SSI benefits? My Strive for an approval

[Guest guest]

We were just recently denied any advice? They said the reason we were denied

was because he was to healthy, isn't that a load of horse poo, that when he

worsens then we can try for it again, what do you think?

[Guest guest]

Thanks for posting this, . Truly, from the bottom of my heart. I have

been putting off applying for SSI for many not-very-well-articulated

reasons, while we struggle financially on a daily basis to keep up with the

CF-related expenses. It's not an easy thing to do! But I am more encouraged

to do it after reading this!

And a huge CONGRATULATIONS!!!!!!!!!!!!!!!! Yay!!!!!!!

*&~*&~*&~*&~*&~*&~*&~*&~*&~*&~&*~*&~*&~&*~*&~*&~&*

mama to , 16 months old w CF and 3 years wo CF

" One fish said to another -- do you believe in this ocean they talk about? "

--Chinese proverb

>

> Reply-To: cfparents

> Date: Wed, 06 Feb 2002 21:49:36 -0000

> To: cfparents

> Subject: SSI benefits? My Strive for an approval

>

> HI

>

> WEll after 7 months I finally got my son approved for SSI with full

> benefits..YAY!!! It has been a very rough 7 months and I wasnt sure

> if I'd make it, but for once we came up smelling like Roses (no

> pun there huh)

> I had to have written 10 some odd letter to the SS office.No to

> mention his medical records from his 5 month stay in the hospital.

> Some of the letters consisted of our step by step daily routine and I

> mean everything.. Other letters were enough to make you cry at the

> first sentence,. And others were of rage ..stating that there are

> people with far less disabilities / disease and or birth defects that

> recieve SS benefits why not my son..

> Well It all paid off and I just wanted to give hope to those that are

> in the middle of filing and or have filed or others that are afraid

> to file..You can do it!

> I had so many mixed feelings about filing for SSI and put it off for

> over a year, but then I got to thinking why am I paying all these out

> of pocket expenses that are really hitting us hard. Not to mention

> the fact that we pay over $1,000. a month for our Health Insurance,

> which keeps going up..and when we tried to get a new insurace it

> wouldnt cover J or there were stipulations.. so much for the non-

> discriminatory laws.

>

> One obstacle conquerd, and a million to go but the results are so

> rewarding

>

> Thanks for listening.,..

>

> Stein...Mom to CF (20 months) & Tori wo/CF (4.7 yrs) in

> Mass

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

For all of you struggling to get SSI...my son being on antibiotics 6 times in

one year constituted him as being on IV antibiotics in the hosp..those two

equal themselves out supposedly. That's how our final decision was made.

Also, find an attorney that specializes in SSI. They want a percentage or

$4,000.00 . We had over 16,000.00 in back pay so that wasn't a very big

deal. We applied Dec. 1996 and were approved June of 1999. Just want to

warn everyone though. With our SSI whatever we make depends on what our son

gets. If we gross $2,000.00 a month then he gets nothing. It's a hassle

with us as my husband is self employed and he has a full time job that

periodically requires overtime. So, we never know from month to month what

he will get in SSI money.

Hope everyone succeeds!

from PA

[Guest guest]

My daughters were denied last year for the same thing. but the best is the

doctor who told me to apply is the one that sadi there are heathly...patty

[Guest guest]

HI

WEll after 7 months I finally got my son approved for SSI with full

benefits..YAY!!! It has been a very rough 7 months and I wasnt sure

if I'd make it, but for once we came up smelling like Roses (no

pun there huh)

I had to have written 10 some odd letter to the SS office.No to

mention his medical records from his 5 month stay in the hospital.

Some of the letters consisted of our step by step daily routine and I

mean everything.. Other letters were enough to make you cry at the

first sentence,. And others were of rage ..stating that there are

people with far less disabilities / disease and or birth defects that

recieve SS benefits why not my son..

Well It all paid off and I just wanted to give hope to those that are

in the middle of filing and or have filed or others that are afraid

to file..You can do it!

I had so many mixed feelings about filing for SSI and put it off for

over a year, but then I got to thinking why am I paying all these out

of pocket expenses that are really hitting us hard. Not to mention

the fact that we pay over $1,000. a month for our Health Insurance,

which keeps going up..and when we tried to get a new insurace it

wouldnt cover J or there were stipulations.. so much for the non-

discriminatory laws.

