Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Dear Rose, I really sympathise with your situation and Ben's behaviour, albeit caused by the side-effects of meds withdrawal, and looking back on my time at school can relate to exactly what you've referred to in your e-mail. When I was 5 yrs I was diagnosed as having complex partial seizures and was put through the mill on all the typical anti-epileptic drugs (AED's), my behaviour did suffer as a result, but then again so did my education too. My school reports often read " Has the ability but could try better " and " Lacks concentration " both typical of what teachers would list. ly, my parents took things with a pinch of salt and so long as I did attend school and my behaviour wasn't too bad, on the whole, they let sleeping dogs lie. I think part of the problem Ben is going through, of which to some extent I did too, he needs a good ally within the teaching staff, someone who can at least support him morally and if need be medically, but also someone who can support/defend him within the teaching staff. Although I was pretty much isolated in that way during my junior school years, in my secondary/high school years I did find one such member of staff - worth her weight in gold, sadly I can't say much for the rest. I suggest you speak to Ben's registration teacher, someone he sees on a day to day basis, either with or without the headmaster present to explain that medication does have side effects and obviously it's withdrawal can cause equal amounts too. You might even consider speaking to Ben's local doctor too, he/she might be able to write a letter to Ben's school explaining that his misbehaviour isn't necessarily of his own making, and hopefully as time passes and his meds are weaned off him he may return to the generally well behaved child the staff have known him for being. If it's any consolation, my schooling wasn't a great success, I guess I could have tried better personally, but I will say that drugs and the seizures played a very dominant roll in my overall aptitude and ability to learn. Even though I say it myself, I've come a long way since then, I've been self-employed with my own shop for 23 years, do book-keeping for the family business and have recently been deemed fit to drive. I know qualifications are more important these days than in the 70's, when I left school, but Ben still has a number of years to catch up any lost ground, and surely if he becomes meds-free then that should also help his education too. So please don't worry unduly, Best wishes, Phil Help! Hi everyone, I'm Mum to Ben - 9 years old - in ketosis for 4 months and doing well apart from one thing: his behaviour has gone haywire. It has got so bad we had a letter from his headmaster yesterday telling us something has got to be sorted out. I would be so grateful if anyone with experience of worsening behaviour particularly whilst withdrawing drugs could post a brief reply so that I can collate bit of anecdotal evidence. I need to be able to say to him that I think once the meds have gone Ben will be back to his old self (he was never really naughty at school before). Otherwise things are going well and he's much more alert generally. At last he can remember his birthday date and yesterday he worked out how to play " Walking in the Air " from " The Snowman " on his cello. That brought a tear or two to my eye! Please reply if you think you have any info that might help us. Rose Toms " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 We had horrible behaviour with drug weaning, not sure which meds you are doing, but we really saw it with depakote. Every time we dropped a dose she would get wild for a few days, then settle down again. Last drop was the worst, she was totally inconsolable, completely over the edge, alternating between screaming and crying like her little heart would break. Some drug weans result in withdrawl seizures, some in withdrawl behaviour. Think of a addict going through withdrawl....... Withdrawl behaviour and seizures both tend to be worst the closer you get to the end of a wean, so you may yet have the worst to come. It like the body is trying to hang on desperately to that last little bit of drug. Should settle when the drugs have been gone for a while, but realistically may be two, three, even four weeks after its all gone. Good luck , 's mom celvellyn wrote: > Hi everyone, > > I'm Mum to Ben - 9 years old - in ketosis for 4 months and doing well > apart from one > thing: his behaviour has gone haywire. It has got so bad we had a > letter from his > headmaster yesterday telling us something has got to be sorted out. I > would be so > grateful if anyone with experience of worsening behaviour particularly > whilst > withdrawing drugs could post a brief reply so that I can collate bit > of anecdotal > evidence. I need to be able to say to him that I think once the meds > have gone Ben > will be back to his old self (he was never really naughty at school > before). Otherwise > things are going well and he's much more alert generally. At last he > can remember his > birthday date and yesterday he worked out how to play " Walking in the > Air " from " The > Snowman " on his cello. That brought a tear or two to my eye! > > Please reply if you think you have any info that might help us. > > Rose Toms > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 > Hi everyone, > > I'm Mum to Ben - 9 years old - in ketosis for 4 months and doing well apart from one > thing: his behaviour has gone haywire. It has got so bad we had a letter from his > headmaster yesterday telling us something has got to be sorted out. I would be so > grateful if anyone with experience of worsening behaviour particularly whilst > withdrawing drugs could post a brief reply so that I can collate bit of anecdotal > evidence. I need to be able to say to him that I think once the meds have gone Ben > will be back to his old self (he was never really naughty at school before). Otherwise > things are going well and he's much more alert generally. At last he can remember his > birthday date and yesterday he worked out how to play " Walking in the Air " from " The > Snowman " on his cello. That brought a tear or two to my eye! > > Please reply if you think you have any info that might help us. > > Rose Toms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 -I'm glad you provided the most important piece of the puzzle in your son's recent bad behavior. It's the medicine wean. I can't stress enough the difficulty of these weans. I wish I had the date of the May New York Times article I referred to on this site sometime towards the end of May 04. It was a caution about weaning people off antidepressants. It described all the symptoms my son went through while weaning AEDs. (Depression being a major one.) We finally did a rapid wean to get through with it quickly. I wouldn't suggest that if you have continued with good seziure control during the wean, but if you have lost control anyway, you might consider it. Once the wean was over, my son returned to his wonderful, engaging, easy-going manners. But we went through hell getting there. Perhaps the strongest symptom your son is feeling is depression, and then acting out because of it, so patience an understanding is key. But things will get better for him when the wean is over. It will be worth it in the end. How far do you have to go? Hang in there! Gretchen -- In ketogenic , " celvellyn " wrote: > Hi everyone, > > I'm Mum to Ben - 9 years old - in ketosis for 4 months and doing well apart from one > thing: his behaviour has gone haywire. It has got so bad we had a letter from his > headmaster yesterday telling us something has got to be sorted out. I would be so > grateful if anyone with experience of worsening behaviour particularly whilst > withdrawing drugs could post a brief reply so that I can collate bit of anecdotal > evidence. I need to be able to say to him that I think once the meds have gone Ben > will be back to his old self (he was never really naughty at school before). Otherwise > things are going well and he's much more alert generally. At last he can remember his > birthday date and yesterday he worked out how to play " Walking in the Air " from " The > Snowman " on his cello. That brought a tear or two to my eye! > > Please reply if you think you have any info that might help us. > > Rose Toms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Gretchen and and all, Just a quick post to put you in the picture properly - Ben has been on Epilim (UK - don't know the equivalent elsewhere) for five years and is coming off at the rate off approx 200mg per 2 weeks - seems quite fast to me but we're following our consultants instructions as you do.... We lose a little seizure control for a few days but have always got it back - so far anyway. We were on 1100mg a day and have got down to 700mg now. Have a good day! Rose Toms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 The only thing I can say is that our three year old son is EXTREMELY irritable, stubborn and frustrated near mealtime until he gets a few bites in and begins to calm down...but even then, he hangs on every bite and can't stand it when we pause for more than a few seconds between spoonfuls! There's really no return to joy until he gets something in him, even if it's just a drink. And if he gets in his mind that it's time to eat when it isn't, he usually has to have a time-out when the behavior gets out of control. Help! Hi everyone, I'm Mum to Ben - 9 years old - in ketosis for 4 months and doing well apart from one thing: his behaviour has gone haywire. It has got so bad