Re: Efalex, OmegaBrite--Please, please answer this

[Guest guest]

Hi ,

Maybe this message got lost in the shuffle and you never saw it. I really need

help, and so I am running this by you again. I hope you can tell me how to use

Efalex when the proportions are not at all like those of Nordic Naturals ProEFA

or Equazen EyeQ. I am absolutely at a loss here.

[ ] Re: GLA and OmegaBrite

I thought I posted this message earlier -so here it is (again) just

in case:

Back when I had asked Dr. Stoll to be an advisor for CHERAB while we

were in the initial stages of feedback on EFAs and he agreed. We

never worked together however because I feared there would be a

trial with Omegabrite which I too believe was or still is a pure

Omega 3 and the results would be unfavorable. On Dr. Stoll's

website for Omegabrite (the formula he developed) he does

acknowledge that Omega 6 is important for some reason in small

amounts which is what I was saying even before it was published

anywhere else (can't mess with strong anecdotal evidence -it works

or it doesn't work and parents, relatives, professionals will let

you know either way)

http://www.cherab. org/information/ historyEFA. html

" The Fatty Acids used in Durham

There are many fatty acid supplements on the market, and finding the

right one was crucial for our research strategy. We needed a

supplement that was mostly omega-3, but had some omega

6. It also had to be high in omega-3 EPA, which appeared to be the

key fatty acid for optimal brain function. And in order for us to

administer it to school children, it had to be of high quality.

We approached a specialist supplier of marine and botanical oils. We

had seen through contacts with support groups that their popular

supplement appeared to show very real benefits for many youngsters

with learning conditions. They agreed to supply our trial programme

with the supplement, either in capsule of liquid form, depending on

the age group being assessed.

The supplement uses fatty acids specifically for eye and brain

function. The omega-3 element is a marine fish oil that has a

particularly high ratio of EPA (eicosapentaenoic acid) and is left

in its purest natural format. Virgin-pressed evening primrose oil

provides omega-6 fatty acid GLA.

In trial work so far, each participant on active capsules, or

liquid, has daily taken:

EPA: 558 mg

DHA: 174 mg

GLA: 60 mg • "

http://www.omegabri te.com/why/ brain/DurhamRese arch.htm

OmegaBrite is very expensive -I thought the ProEPA Xtra was (it's

not one we use with our kids -it's one used more for heart health)

Ends up that Nordic's line is the more reasonable!

http://hddrugworks. org/articles/ 14.html

As far as " no taste " I'll believe it when I taste it myself. I've

tried some of the " tasteless " fish oils and to me the range is from

not that gross to disgusting. Once one can learn to swallow capsules all

that matters is that there is no fishy burps after (yuck!!!!)

Would high EPA without the GLA work? If anything would work it

would be a high EPA -or super super high DHA. But why go there when

you don't need that much when you just have a tweak of GLA? But if

one loves Omegabrite and it works for their child and they have the

extra money -who's to say? Would I recommend it? Nope -as always

if one was going to try fish oil for the first time -stick with the

three brands/formulas we've known have proven successful for the

majority time after time for years. Why assume your child will be

in the minority exception to the rule of what would work? The three

are ProEFA Nordic Naturals (regular not junior) Efalex by Nutricia,

or EyeQ by Equazen.

And just had to add this due to some of the recent messages:

As far as this board being slanted towards supplements or fish oil

that is just " hooey " ! This is probably one of the largest and the

most unmoderated (outside of spam) message boards out there for

apraxia as well as other communication delays and disorders. Go to

a group that claims they are the " most comprehensive " for apraxia

and try posting something positive about " Geng " " Agin MD " , The Late Talker book,

Inside Edition TV's episode on apraxia, The New York Times two

articles on The Late Talker book or CHERAB, Speechville. com or

anything else that doesn't have to do with their group and let us

know if it goes through... (insert cricket sound here)

And...try to talk about fish oils without mentioning the above!

If fish oils or any other supplement, therapy, school etc. works you

can post about it here -if they don't work -you can post about it

here. And anyone who honestly believes that the right formula of fish oils

don't work for almost all probably isn't a member of a in person

support group. Because when this group learned about it -it was in

person with hundreds of other families at Children's Specialized

Hospital, St. Barnabas Hospital in NJ with families from the entire

tri state area -not one parent sitting for example in say...um let

me think.... on a computer by herself in Pittsburgh for example

where she decides what information is " ethical " to share. Did any

of you watch Lorenzo's Oil? Did this woman?

If there is more talk about supplements now then ever it is because

this group has a respected medical researcher who is a parent of an

apraxic child who is starting research and who has first hand

witnessed what we all reported as parents for years. Good for

to validate what we all knew for years to help bring all the

children a voice...and quickly...in " most " cases -not just those in

this group.

Can take the girl out of Jersey but not the Jersey out of the girl!

If I believe in something I'll fight for it -and this I believe in.

If it's talked about here -it's what this group wants to talk about.

(not the ten moderators from all over the globe's belief)

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