Re: Pregnant and Celiac

[Guest guest]

,

For what it's worth, I had preterm labor with both of my children who are now 20 and 18 years old. I wasn't diagnosed with celiac until 2 years ago. I have always had an irregular GI system but it was mild and what I considered as normal to me. I wasn't diagnosed until I became anemic about 3 years ago.

My preterm labor was blamed on an incompetent cervix. Who knows.

Denver Donna

Pregnant and Celiac

Hi! I am a fellow Celiac and I am 12 weeks pregnant. I have heard of the infertility problems associated with CD, but still cannot find any information on Preterm Labor and it's association with CD. Before I was diagnosed, my first child was born at 28 weeks, 2 lbs 1 oz. I went into preterm labor at 26 weeks, thinking the pain was just my typical gas/constipation pain that I'd had for years. Even my OB tested me for a UTI before admitting me to the hospital. My son spent the first 9 weeks of his life in the NICU before we could bring him home. He is now 3, happy, healthy and smart; basically no side effects from his traumatic beginning (and we are thankful everyday!). About 2 1/2 years after his birth, I got my diagnosis for CD in April '06. No one ever suggested to test me for it, I was the one that was determined to rule out everything I could for the 2nd pregnancy (which took quite some time to come to terms with). And not one of the several doctors I had consulted with would give me an explanation or that CD could be related. (I live in CA, so go figure!)At the time of my diagnosis, I was also seeing a hemotologist to rule out a blood-clotting disorder. Well, when I was ingesting Gluten, I actually had a blood-clotting disorder, then after about a month GF, it corrected itself (3 tests in all were done). This baffled the Dr. and the other Specialist he was consulting.Anyways, to make a long story shorter, I just want to see if there are others Celiacs who have had any experiences with unexplained preterm labor. Due to the delicate nature of the subject, (ie: miscarriages, premies, NICU experiences, and others who's outcome was negative) I will consider starting a new group if the response is great enough. This site busy! I don't know about the rest of you, but it is getting more and more difficult to keep up! It is also a blessing to have this site, the information is invaluable, thank you all!Best Regards,

[Guest guest]

-

I have a good friend, a celiac, who had multiple

miscarriages prior to finally giving birth near term

to a healthy girl. She was on bed-rest for at least

the final trimester of her pregnancy.

She is now pregnant again, and says she is having a

much easier pregnancy this time. We don't know why

the difference, Perhaps she is more careful about not

ingesting gluten.

My mother never used any birth control. I am

convinced she had celiac disease, altho she was never

diagnosed. She didn't have periods until she was 17

years old. She had migraines, was anemic her entire

life, had severe arthritis and osteoporosis, as well

as some kind of esophageal problem that she never

could explain to me. Worse than gastric reflux.

Anyway, she never used birth control, and only had 2

pregnancies. Was married at 24, so she might have had

many more. I'm convinced it was the infertility part

of her celiac disease!

Barbara in SoCal

__________________________________________________

[Guest guest]

I am also a fellow pregnant Celiac. I am 17 weeks along (1st

pregnancy). My understanding of pregnancy issues & Celiac Disease

is that the issues result from untreated Celiac Disease. And once

the disease is being treated the body will eventually correct itself

(in most cases). My understanding of the infertility as well as

preterm labor associated with Celiac is that the body basically is

saying it is not capable of supporting another life at that time.

Most likely due to the inability to absorb & supply the growing

fetus with the proper nutrients.

My pregnancy has been problem free so far and I hope it remains this

way. I didn't even experience any morning sickness!

I hope your GF pregnancy goes forward without any issues and that

you deliver a healthy baby around 40 weeks! And...

CONGRATULATIONS!!

>

> Hi! I am a fellow Celiac and I am 12 weeks pregnant. I have heard

of

> the infertility problems associated with CD, but still cannot find

> any information on Preterm Labor and it's association with CD.

