Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Hi, That's a very good question. I just got back from my son's IEP meeting. He does have retrieval issues. I suspect he is apraxic; his SLT does not feel he is apraxic. She told me that apraxic children are not able to make the sounds, but that is not the same as language processing and retrieval. (He has a diagnosis of expressive and receptive disorder). Nevertheless, I'm taking him to a dev. ped. in January. I have to follow my gut instinct. I feel there is something more to the picture. On 11/29/06, marisanbella <marisanbella@...> wrote: > > My dd has severe Apraxia of speech. Our private speech therapist has > mentioned that she noticed a bit of word retrieval issues with her. > She is 4yrs old and finally making some progress with her speech. > > Does anyone elses child with Apraxia have word retieval issues? or is > a seperate issue? > > Please help! Just when I think she is getting ahead, I feel like we > are being sent backwards. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Be careful you don't fall into the trap of over diagnosis of your elementary school age or God forbid even younger preschool apraxic child. How can anyone assume an apraxic child has word retrieval problems when it could instead be motor planning problems? As a parent I believe that we are the best at giving our children the benefit of the doubt because you just may be the only one in the whole wide world that does. And guess what -your belief and benefit of the doubt and advocacy may be the saving grace that keeps your child in the mainstream long enough for him or her to prove that he belongs there. Even long enough for him to rise above the norm. Just the other day I spoke to a parent in Florida who told me her preschool child was diagnosed with apraxia and CAPD (that stands for central auditory processing disorder) The child had never been to a neurologist or developmental pediatrician either. Even without apraxia CAPD is not a diagnosis that can be definitive in preschool years -but why set this poor kid up even before he's in kindergarten? See now while some of you wonder or even confirm that your child has " word retrieval problems " this mom was told it was CAPD. But all of these children are dealing with apraxia -a motor planning disorder that makes it difficult to do or say (depending upon what the apraxia affects) things on command. Back when Tanner was preschool age he was tested average to above average in abilities prior to starting kindergarten by the Summit Speech School where he was schooled in out of district preschool placement. He was tested the same by private exams from neuroMDs and SLPs. Yet the public school when they tested him (if they were the only ones that tested him for example) found that Tanner was had low average abilities at best and " wouldn't make it " in a mainstream kindergarten class. Needless to say, once again, I don't believe everything I hear and questioned at the IEP " We aren't talking about rocket science class here, we are talking about kindergarten. What exactly is it that you think Tanner is not capable of doing in a mainstream kindergarten class? Finger-painting?! " And as you'll find in the archives my husband and I advocated for Tanner to be in the mainstream where the rest is history. Tanner not only " made it " in the mainstream -but as his kindergarten teacher said " he's one of the top students in the class " My advice is only provide accurate information about your child that leans toward the positive. If you are wrong it's because you are wrong -and not that you as a parent helped create your child's negative reality by providing false information. And if anyone believes that their preschool child with apraxia has CAPD or word retrieval problems -don't believe me...get a second opinion from someone who has a clue. For the sake of your child. Know that what they are dealing with is not understood by most -so most will assume the worst. And you know what -apraxia is not much different then stuttering down the road. It is a speech impairment...but in most of our kids today -with a few other little issues like low tone or sensory issues. Not cognitive or social or receptive ones. But of course treat a kid like he is learning disabled and tell the school he is and you may help create that reality. Then again you can have a child with mental retardation and apraxia -but that's not as common. So if you are going to assume anything -assume your child is smart. Really really smart. He or she has to be because he or she has a motor planning disorder to overcome -as well as ignorance and prejudice. And right now the only one you will hear this from is me. But if you change your belief and believe in your child - perhaps you'll hear it from your child down the road. I know I did and do! Here's some of his story http://www.cherab.org/information/familiesrelate/letter.html And in addition to " really really smart " know that most with apraxia have a " phenomenal memory " which is one sign of a gifted student. Let us know if your child is apraxic and doesn't have that unusually strong memory. Also let me know if you need examples. My theory is that strong unusual memory is due to having to remember things long enough to express them while others their age just spit out whatever comes to mind....and there you were -thinking that kid has " word retrieval issues " Who's right? Who do you hurt if you are wrong? This topic has come up before but here's just one of the archives on it. Kim any updates on your message below? If not or even if -Dawn perhaps you can comment on Abby's update too since this was a topic you brought up back when. Re: Is word retrieval problems a form of regression? Hi Kim! Some