded now, > plus a > > mongolian spot on his foot. > > > > , mom to Nate, age 3 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 Hi Everyone, I normally just read posts on this site, but found it interesting that other apraxic children also had birthmarks. My daughter has 2 large birthmarks on her back from birth. Her pediatrician has always kept an eye on them, but told us not to be concerned. When she was seen by a neurologist at 12 months he also mentioned her birthmarks, but did not state any concerns. She is currently undergoing speech therapy and awaiting an official diagnosis of apraxia with a Speech Pathologist, MD in February. Reading the posts on this site has been both interesting and insightful. I just thought I would chime in on the birthmarks to see if there is any connection. Thanks for listening, Kari Minnich Mom to Emrey (2.8) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 We also have the cafe au lait spots about 5 of them, small, and also noted by neurologist. > > ph has a large cafe au lait spot on his back and several > smaller > > ones on his shoulder. Often 1 or 2 don't really mean > > anything...while they can be associated with several neurological > > conditions as well. If there is just an hand-full of kids with > > these skin lesions...it doesn't mean much. However if it seems > the > > majority of children with apraxia had 1 or more cafe au lait > > spots...it would be more interesting. -claudia > > > > > > interesting about the port wine stain - Josh has cafe au lait > > spots > > > on his back on one his leg - we were told they were due to some > > neural > > > development that was either delayed or non-existent during > > prenatal > > > period. I wonder if there is some connection - anyone else out > > there > > > with kids with these type of spots? > > > > > > > > sherry > > > > > > > > > > That is interesting info- I wish I could find out more about > > that. Ds > > > has a brown spot (I don't know if it's called cafe au lait) on > his > > side > > > that therapists/dr's have always said, " Hmm " but never gone > > farther > > > than that. He had two other spots that have mostly faded now, > > plus a > > > mongolian spot on his foot. > > > > > > , mom to Nate, age 3 > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 kevin has a very light brown oval shaped birthmark on his lower abdomin that is about 2 " X 1. " It has never been called that though. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 My understanding is, number 7. If the child has 7 or more birthmarks then it can be a genetic disorder. If it is less than 7 not to worry. The other one is the shape. One is the like the coast of Maine, with too many edges and one is like the coast of California, smooth. The coast of Maine is really nothing. But if it is smooth then it could be genetic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 This is a good article explaining what the the doctors are looking for when they see multiple cafe au lait spots. They are VERY common, but in rare instances indicate something more serious: http://www.drgreene.com/21_80.html > ph has a large cafe au lait spot on his back and several smaller > ones on his shoulder. Often 1 or 2 don't really mean > anything...while they can be associated with several neurological > conditions as well. If there is just an hand-full of kids with > these skin lesions...it doesn't mean much. However if it seems the > majority of children with apraxia had 1 or more cafe au lait > spots...it would be more interesting. -claudia > > > > > interesting about the port wine stain - Josh has cafe au lait > spots > > on his back on one his leg - we were told they were due to some > neural > > development that was either delayed or non-existent during > prenatal > > period. I wonder if there is some connection - anyone else out > there > > with kids with these type of spots? > > > > > > sherry > > > > > > > That is interesting info- I wish I could find out more about > that. Ds > > has a brown spot (I don't know if it's called cafe au lait) on his > side > > that therapists/dr's have always said, " Hmm " but never gone > farther > > than that. He had two other spots that have mostly faded now, > plus a > > mongolian spot on his foot. > > > > , mom to Nate, age 3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 what are cafe au lait spots? our son silas has two if they are what i think they are... do they look like coffe stains? he has one on his but and one on his elbow. > ph has a large cafe au lait spot on his back and several smaller > ones on his shoulder. Often 1 or 2 don't really mean > anything...while they can be associated with several neurological > conditions as well. If there is just an hand-full of kids with > these skin lesions...it doesn't mean much. However if it seems the > majority of children with apraxia had 1 or more cafe au lait > spots...it would be more interesting. -claudia > > > > interesting about the port wine stain - Josh has cafe au lait > spots > > on his back on one his leg - we were told they were due to some > neural > > development that was either delayed or non-existent during > prenatal > > period. I wonder if there is some connection - anyone else out > there > > with kids with these type of spots? > > > > > > sherry > > > > > > > That is interesting info- I wish I could find out more about > that. Ds > > has a brown spot (I don't know if it's called cafe au lait) on his > side > > that therapists/dr's have always said, " Hmm " but never gone > farther > > than that. He had two other spots that have mostly faded now, > plus a > > mongolian spot on his foot. > > > > , mom to Nate, age 3 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 Hi Everyone, I normally just read posts on this site, but found it interesting that other apraxic children also had birthmarks. My daughter has 2 large birthmarks on her back from birth. Her pediatrician has always kept an eye on them, but told us not to be concerned. When she was seen by a neurologist at 12 months he also mentioned her birthmarks, but did not state any concerns. She is currently undergoing speech therapy and awaiting an official diagnosis of apraxia with a Speech Pathologist, MD in February. Reading the posts on this site has been both interesting and insightful. I just thought I would chime in on the birthmarks to see if there is any connection. Thanks for listening, Kari Minnich Mom to Emrey (2.8) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 We also have the cafe au lait spots about 5 of them, small, and also noted by neurologist. > > ph has a large cafe au lait spot on his back and several > smaller > > ones on his shoulder. Often 1 or 2 don't really mean > > anything...while they can be associated with several neurological > > conditions as well. If there is just an hand-full of kids with > > these skin lesions...it doesn't mean much. However if it seems > the > > majority of children with apraxia had 1 or more cafe au lait > > spots...it would be more interesting. -claudia > > > > > > interesting about the port wine stain - Josh has cafe au lait > > spots > > > on his back on one his leg - we were told they were due to some > > neural > > > development that was either delayed or non-existent during > > prenatal > > > period. I wonder if there is some connection - anyone else out > > there > > > with kids with these type of spots? > > > > > > > > sherry > > > > > > > > > > That is interesting info- I wish I could find out more about > > that. Ds > > > has a brown spot (I don't know if it's called cafe au lait) on > his > > side > > > that therapists/dr's have always said, " Hmm " but never gone > > farther > > > than that. He had two other spots that have mostly faded now, > > plus a > > > mongolian spot on his foot. > > > > > > , mom to Nate, age 3 > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 kevin has a very light brown oval shaped birthmark on his lower abdomin that is about 2 " X 1. " It has never been called that though. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 This is a good article explaining what the the doctors are looking for when they see multiple cafe au lait spots. They are VERY common, but in rare instances indicate something more serious: http://www.drgreene.com/21_80.html > ph has a large cafe au lait spot on his back and several smaller > ones on his shoulder. Often 1 or 2 don't really mean > anything...while they can be associated with several neurological > conditions as well. If there is just an hand-full of kids with > these skin lesions...it doesn't mean much. However if it seems the > majority of children with apraxia had 1 or more cafe au lait > spots...it would be more interesting. -claudia > > > > > interesting about the port wine stain - Josh has cafe au lait > spots > > on his back on one his leg - we were told they were due to some > neural > > development that was either delayed or non-existent during > prenatal > > period. I wonder if there is some connection - anyone else out > there > > with kids with these type of spots? > > > > > > sherry > > > > > > > That is interesting info- I wish I could find out more about > that. Ds > > has a brown spot (I don't know if it's called cafe au lait) on his > side > > that therapists/dr's have always said, " Hmm " but never gone > farther > > than that. He had two other spots that have mostly faded now, > plus a > > mongolian spot on his foot. > > > > , mom to Nate, age 3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 > Hi Everyone, > > I normally just read posts on this site, but found it > interesting that other apraxic children also had > birthmarks. My daughter has 2 large birthmarks on her > back from birth. Her pediatrician has always kept an > eye on them, but told us not to be concerned. When > she was seen by a neurologist at 12 months he also > mentioned her birthmarks, but did not state any > concerns. She is currently undergoing speech therapy > and awaiting an official diagnosis of apraxia with a > Speech Pathologist, MD in February. > > Reading the posts on this site has been both > interesting and insightful. I just thought I would > chime in on the birthmarks to see if there is any > connection. > > Thanks for listening, > > Kari Minnich > Mom to Emrey (2.8) > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 > Hi Everyone, > > I normally just read posts on this site, but found it > interesting that other apraxic children also had > birthmarks. My daughter has 2 large birthmarks on her > back from birth. Her pediatrician has always kept an > eye on them, but told us not to be concerned. When > she was seen by a neurologist at 12 months he also > mentioned her birthmarks, but did not state any > concerns. She is currently undergoing speech therapy > and awaiting an official diagnosis of apraxia with a > Speech Pathologist, MD in February. > > Reading the posts on this site has been both > interesting and insightful. I just thought I would > chime in on the birthmarks to see if there is any > connection. > > Thanks for listening, > > Kari Minnich > Mom to Emrey (2.8) > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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