One obstacle conquerd, and a million to go but the results are so

rewarding

Thanks for listening.,..

Stein...Mom to CF (20 months) & Tori wo/CF (4.7 yrs) in

Mass

[Guest guest]

I can't believe SSI is so hard to get on cf kids! My sis applied right

after diagnosis of my nephew, Rodney and they approved her right away!

What's the problem with these people. Once the kids test positive for cf

there is no question of their disability. Keep fighting until you get it

approved!

Also, If you do not have insurance CF Foundation will cover their cf related

expenses. I think you just have to apply for their assistance.

Sis gets both for my nephew---'cept when she works and has insurance, then

the cf foundation pays whatever her insurance does not pay.

Good luck!

Aunt B --- to Rodney 11 wcf

[Guest guest]

Another source of additional income my sis is getting is from these hospital

stay insurance programs. We get the junk mail all the time to sign up for

them. They advertise " no medical exam required " . We were told about them by

other mom's at Birmingham Children's Hospital, so, the next one that came in,

she mailed it back.

Every time Rodney goes in the hospital, they pay $$$. I think she has to

argue with them sometimes but seems to get the $ from them fairly promptly.

She went ahead and applied for tow or three so every time Rodney goes in the

hospital he knows he will get a treat when he gets to go home. It encourages

him to not fight the treatment and take his meds with no hassle. And to

breath harder when they do the breathing tests.

Just thought I would pass that along----watch your mailbox---we get them all

the time--at least 5-6 times a year.

Good luck everybody!

Kiss to all the kids from Aunt B---to Rodney 11 wcf

[Guest guest]

,

We were denied because my husband has a 401K and I have an IRA so they told

us we don't qualify. Deb A

[Guest guest]

Oh My , I had no idea that it could take that long to get approved. I'm

sorry for your long road.

You were right on, about the lawyer and the amt. of income for the family. They

dig into all your assets, home,cars, life insurance, stocks ,bonds,bank accts

etc.... It's an awful feeling, but a neccesary one in their eyes..

I'm so glad you won!

Does your get full medical coverage ontop of a monthly check??

That was quite a back-pay check!

We are using ours to pull up the rugs in the kids room and having oak flooring

put in..and ofcourse to pay off medical debt.

Hats off to you,

Take Care,

Stein..mom to CF (20 months) & Tori wo/CF (4.7 yrs) in Mass

Re: SSI benefits? My Strive for an approval

For all of you struggling to get SSI...my son being on antibiotics 6 times in

one year constituted him as being on IV antibiotics in the hosp..those two

equal themselves out supposedly. That's how our final decision was made.

Also, find an attorney that specializes in SSI. They want a percentage or

$4,000.00 . We had over 16,000.00 in back pay so that wasn't a very big

deal. We applied Dec. 1996 and were approved June of 1999. Just want to

warn everyone though. With our SSI whatever we make depends on what our son

gets. If we gross $2,000.00 a month then he gets nothing. It's a hassle

with us as my husband is self employed and he has a full time job that

periodically requires overtime. So, we never know from month to month what

he will get in SSI money.

Hope everyone succeeds!

from PA

[Guest guest]

-just wondering if all the drugs are covered -enzynes,tobi,pulmazyne

etc... as our insurance just went from 11,000 a year to 13,000 with

more increases sure to come!!! we are self-employed and have no other

insurance options and can't afford much more of this!!! our daughter

has diabetes and MRSA to go along with CF. We do have an interveiw

with SSI in about a week . any advice????

-- In cfparents@y..., " loody797 " wrote:

> HI

>

> WEll after 7 months I finally got my son approved for SSI with full

> benefits..YAY!!! It has been a very rough 7 months and I wasnt sure

> if I'd make it, but for once we came up smelling like Roses (no

> pun there huh)

> I had to have written 10 some odd letter to the SS office.No to

> mention his medical records from his 5 month stay in the hospital.

> Some of the letters consisted of our step by step daily routine and

I

> mean everything.. Other letters were enough to make you cry at the

> first sentence,. And others were of rage ..stating that there are

> people with far less disabilities / disease and or birth defects

that

> recieve SS benefits why not my son..

> Well It all paid off and I just wanted to give hope to those that

are

> in the middle of filing and or have filed or others that are afraid

> to file..You can do it!