professionals still must just hate to say " apraxia " (since it doesn't exist in children right?) and perhaps " word retrieval problem " is the new buzz or something. Seeing the actual item is a " visual cue " and cues whether they are visual ones such as that or bringing two items together to symbolize two syllables or two words, touch cues (such as what Prompt is) or auditory cues such as in clapping out the syllables/words are all strong therapy methods to help with " motor planning problems " . If it was purely word retrieval seeing or not seeing the item would not make a difference. Have any of you seen an actor in a movie and just can't recall the name of that actor? You see the actor, hear that actor's voice, feel your friend's finger tapping your arm saying " who is that actor again? " You both know you know his name and yet you and your friend can't recall it. Now that's probably not word retrieval either -probably that's memory -but clearly visual cues don't always help there. Cues always help with motor planning. To me it's another " obvious " answer -it's clearly a motor planning problem. I could be wrong -but doubt it on this one. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 This may not be helpful, but I thought I'd add my experience. My son (ASD dx, no apraxia dx) had significant word retrieval issues for a couple of years. Those problems went away once we started treating his borderline hypothyroidism. If you haven't checked, test your child's TSH, free T3 and free T4 (not T7, total T4, etc). If the TSH is over 2, I would take it to an expert who can help you figure out if your child would benefit from a low dose of natural thyroid (we use armour). The upper end of the normal range for TSH is currently 3, but some people need it to be 2 or less to feel good. > > Be careful you don't fall into the trap of over diagnosis of your > elementary school age or God forbid even younger preschool apraxic child. > How can anyone assume an apraxic child has word retrieval problems > when it could instead be motor planning problems? As a parent I > believe that we are the best at giving our children the benefit of > the doubt because you just may be the only one in the whole wide > world that does. And guess what -your belief and benefit of the > doubt and advocacy may be the saving grace that keeps your child in > the mainstream long enough for him or her to prove that he belongs > there. Even long enough for him to rise above the norm. Just the > other day I spoke to a parent in Florida who told me her preschool > child was diagnosed with apraxia and CAPD (that stands for central > auditory processing disorder) The child had never been to a > neurologist or developmental pediatrician either. Even without > apraxia CAPD is not a diagnosis that can be definitive in preschool > years -but why set this poor kid up even before he's in > kindergarten? See now while some of you wonder or even confirm that > your child has " word retrieval problems " this mom was told it was > CAPD. But all of these children are dealing with apraxia -a motor > planning disorder that makes it difficult to do or say (depending > upon what the apraxia affects) things on command. > > Back when Tanner was preschool age he was tested average to above > average in abilities prior to starting kindergarten by the Summit > Speech School where he was schooled in out of district preschool > placement. He was tested the same by private exams from neuroMDs > and SLPs. Yet the public school when they tested him (if they were > the only ones that tested him for example) found that Tanner was had > low average abilities at best and " wouldn't make it " in a mainstream > kindergarten class. Needless to say, once again, I don't believe > everything I hear and questioned at the IEP " We aren't talking about > rocket science class here, we are talking about kindergarten. What > exactly is it that you think Tanner is not capable of doing in a > mainstream kindergarten class? Finger-painting?! " And as you'll > find in the archives my husband and I advocated for Tanner to be in > the mainstream where the rest is history. Tanner not only " made it " > in the mainstream -but as his kindergarten teacher said " he's one of > the top students in the class " > > My advice is only provide accurate information about your child that > leans toward the positive. If you are wrong it's because you are > wrong -and not that you as a parent helped create your child's > negative reality by providing false information. And if anyone > believes that their preschool child with apraxia has CAPD or word > retrieval problems -don't believe me...get a second opinion from > someone who has a clue. For the sake of your child. Know that what > they are dealing with is not understood by most -so most will assume > the worst. And you know what -apraxia is not much different then > stuttering down the road. It is a speech impairment...but in most > of our kids today -with a few other little issues like low tone or > sensory issues. Not cognitive or social or receptive ones. But of > course treat a kid like he is learning disabled and tell the school > he is and you may help create that reality. Then again you can > have a child with mental retardation and apraxia -but that's not as > common. So if you are going to assume anything -assume your child > is smart. Really really smart. He or she has to be because he or > she has a motor planning disorder to overcome -as well as ignorance > and prejudice. And right now the only one you will hear this from is > me. But if you change your belief and believe in your child - > perhaps you'll hear it from your child down the road. I know I did > and do! > Here's some of his story > http://www.cherab.org/information/familiesrelate/letter.html > > And in addition to " really really smart " know that most with apraxia have a " phenomenal memory " which is one sign of a gifted student. Let us know if your child is apraxic and doesn't have that unusually strong memory. Also let me know if you need examples. My theory is that strong unusual memory is due to having to remember things long enough to express them while others their age just spit out whatever comes to mind....and there you were -thinking that kid has " word retrieval issues " Who's right? Who do you hurt if you are wrong? > > This topic has come up before but here's just one of the archives on > it. Kim any updates on your message below? If not or even if -Dawn > perhaps you can comment on Abby's update too since this was a topic > you brought up back when. > > > Re: Is word retrieval problems a form of regression? > > > Hi Kim! > > Some professionals still must just hate to say " apraxia " (since it > doesn't exist in children right?) and perhaps " word retrieval > problem " is the new buzz or something. > > Seeing the actual item is a " visual cue " and cues whether they are > visual ones such as that or bringing two items together to symbolize > two syllables or two words, touch cues (such as what Prompt is) or > auditory cues such as in clapping out the syllables/words are all > strong therapy methods to help with " motor planning problems " . > > If it was purely word retrieval seeing or not seeing the item would > not make a difference. Have any of you seen an actor in a movie and > just can't recall the name of that actor? You see the actor, hear > that actor's voice, feel your friend's finger tapping your arm > saying " who is that actor again? " You both know you know his name > and yet you and your friend can't recall it. Now that's probably > not word retrieval either -probably that's memory -but clearly > visual cues don't always help there. Cues always help with motor > planning. > > To me it's another " obvious " answer -it's clearly a motor planning > problem. I could be wrong -but doubt it on this one. > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Thanks for your insight. My dd does have an unbelievable memory. I do not believe she is regressing but I just do not want another issue with her. She already has Epilepsy(on meds),Apraxia, and incoordination(ex. still can not pedal a trike) . All dx by her neuro. I don't mean to sound negative in any way. My dd is a beautiful intelligent little girl, that puts a smile on everyones face. I will fight for my child to stay mainstream we would not have it any other way. > > > > Be careful you don't fall into the trap of over diagnosis of your > > elementary school age or God forbid even younger preschool apraxic > child. > > How can anyone assume an apraxic child has word retrieval problems > > when it could instead be motor planning problems? As a parent I > > believe that we are the best at giving our children the benefit of > > the doubt because you just may be the only one in the whole wide > > world that does. And guess what -your belief and benefit of the > > doubt and advocacy may be the saving grace that keeps your child in > > the mainstream long enough for him or her to prove that he belongs > > there. Even long enough for him to rise above the norm. Just the > > other day I spoke to a parent in Florida who told me her preschool > > child was diagnosed with apraxia and CAPD (that stands for central > > auditory processing disorder) The child had never been to a > > neurologist or developmental pediatrician either. Even without > > apraxia CAPD is not a diagnosis that can be definitive in preschool > > years -but why set this poor kid up even before he's in > > kindergarten? See now while some of you wonder or even confirm that > > your child has " word retrieval problems " this mom was told it was > > CAPD. But all of these children are dealing with apraxia -a motor > > planning disorder that makes it difficult to do or say (depending > > upon what the apraxia affects) things on command. > > > > Back when Tanner was preschool age he was tested average to above > > average in abilities prior to starting kindergarten by the Summit > > Speech School where he was schooled in out of district preschool > > placement. He was tested the same by private exams from neuroMDs > > and SLPs. Yet the public school when they tested him (if they were > > the only ones that tested him for example) found that Tanner was had > > low average abilities at best and " wouldn't make it " in a mainstream > > kindergarten class. Needless to say, once again, I don't believe > > everything I hear and questioned at the IEP " We aren't talking about > > rocket science class here, we are talking about kindergarten. What > > exactly is it that you think Tanner is not capable of doing in a > > mainstream kindergarten class? Finger-painting?! " And as you'll > > find in the archives my husband and I advocated for Tanner to be in > > the mainstream where the rest is history. Tanner not only " made it " > > in the mainstream -but as his kindergarten teacher said " he's one of > > the top students in the class " > > > > My advice is only provide accurate information about your child that > > leans toward the positive. If you are wrong it's because you are > > wrong -and not that you as a parent helped create your child's > > negative reality by providing false information. And if anyone > > believes that their preschool child with apraxia has CAPD or word > > retrieval problems -don't believe me...get a second opinion from > > someone who has a clue. For the sake of your child. Know that what > > they are dealing with is not understood by most -so most will assume > > the worst. And you know