Re: Re: drooling/birthmarks

[Guest guest]

it is sooo frustrating sometimes, I agree! yep, we did/do the blowing,

whistling, sucking, all the " ing " therapies to build the muscle and motor

control, along with the " regular " speech therapy. it is better but there are

times when the drooling is pretty bad - that's why I wonder if there is also a

connection with some other health concerns like colds, teeth, etc.

it's great about her progress! we had started Josh in PT, OT, and speech at 1

year but the actual diagnosis of apraxia did come until he was about 3 (although

his SLP had a gut feeling that's what it was and was actually doing therapy for

apraxia). At 4, he had only " ba " as a syllable for anything (he had multiple

sounds/phonemes until, at 16 months, he had a febrile seizure and lost speech

altogether). started him on fish oils on July 27, 2002, started words three

weeks later and I can't shut him up now! LOL! he's still hard to understand

but his vocab just keeps increasing (he's 8.5 now).

interesting about the port wine stain - Josh has cafe au lait spots on his

back on one his leg - we were told they were due to some neural development that

was either delayed or non-existent during prenatal period. I wonder if there is

some connection - anyone else out there with kids with these type of spots?

sherry

[Guest guest]

it is sooo frustrating sometimes, I agree! yep, we did/do the blowing,

whistling, sucking, all the " ing " therapies to build the muscle and motor

control, along with the " regular " speech therapy. it is better but there are

times when the drooling is pretty bad - that's why I wonder if there is also a

connection with some other health concerns like colds, teeth, etc.

it's great about her progress! we had started Josh in PT, OT, and speech at 1

year but the actual diagnosis of apraxia did come until he was about 3 (although

his SLP had a gut feeling that's what it was and was actually doing therapy for

apraxia). At 4, he had only " ba " as a syllable for anything (he had multiple

sounds/phonemes until, at 16 months, he had a febrile seizure and lost speech

altogether). started him on fish oils on July 27, 2002, started words three

weeks later and I can't shut him up now! LOL! he's still hard to understand

but his vocab just keeps increasing (he's 8.5 now).

interesting about the port wine stain - Josh has cafe au lait spots on his

back on one his leg - we were told they were due to some neural development that

was either delayed or non-existent during prenatal period. I wonder if there is

some connection - anyone else out there with kids with these type of spots?

sherry

[Guest guest]

I have a port wine stain on my hand...and I did not have any

Language/Speech related issues.

Sorry.

[Guest guest]

I have a port wine stain on my hand...and I did not have any

Language/Speech related issues.

Sorry.

[Guest guest]

My son has a " stork bite " at the nape of his neck. It has not faded, but has

moved up as he has grown and is now covered with hair.

In a message dated 12/21/2006 6:40:43 A.M. Eastern Standard Time,

claudia.morris@... writes:

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr' that therapists/dr'<WBR>s have always said,

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

[Guest guest]

Hhhmmm.... Maybe I'll ask Josh's neuro about it again when we see him at

Shriner's in Feb. If there are more folks out there with kids with cafe au

laits or similar type stains, could you let me know? If I approach the neuro

with that info, he might take it a bit more seriously.

And thanks, , for your response. As with most things, if there are

more kids with similar characteristics, it's worth more investigation.

Sherry

keepmyeyesonheaven <keepmyeyesonheaven@...> wrote:

> interesting about the port wine stain - Josh has cafe au lait spots

on his back on one his leg - we were told they were due to some neural

development that was either delayed or non-existent during prenatal

period. I wonder if there is some connection - anyone else out there

with kids with these type of spots?

>

> sherry

>

That is interesting info- I wish I could find out more about that. Ds

has a brown spot (I don't know if it's called cafe au lait) on his side

that therapists/dr's have always said, " Hmm " but never gone farther

than that. He had two other spots that have mostly faded now, plus a

mongolian spot on his foot.

, mom to Nate, age 3

[Guest guest]

My son with dyspraxia has what I think you mean by a cafe au lait spot on his

leg. It's about a cm plus by half a cm long. My eldest has no cafe au lait's and

neither does anyone else in our family. though they have the odd beauty

spot/mole.

[ ] Re: drooling/birthmarks

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr's have always said, " Hmm " but never gone

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

>

[Guest guest]

My son has a " stork bite " at the nape of his neck. It has not faded, but has

moved up as he has grown and is now covered with hair.