> I had so many mixed feelings about filing for SSI and put it off

for

> over a year, but then I got to thinking why am I paying all these

out

> of pocket expenses that are really hitting us hard. Not to mention

> the fact that we pay over $1,000. a month for our Health Insurance,

> which keeps going up..and when we tried to get a new insurace it

> wouldnt cover J or there were stipulations.. so much for the non-

> discriminatory laws.

>

> One obstacle conquerd, and a million to go but the results are so

> rewarding

>

> Thanks for listening.,..

>

> Stein...Mom to CF (20 months) & Tori wo/CF (4.7 yrs) in

> Mass

[Guest guest]

Does anyone know what the qualifying factors are for receiving SSI? Does

the child have to be hospitalized so many times? Also, does receiving SSI

qualify your child for medicare or medicaid?

H

mom to 3, 2wcf

SSI benefits? My Strive for an approval

> HI

>

> WEll after 7 months I finally got my son approved for SSI with full

> benefits..YAY!!! It has been a very rough 7 months and I wasnt sure

> if I'd make it, but for once we came up smelling like Roses (no

> pun there huh)

> I had to have written 10 some odd letter to the SS office.No to

> mention his medical records from his 5 month stay in the hospital.

> Some of the letters consisted of our step by step daily routine and I

> mean everything.. Other letters were enough to make you cry at the

> first sentence,. And others were of rage ..stating that there are

> people with far less disabilities / disease and or birth defects that

> recieve SS benefits why not my son..

> Well It all paid off and I just wanted to give hope to those that are

> in the middle of filing and or have filed or others that are afraid

> to file..You can do it!

> I had so many mixed feelings about filing for SSI and put it off for

> over a year, but then I got to thinking why am I paying all these out

> of pocket expenses that are really hitting us hard. Not to mention

> the fact that we pay over $1,000. a month for our Health Insurance,

> which keeps going up..and when we tried to get a new insurace it

> wouldnt cover J or there were stipulations.. so much for the non-

> discriminatory laws.

>

> One obstacle conquerd, and a million to go but the results are so

> rewarding

>

> Thanks for listening.,..

>

> Stein...Mom to CF (20 months) & Tori wo/CF (4.7 yrs) in

> Mass

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

,

We are not allowed to touch that big back pay....unless it is for medical

expenses and education. We did purchase an airconditioner also. Our Dr. had

to write a note explaining that it would be beneficial to his health.

As far as the medical fees. We were on the medical assistance ( kids only )

and they were the ones who told us to try for SSI. If we didn't try then

they would have taken the MA card away from us. Right now he falls under the

category of a life long illness so they can never take his card away. That's

what we were told by our social service worker at the hospital. It is

different in every state though.

One family I know bought a camper with SSI money because they thought it

would be an educational tool. Like going to museums and to different

educational places. Their SSI was revoked because of that mistake.

We also need to keep receipts of purchases we use his SSI money for. One

quarter of almost all of our bills can be paid with this money also. I know

kids who get SSI for Attention Deficit Disorder and theyaren't required to

keep receipts. I guess maybe it depends on what type of illness you've got.

That big back-pay, bye the way, needed to go into a dedicated account that we

had to set up. We have it set up as a checking and a savings as some of you

may look into doing. The savings collects interest.

from PA

[Guest guest]

Since when CFF cover your CF expenses? We didn't have insurance when my son

was dx over a year ago. I called the cff chapter in Metarie La. and they were

no help I call the cff main office nothing. His meds. were over 2000.00 a

month we went bankrupt until I got help from the people of Pulmonyze started

giving it to me for free. But the rest we had to pay. I was told I couldn't

applied for SSI because of income then we didn't even qualify for no kind of

Medicaid. My last hope was CHIP which down here is called LACHIP didn't

either because we went over 200.00 a month and I told them we spend more than

that in meds. I was told too bad that don't count. They don't give you credit

for meds. you spend. Finally after months of paperwork, calls and Internet

searches I found a program that my son qualified. The problem is it's only

temporary so starting in April I have to try to get something else for him

because starting June 1.2002 we will have no insurance. I have no social

worker who can help me. Don't get me wrong the CF Center in Children's do

have one but up to this date hasn't helped me at the beginning I asked for

help but was told of my income. This year my husband made less money so I

have to see if we qualify. That is why I want to move to Florida they have a

program that even if you don't qualify for free or reduce (Chip) then you can

purchase the insurance for about 80.00 a month per child and covers

everything. Well, if it's true that the CFF covers it then a least is a

relieve.

