Update on me

[Guest guest]

Evening all,

Went to orthopediac surgeon today to review my MRI of my knee. (Was

told last week due to the steroid use, lupus, and sjogren's I had

Osteonecrosis in the knee)

Well the MRI was nasty looking, and I knew it was not good news when

the Dr walked in. (This is one of the nicest docs out there)

He walked up to me, placed MRI's on the screen for Mike and I to look

at and he pointed out all the problems and how huge they are. OMG!!!

Due to my age (34) and all my health issues he says my insurance will

fight him on a total knee replacement and that I pretty much have to

wait for it to crumble to pieces in order for me to get a total knee

replacement.

He felt so bad for me, he knows Im allergic to almost every major

narcotic out there, and he knows everyhing I have been going thru and

knows I can't take NASIDS either.

So I came home and called insurance company and sure enough due to my

age - they will NOT approve of it. I am so upset, I mean it is not

like I wanted this surgery to begin with, but to be denied it due to

my age - once again because of my age I get screwed!

Mike and I are so use to disappointment and always knowing when I

leave a doctor's appointment I usually don't get good news. What can

go wrong usually does with me. =(

I go see dermatologist tomorrow morning - I have literally dug layers

of my skin off from itching all over my body - Nothing works to

relieve the itch - I mean u name it I have tried it, even the

perscription doc gave me for it in the past. Haven't made any changes

as in laundry detergent, soap, etc and my meds are all the same - I

even took myself off all my meds to see if it was any of them and

nope - notta.... I feel like hell without them, and had Mike give me

my methotrexate shot at 0.9 instead of 0.7 (I can dose myself as I

know my body can handle it - use to be on 0.9 a while back and was

working back up to it, and it makes a big difference) I don't even

need to take the Leucovorin the rhuemy scribs for it cuz I dont get

any bad effects from it.

Hopefully derm will be able to solve my itching prob tomorrow.

So I don't know if I will be around the next couple of days due to

the depression about the knee hitting me big time. Oh I have to go

get an ultrasound of my lungs Thursday to see why my lungs fill up

when I try to lay down. Can u say DUH!!! All I wanted was a CT scan

of my chest and lungs, not a stupid ultrasound that isnt going to

show chit!!! Reg. chest xrays dont show any changes but I told doc Im

fine when I sit up or stand. UGGG one day someone will listen to me.

Ok have blabbered on long enough.

Good luck everyone, and know your all in my thoughts and prayers...

Hugs

Deanna