what -apraxia is not much different then > > stuttering down the road. It is a speech impairment...but in most > > of our kids today -with a few other little issues like low tone or > > sensory issues. Not cognitive or social or receptive ones. But of > > course treat a kid like he is learning disabled and tell the school > > he is and you may help create that reality. Then again you can > > have a child with mental retardation and apraxia -but that's not as > > common. So if you are going to assume anything -assume your child > > is smart. Really really smart. He or she has to be because he or > > she has a motor planning disorder to overcome -as well as ignorance > > and prejudice. And right now the only one you will hear this from is > > me. But if you change your belief and believe in your child - > > perhaps you'll hear it from your child down the road. I know I did > > and do! > > Here's some of his story > > http://www.cherab.org/information/familiesrelate/letter.html > > > > And in addition to " really really smart " know that most with > apraxia have a " phenomenal memory " which is one sign of a gifted > student. Let us know if your child is apraxic and doesn't have that > unusually strong memory. Also let me know if you need examples. My > theory is that strong unusual memory is due to having to remember > things long enough to express them while others their age just spit > out whatever comes to mind....and there you were -thinking that kid > has " word retrieval issues " Who's right? Who do you hurt if you are > wrong? > > > > This topic has come up before but here's just one of the archives on > > it. Kim any updates on your message below? If not or even if - Dawn > > perhaps you can comment on Abby's update too since this was a topic > > you brought up back when. > > > > > > Re: Is word retrieval problems a form of regression? > > > > > > Hi Kim! > > > > Some professionals still must just hate to say " apraxia " (since it > > doesn't exist in children right?) and perhaps " word retrieval > > problem " is the new buzz or something. > > > > Seeing the actual item is a " visual cue " and cues whether they are > > visual ones such as that or bringing two items together to symbolize > > two syllables or two words, touch cues (such as what Prompt is) or > > auditory cues such as in clapping out the syllables/words are all > > strong therapy methods to help with " motor planning problems " . > > > > If it was purely word retrieval seeing or not seeing the item would > > not make a difference. Have any of you seen an actor in a movie and > > just can't recall the name of that actor? You see the actor, hear > > that actor's voice, feel your friend's finger tapping your arm > > saying " who is that actor again? " You both know you know his name > > and yet you and your friend can't recall it. Now that's probably > > not word retrieval either -probably that's memory -but clearly > > visual cues don't always help there. Cues always help with motor > > planning. > > > > To me it's another " obvious " answer -it's clearly a motor planning > > problem. I could be wrong -but doubt it on this one. > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Hi, That's a very good question. I just got back from my son's IEP meeting. He does have retrieval issues. I suspect he is apraxic; his SLT does not feel he is apraxic. She told me that apraxic children are not able to make the sounds, but that is not the same as language processing and retrieval. (He has a diagnosis of expressive and receptive disorder). Nevertheless, I'm taking him to a dev. ped. in January. I have to follow my gut instinct. I feel there is something more to the picture. On 11/29/06, marisanbella <marisanbella@...> wrote: > > My dd has severe Apraxia of speech. Our private speech therapist has > mentioned that she noticed a bit of word retrieval issues with her. > She is 4yrs old and finally making some progress with her speech. > > Does anyone elses child with Apraxia have word retieval issues? or is > a seperate issue? > > Please help! Just when I think she is getting ahead, I feel like we > are being sent backwards. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Be careful you don't fall into the trap of over diagnosis of your elementary school age or God forbid even younger preschool apraxic child. How can anyone assume an apraxic child has word retrieval problems when it could instead be motor planning problems? As a parent I believe that we are the best at giving our children the benefit of the doubt because you just may be the only one in the whole wide world that does. And guess what -your belief and benefit of the doubt and advocacy may be the saving grace that keeps your child in the mainstream long enough for him or her to prove that he belongs there. Even long enough for him to rise above the norm. Just the other day I spoke to a parent in Florida who told me her preschool child was diagnosed with apraxia and CAPD (that stands for central auditory processing disorder) The child had never been to a neurologist or developmental pediatrician either. Even without apraxia CAPD is not a diagnosis that can be definitive in preschool years -but why set this poor kid up even before he's in kindergarten? See now while some of you wonder or even confirm that your child has " word retrieval problems " this mom was told it was CAPD. But all of these children are dealing with apraxia -a motor planning disorder that makes it difficult to do or say (depending upon what the apraxia affects) things on command. Back when Tanner was preschool age he was tested average to above average in abilities prior to starting kindergarten by the Summit Speech School where he was schooled in out of district preschool placement. He