In a message dated 12/21/2006 6:40:43 A.M. Eastern Standard Time,

claudia.morris@... writes:

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr' that therapists/dr'<WBR>s have always said,

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

[Guest guest]

yep - Josh is biracial, very light skin tone but has these cafe au lait spots -

somewhat darker than his skin tone - in a large ragged edge shape over his right

knee, then there are a couple on his back and another on his right thigh. they

do look sort of like a coffee stain.

sherry

danacrumb <danacrumb@...> wrote:

what are cafe au lait spots? our son silas has two if they are what i

think they are... do they look like coffe stains? he has one on his

but and one on his elbow.

> ph has a large cafe au lait spot on his back and several

smaller

> ones on his shoulder. Often 1 or 2 don't really mean

> anything...while they can be associated with several neurological

> conditions as well. If there is just an hand-full of kids with

> these skin lesions...it doesn't mean much. However if it seems

the

> majority of children with apraxia had 1 or more cafe au lait

> spots...it would be more interesting. -claudia

>

> > > interesting about the port wine stain - Josh has cafe au lait

> spots

> > on his back on one his leg - we were told they were due to some

> neural

> > development that was either delayed or non-existent during

> prenatal

> > period. I wonder if there is some connection - anyone else out

> there

> > with kids with these type of spots?

> > >

> > > sherry

> > >

> >

> > That is interesting info- I wish I could find out more about

> that. Ds

> > has a brown spot (I don't know if it's called cafe au lait) on

his

> side

> > that therapists/dr's have always said, " Hmm " but never gone

> farther

> > than that. He had two other spots that have mostly faded now,

> plus a

> > mongolian spot on his foot.

> >

> > , mom to Nate, age 3

> >

>

>

>

>

>

>

[Guest guest]

Hi Kari -

I think I'm the one who started asking about the birthmarks/cafe au lait spots

on our kids. I'm not in the medical field, but I thought it was an interesting

remark someone else had made about spots on their kid, started thinking about my

Josh, and then decided it might be something else in common amongst our kids.

No clue what significance, if any, there is except that I do recall Josh's doc,

when Josh was tiny, saying something about the cafe au lait as indicative of

some neural issue during prenatal development - nothing more specific than that.

I am going to ask Josh's neuro in February about this since it seems there are

several kids here with spots (although I don't know what the comparison is with

" normally developing kids " who do or don't have spots).

Someone wrote that if there are 7 or more, then it could be indicative of a

genetic disorder. Josh doesn't have more than 7 but I still wonder what the

relationship is with the neural development and the spots, generally speaking.

Could be nothing and I could be going down some winding road for no reason but,

hey, gotta cover all bases!

Sherry

Kari Minnich <klminnich@...> wrote:

Hi Everyone,

I normally just read posts on this site, but found it

interesting that other apraxic children also had

birthmarks. My daughter has 2 large birthmarks on her

back from birth. Her pediatrician has always kept an

eye on them, but told us not to be concerned. When

she was seen by a neurologist at 12 months he also

mentioned her birthmarks, but did not state any

concerns. She is currently undergoing speech therapy

and awaiting an official diagnosis of apraxia with a

Speech Pathologist, MD in February.

Reading the posts on this site has been both

interesting and insightful. I just thought I would

chime in on the birthmarks to see if there is any

connection.

Thanks for listening,

Kari Minnich

Mom to Emrey (2.8)

__________________________________________________

[Guest guest]

My 2 1/2 year old son with apraxia has a cafe au lait spot...so does my daughter

(no developmental delay), so do I and my husband. What is odd is that my son

who is very light skinned and blonde hair blue eyed has a mongolian spot. We

are told it's from his italian heritage...My husbands father is 100% Italian.

My son is the only one that we know of born with a mongolian spot. My 2 year

old nephew has Apraxia as well and has some birthmarks, my sister in law was

told by the neurologist that if he had 5 or more then they would have to look

into some other neurological disease/syndrome. We have never had any concerns

with my son's spots.

danacrumb <danacrumb@...> wrote:

what are cafe au lait spots? our son silas has two if they are what i

think they are... do they look like coffe stains? he has one on his

but and one on his elbow.

