- glucose etc

[Guest guest]

Sending it thru to your email addy shortly .

And yes, seperating the benzos in particular from keto meals was a must with

, it was so obvious he couldn't cope with both together - and that was

proven straight away when we changed the timing. The drop attack he used to have

like clockwork 60-90 mins after his keto lunch and lunchtime diaz disappeared

the very first day we altered it, so no guess work needed there

We seperated lamictal from meal times too when he was still on it, topomax is

the only AED we have ever got away with giving at the same time, dunno why he

can cope with that one and not the others, but he has that with breakfast and

dinner every night.

Still gotta wonder about that 3 med cocktail with Stella, esp when a benzo is

included, when did you last try reducing? And her blood gases are in ok range

with having diamox on board with keto?

What about growth? Has she been gaining height proportionate to weight?

The hosp in Portland Oregon is where a lot of glucose fine-tuning diet wise is

done, any chance of sneaking in a consult with the dietician while you are

there?

----- Original Message -----

From: and Stansfield-lyons

,

could you send me the glucose literature you have, I was just on the

matthews friends site and saw you had some info on that. We are still

tweaking stella's diet and with all seizures she has, I have to start

somewhere.

We are heading down to Portland OR for thanksgiving so a little reading

material would be great for the drive.

Great tip too, giving the benzo seperate from the keto meal, we always give

her meds at the same time so they don't cause any tummy upset.

thanks

amanda

--

-mom to Stella, 5years old, started keto diet May 10th 2004 still

waiting to be seizure free. Also on Lamictal, epam and Diamox. Anisa

is almost 10 and a happy healthy girl.

"