Debbie Mom to Sharon 16 ncf, 10 ncf & 2 wcf

[Guest guest]

They told me it's an as needed funding and if your child is eligible for even a

dollar they get it and full medical coverage..

My suggestion is to log onto your city's social security site and scout out the

answers they should all be there..

And what you make is a big consideration more so than the actual disability.

I can honestly say that because my husband is self employed it worked in our

favor..his business showed a loss and even though he takes home pay it doesn't

count..it gets complicated but they went over all of our tax statements several

times..

If you lease a car, it's not your asset there for it cant be counted against

you..my husband does his bills and banking thru the Co so we didn't have to show

a bank account status because it's his business not personal and doesn't count

against us. things like that..so it's wise to know alot before you go in there

because the case worker I was dealing with didn't have a clue about the leased

stuff and business status..

GOOD LUCK

Stein....mom to CF (20mo) & Tori wo/CF (4.7yrs) in Mass

SSI benefits? My Strive for an approval

> HI

>

> WEll after 7 months I finally got my son approved for SSI with full

> benefits..YAY!!! It has been a very rough 7 months and I wasnt sure

> if I'd make it, but for once we came up smelling like Roses (no

> pun there huh)

> I had to have written 10 some odd letter to the SS office.No to

> mention his medical records from his 5 month stay in the hospital.

> Some of the letters consisted of our step by step daily routine and I

> mean everything.. Other letters were enough to make you cry at the

> first sentence,. And others were of rage ..stating that there are

> people with far less disabilities / disease and or birth defects that

> recieve SS benefits why not my son..

> Well It all paid off and I just wanted to give hope to those that are

> in the middle of filing and or have filed or others that are afraid

> to file..You can do it!

> I had so many mixed feelings about filing for SSI and put it off for

> over a year, but then I got to thinking why am I paying all these out

> of pocket expenses that are really hitting us hard. Not to mention

> the fact that we pay over $1,000. a month for our Health Insurance,

> which keeps going up..and when we tried to get a new insurace it

> wouldnt cover J or there were stipulations.. so much for the non-

> discriminatory laws.

>

> One obstacle conquerd, and a million to go but the results are so

> rewarding

>

> Thanks for listening.,..

>

> Stein...Mom to CF (20 months) & Tori wo/CF (4.7 yrs) in

> Mass

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

It is NOT true. They DO NOT GIVE ASSISTANCE TO FAMILIES >

THEY DO RESEARCH & EDUCATION .THAT THEY DO WELL.

SORRY,

LOVE & HUGS,

GrandmomBev

Re: SSI benefits? My Strive for an approval

Since when CFF cover your CF expenses? We didn't have insurance when my

son

was dx over a year ago. I called the cff chapter in Metarie La. and they

were

no help I call the cff main office nothing. His meds. were over 2000.00

a

month we went bankrupt until I got help from the people of Pulmonyze

started

giving it to me for free. But the rest we had to pay. I was told I

couldn't

applied for SSI because of income then we didn't even qualify for no

kind of

Medicaid. My last hope was CHIP which down here is called LACHIP didn't

either because we went over 200.00 a month and I told them we spend more

than

that in meds. I was told too bad that don't count. They don't give you

credit

for meds. you spend. Finally after months of paperwork, calls and

Internet

searches I found a program that my son qualified. The problem is it's

only

temporary so starting in April I have to try to get something else for

him

because starting June 1.2002 we will have no insurance. I have no social

worker who can help me. Don't get me wrong the CF Center in Children's

do

have one but up to this date hasn't helped me at the beginning I asked

for

help but was told of my income. This year my husband made less money so

I

have to see if we qualify. That is why I want to move to Florida they

have a

program that even if you don't qualify for free or reduce (Chip) then

you can

purchase the insurance for about 80.00 a month per child and covers

everything. Well, if it's true that the CFF covers it then a least is a

relieve.

Debbie Mom to Sharon 16 ncf, 10 ncf & 2 wcf

[Guest guest]

OMG ..That is so unreal that they make you account for what you spend the $$

on.. Gosh I'm stunned although I shouldn't be considering I see and hear alot.

How can they say what is or is not beneficial to your child..they aren't DR's!

And even with medical expenses I'm sure there is $$ left over with which you

could buy the child clothes, educational things and or a movie..