> Before I was diagnosed, my first child was born at 28 weeks, 2 lbs

1

> oz. I went into preterm labor at 26 weeks, thinking the pain was

> just my typical gas/constipation pain that I'd had for years.

Even

> my OB tested me for a UTI before admitting me to the hospital.

>

> My son spent the first 9 weeks of his life in the NICU before we

> could bring him home. He is now 3, happy, healthy and smart;

> basically no side effects from his traumatic beginning (and we are

> thankful everyday!). About 2 1/2 years after his birth, I got my

> diagnosis for CD in April '06. No one ever suggested to test me

for

> it, I was the one that was determined to rule out everything I

could

> for the 2nd pregnancy (which took quite some time to come to terms

> with). And not one of the several doctors I had consulted with

would

> give me an explanation or that CD could be related. (I live in

CA,

> so go figure!)

>

> At the time of my diagnosis, I was also seeing a hemotologist to

rule

> out a blood-clotting disorder. Well, when I was ingesting Gluten,

I

> actually had a blood-clotting disorder, then after about a month

GF,

> it corrected itself (3 tests in all were done). This baffled the

Dr.

> and the other Specialist he was consulting.

>

> Anyways, to make a long story shorter, I just want to see if there

> are others Celiacs who have had any experiences with unexplained

> preterm labor. Due to the delicate nature of the subject, (ie:

> miscarriages, premies, NICU experiences, and others who's outcome

was

> negative) I will consider starting a new group if the response is

> great enough. This site busy! I don't know about the rest of

you,

> but it is getting more and more difficult to keep up! It is also

a

> blessing to have this site, the information is invaluable, thank

you

> all!

>

> Best Regards,

>

>

[Guest guest]

I am almost 100% certain that my second pregnancy and ensuing surgery

triggered my Celiac, but for what it is worth here's my story.

I have had three pregnancies, two healthy children. Pregnancy #1 was found

out about at around 6 weeks. At 8 weeks we were told there was no fetus

developing, it was a blighted ovum. Pregnancy #2 followed quickly after the

blighted ovum. My son was born 3 weeks early after the final 6 weeks on

bedrest for preterm labor. He was healthy, 6 pounds 11 ounces. Pregancy #3

was about 13 months later. Easy pregnancy, no preterm labor like last time -

she just arrived 6 weeks early. Healthy but small, 5 pounds 8 ounces.

About a year after my daughters birth my problems really started. I had

surgery for endometriosis in August (the doctor was amazed I've ever gotten

pregnant at all!) and never felt the same. We continued treating the

endometriosis and in November I was put into medically induced menapause (I

was 33 at the time). By February I was getting no relief from the treatments

and went to my family doctor and told him something else had to be going on.

We started running tests and seeing specialists and by April had diagnosed my

celiac.

Although I still deal with the endometriosis issues (no such luck that it

went away GF like others have experienced), they have gotten easier to handle

now that the gluten is gone!!

Hope this helps someone!

--

WOW! Homepage (http://www.wowway.com)

[Guest guest]

I think that's exactly what happened with my mom. She is still yet

to be diagnosed, but even she thinks that is probably what is

wrong. She was actually relatively skinny when she was younger.

After she had the last of her kids, my twin brothers, she ballooned

up and was sick to her stomach all the time. Ever since she says

she has boughts where she's fine and then the back door explosions

for a month.

>

> I am almost 100% certain that my second pregnancy and ensuing

surgery

> triggered my Celiac, but for what it is worth here's my story.

>

> I have had three pregnancies, two healthy children. Pregnancy #1

was found

> out about at around 6 weeks. At 8 weeks we were told there was no

fetus

> developing, it was a blighted ovum. Pregnancy #2 followed quickly

after the

> blighted ovum. My son was born 3 weeks early after the final 6

weeks on

> bedrest for preterm labor. He was healthy, 6 pounds 11 ounces.

Pregancy #3

> was about 13 months later. Easy pregnancy, no preterm labor like

last time -

> she just arrived 6 weeks early. Healthy but small, 5 pounds 8

ounces.