we had a letter from his headmaster yesterday telling us something has got to be sorted out. I would be so grateful if anyone with experience of worsening behaviour particularly whilst withdrawing drugs could post a brief reply so that I can collate bit of anecdotal evidence. I need to be able to say to him that I think once the meds have gone Ben will be back to his old self (he was never really naughty at school before). Otherwise things are going well and he's much more alert generally. At last he can remember his birthday date and yesterday he worked out how to play " Walking in the Air " from " The Snowman " on his cello. That brought a tear or two to my eye! Please reply if you think you have any info that might help us. Rose Toms " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Okay, epilim is depakote. So that would explain the behaviour. Hang in and welcome to the club where the motto is..........This too shall pass.......this too shall pass......this too shall pass....... Honest, it will! celvellyn wrote: > Hi Gretchen and and all, > > Just a quick post to put you in the picture properly - Ben has been on > Epilim (UK - > don't know the equivalent elsewhere) for five years and is coming off > at the rate off > approx 200mg per 2 weeks - seems quite fast to me but we're following > our > consultants instructions as you do.... > We lose a little seizure control for a few days but have always got it > back - so far > anyway. We were on 1100mg a day and have got down to 700mg now. > > Have a good day! > > Rose Toms > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 One more thought, you will likely want (need) to slow that wean down as you get closer to the end. Get confused sometimes who I am talking to but you were the one who posted about the school/behaviour problems, right? Wouldn't want to send that headmaster (and Ben) totally out of control LOL Of course, its not funny, but if you don't laugh, you cry. I actually find doing both at the same time rather therapeutic. But back to the wean, I would definitely slow things down if you see things deteriorate (either seizure or behaviour wise) from where you are now. Use what you have now as your baseline and be prepared to have to slow down (maybe even stop for a while if you have to, no big deal, to let him stablize). Kind of like the turtle and the hare, better to actually finish the race then race to the end.....if that made any sense One thing about it, least you know you have lots of company from the been there, done that club. Feel free to share us with the headmaster celvellyn wrote: > Hi Gretchen and and all, > > Just a quick post to put you in the picture properly - Ben has been on > Epilim (UK - > don't know the equivalent elsewhere) for five years and is coming off > at the rate off > approx 200mg per 2 weeks - seems quite fast to me but we're following > our > consultants instructions as you do.... > We lose a little seizure control for a few days but have always got it > back - so far > anyway. We were on 1100mg a day and have got down to 700mg now. > > Have a good day! > > Rose Toms > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Rose and Rose, gave me very good advice when Francesca was weaning her Epilim (thank you ) and yes, everything everyone has said so far is spot on. Francesca went through really emotional stuff - lots of tantrums and really crying her heart out just saying over and over " make me a happy face " - it was heart-breaking. This was, however, much closer to the end of the wean than you are now I'm sorry to say, so you may still have worse to come. But the good news is yes 'this too shall pass' - keep saying it to yourself and the headmaster - it really, really will. I would say we still had some problems until around 4-6 weeks after the last dose, but they lessened each day. It is 2 months tomorrow that she's been drug free and she is back to her usual self (not that she doesn't still have the odd tantrum of course!). Now - no tonic clonics, no absences, just a few myoclonics which we're working on, which seeeeeem to be lessening. Is Ben on the Epilim chrono? We dropped 100mg every two weeks and when we got to 200 morning and night switched to the crushable tablets so we could drop slower. The last drops I decided to go for half a tablet every two weeks. I was desperate to go faster, but really listened to everyone here who very strongly advised to slow down towards the end. Seizure-wise the wean went really well - just one tonic seizure lasting 2 minutes and 2 others of about 30 seconds. The total wean took us four and a half months. Take care , Mum to Francesca, Keto Kid since Sept 03 > > > Hi Gretchen and and all, > > > > Just a quick post to put you in the picture properly - Ben has been on > > Epilim (UK - > > don't know the equivalent elsewhere) for five