Guest guest Posted December 11, 2004 Report Share Posted December 11, 2004 Hi , this is an old keto post from 2001 between Rose Marie and De Ette that I had saved that gives a fair bit of info. Re any toxic effects, I am gathering from this that an overdose results in daytime sleepiness/fogginess, so I guess you would probably gradually increase it up till you see those sorts of side effects and then back it down again? PS - I also remember reading a few posts ages ago where some kiddies had not responded too well to the melatonin, with an actual increase in seizures, but on the whole it seemed to give more beneficial results than not. > > 1) Does anyone have any good or bad experiences to > > share? > > Our experience with Melatonin has been incredibly positive. Our daughter > falls asleep within 30 min of receiving her dose. Now she sleeps restfully. > Previously it took her 2-4 hours to fall asleep, and her sleep was fitful. > > 2) He recommended 3 mg. capsules -- I'd start with > > probably 1/3 of a capsule and see how it goes. Does > > this sound like a good dosage for a 6 year old -- 40 > > pounds? > > Our neuro recommended starting at 0.5mg (500mcg) for our 44 lb. daughter. > If that was not a high enough dose, he recommended increasing by .5mg until > we reached a satisfactory level. For the first week we had to double to > 1mg, but after that I as able to cut back to 0.5 mg. Your idea to start low > is a prudent one--if you find a brand with a high level of bioavailibility, > you may not need the full 3 mg. > > I was able to find two brands with 0.5 mg doses. The Nutrition Now brand > that we are using is NOT keto-friendly (lots of dextrose) and we need to > check the other source. 3mg is a very standard dose and should be easy to > find. > > 3) Is Melatonin addictive? If it works, could it > > become a crutch to get her to sleep? > > It is actually recommended for the average person to take " holidays " from > Melatonin, not because it is addictive but just to let your own body do its > own melatonin manufacturing for awhile. However, many neuros working with > atypical kids seem to prefer that > we go with the flow--use it as long as needed, come back if necessary. For > many kids, it's a seasonal thing that can be eliminated when the dark winter > hours increase. We have had our little one on it since August, and I'm > loving sleep SO much, for the first time in her little life, that I'm not in > any hurry to try a holiday. > > > 5) What could I expect in the morning -- will she be > > groggy? > > Daytime grogginess can indicate a dose too high. The correct dose for your > child should ease her into sleep without her being groggy. > > A cautionary note from our neuro is this: when you find one brand that > works well for you, stick with that brand. The bioavailability between > brands differs, since it isn't a regulated substance, and the same dose that > works with one brand may be too high or too low in another. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 We had that when medications were being using. Now, off medications, there is basically an immediate recovery from a seizure. It was probably toxicity from the drugs. The effective levels seem to change dramatically with the diet. Bill wrote: > Thanks, . Kind of sorted it all out for me and gave me the answers I needed. > > One other question, and it may be obvious for everyone but me: One seizure (complex partial/grand mal - lasting a couple of minutes, with regaining consciousness up to five minutes or thereabouts) leaves wiped out for the day. If she has one early morning, her whole day is shot. She is tired, and just " doggy " all day. Is this the norm? I read and read of children having all these seizures and going to school, having them at school, etc. Why is unable to carry one after one? Is this normal or abnormal for kiddos with seizures? Thanks... . > > & Hill rich.sue.hill@...> wrote: > Quote Link to comment Share on other sites More sharing options...
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