Re: Melatonin - to Rose Marie

[Guest guest]

Dear RoseMarie

Thanks for the article, I made a copy. And welcome back to the list.

The spasms sound awful. I do hope the VNS gives her some relief. We are still

trying to figure out if the keto diet is doing any good for . Without

options, I am hanging in and trying to fine tune.

, 's mum

don_gal@... wrote:

Someone had asked what the upper limits are for melatonin. According to Dr.

LaJoie out of the NYU Epilepsy Center, you can go up to 10mg safely. Here is a

link to an article she has published:

http://www.nyuepilepsy.org/cec/images/melatoninarticle.pdf

Our neurologist recommended we put our daughter on melatonin to help her fall

asleep more quickly, since that state of " hovering " between awake and asleep

lowers her seizure threshold. We have not needed to go beyond 2mg with her for

encouraging good sleep routines. We have never tried using melatonin related to

seizure control otherwise, as described in the article above. I personally

would feel uncomfortable using such large doses without a doctor's supervision,

chicken that I am. But maybe that helps with question of upper limits on

dosing.

--

Rose-Marie, mom to , age 8, Maple Valley, WA USA