Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Hi , the chiro tx went well. It was like only five minutes, he told me it would only take about five minutes. Kristan didn't even cry or squirm or try to get away like she usually does when being examined by doctors. The chiro was amazed too, he said most kids don't like to be touched. I had warned him how strong she is and is hard to get a hold of, but she was so well behaved. First he just let her relax and then he said to let hear this rod with a soft tip that he would be using to do the alignment so she wouldn't be afraid. He did some adjustments on her neck and along her spine and wants us to come back three times a week for now. Time will tell if this helps her. We go back again on Monday. If you are thinking of trying the chiro, I don't think you have anything to lose, give it a try if you feel comfortable with it. Just talk to one first. Kristan's only had the one treatment, but I am glad that we are trying it. We are also trying to videotape Kristan having a seizure, so the tape can be sent to another doctor in Toronto for a second opinion, but her seizures are just coming out of nowhere and we can't predict like in the past when she is going to have one. We'll get one eventually. Kristan is getting back to her old self again, after the pneumonia, she's attempting to roll again, which she hasn't done for weeks and is taking her bottle again. is really blessed to have you as her mother. I can only imagine what she was like when she came to you. It's hard when they are up at night, been there many times. Glad to hear the seizures are coming down. Satnam, mom to Kristan, 2 years old Keto kid since Aug. 2003 and currently weaning from the diet due to not being able to get high ketones > > > , > > > had several accidents too when he was seizuring last > > week. So > > > frustrating to have them go backwards in development and yet > those > > seizures > > > can literally crumble a child in days. > > > > > > We are from Indianapolis, IN. Not that far from Michigan. My > > hubby and I > > > are reading the " book " again too. I also went to the Charlie > > Foundation > > > website and I find that to be the most encouraging of all. That > > boy was on the > > > diet a LONG time and is now off. He is my hero. > > > > > > , you hang in there and be strong and know that you have > > support from > > > all of us here. That is what is so great about this list. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Wow! I am anxious to hear how it all goes. Sounds like he must be good with Kristan, if she was so relaxed. Children can sense how folks feel about them, I believe. only had one seizure last night and slept about five hours, then dozed and moved around the rest of the night. It was a better night. She went outside in the snow today... didn't do much (she is tired and worn out), but loves the snow and walked around a bit, and up the hill, where sister Martha was crazily sledding down, standing up. Need to get Martha some cross country skis this year. was all bundled up, and this is our first " staying " snow, so the girls wanted to be out in it. walks around okay in boots and all the other clothes. When I think she never sat on her own until over a year...didn't walk until way over two years, it is pretty great she does so well. Once they get going, I think they gain momentum, developmentally. Of course, cocoa is the treat afterwards, and she couldn't have any. Herbal tea seemed to suit, as on high ketones she doesn't care if she eats or not. Keep posting on the chiro treatments. I hope Kristan doesn't have a hard time on lower ratios like did. My they were nasty weeks. She has so settled on the higher ratio, even with the seizures. I guess those who have weaned are no longer on the list, except for , to share if this is normal or not. Of course, who knows what is " normal " anymore??!! Have a great weekend. Kristan should be relaxed for it, and it will be interesting to see what you note in changes... Hugs... . kristansmommy skkahalma@...> wrote: Hi , the chiro tx went well. It was like only five minutes, he told me it would only take about five minutes. Kristan didn't even cry or squirm or try to get away like she usually does when being examined by doctors. The chiro was amazed too, he said most kids don't like to be touched. I had warned him how strong she is and is hard to get a hold of, but she was so well behaved. First he just let her relax and then he said to let hear this rod with a soft tip that he would be using to do the alignment so she wouldn't be afraid. He did some adjustments on her neck and along her spine and wants us to come back three times a week for now. Time will tell if this helps her. We go back again on Monday. If you are thinking of trying the chiro, I don't think you have anything to lose, give it a try if you feel comfortable with it. Just talk to one first. Kristan's only had the one treatment, but I am glad that we are trying it. We are also trying to videotape Kristan having a seizure, so the tape can be sent to another doctor in Toronto for a second opinion, but her seizures are just coming out of nowhere and we can't predict like in the past when she is going to have one. We'll get one eventually. Kristan is getting back to her old self again, after the pneumonia, she's attempting to roll again, which she hasn't done for weeks and is taking her bottle again. is really blessed to have you as her mother. I can only imagine what she was like when she came to you. It's hard when they are up at night, been there many times. Glad to hear the seizures are coming down. Satnam, mom to Kristan, 2 years old Keto kid since Aug. 2003 and currently weaning from the diet due to not being able to get high ketones > > > , > > > had several accidents too when he was seizuring last > > week. So > > > frustrating to have them go backwards in development and yet > those > > seizures > > > can literally crumble a child in days. > > > > > > We are from Indianapolis, IN. Not that far from Michigan. My > > hubby and I > > > are reading the " book " again too. I also went to the Charlie > > Foundation > > > website and I find that to be the most encouraging of all. That > > boy was on the > > > diet a LONG time and is now off. He is my hero. > > > > > > , you hang in there and be strong and know that you have > > support from > > > all of us here. That is what is so great about this list. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Hi , hope all is well and that had a good weekend playing in the snow and is getting used to the higher ratio. When you mentioned that didn't sit until over a year old and walk until over two years old, I couldn't remember how many seizures a day she was having before keto. I often wonder if Kristan will be able to walk, I do believe she will one day and know that we have a lot of work ahead of us to get there. She is sitting independently now and did that at 19 months of age. I know they do make little developmental gains even with the seizures. Kristan had another chiro appointment yesterday and we go back tomorrow. She was a bit fussy, but I let her look out the window which distracts her. Still too soon to tell if the treatment will be beneficial, but her screaming seizures have stopped and when she has napped it's been seizure free, could be a coincidence or it could be the chiro treatment. I mentioned to Kristan's physiotherapist that we are taking her to the chiro and she gave me this look of terror and said that she doesn't like to treat kids who are seeing a chiro b/c then you don't know what is helping them improve. I told her the chiro is to help with the seizures, not with her range of motion and movement. She let it go for now as she is off for Christmas now, but I regret telling her now. She is a great physiotherapist and has brought Kristan a long way. If she brings it up when she sees Kristan in January, then I am just going to tell her we tried the chiro for a month and stopped, but we are not stopping, we figure we will keep at it for 3 months or so. Why would she be so bothered by the chiro? It really bothered me that she reacted that way. I didn't argue with her. Satnam, mom to Kristan, 2 years old > > > > , > > > > had several accidents too when he was seizuring > last > > > week. So > > > > frustrating to have them go backwards in development and yet > > those > > > seizures > > > > can literally crumble a child in days. > > > > > > > > We are from Indianapolis, IN. Not that far from Michigan. My > > > hubby and I > > > > are reading the " book " again too. I also went to the Charlie > > > Foundation > > > > website and I find that to be the most encouraging of all. > That > > > boy was on the > > > > diet a LONG time and is now off. He is my hero. > > > > > > > > , you hang in there and be strong and know that you have > > > support from > > > > all of us here. That is what is so great about this list. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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