>

> About a year after my daughters birth my problems really started.

I had

> surgery for endometriosis in August (the doctor was amazed I've

ever gotten

> pregnant at all!) and never felt the same. We continued treating

the

> endometriosis and in November I was put into medically induced

menapause (I

> was 33 at the time). By February I was getting no relief from the

treatments

> and went to my family doctor and told him something else had to be

going on.

> We started running tests and seeing specialists and by April had

diagnosed my

> celiac.

>

> Although I still deal with the endometriosis issues (no such luck

that it

> went away GF like others have experienced), they have gotten

easier to handle

> now that the gluten is gone!!

>

> Hope this helps someone!

>

>

> --

> WOW! Homepage (http://www.wowway.com)

>

[Guest guest]

Hi , My name is and I too live in CA. I was diagnosed with Celiac as well as a blood clotting disorder. Since I was diagnosed I have had 9 miscarriages, however I have had 3 problem-free healthy babies proir to my diagnoses. None of my Dr.'s are able to pinpoint the main reason for my miscarriages. Some say it's the blood clooting disorder and some say it could be the Celiac. We have stopped trying and I just recently went gluten free 2 weeks ago. I am going to try and allow my body to get healthy and repair my intestines before we try to concieve again. If you don't mind me asking, what is the name of the blood clotting disorder you had?

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[Guest guest]

Thank you for the nice thoughts! I agree that this time around it should be much better knowing my body is working properly. It is sooooo difficult being prego and celiac. The food thing really gets me down sometimes. I mean, that's the part that is supposed to be fun about being prego, eating whatever and whenever you want. Of course I know it is best and I would starve (which I don't) rather than eat anything with Gluten in it, for fear of hurting the baby. It is just nice to know there are others going through the challanges of the diet as well. My first pregnancy was a real mind "f---" (pardon my frankness, but there really is no other way to put it) delivering my son 12 weeks early, via emergancy C-section after 9 days in the hospital, on Mag twice. I wouldn't want my worst enemies going through what I did! It just really irks me

that the doctors don't test for CD routinely. I had to explain what CD was to my Perinatologist (my high risk Dr.)!!!! All the emphasis on eating the right foods and not eating the wrong foods that the doctors & books preach about, you would think testing would be a no-brainer for women with pregnancy complications! Thanks for listening to me vent!

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[Guest guest]

, It was Protein S Deficiency. I had no problem getting pregnant either. I am so fertile, I could sneeze and be pregnant! It was keeping the baby to term that was my issue.

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[Guest guest]

-

I hope you don't get a cold if you could sneeze and

get pregnant. But I do think you should have a little

talk with someone, preferably your mother. Sneezing

is NOT how it happens!

Barbara in SoCal

__________________________________________________

[Guest guest]

, And that is my exact problem, I can look at my husband and get pregnant, my problem is keeping the baby. I always seem to miscarry around 8-11 weeks. My blood clotting disorder is MTHFR heterozygos gene mutation. I would love to talk with you more about this. What part of CA do you live in? You can e-mail me at erose34@...

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[Guest guest]

That's great, Barbara! barbara strudwick wrote: -I hope you don't get a cold if you could sneeze andget pregnant. But I do think you should have a littletalk with someone, preferably your mother. Sneezingis NOT how it happens!Barbara in SoCal__________________________________________________

[Guest guest]

LOL! That's a change of pace. I use to always tell my husband to quit looking at me because I kept getting pregnant. I didn't think it might've been because I was looking at him. Cheryl in NM Hall wrote: , And that is my exact problem, I can look at my husband and get pregnant, my problem is keeping the baby. I always seem to miscarry around 8-11 weeks. My blood clotting disorder is MTHFR heterozygos gene mutation. I would love to talk with you more about this. What part of CA do you live in? You can e-mail me at erose34 (AT) yahoo (DOT) com Get your email and more, right on the new Yahoo.com