The laws should really be changed on that..Have you written any letters to your

state rep? It cant hurt, and you may even be able to do it via e-mail..

We are taking our back pay and having the rugs pulled up and wood floors put

in..due to severe allergies and asthma for both kids.. also I'm getting more air

purifiers. WE have the Healthmates and we love em..they are big units but you

can defiantly feel the difference in the air quality.

Take Care,

Stein..mom to CF (20 mo) & Tori wo/CF (4.7 yrs) in Mass

Re: SSI benefits? My Strive for an approval

,

We are not allowed to touch that big back pay....unless it is for medical

expenses and education. We did purchase an airconditioner also. Our Dr. had

to write a note explaining that it would be beneficial to his health.

As far as the medical fees. We were on the medical assistance ( kids only )

and they were the ones who told us to try for SSI. If we didn't try then

they would have taken the MA card away from us. Right now he falls under the

category of a life long illness so they can never take his card away. That's

what we were told by our social service worker at the hospital. It is

different in every state though.

One family I know bought a camper with SSI money because they thought it

would be an educational tool. Like going to museums and to different

educational places. Their SSI was revoked because of that mistake.

We also need to keep receipts of purchases we use his SSI money for. One

quarter of almost all of our bills can be paid with this money also. I know

kids who get SSI for Attention Deficit Disorder and theyaren't required to

keep receipts. I guess maybe it depends on what type of illness you've got.

That big back-pay, bye the way, needed to go into a dedicated account that we

had to set up. We have it set up as a checking and a savings as some of you

may look into doing. The savings collects interest.

from PA

[Guest guest]

we live in Mississippi. as of today, my daughter valerie has ssi and

medicaid. it does cover everything except her vitamins. she is up for

review again, they do that every other month for some reason and i think our

income will be too much this time. we have group insurance through my

husbands job but it doesnt pay for the stuff for her nightly feedings and it

has a deductible. i am a teacher but not working so we wont make too much

money. we don't have any other options left.

sue mom of valerie 10wcf

[Guest guest]

That same thing happened to us when we were up for review. They decided to

take 's ssi and medicaid because she was " in remission " . I swear that

was on a piece of paper in her file. When our doctor requested a copy of

that paper, they conveniently lost it. I had a fit. NO ONE WITH CF goes

" into remission " . It is NOT cancer. I am still mad. That was 3 years ago.

Now they are trying to take it away because of income. If they can't get out

of paying one way, it seems they will try another way. \

I did learn that no matter how many times the child is in the hospital, if

they have cf and not too much income they ARE eligible for ssi and medicaid.

Fight this. You will win.

Sue - mom of 10wcf

[Guest guest]

If you have a lifetime illness, in Pennsylvania, they CANNOT take the medical

card away! There are 3 different categories that they can fall under. If

one fails try the other. Contact your local assistance office and talk to

your caseworker.

SSI..they CAN take that if you make too much or have over $2,000.00 in

resources.

SSI is SUPPLEMENTAL SECURITY INCOME. Supplemental being the key word.

Also, since my son takes Ultrase MT 12, all we need to do is send a copy of

proof of purchase from the pharmacy to Scandipharm and they send us

Scandishakes AND ADEK vitamins.

from PA

[Guest guest]

I would send that story to the newspaper and to the governor along with the

medical info on cystic fibrosis. CC TO ALL GOVERNMENT AGENCIES ALSO.

I AM SO TIRED OF THE FOLKS IN THE AREAS OF WORK WHO KNOW " NOTHING " ABOUT

DISEASE ....HAVING CONTROL OVER PAYING FOR WHAT WE " KNOW " IS NEEDED AND

THEY DON'T HAVE A CLUE!!! REMIND THEM WHO THE VOTERS ARE IN YOUR

STATE.....

O.K. , I AM STEPPING DOWN FROM MY SOAP BOX. SORRY. IT REALLY MAKES ME MAD

THOUGH. IDEAL WITH THE IDIOTS ALL DAY & IT IS SOOOOOOOOOO FRUSTRATING.

LOVE & HUGS, GRANDMOMBEV

(quietly getting back in her rocking chair-----------right !!!)

Re: SSI benefits? My Strive for an approval

That same thing happened to us when we were up for review. They decided to

take 's ssi and medicaid because she was " in remission " . I swear that

was on a piece of paper in her file. When our doctor requested a copy of

that paper, they conveniently lost it. I had a fit. NO ONE WITH CF goes

" into remission " . It is NOT cancer. I am still mad. That was 3 years ago.

