RE: Jim re: G-tube....To Tracey!

[Guest guest]

In a message dated 12/10/2004 1:02:24 PM Pacific Standard Time,

jim.regitz@... writes:

Thank you Tracey! Did you get the fund too?

No..it really wasn't indicated for Skyler. A brief history, if you don't

mind: Skyler's had intractable E for 14 years. 2 years ago he developed

Myasthenia Gravis...a neuro-muscular disorder...which affected his breathing

and

swallowing...hence the n-g. Because of the breathing problems no g-i talk

would anesthetize him...til he was stronger and could tolerate the procedure.

He now eats some solids by mouth...all liquids and meds (and MCT as he's on

that version of the Keto diet) go through the tube. It is SO much better

than an n-g...and so nice not having that damned thing taped to his face for the

world to stare at.

What's your story?

Tracey

[Guest guest]

Thank you Tracey! Did you get the fund too?

Jim re: G-tube....

In a message dated 12/10/2004 8:32:11 AM Pacific Standard Time,

jim.regitz@... writes:

We are going to get a G Tube for our daughter in two weeks. We've

been feeding her via ng tube for a year now. I hope we are making the

right decision.

We were in the exact same boat...our son had an n-g for almost 17 mos

and

finally got a g-tube, then a Mic-Key. We LOVE it and wish we hadn't had

to

wait so long...I'm confident you're making a good decision. Tracey