New to group, just had a hystorectomy , HRT and SLE?

[Guest guest]

Dear Fellow Lupies,

Thank you in advance for being here when I need you! I've been in

egroups for lupus before, but have been doing really well (yeah!!!)

for the last year and a half or so. As a result I've been so

involved with other endeavours, I'm not really in touch with a group

right now. I was diagnosed with lupus 14 years ago, and have lived

the roller coaster that comes with this frustrating disease. A

number of years ago, I was so sick I was in bed most of the

time...for almost two years. In the last two years, I have taken on

a job, and feel better than I have in a decade. So for those of you

who are suffering, PLEASE have hope. Lupus is so full of surprises,

and sometimes, they can be positive.

I am writing now because I just had a hysterectomy last week. I'm

45, have SLE, fibro, endometriosis, severe migraines and pms (well,

maybe not anymore!!!!!!) I feel good about the hysto because the

pain has been really getting unbearable, I had two very large cysts

that would have been almost impossible to remove without taking my

ovaries, and my gynecologist feels that my migraines and emotional

volatility will be monumentally better without wildly fluctuating

hormones from wildly fluctuating ovaries.

My question to all of you: has anybody had any experience with HRT

and lupus? I have concerns about taking hormones and stimulating the

endo, so that's one issue. Obviously, there are the issues of being

suddenly menopausal at 45. And then, the BIGGIE...what will HRT do

to my SLE? That is the big one. All the other stuff is minor in

comparison. I just don't want to send the lupus crazy, so, I thought

I would ask the experts, you guys, us Lupies, for advice!

I look forward to being part of this group, sharing my stories of

living with lupus, and helping out newbies who are just starting to

face the long journey with the wolf. Thank you in advance to any and

all who can help me along my walk with lupus and this new situation I

face.

In Friendship,

son

[Guest guest]

Welcome to the group , and I hope you are able to make lasting

friendships here, and gain tons of knowledge.

Please feel free to jump into any and all conversations.

I haven't had HRT yet, but wont rule it out when it comes to me. But

I am sure, or should I say I KNOW our dear will have answers

for you. She is wonderful when it comes to getting us all answers.

So whenever you have any post them to or to the group and one

of us should get them with in a matter of days.

Well again, welcome to the group and hope to get to know u better.

Hugs,

Deanna

> Dear Fellow Lupies,

>

> Thank you in advance for being here when I need you! I've been in

> egroups for lupus before, but have been doing really well (yeah!!!)

> for the last year and a half or so. As a result I've been so

> involved with other endeavours, I'm not really in touch with a

group

> right now. I was diagnosed with lupus 14 years ago, and have lived

> the roller coaster that comes with this frustrating disease. A

> number of years ago, I was so sick I was in bed most of the

> time...for almost two years. In the last two years, I have taken

on

> a job, and feel better than I have in a decade. So for those of

you

> who are suffering, PLEASE have hope. Lupus is so full of

surprises,

> and sometimes, they can be positive.

>

> I am writing now because I just had a hysterectomy last week. I'm

> 45, have SLE, fibro, endometriosis, severe migraines and pms (well,

> maybe not anymore!!!!!!) I feel good about the hysto because the

> pain has been really getting unbearable, I had two very large cysts

> that would have been almost impossible to remove without taking my

> ovaries, and my gynecologist feels that my migraines and emotional

> volatility will be monumentally better without wildly fluctuating

> hormones from wildly fluctuating ovaries.

>

> My question to all of you: has anybody had any experience with HRT

> and lupus? I have concerns about taking hormones and stimulating

the

> endo, so that's one issue. Obviously, there are the issues of

being

> suddenly menopausal at 45. And then, the BIGGIE...what will HRT do

> to my SLE? That is the big one. All the other stuff is minor in

> comparison. I just don't want to send the lupus crazy, so, I

thought

> I would ask the experts, you guys, us Lupies, for advice!

>

> I look forward to being part of this group, sharing my stories of

> living with lupus, and helping out newbies who are just starting to

> face the long journey with the wolf. Thank you in advance to any

and

> all who can help me along my walk with lupus and this new situation

I

> face.

>

> In Friendship,

> son