Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Hi Gretchen- It's early in the morning and I'm trying to catch up on the 150plus messages I've let pile up - at any rate - I've been thinking about Ethan as I haven't seen many postings from you - how is the big guy doing these days? How's he doing in school? What's up w/the tremor things? Did you ever take him in for that EEG? Any more pseudo seizures related to stress? Just checking in - I don't get on here as much as I used to so wanted to take advantage while I'm thinking of you. HUGS! (mom to ) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Hi , Thanks for thinking of us. We had good news last week, in that Ethan's EEG was very good, almost normal. The doctor feels he still needs the diet, which we expected, but he feels thatEthan will out grow his seizures (a first for that suggestion). We think the tremors are from low Mg, since blood levels were slightly low. There could also be a pyschological component to them, too. A result of the physcial stress his body is under on this diet and the mental stress, too, I guess. To help with that aspect, his ratio was lowered to 2.5:1. So, we are feeling very optomistic again. These are odd episodes, though. Yesterday he had one where he kept saying " OK " every 4 seconds for about 30 minutes. He couldn'lt stop. He could laugh, and talk a bit between " OKs " , but he couldn't stop saying it. We laughed thinking about what it would be like if he started saying " OK " at school. The teacher would tell him to stop, and he would say, " OK " . Then, she would threaten to send him to the principal and he would say, " OK " ...and on and on. The brain just mystifies me. I would like to know how is doing, but my husband is taking this computer on a trip, and our home computer is out of order. I'm thinking he is still having seizures, but just at night. But, I am hoping that they have stopped completly. Thanks for staying in touch. Gretchen > Hi Gretchen- > It's early in the morning and I'm trying to catch up > on the 150plus messages I've let pile up - at any rate > - I've been thinking about Ethan as I haven't seen > many postings from you - how is the big guy doing > these days? How's he doing in school? What's up > w/the tremor things? Did you ever take him in for > that EEG? Any more pseudo seizures related to stress? > > Just checking in - I don't get on here as much as I > used to so wanted to take advantage while I'm thinking > of you. > > HUGS! > (mom to ) > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Gretchen- Just wanted to say your post made me smile regarding Ethan. A almost normal EEG, I learned to just about love those words. mom to Ethan also 2/2003-4/2004 Re: Gretchen/Ethan Hi , Thanks for thinking of us. We had good news last week, in that Ethan's EEG was very good, almost normal. The doctor feels he still needs the diet, which we expected, but he feels thatEthan will out grow his seizures (a first for that suggestion). We think the tremors are from low Mg, since blood levels were slightly low. There could also be a pyschological component to them, too. A result of the physcial stress his body is under on this diet and the mental stress, too, I guess. To help with that aspect, his ratio was lowered to 2.5:1. So, we are feeling very optomistic again. These are odd episodes, though. Yesterday he had one where he kept saying " OK " every 4 seconds for about 30 minutes. He couldn'lt stop. He could laugh, and talk a bit between " OKs " , but he couldn't stop saying it. We laughed thinking about what it would be like if he started saying " OK " at school. The teacher would tell him to stop, and he would say, " OK " . Then, she would threaten to send him to the principal and he would say, " OK " ...and on and on. The brain just mystifies me. I would like to know how is doing, but my husband is taking this computer on a trip, and our home computer is out of order. I'm thinking he is still having seizures, but just at night. But, I am hoping that they have stopped completly. Thanks for staying in touch. Gretchen > Hi Gretchen- > It's early in the morning and I'm trying to catch up > on the 150plus messages I've let pile up - at any rate > - I've been thinking about Ethan as I haven't seen > many postings from you - how is the big guy doing > these days? How's he doing in school? What's up > w/the tremor things? Did you ever take him in for > that EEG? Any more pseudo seizures related to stress? > > Just checking in - I don't get on here as much as I > used to so wanted to take advantage while I'm thinking > of you. > > HUGS! > (mom to ) > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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