Good news/bad news re: Lily

[Guest guest]

Just a quick hello to say that Lily has been weaning from her topamax

and has had a good month, overall. She was sick in the middle of

this, in the hospital with mild dehydration because she was throwing

up too much. She had only 1 seizure during this time. I was amazed.

Only 3 Diastats, the last being on Thanksgiving. That's the bad news:

Thanksgiving was one of, if not the worst, seizure episode yet. In

any event, the Diastat stopped it, thank goodness, but she is still a

little groggy. However, her neuro agreed to wean her off the rest of

the topamax, which is great. We'll see how it goes. She's now on the

diet and .5 Klonopin over 4 doses.

More good news than bad, but that seizure was certainly a bummer.

Best to all,

Caitlin

[Guest guest]

Hi Caitlin, sorry to hear about the seizure episode on Thanksgiving.

At least she is off the Topomax now.

I hope she continues to do well.

Satnam, mom to Kristan, 2 years old

Keto kid since Aug. 2003 and currently weaning from the diet due to

not being able to get high ketones

>

> Just a quick hello to say that Lily has been weaning from her

topamax

> and has had a good month, overall. She was sick in the middle of

> this, in the hospital with mild dehydration because she was

throwing

> up too much. She had only 1 seizure during this time. I was

amazed.

> Only 3 Diastats, the last being on Thanksgiving. That's the bad

news:

> Thanksgiving was one of, if not the worst, seizure episode yet.

In

> any event, the Diastat stopped it, thank goodness, but she is still

a

> little groggy. However, her neuro agreed to wean her off the rest

of

> the topamax, which is great. We'll see how it goes. She's now on

the

> diet and .5 Klonopin over 4 doses.

>

>

> More good news than bad, but that seizure was certainly a bummer.

>

> Best to all,

>

> Caitlin