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Hi , this is an old keto post from 2001 between Rose Marie and De

Ette that I had saved that gives a fair bit of info. Re any toxic effects, I

am gathering from this that an overdose results in daytime

sleepiness/fogginess, so I guess you would probably gradually increase it up

till you see those sorts of side effects and then back it down again?

PS - I also remember reading a few posts ages ago where some kiddies had

not responded too well to the melatonin, with an actual increase in

seizures, but on the whole it seemed to give more beneficial results than

not.

> > 1) Does anyone have any good or bad experiences to

> > share?

>

> Our experience with Melatonin has been incredibly positive. Our

daughter

> falls asleep within 30 min of receiving her dose. Now she sleeps

restfully.

> Previously it took her 2-4 hours to fall asleep, and her sleep was

fitful.

> > 2) He recommended 3 mg. capsules -- I'd start with

> > probably 1/3 of a capsule and see how it goes. Does

> > this sound like a good dosage for a 6 year old -- 40

> > pounds?

>

> Our neuro recommended starting at 0.5mg (500mcg) for our 44 lb.

daughter.

> If that was not a high enough dose, he recommended increasing by .5mg

until

> we reached a satisfactory level. For the first week we had to double to

> 1mg, but after that I as able to cut back to 0.5 mg. Your idea to start

low

> is a prudent one--if you find a brand with a high level of

bioavailibility,

> you may not need the full 3 mg.

>

> I was able to find two brands with 0.5 mg doses. The Nutrition Now

brand

> that we are using is NOT keto-friendly (lots of dextrose) and we need to

> check the other source. 3mg is a very standard dose and should be easy

to

> find.

> > 3) Is Melatonin addictive? If it works, could it

> > become a crutch to get her to sleep?

>

> It is actually recommended for the average person to take " holidays "

from

> Melatonin, not because it is addictive but just to let your own body do

its

> own melatonin manufacturing for awhile. However, many neuros working

with

> atypical kids seem to prefer that

> we go with the flow--use it as long as needed, come back if necessary.

For

> many kids, it's a seasonal thing that can be eliminated when the dark

winter

> hours increase. We have had our little one on it since August, and I'm

> loving sleep SO much, for the first time in her little life, that I'm

not in

> any hurry to try a holiday.

>

> > 5) What could I expect in the morning -- will she be

> > groggy?

>

> Daytime grogginess can indicate a dose too high. The correct dose for

your

> child should ease her into sleep without her being groggy.

>

> A cautionary note from our neuro is this: when you find one brand that

> works well for you, stick with that brand. The bioavailability between

> brands differs, since it isn't a regulated substance, and the same dose

that

> works with one brand may be too high or too low in another.

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We had that when medications were being using. Now, off medications,

there is basically an immediate recovery from a seizure. It was probably

toxicity from the drugs. The effective levels seem to change

dramatically with the diet.

Bill

wrote:

> Thanks, . Kind of sorted it all out for me and gave me the answers I

needed.

>

> One other question, and it may be obvious for everyone but me: One seizure

(complex partial/grand mal - lasting a couple of minutes, with regaining

consciousness up to five minutes or thereabouts) leaves wiped out for the

day. If she has one early morning, her whole day is shot. She is tired, and

just " doggy " all day. Is this the norm? I read and read of children having all

these seizures and going to school, having them at school, etc. Why is

unable to carry one after one? Is this normal or abnormal for kiddos with

seizures? Thanks... .

>

> & Hill rich.sue.hill@...> wrote:

>

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