Re: Keto diet via G-tube....Shelley

December 10, 2004

,

What kind of medicaid were you on? You should be able to apply for disability

medicaid for your son. In GA it is called a deeming waiver. There are no

financial guidlines so much as medical criteria.

Keto diet via G-tube.... help

My son recieved his mic-key button and started the keto diet in July

of this year. He is now 22 mths old. Our insurance has denied his

RCF formula and I'm blue in the face fighting with them over it. We

also got Medicaid as a secondary ins. in July. They have been

paying for the RCF. We just found out that we are no longer

eligible for Medicaid after 12/31. We can't afford the RCF as we

are already struggling.

My question: Are there other kids who are strictly tube fed that

use anything other than the RCF while on the keto diet? Can baby

food and cream or anything else be combined for feedings? Is this

hard?

Thanks for any suggestions - I really need them.

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

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