Re: sleep seizures help needed - guidelines on melatonin??

[Guest guest]

Dear Stefanie - Are there any guidelines on " how much " melatonin is safe to give

a child? I had tried 1mg with my daughter, pre-keto, and it had no effect.

That is the dose the neuro prescribed. Does it, at any point, get toxic?

Thanks, , mumma to dear , age 5

Stefanie stefanie_allen@...> wrote:Sorry I should have said where I

purchase our

melatonin. I get it from GNC. It comes in 1mg pills

and 3mg pills. We started at 1 mg but I still bought

the 3mg and just split it to save money. Now, he is

on 2 3mg pills.

Stefanie

--- HEATHER JACKSON jackson6542@...> wrote:

> :

> Is this over the counter or need a scrip? From what

> I just read up on it it is?? Health food store or

> something? was asking for me. Our son is

> plagued with seizures at night - I just told the

> neuro yesterday that I felt like the lack of sleep

> might be contributing to the increased seizure

> activity during the day - he gave a scrip for ativan

> - but you wrote how I felt about that. Thanks

> thanks

>

> Re: sleep seizures help

> needed

>

>

> Hi

>

> It's kind of ironic that you are asking this right

> now. I was debating about writing in about our

> current success with melatonin but didn't want to

> give

> aneyone false hope if it didn't work for them.

> But i

> truly believe this was God's way of telling me to

> write it down and send it.

>

> My son Briar 7yrs old, and diagnosed at 21 mo was

> having 1 to 3 tonic/clonic seizures this past year

> abt. every night. He's been on the diet for 2

> years

> and he takes Keppra. Although he has had a

> considerable reduction in seizure activity on the

> diet, this past year he started an increase in his

> activity to even having breakthrough seizures

> (tonic/clonic, lots of absence and myoclonics)

> during

> the day. We were getting desperate. Soooo we

> admitted him for more testing. What they found

> through his EEG is that he was never getting into

> REM

> sleep. In fact out of the 4 levels of sleep, he

> was

> usually only going into level 2 and this was on

> nights

> that he had NO seizure activity. Our doctor felt

> that

> if he would get better sleep he would improve. Of

> course we agreed. We tried Ativan a sleeping pill

> which I think is also a benzo drug (we know benzos

> aren't our friend.) Although he made it through

> the

> night without seizure, he would have 1 or 2 very

> large

> drops the next AM within the 1st hour he was

> awake.

> We stopped it and started up with melatonin. We

> GRADUALLY worked our way up to 6mg each night. At

> 6mg

> he has only had a total of 9 tonic/clonic seizures

> in

> the past 28 days and only at night. That is a

> huge

> reduction for us. He was also able to go to bed

> earlier. It's not perfect BUT it's soooo much

> better

> than where we were. His behavior has improved

> dramatically, and he's learning and participating

> in

> school. We think some of his break throughs came

> from

> a lower threshold from a cold and teeth coming in.

> I

> know there is no magic pill for anyone but for now

> we

> are just so happy to be going through a good

> spell.

> We hope it continues and we pray that it will.

>

> Hope this helps you.

> sincerely,

> Stefanie

>

>

> For more information you can go to the home page

> and

> look up melatonin on the Doosesyndrome yahoo group

> site or try the keto home page and see if they

> have

> info too. I also looked up melatonin on Mayo

> Clinics

> website and found some interesting facts.

> --- shellyatyeo shelly@...>

> wrote:

>

> >

> > What have many of you used for sleep seizures.

> I

> > remember reading a

> > few posts over the last year regarding something

> > called melations or

> > similar. Does anyone remember?

> >

> > shelly

> >

> >

> >

> >

>

>

>

>

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