Re: Re: drooling/birthmarks

[Guest guest]

There is a condition called Tuberous Sclerosis which sometimes involves areas of

skin with different pigment as a symptom. A lot of these kids have seizures in

their first year of life but I'm not sure whether they all do. The only reason

I know about this is because my son did have lots of seizures as an infant and

they specifically looked for these spots on him for evidence that TS might be a

potential cause of his seizures but didn't find them. This is probably totally

unrelated to what any of you are seeing but I wanted to post the link in case

anyone wanted to ask their neuro about it.

Here it is:

http://en.wikipedia.org/wiki/Tuberous_sclerosis

, mom to Cordis, almost 3, history of Infantile Spasms (severe epilepsy)

- now resolved, non-verbal with significant cognitive delays, and cute, cute,

cute!

Amy <acdudick@...> wrote:

My DS has a large birth mark on his back near his neck. But I don't

think it's a Cafe au Lait spot since it's lighter than the surrounding skin. But

it is rather large..

Amy D

" claudia.morris " <claudia.morris@...> wrote:

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr's have always said, " Hmm " but never gone

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

>

Amy

__________________________________________________

[Guest guest]

It is very interesting! I'm going to run it by Josh's neuro in Feb. Maybe

there's new " syndrome " out there since the size and number don't mesh with some

of the things I've been researching. Hhhmmm...

Sherry

my2boysjm@... wrote:

My 4 year old Apraxic son also has Cafe Au Latte birth marks he has

one

large one on his forehead and several little ones on his wrist, chest and ankle.

His neurologist Dr. Abba Cargan, did count and measure them during his first

visit with him, and he explained that these spots can be related to a

serious neurological condition, which thank God my son does not have, because

they

have to measure a certain size, and have I think 6 or more. I think it's

pretty ironic that several of us with Apraxic children have these spots. Let me

know if someone finds out anything, in the meantime, has his next

appointment with Dr. Cargan on January 11th and I will run it by him....

Dana in NJ

[Guest guest]

It is very interesting! I'm going to run it by Josh's neuro in Feb. Maybe

there's new " syndrome " out there since the size and number don't mesh with some

of the things I've been researching. Hhhmmm...

Sherry

my2boysjm@... wrote:

My 4 year old Apraxic son also has Cafe Au Latte birth marks he has

one

large one on his forehead and several little ones on his wrist, chest and ankle.

His neurologist Dr. Abba Cargan, did count and measure them during his first

visit with him, and he explained that these spots can be related to a

serious neurological condition, which thank God my son does not have, because

they

have to measure a certain size, and have I think 6 or more. I think it's

pretty ironic that several of us with Apraxic children have these spots. Let me

know if someone finds out anything, in the meantime, has his next

appointment with Dr. Cargan on January 11th and I will run it by him....

Dana in NJ