> ph has a large cafe au lait spot on his back and several

smaller

> ones on his shoulder. Often 1 or 2 don't really mean

> anything...while they can be associated with several neurological

> conditions as well. If there is just an hand-full of kids with

> these skin lesions...it doesn't mean much. However if it seems

the

> majority of children with apraxia had 1 or more cafe au lait

> spots...it would be more interesting. -claudia

>

> > > interesting about the port wine stain - Josh has cafe au lait

> spots

> > on his back on one his leg - we were told they were due to some

> neural

> > development that was either delayed or non-existent during

> prenatal

> > period. I wonder if there is some connection - anyone else out

> there

> > with kids with these type of spots?

> > >

> > > sherry

> > >

> >

> > That is interesting info- I wish I could find out more about

> that. Ds

> > has a brown spot (I don't know if it's called cafe au lait) on

his

> side

> > that therapists/dr's have always said, " Hmm " but never gone

> farther

> > than that. He had two other spots that have mostly faded now,

> plus a

> > mongolian spot on his foot.

> >

> > , mom to Nate, age 3

> >

>

>

>

>

>

>

[Guest guest]

Okay, here is my input.

Our little guy, who is apraxic, has a tannish irregularly-shaped spot (cafe au

lait?) on the top of his wrist. He is 2 1/2 now and it is about 1/4 " long or

so, growing larger as he grows, of course. It has been present since birth, and

the doctor called it a birth mark. We were surprised, as no one else in the

family has such a spot.

I don't really know what a cafe au lait spot is, or the Mongolian spot some have

mentioned. But when I read about it here, I immediately thought of our little

guy's unusual spot. Maybe someone can fill me in. I am just guessing.

Suzanne

[ ] Re: drooling/birthmarks

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr' s have always said, " Hmm " but never gone

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

>

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__________________________________________________

[Guest guest]

Hhhmmm.... Maybe I'll ask Josh's neuro about it again when we see him at

Shriner's in Feb. If there are more folks out there with kids with cafe au

laits or similar type stains, could you let me know? If I approach the neuro

with that info, he might take it a bit more seriously.

And thanks, , for your response. As with most things, if there are

more kids with similar characteristics, it's worth more investigation.

Sherry

keepmyeyesonheaven <keepmyeyesonheaven@...> wrote:

> interesting about the port wine stain - Josh has cafe au lait spots

on his back on one his leg - we were told they were due to some neural

development that was either delayed or non-existent during prenatal

period. I wonder if there is some connection - anyone else out there

with kids with these type of spots?

>

> sherry

>

That is interesting info- I wish I could find out more about that. Ds

has a brown spot (I don't know if it's called cafe au lait) on his side

that therapists/dr's have always said, " Hmm " but never gone farther

than that. He had two other spots that have mostly faded now, plus a

mongolian spot on his foot.

, mom to Nate, age 3

[Guest guest]

More than 5 spots would indicate a rare neurological disease known as

Neurofibromatosis, which affects speech and language as well as motor abilities.

wendy mazza <wendybird115@...> wrote: My 2 1/2 year old son with

apraxia has a cafe au lait spot...so does my daughter (no developmental delay),

so do I and my husband. What is odd is that my son who is very light skinned and

blonde hair blue eyed has a mongolian spot. We are told it's from his italian

heritage...My husbands father is 100% Italian. My son is the only one that we

know of born with a mongolian spot. My 2 year old nephew has Apraxia as well and

has some birthmarks, my sister in law was told by the neurologist that if he had

5 or more then they would have to look into some other neurological

disease/syndrome. We have never had any concerns with my son's spots.

danacrumb wrote:

what are cafe au lait spots? our son silas has two if they are what i

think they are... do they look like coffe stains? he has one on his

but and one on his elbow.

> ph has a large cafe au lait spot on his back and several

smaller

> ones on his shoulder. Often 1 or 2 don't really mean

> anything...while they can be associated with several neurological

> conditions as well. If there is just an hand-full of kids with

> these skin lesions...it doesn't mean much. However if it seems

the

> majority of children with apraxia had 1 or more cafe au lait

> spots...it would be more interesting. -claudia

>

> > > interesting about the port wine stain - Josh has cafe au lait

> spots

> > on his back on one his leg - we were told they were due to some

> neural

> > development that was either delayed or non-existent during

> prenatal

> > period. I wonder if there is some connection - anyone else out

> there

> > with kids with these type of spots?