Now they are trying to take it away because of income. If they can't get

out

of paying one way, it seems they will try another way. \

I did learn that no matter how many times the child is in the hospital, if

they have cf and not too much income they ARE eligible for ssi and

medicaid.

Fight this. You will win.

Sue - mom of 10wcf

[Guest guest]

Yes Ive been told that my son isnt really sick or i get asked on what scale

is he sick? The fact that we spent nearly four months in hospital last year

dosnt phase some people!

Tania.

Re: SSI benefits? My Strive for an approval

> That same thing happened to us when we were up for review. They decided

to

> take 's ssi and medicaid because she was " in remission " . I swear

that

> was on a piece of paper in her file. When our doctor requested a copy of

> that paper, they conveniently lost it. I had a fit. NO ONE WITH CF goes

> " into remission " . It is NOT cancer. I am still mad. That was 3 years

ago.

> Now they are trying to take it away because of income. If they can't get

out

> of paying one way, it seems they will try another way. \

> I did learn that no matter how many times the child is in the hospital, if

> they have cf and not too much income they ARE eligible for ssi and

medicaid.

> Fight this. You will win.

> Sue - mom of 10wcf

>

>

>

[Guest guest]

,

Can you ask SSI if that $3,000.00 would be business related? That is $$$$

made from a business. Unless of course you don't claim your farm as a

business on your taxes at the end of the year. $3,000.00 is too much to

have. The maximum for you to have would be $2,000.00 and I think your child

may be able to have $1,000.00.

from PA

[Guest guest]

--

What does it take to get on SSI????? We were told that is you have

3,000 in the bank you don't qualify for it. We are self employed

farmers and even though we have money in the bank a lot of it goes

back into the business.We are paying 13,000 a year for insurance,

plus over 9,000 out of pocket medical expenses wich really puts the

hurt on us financially.

- In cfparents@y..., " Darren " wrote:

> Yes Ive been told that my son isnt really sick or i get asked on

what scale

> is he sick? The fact that we spent nearly four months in hospital

last year

> dosnt phase some people!

>

> Tania.

>

>

>

>

>

> Re: SSI benefits? My Strive for an approval

>

>

> > That same thing happened to us when we were up for review. They

decided

> to

> > take 's ssi and medicaid because she was " in remission " . I

swear

> that

> > was on a piece of paper in her file. When our doctor requested a

copy of

> > that paper, they conveniently lost it. I had a fit. NO ONE WITH

CF goes

> > " into remission " . It is NOT cancer. I am still mad. That was 3

years

> ago.

> > Now they are trying to take it away because of income. If they

can't get

> out

> > of paying one way, it seems they will try another way. \

> > I did learn that no matter how many times the child is in the

hospital, if

> > they have cf and not too much income they ARE eligible for ssi

and

> medicaid.

> > Fight this. You will win.

> > Sue - mom of 10wcf

> >

> >

> >

[Guest guest]

I'm not a pro with this SSI stuff.

Peggy,

My husband has a truck and has his own drywall business. SSI doesn't count

the truck or his $$$$$ because it's all business related. So we don't count

any of that for our resources. At the end of the year when we do taxes

though his profit from his business counts as our income. And so dose his

employment throughthe school. We send in those paystubs every month by the

10th. I'd say that if we gross $2,000 or more then we don't receive SSI $$$.

Back to the taxes...we estimate a year in advance what we think will be

profit from drywall business. They divide that by 12 months and add that in

with income for the month. Am I talking out my B---?

,

Can't you separate farming expense from household expense?

from PA

[Guest guest]

Because farming is our only income, we sell in the fall, it may

look like there's a lot in the bank, we get paid all in one lump sum,

but it goes for househould expense, and also farm expense,and because

of pre-existing conditions we are stuck paying a high insurance rate

that keeps going up every year untill they price us out.

-- In cfparents@y..., ck570@a... wrote:

> ,

> Can you ask SSI if that $3,000.00 would be business related? That

is $$$$

> made from a business. Unless of course you don't claim your farm

as a

> business on your taxes at the end of the year. $3,000.00 is too

much to

> have. The maximum for you to have would be $2,000.00 and I think

your child

> may be able to have $1,000.00.

> from PA

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