years and is coming off > > at the rate off > > approx 200mg per 2 weeks - seems quite fast to me but we're following > > our > > consultants instructions as you do.... > > We lose a little seizure control for a few days but have always got it > > back - so far > > anyway. We were on 1100mg a day and have got down to 700mg now. > > > > Have a good day! > > > > Rose Toms > > > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > > resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a > > professional keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic- unsubscribe > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi and Thankyou again for all your wonderful advice and support. I was absolutely terrified going into school this morning but having logged on here a couple of times and spoken to my Mum and a few friends about things I am now feeling a bit calmer. Ben and I also said a little prayer this morning, and I really believe that helped. We had a much better report from school at home-time. We have promised a visit to the cinema to see Shrek 2 at the weekend if we have a really good week. Keep your fingers crossed for us! Rose Toms - Mum of Ben 9 - in ketosis since March 04 and cruisin' (apart from the odd fits of rage here and there!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Hi Rose, was so awful at the start of the diet and then 3m later when we started the drug wean that his teacher wanted him thrown out of the school and his one to one aide quit! He is off all drugs now, sadly not seizure free and definitely could not play a cello , much less walking in the wind! but he is calm and well behaved at school now, Nicola, mum to Matt aged 7 1/2, MCT dairy free keto diet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Phil, that email gave me some hope for Matts future, thanks (I know it was directed to Rose), Nicola Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Hi Nicola, Thanks for your encouragement. Of the three kids on the Tonight programme was the one most like Ben and although I shed a few tears here and there I did smile to hear him tell you that you made him angry! Ben has really been through it recently. One or two mornings he has sat over his breakfast for 1 hour 20 minutes. I have been mad with the school because they've given my husband and I a hard time over his behaviour. I'm afraid I wrote a stiff letter to the headmaster and they have backed off a bit - mainly because I quoted other peoples experiences of behaviour problems. I also had to take a tiny bit of Ben's breakfast into school just once because otherwise I would have been late for work for the umpteenth time, and I was curtly told that supervising Ben's breakfast was not one of his assistant's duties!!!! I just discovered today that Ben's assistant (who is and absolute gem) may be moved to another job next year on account of the possiblity of us moving away from the area (though we don't even have an offer on our house yet) and she will be replaced by a mealtime supervisor. I could scream. It took the present assistant about a year to settle in and really get to know Ben etc etc. I'm preparing to do battle with the deputy head tomorrow.... Take care, and Ben says hello to ! Rose Toms - Mum of Ben 9 - in ketosis since March 04 and doing well - down to less than half the dose of Epilim now but being prepared to slow up on the drug wean if things go bananas again.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Hi Rose and Nicola Has eating always been difficult or are Ben and just not liking their keto food? Since you're both on the MCT diet, could you try cakes for breakfast? I do know how lucky I am that Francesca eats really easily, but she scoffs her blueberry muffin for breakfast in five minutes flat! It's honestly no agg at all (baking them once a fortnight is a bit of a pain, but at least I can do it in my own time - usually on a Sunday evening and then freeze them). Keto breakfast is ten times quicker than it used to be when I wanted her to eat cereals and fruit (even though she loved both). Rose - does Ben have a statement of special educational needs, or has the school given access to an assistant through their own resources? If you haven't got a statement, it certainly seems like it might be worth going through the process of trying to get one - of course a billion times easier said than done!!! I'm currently in the process of fighting to keep speech therapy, as it hasn't worked very well this year, so their proposal is to not bother with it any more!!! Take care , Mum to Francesca, Keto Kid since Sept 03, myoclonics reducing a little more following recent calorie increase... > Hi Nicola, > > Thanks for your encouragement. Of the three kids on the Tonight programme > was the one most like Ben and although I shed a few tears here and there I > did smile to hear him tell you that you made him angry! Ben has really been through > it recently. One or two mornings he has sat over his breakfast for 1 hour 20 minutes. > I have been mad with the school because they've given my husband and I a hard time > over his behaviour. I'm afraid I wrote a stiff letter to the headmaster and they have > backed off a bit - mainly because I quoted other peoples experiences of behaviour > problems. I also had to take a tiny bit of Ben's breakfast into school just once because > otherwise I would have been late for work for the umpteenth time, and I was curtly > told that supervising Ben's breakfast was not one of his assistant's duties!!!! I just > discovered today that Ben's assistant (who is and absolute gem) may be moved to > another job next year on account of the possiblity of us moving away from the area > (though we don't even have an offer on our house yet) and she will be replaced by a > mealtime supervisor. I could scream. It took the present assistant about a year to > settle in and really get to know Ben etc etc. I'm preparing to do battle with the deputy > head tomorrow.... > > Take care, and Ben says hello to ! > > Rose Toms - Mum of Ben 9 - in ketosis since March 04 and doing well - down to less > than half the dose of Epilim now but being prepared to slow up on the drug wean if > things go bananas again.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Hi , I think this eating business is partly a problem with consuming vast quantities of liquigen and partly a sort of emotional reaction to change in general. Ben used to eat pretty well but I never made an issue of it anyway - ie if he wouldn't eat his dinner I just used to say OK make sure you have a bit of everything and then don't have pudding. Ben doesn't respond well to being put under pressure of any kind so I find breakfast is the worst meal because there's a time limit (in theory!) The Epilim seems to have made Ben sometimes feel icky in the past - he would get half way through a meal and then say he was full and had a tummy ache. Also I am a rubbish cook so I haven't found a way to make nice cakes yet. Looking at our breakfast ingredients I think we'd be lucky to make only a cake and not have anything left over, especially liquigen. If you have any advice I would be very grateful! Yes Ben does have a SEN statement. He's had it since he started Junior school and we fought tooth and nail to get him full time help. We were initially told that Ben would benefit from some independence so that he could relate to his peers (for example in the playground) and I said sorry but for now Ben will not be independent and if during his unsupervised periods he has a nasty seizure which goes unmonitored he could sustain serious brain damage etc etc. He was bad enough for someone to have to hold his hand everywhere he went and as you know school is full of rock-hard surfaces! He wears a rugby helmet for protection too. Eventually we got our way! Ben's SNA, Mrs , is absolutely wonderful and if we lose her it will be devastating. I have had a meeting with the SNC today to try to persuade her to let us have Mrs for a few hours a day to ensure some continuity through into Year 5. This year Ben's class have had to endure three different class teachers and I think Ben's survival has been due to Mrs 's presence. He was at his worst at the beginning of Junior School when he had obviously changed schools and teachers and was starting with a new assistant too. We've come a long way since then though! Keep fighting for Francesca - I have a picture in my mind of her beautiful little face watching tigger on the Tonight programme. Our kids need all the help they can get. I have been transformed from a mouse into a lion since Ben became poorly! All the best Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 A keto eggnog (we use chocolate flavouring and call it a chocolate milkshake) might work for breakfast, quick, easy, easy to drink and even if he doesn't finish it all, he should still have right ratio celvellyn wrote: > Hi , > > I think this eating business is partly a problem with consuming vast > quantities of > liquigen and partly a sort of emotional reaction to change in general. > Ben used to eat > pretty well but I never made an issue of it anyway - ie if he wouldn't > eat his dinner I > just used to say OK make sure you have a bit of everything and then > don't have > pudding. Ben doesn't respond well to being put under pressure of any > kind so I find > breakfast is the worst meal because there's a time limit (in theory!) > The Epilim seems > to have made Ben sometimes feel icky in the past - he would get half > way through a > meal and then say he was full and had a tummy ache. > Also I am a rubbish cook so I haven't found a way to make nice cakes > yet. Looking at > our breakfast ingredients I think we'd be lucky to make only a cake > and not have > anything left over, especially liquigen. If you have any advice I > would be very grateful! > > Yes Ben does have a SEN statement. He's had it since he started Junior > school and we > fought tooth and nail to get him full time help. We were initially > told that Ben would > benefit from some independence so that he could relate to his peers > (for example in > the playground) and I said sorry but for now Ben will not be > independent and if > during his unsupervised periods he has a nasty seizure which goes > unmonitored he > could sustain serious brain damage etc etc. He was bad enough for > someone to have > to hold his hand everywhere he went and as you know school is full of > rock-hard > surfaces! He wears a rugby helmet for protection too. Eventually we > got our way! > Ben's SNA, Mrs , is absolutely wonderful and if we lose her it > will be > devastating. I have had a meeting with the SNC today to try to > persuade her to let us > have Mrs for a few hours a day to ensure some continuity > through into Year > 5. This year Ben's class have had to endure three different class > teachers and I think > Ben's survival has been due to Mrs 's presence. He was at his > worst at the > beginning of Junior School when he had obviously changed schools and > teachers and > was starting with a new assistant too. We've come a long way since > then though! > > Keep fighting for Francesca - I have a picture in my mind of her > beautiful little face > watching tigger on the Tonight programme. Our kids need all the help > they can get. I > have been transformed from a mouse into a lion since Ben became > poorly! > > All the best > Rose > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Liz is going to send me some cake recipes, thanks nicola Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 I have been scouring the recipes and files, and could SWEAR someone had posted a "no bake" peanut butter cookie that used GF cornflakes??? I thought I had saved it to my "favorite recipes" on my computer... but its not there. I really have a peanut butter cookie jones, and my oven took a poop, and dont know when our nephew will be back to hook up the new one when we get it this week.. I have made regular gluten cookies on the grill (dont ask, but yes it does work). Just dont dare try GF there yet... Anyone have the link bookmarked or the recipe or is this something I just dreamed of??? Thanks! Cassi Gluten free in downtown Imatra! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 > > > I really have a peanut butter cookie jones, ... > Cassi, may this link help with the jonesing. http://kids.cdkitchen.com/recipes/recs/577/After-School-No-Bake-Choco-But75331.s\ html Fondly, Esther Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 The recipe you were thinking of is in the files: GF Recipes > Cookies & Fudge > Nut Cookies It is the last recipe on the page (scroll down)- No bake peanut butter cookies, posted by . Enjoy! > > I have been scouring the recipes and files, and could SWEAR someone had posted a " no bake " peanut butter cookie that used GF cornflakes??? I thought I had saved it to my " favorite recipes " on my computer... but its not there. > I really have a peanut butter cookie jones, and my oven took a poop, and dont know when our nephew will be back to hook up the new one when we get it this week.. I have made regular gluten cookies on the grill (dont ask, but yes it does work). Just dont dare try GF there yet... Anyone have the link bookmarked or the recipe or is this something I just dreamed of??? > Thanks! > Cassi > > Gluten free in downtown Imatra! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 Thanks all for the cookie recipes... Had every intention of making them this weekend, but no good deed goes unpunished, and instead of stepdaughter and grandaughter coming, we had the whole fam-damily! Wound up with far too many gluten gobbling ghouls as guests, so CC was an issue. Hopefully will have some time tomorrow as Im still having the jones bad, and have reclaimed my home once again... Best! Cassi Hi, I'm here for my internment...Oh, no! I mean internship! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 WOW! can I ever relate for my son who is the celiac! My dh bought a BD. gluten filled cake for our one year old in our home and everyone dropped in for cake and icecream. Is it just me, or is it hard for everyone else also to explain why the gf icecream cannot get touched by the cake? I cannot believe how dh seemed as if I were overreacting. I kept saying this too shall pass andso it did. Just trying to keep my little guy safe!!! Lauretta Thanks all for the cookie recipes... Had every intention of making them this weekend, but no good deed goes unpunished, and instead of stepdaughter and grandaughter coming, we had the whole fam-damily! Wound up with far too many gluten gobbling ghouls as guests, so CC was an issue. Hopefully will have some time tomorrow as Im still having the jones bad, and have reclaimed my home once again... Best! Cassi Hi, I'm here for my internment...Oh, no! I mean internship! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 Cassi, Dang I wish more people that aren't dealing with CD or DH would be more understanding for people like us. It's no fun getting sick. You sure had a time of it. I've already decided, if Dean's folk's want me to have a meal with them, I'm bringing foods with me that I can eat, so I don't get ill. I have been doing so much better since being GF, and I don't care to get sick. I did forward the news link to Dean so he could read it, and show it to his folk's. Whether he did or not, is beyond me, but I also e-mailed it to my sister in-law. I love my In-laws, and I just want them to better understand more about the reasons I have to stay away from things with gluten in it. They just don't realize how much stuff it's in, which is just about everything. Sure hope you get to feeling better. Hugs, Donna Dean & Donna ' Appaloosa Horseswww.donnaappaloosahorses.com Welcome To Donna ' WebPagehttp://donnaevans.multiply.com Donna ' Blog WebPagehttp://www.myspace.com/9586741 Re: HELP! Thanks all for the cookie recipes... Had every intention of making them this weekend, but no good deed goes unpunished, and instead of stepdaughter and grandaughter coming, we had the whole fam-damily! Wound up with far too many gluten gobbling ghouls as guests, so CC was an issue. Hopefully will have some time tomorrow as Im still having the jones bad, and have reclaimed my home once again... Best! Cassi Hi, I'm here for my internment...Oh, no! I mean internship! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 Lauretta, We do have problems with people that aren't deal with CD like we are, that just don't get it, and they seem to really not care. I explained to my husband, nothing that has touched glutened foods can tough the GF, or I'll get terribly ill. He doesn't get it, but he is trying to, he's not like he was. But gee, sure wish people would better understand what we're dealing with. Donna Dean & Donna ' Appaloosa Horseswww.donnaappaloosahorses.com Welcome To Donna ' WebPagehttp://donnaevans.multiply.com Donna ' Blog WebPagehttp://www.myspace.com/9586741 Re: Re: HELP! WOW! can I ever relate for my son who is the celiac! My dh bought a BD. gluten filled cake for our one year old in our home and everyone dropped in for cake and icecream. Is it just me, or is it hard for everyone else also to explain why the gf icecream cannot get touched by the cake? I cannot believe how dh seemed as if I were overreacting. I kept saying this too shall pass andso it did. Just trying to keep my little guy safe!!! Lauretta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 I would've shot my husband if he brought home a regular cake. It's one thing when you go somewhere else and it's unavoidable, but geeze in your own home!? Especially with so many great cake mixes out there for GF. I haven't had a problem explaining the cross contamination issue, even to my thick headed SIL, but I do have to do it EVERY time. We don't even do cake anymore at any family birthday. Not bc of the Celiac, but bc no one ever seems to really like it or miss it. We've gone to Make Your Own Sundae bars (and I usually make a pan of GF brownies and cut them into small bits) and that is a HUGE hit!!! So, just food for thought.... From: SillyYaks [mailto:SillyYaks ] On Behalf Of Lauretta McInnisSent: Wednesday, September 20, 2006 2:41 PMTo: SillyYaks Subject: Re: Re: HELP! WOW! can I ever relate for my son who is the celiac! My dh bought a BD. gluten filled cake for our one year old in our home and everyone dropped in for cake and icecream. Is it just me, or is it hard for everyone else also to explain why the gf icecream cannot get touched by the cake? I cannot believe how dh seemed as if I were overreacting. I kept saying this too shall pass andso it did. Just trying to keep my little guy safe!!! Lauretta On 9/20/06, cassi naukkarinen <cass (AT) angry-ostrich (DOT) org> wrote: Thanks all for the cookie recipes... Had every intention of making them this weekend, but no good deed goes unpunished, and instead of stepdaughter and grandaughter coming, we had the whole fam-damily! Wound up with far too many gluten gobbling ghouls as guests, so CC was an issue. Hopefully will have some time tomorrow as Im still having the jones bad, and have reclaimed my home once again... Best! Cassi Hi, I'm here for my internment...Oh, no! I mean internship! Quote Link to comment Share on other sites More sharing options...
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