> > >

> > > sherry

> > >

> >

> > That is interesting info- I wish I could find out more about

> that. Ds

> > has a brown spot (I don't know if it's called cafe au lait) on

his

> side

> > that therapists/dr's have always said, " Hmm " but never gone

> farther

> > than that. He had two other spots that have mostly faded now,

> plus a

> > mongolian spot on his foot.

> >

> > , mom to Nate, age 3

> >

>

>

>

>

>

>

[Guest guest]

My son with dyspraxia has what I think you mean by a cafe au lait spot on his

leg. It's about a cm plus by half a cm long. My eldest has no cafe au lait's and

neither does anyone else in our family. though they have the odd beauty

spot/mole.

[ ] Re: drooling/birthmarks

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr's have always said, " Hmm " but never gone

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

>

[Guest guest]

My DS has a large birth mark on his back near his neck. But I don't think it's

a Cafe au Lait spot since it's lighter than the surrounding skin. But it is

rather large..

Amy D

" claudia.morris " <claudia.morris@...> wrote:

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr's have always said, " Hmm " but never gone

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

>

Amy

__________________________________________________

[Guest guest]

yep - Josh is biracial, very light skin tone but has these cafe au lait spots -

somewhat darker than his skin tone - in a large ragged edge shape over his right

knee, then there are a couple on his back and another on his right thigh. they

do look sort of like a coffee stain.

sherry

danacrumb <danacrumb@...> wrote:

what are cafe au lait spots? our son silas has two if they are what i

think they are... do they look like coffe stains? he has one on his

but and one on his elbow.

> ph has a large cafe au lait spot on his back and several

smaller

> ones on his shoulder. Often 1 or 2 don't really mean

> anything...while they can be associated with several neurological

> conditions as well. If there is just an hand-full of kids with

> these skin lesions...it doesn't mean much. However if it seems

the

> majority of children with apraxia had 1 or more cafe au lait

> spots...it would be more interesting. -claudia

>

> > > interesting about the port wine stain - Josh has cafe au lait

> spots

> > on his back on one his leg - we were told they were due to some

> neural

> > development that was either delayed or non-existent during

> prenatal

> > period. I wonder if there is some connection - anyone else out

> there

> > with kids with these type of spots?

> > >

> > > sherry

> > >

> >

> > That is interesting info- I wish I could find out more about

> that. Ds

> > has a brown spot (I don't know if it's called cafe au lait) on

his

> side

> > that therapists/dr's have always said, " Hmm " but never gone

> farther

> > than that. He had two other spots that have mostly faded now,

> plus a

> > mongolian spot on his foot.

> >

> > , mom to Nate, age 3

> >

>

>

>

>

>

>

[Guest guest]

Hi Kari -

I think I'm the one who started asking about the birthmarks/cafe au lait spots

on our kids. I'm not in the medical field, but I thought it was an interesting

remark someone else had made about spots on their kid, started thinking about my

Josh, and then decided it might be something else in common amongst our kids.

No clue what significance, if any, there is except that I do recall Josh's doc,

when Josh was tiny, saying something about the cafe au lait as indicative of

some neural issue during prenatal development - nothing more specific than that.

I am going to ask Josh's neuro in February about this since it seems there are

several kids here with spots (although I don't know what the comparison is with

" normally developing kids " who do or don't have spots).

Someone wrote that if there are 7 or more, then it could be indicative of a

genetic disorder. Josh doesn't have more than 7 but I still wonder what the

relationship is with the neural development and the spots, generally speaking.

Could be nothing and I could be going down some winding road for no reason but,

hey, gotta cover all bases!

Sherry

Kari Minnich <klminnich@...> wrote:

Hi Everyone,

I normally just read posts on this site, but found it

interesting that other apraxic children also had

birthmarks. My daughter has 2 large birthmarks on her

back from birth. Her pediatrician has always kept an

eye on them, but told us not to be concerned. When

she was seen by a neurologist at 12 months he also

mentioned her birthmarks, but did not state any

concerns. She is currently undergoing speech therapy

and awaiting an official diagnosis of apraxia with a

Speech Pathologist, MD in February.

