Re: New Here - Intro and question about Vitamin Supplements

December 10, 2006

Hi ,

I don't have any wisdom about the Vit. E, but wanted to tell you about powdered

Vit. C.

NOW Foods makes a highly absorbable form of powdered Vit. C (Sodium ascorbate

which is a buffered C - not just ascorbic acid). It is virtually tasteless and

you can put it in anything- applesauce, oatmeal, or any liquid that he drinks.

We just add it to sippy cups of water.

Good luck,

Golden

[ ] New Here - Intro and question about Vitamin

Supplements

Hi, my name is and I am joining this group to learn ways to help my

son, Cordis - almost 3, who is non-verbal.

A brief history:

Cordis was diagnosed with Infantile Spasms (a severe form of infant epilepsy)

at 6.5 mos, though we suspect he began seizing at 4 mos (our doctors thought it

was normal when we talked about it, but not when they saw it on video). Anyway,

he had uncontrolled seizures (sometimes 100+/day) for about a year and tried 8

meds and the ketogenic diet before he just stopped seizing. We suspect he grew

out of the Infantile Spasms.

While seizing, his development was at a standstill. He could roll

(occasionally) and sit (with some support) but had poor eye contact and was very

cognitively delayed. Once the seizures stopped he moved rapidly to crawling,

cruising, walking, running. Physically he's pretty typical.

Cognitively he is still quite delayed (functioning at between 9-15 mos) and

really only makes a couple of sounds ( " bah " , " dada " , and the occasional " mo " ).

He does some signing (more, drink, music, chip, cookie, phone) but is not

consistent with using the correct sign for what he wants. He's in a non-cat

special-ed preschool 5 mornings/week where he gets ST, PT, OT, gets private

speech and private OT once a week, and is in ABA/VB therapy 5 days a week for 1

hour/day (though we do not believe he is autistic - we just think it's great

therapy). We are also currently doing 40 HBOT dives (we've done 11 so far) and

are hearing more sounds (the " dada " just appeared in the last couple of days).

We are having his tongue-tie clipped on 1/04/06 because the ear/nose/throat

doctor and his speech therapist feel this is just one more obstacle to overcome

in a kid with lots of issues.

I have a couple of questions re: Vitamin E. Our nutritionist suggested adding

Vitamin E to his regimen while on HBOT. She suggested Megafood E 8 or another E

with all 8 types. What does this mean? I can't find the Megafood in stores and

online it is quite expensive. If it matters, I'll order it but if I could find

something similar (with all 8 types of E?) locally that's what I'd rather do.

Does anyone know what I should get and where? Also, he's supposed to be on

Vitamin C but will not chew up a chewable and doesn't swallow pills. Anyone

using a liquid/powdered version and where did you get it?

I look forward to learning from the group!

, mom to Cordis, almost 3, dx Infantile Spasms @ 6.5 mos, IS resolved,

developmental delays

December 13, 2006

No one here knows whether an E combo of all 8 components will be

better than just the (cheaper) alpha or alpha + gamma combo. No harm

it trying the cheaper version and seeing if there is any benefit.

The main impact of vit E comes from alpha. I am not sure what vit E

will do for a child with a history of infantile spasms, and I'm sure

you've been through a lot. But at 400 IU a day, its a safe thing to

try, and maybe it might help with speech if there is an apraxic

component. Worst case it does nothing but is good for his heart

health. -

> Hi, my name is and I am joining this group to learn ways to

help my son, Cordis - almost 3, who is non-verbal.

>

> A brief history:

> Cordis was diagnosed with Infantile Spasms (a severe form of

infant epilepsy) at 6.5 mos, though we suspect he began seizing at 4

mos (our doctors thought it was normal when we talked about it, but

not when they saw it on video). Anyway, he had uncontrolled

seizures (sometimes 100+/day) for about a year and tried 8 meds and

the ketogenic diet before he just stopped seizing. We suspect he

grew out of the Infantile Spasms.

>

> While seizing, his development was at a standstill. He could

roll (occasionally) and sit (with some support) but had poor eye

contact and was very cognitively delayed. Once the seizures stopped

he moved rapidly to crawling, cruising, walking, running.

Physically he's pretty typical.

>

> Cognitively he is still quite delayed (functioning at between 9-

15 mos) and really only makes a couple of sounds ( " bah " , " dada " , and

the occasional " mo " ). He does some signing (more, drink, music,

chip, cookie, phone) but is not consistent with using the correct

sign for what he wants. He's in a non-cat special-ed preschool 5

mornings/week where he gets ST, PT, OT, gets private speech and

private OT once a week, and is in ABA/VB therapy 5 days a week for 1

hour/day (though we do not believe he is autistic - we just think

it's great therapy). We are also currently doing 40 HBOT dives

(we've done 11 so far) and are hearing more sounds (the " dada " just

appeared in the last couple of days). We are having his tongue-tie

clipped on 1/04/06 because the ear/nose/throat doctor and his speech

therapist feel this is just one more obstacle to overcome in a kid

with lots of issues.

>

> I have a couple of questions re: Vitamin E. Our nutritionist

suggested adding Vitamin E to his regimen while on HBOT. She

suggested Megafood E 8 or another E with all 8 types. What does

this mean? I can't find the Megafood in stores and online it is

quite expensive. If it matters, I'll order it but if I could find

something similar (with all 8 types of E?) locally that's what I'd

rather do. Does anyone know what I should get and where? Also,

he's supposed to be on Vitamin C but will not chew up a chewable and

doesn't swallow pills. Anyone using a liquid/powdered version and

where did you get it?

>

> I look forward to learning from the group!

>

> , mom to Cordis, almost 3, dx Infantile Spasms @ 6.5 mos,

IS resolved, developmental delays

>

December 13, 2006