Another scar tissue question

[Guest guest]

Hello everyone. My name's Kathleen and though I've never

posted here before, this thread caught my attention. When I was

12 (I'm 21 now), I had decompression surgery, about a week

later I developed hydrocephalus (sp?) and had to have a shunt

put in. Though I had the surgeries, my symptoms never really

stopped. I still have the violent 30 second migrains whenever I

laugh a lot or don't get enough sleep and still loose feeling in my

fingers and feet sometimes. I've talked to the neurosurgeon who

performed my surgeries, and he says that it's nothing to worry

about, for some people the headaches never go away.

I have since seen another doctor and he told me that I have

excessive scar tissue and that I need another decompression. I

don't mind admitting that the thought terrifies me, but I don't know

what to do. Has anyone been through something like this or

have any suggestions about what I should do?

Kathleen

[Guest guest]

Kathleen,

I know there are people in this group that have had more than one

decompression. Maybe you should get another opinion and that may help you

feel a little more comfortable with your decision, whatever that may be. I

don't blame you for being scared. It is a totally normal reaction to all of

this. Please don't rush into anything, tho. Try to see another NSG first

and she what he/she has to say.

Please let us know what you decide and what the outcome is. You are in my

thoughts and prayers.

Take Care!!!!

Sheila