Reading the posts on this site has been both

interesting and insightful. I just thought I would

chime in on the birthmarks to see if there is any

connection.

Thanks for listening,

Kari Minnich

Mom to Emrey (2.8)

__________________________________________________

[Guest guest]

My 2 1/2 year old son with apraxia has a cafe au lait spot...so does my daughter

(no developmental delay), so do I and my husband. What is odd is that my son

who is very light skinned and blonde hair blue eyed has a mongolian spot. We

are told it's from his italian heritage...My husbands father is 100% Italian.

My son is the only one that we know of born with a mongolian spot. My 2 year

old nephew has Apraxia as well and has some birthmarks, my sister in law was

told by the neurologist that if he had 5 or more then they would have to look

into some other neurological disease/syndrome. We have never had any concerns

with my son's spots.

danacrumb <danacrumb@...> wrote:

what are cafe au lait spots? our son silas has two if they are what i

think they are... do they look like coffe stains? he has one on his

but and one on his elbow.

> ph has a large cafe au lait spot on his back and several

smaller

> ones on his shoulder. Often 1 or 2 don't really mean

> anything...while they can be associated with several neurological

> conditions as well. If there is just an hand-full of kids with

> these skin lesions...it doesn't mean much. However if it seems

the

> majority of children with apraxia had 1 or more cafe au lait

> spots...it would be more interesting. -claudia

>

> > > interesting about the port wine stain - Josh has cafe au lait

> spots

> > on his back on one his leg - we were told they were due to some

> neural

> > development that was either delayed or non-existent during

> prenatal

> > period. I wonder if there is some connection - anyone else out

> there

> > with kids with these type of spots?

> > >

> > > sherry

> > >

> >

> > That is interesting info- I wish I could find out more about

> that. Ds

> > has a brown spot (I don't know if it's called cafe au lait) on

his

> side

> > that therapists/dr's have always said, " Hmm " but never gone

> farther

> > than that. He had two other spots that have mostly faded now,

> plus a

> > mongolian spot on his foot.

> >

> > , mom to Nate, age 3

> >

>

>

>

>

>

>

[Guest guest]

Okay, here is my input.

Our little guy, who is apraxic, has a tannish irregularly-shaped spot (cafe au

lait?) on the top of his wrist. He is 2 1/2 now and it is about 1/4 " long or

so, growing larger as he grows, of course. It has been present since birth, and

the doctor called it a birth mark. We were surprised, as no one else in the

family has such a spot.

I don't really know what a cafe au lait spot is, or the Mongolian spot some have

mentioned. But when I read about it here, I immediately thought of our little

guy's unusual spot. Maybe someone can fill me in. I am just guessing.

Suzanne

[ ] Re: drooling/birthmarks

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr' s have always said, " Hmm " but never gone

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

>

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__________________________________________________

[Guest guest]

More than 5 spots would indicate a rare neurological disease known as

Neurofibromatosis, which affects speech and language as well as motor abilities.

wendy mazza <wendybird115@...> wrote: My 2 1/2 year old son with

apraxia has a cafe au lait spot...so does my daughter (no developmental delay),

so do I and my husband. What is odd is that my son who is very light skinned and

blonde hair blue eyed has a mongolian spot. We are told it's from his italian

heritage...My husbands father is 100% Italian. My son is the only one that we

know of born with a mongolian spot. My 2 year old nephew has Apraxia as well and

has some birthmarks, my sister in law was told by the neurologist that if he had

5 or more then they would have to look into some other neurological

disease/syndrome. We have never had any concerns with my son's spots.

danacrumb wrote:

what are cafe au lait spots? our son silas has two if they are what i

think they are... do they look like coffe stains? he has one on his

but and one on his elbow.

> ph has a large cafe au lait spot on his back and several

smaller

> ones on his shoulder. Often 1 or 2 don't really mean

> anything...while they can be associated with several neurological

> conditions as well. If there is just an hand-full of kids with

> these skin lesions...it doesn't mean much. However if it seems

the

> majority of children with apraxia had 1 or more cafe au lait

> spots...it would be more interesting. -claudia

>

> > > interesting about the port wine stain - Josh has cafe au lait

> spots

> > on his back on one his leg - we were told they were due to some

> neural

> > development that was either delayed or non-existent during

> prenatal

> > period. I wonder if there is some connection - anyone else out

> there

> > with kids with these type of spots?

> > >

> > > sherry

> > >

> >

> > That is interesting info- I wish I could find out more about

> that. Ds

> > has a brown spot (I don't know if it's called cafe au lait) on

his

> side

> > that therapists/dr's have always said, " Hmm " but never gone

> farther

> > than that. He had two other spots that have mostly faded now,

> plus a

> > mongolian spot on his foot.

> >

> > , mom to Nate, age 3

> >

>

>

>

>

>

>

[Guest guest]

My DS has a large birth mark on his back near his neck. But I don't think it's

a Cafe au Lait spot since it's lighter than the surrounding skin. But it is

rather large..

Amy D

" claudia.morris " <claudia.morris@...> wrote:

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr's have always said, " Hmm " but never gone

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

>

Amy

__________________________________________________

[Guest guest]

My 4 year old Apraxic son also has Cafe Au Latte birth marks he has one

large one on his forehead and several little ones on his wrist, chest and

ankle.

His neurologist Dr. Abba Cargan, did count and measure them during his first

visit with him, and he explained that these spots can be related to a

serious neurological condition, which thank God my son does not have, because

they

have to measure a certain size, and have I think 6 or more. I think it's

pretty ironic that several of us with Apraxic children have these spots. Let

me

know if someone finds out anything, in the meantime, has his next

appointment with Dr. Cargan on January 11th and I will run it by him....

Dana in NJ

[Guest guest]

There is a condition called Tuberous Sclerosis which sometimes involves areas of

skin with different pigment as a symptom. A lot of these kids have seizures in

their first year of life but I'm not sure whether they all do. The only reason

I know about this is because my son did have lots of seizures as an infant and

they specifically looked for these spots on him for evidence that TS might be a

potential cause of his seizures but didn't find them. This is probably totally

unrelated to what any of you are seeing but I wanted to post the link in case

anyone wanted to ask their neuro about it.

Here it is:

http://en.wikipedia.org/wiki/Tuberous_sclerosis

, mom to Cordis, almost 3, history of Infantile Spasms (severe epilepsy)

- now resolved, non-verbal with significant cognitive delays, and cute, cute,

cute!

Amy <acdudick@...> wrote:

My DS has a large birth mark on his back near his neck. But I don't

think it's a Cafe au Lait spot since it's lighter than the surrounding skin. But

it is rather large..

Amy D

" claudia.morris " <claudia.morris@...> wrote:

ph has a large cafe au lait spot on his back and several smaller

ones on his shoulder. Often 1 or 2 don't really mean

anything...while they can be associated with several neurological

conditions as well. If there is just an hand-full of kids with

these skin lesions...it doesn't mean much. However if it seems the

majority of children with apraxia had 1 or more cafe au lait

spots...it would be more interesting. -claudia

> > interesting about the port wine stain - Josh has cafe au lait

spots

> on his back on one his leg - we were told they were due to some

neural

> development that was either delayed or non-existent during

prenatal

> period. I wonder if there is some connection - anyone else out

there

> with kids with these type of spots?

> >

> > sherry

> >

>

> That is interesting info- I wish I could find out more about

that. Ds

> has a brown spot (I don't know if it's called cafe au lait) on his

side

> that therapists/dr's have always said, " Hmm " but never gone

farther

> than that. He had two other spots that have mostly faded now,

plus a

> mongolian spot on his foot.

>

> , mom to Nate, age 3

>

Amy

__________________________________________________

[Guest guest]

My 4 year old Apraxic son also has Cafe Au Latte birth marks he has one

large one on his forehead and several little ones on his wrist, chest and

ankle.

His neurologist Dr. Abba Cargan, did count and measure them during his first

visit with him, and he explained that these spots can be related to a

serious neurological condition, which thank God my son does not have, because

they

have to measure a certain size, and have I think 6 or more. I think it's

pretty ironic that several of us with Apraxic children have these spots. Let

me

know if someone finds out anything, in the meantime, has his next

appointment with Dr. Cargan on January 11th and I will run it by him....

Dana in NJ