was tested the same by private exams from neuroMDs and SLPs. Yet the public school when they tested him (if they were the only ones that tested him for example) found that Tanner was had low average abilities at best and " wouldn't make it " in a mainstream kindergarten class. Needless to say, once again, I don't believe everything I hear and questioned at the IEP " We aren't talking about rocket science class here, we are talking about kindergarten. What exactly is it that you think Tanner is not capable of doing in a mainstream kindergarten class? Finger-painting?! " And as you'll find in the archives my husband and I advocated for Tanner to be in the mainstream where the rest is history. Tanner not only " made it " in the mainstream -but as his kindergarten teacher said " he's one of the top students in the class " My advice is only provide accurate information about your child that leans toward the positive. If you are wrong it's because you are wrong -and not that you as a parent helped create your child's negative reality by providing false information. And if anyone believes that their preschool child with apraxia has CAPD or word retrieval problems -don't believe me...get a second opinion from someone who has a clue. For the sake of your child. Know that what they are dealing with is not understood by most -so most will assume the worst. And you know what -apraxia is not much different then stuttering down the road. It is a speech impairment...but in most of our kids today -with a few other little issues like low tone or sensory issues. Not cognitive or social or receptive ones. But of course treat a kid like he is learning disabled and tell the school he is and you may help create that reality. Then again you can have a child with mental retardation and apraxia -but that's not as common. So if you are going to assume anything -assume your child is smart. Really really smart. He or she has to be because he or she has a motor planning disorder to overcome -as well as ignorance and prejudice. And right now the only one you will hear this from is me. But if you change your belief and believe in your child - perhaps you'll hear it from your child down the road. I know I did and do! Here's some of his story http://www.cherab.org/information/familiesrelate/letter.html And in addition to " really really smart " know that most with apraxia have a " phenomenal memory " which is one sign of a gifted student. Let us know if your child is apraxic and doesn't have that unusually strong memory. Also let me know if you need examples. My theory is that strong unusual memory is due to having to remember things long enough to express them while others their age just spit out whatever comes to mind....and there you were -thinking that kid has " word retrieval issues " Who's right? Who do you hurt if you are wrong? This topic has come up before but here's just one of the archives on it. Kim any updates on your message below? If not or even if -Dawn perhaps you can comment on Abby's update too since this was a topic you brought up back when. Re: Is word retrieval problems a form of regression? Hi Kim! Some professionals still must just hate to say " apraxia " (since it doesn't exist in children right?) and perhaps " word retrieval problem " is the new buzz or something. Seeing the actual item is a " visual cue " and cues whether they are visual ones such as that or bringing two items together to symbolize two syllables or two words, touch cues (such as what Prompt is) or auditory cues such as in clapping out the syllables/words are all strong therapy methods to help with " motor planning problems " . If it was purely word retrieval seeing or not seeing the item would not make a difference. Have any of you seen an actor in a movie and just can't recall the name of that actor? You see the actor, hear that actor's voice, feel your friend's finger tapping your arm saying " who is that actor again? " You both know you know his name and yet you and your friend can't recall it. Now that's probably not word retrieval either -probably that's memory -but clearly visual cues don't always help there. Cues always help with motor planning. To me it's another " obvious " answer -it's clearly a motor planning problem. I could be wrong -but doubt it on this one. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 This may not be helpful, but I thought I'd add my experience. My son (ASD dx, no apraxia dx) had significant word retrieval issues for a couple of years. Those problems went away once we started treating his borderline hypothyroidism. If you haven't checked, test your child's TSH, free T3 and free T4 (not T7, total T4, etc). If the TSH is over 2, I would take it to an expert who can help you figure out if your child would benefit from a low dose of natural thyroid (we use armour). The upper end of the normal range for TSH is currently 3, but some people need it to be 2 or less to feel good. > > Be careful you don't fall into the trap of over diagnosis of your > elementary school age or God forbid even younger preschool apraxic child. > How can anyone assume an apraxic child has word retrieval problems > when it could instead be motor planning problems? As a parent I > believe that we are the best at giving our children the benefit of > the doubt because you just may be the only one in the whole wide > world that does. And guess what -your belief and benefit of the > doubt and advocacy may be the saving grace that keeps your child in > the mainstream long enough for him or her to prove that he belongs > there. Even long enough for him to rise above the norm. Just the > other day I spoke to a parent in Florida who told me her preschool > child was diagnosed with apraxia and CAPD (that stands for central > auditory processing disorder) The child had never been to a > neurologist or developmental pediatrician either. Even without > apraxia CAPD is not a diagnosis that can be definitive in preschool > years -but why set this poor kid up even before he's in > kindergarten? See now while some of you wonder or even confirm that > your child has " word retrieval problems " this mom was told it was > CAPD. But all of these children are dealing with apraxia -a motor > planning disorder that makes it difficult to do or say (depending > upon what the apraxia affects) things on command. > > Back when Tanner was preschool age he was tested average to above > average in abilities prior to starting kindergarten by the Summit > Speech School where he was schooled in out of district preschool > placement. He was tested the same by private exams from neuroMDs > and SLPs. Yet the public school when they tested him (if they were > the only ones that tested him for example) found that Tanner was had > low average abilities at best and " wouldn't make it " in a mainstream > kindergarten class. Needless to say, once again, I don't believe > everything I hear and questioned at the IEP " We aren't talking about > rocket science class here, we are talking about kindergarten. What > exactly is it that you think Tanner is not capable of doing in a > mainstream kindergarten class? Finger-painting?! " And as you'll > find in the archives my husband and I advocated for Tanner to be in > the mainstream where the rest is history. Tanner not only " made it " > in the mainstream -but as his kindergarten teacher said " he's one of > the top students in the class " > > My advice is only provide accurate information about your child that > leans toward the positive. If you are wrong it's because you are > wrong -and not that you as a parent helped create your child's > negative reality by providing false information. And if anyone > believes that their preschool child with apraxia has CAPD or word > retrieval problems -don't believe me...get a second opinion from > someone who has a clue. For the sake of your child. Know that what > they are dealing with is not understood by most -so most will assume > the worst. And you know what -apraxia is not much different then > stuttering down the road. It is a speech impairment...but in most > of our kids today -with a few other little issues like low tone or > sensory issues. Not cognitive or social or receptive ones. But of > course treat a kid like he is learning disabled and tell the school > he is and you may help create that reality. Then again you can > have a child with mental retardation and apraxia -but that's not as > common. So if you are going to assume anything -assume your child > is smart. Really really smart. He or she has to be because he or > she has a motor planning disorder to overcome -as well as ignorance > and prejudice. And right now the only one you will hear this from is > me. But if you change your belief and believe in your child - > perhaps you'll hear it from your child down the road. I know I did > and do! > Here's some of his story > http://www.cherab.org/information/familiesrelate/letter.html > > And in addition to " really really smart " know that most with apraxia have a " phenomenal memory " which is one sign of a gifted student. Let us know if your child is apraxic and doesn't have that unusually strong memory. Also let me know if you need examples. My theory is that strong unusual memory is due to having to remember things long enough to express them while others their age just spit out whatever comes to mind....and there you were -thinking that kid has " word retrieval issues " Who's right? Who do you hurt if you are wrong? > > This topic has come up before but here's just one of the archives on > it. Kim any updates on your message below? If not or even if -Dawn > perhaps you can comment on Abby's update too since this was a topic > you brought up back when. > > > Re: Is word retrieval problems a form of regression? > > > Hi Kim! > > Some professionals still must just hate to say " apraxia " (since it > doesn't exist in children right?) and perhaps " word retrieval > problem " is the new buzz or something. > > Seeing the actual item is a " visual cue " and cues whether they are > visual ones such as that or bringing two items together to symbolize > two syllables or two words, touch cues (such as what Prompt is) or > auditory cues such as in clapping out the syllables/words are all > strong therapy methods to help with " motor planning problems " . > > If it was purely word retrieval seeing or not seeing the item would > not make a difference. Have any of you seen an actor in a movie and > just can't recall the name of that actor? You see the actor, hear > that actor's voice, feel your friend's finger tapping your arm > saying " who is that actor again? " You both know you know his name > and yet you and your friend can't recall it. Now that's probably > not word retrieval either -probably that's memory -but clearly > visual cues don't always help there. Cues always help with motor > planning. > > To me it's another " obvious " answer -it's clearly a motor planning > problem. I could be wrong -but doubt it on this one. > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Thanks for your insight. My dd does have an unbelievable memory. I do not believe she is regressing but I just do not want another issue with her. She already has Epilepsy(on meds),Apraxia, and incoordination(ex. still can not pedal a trike) . All dx by her neuro. I don't mean to sound negative in any way. My dd is a beautiful intelligent little girl, that puts a smile on everyones face. I will fight for my child to stay mainstream we would not have it any other way. > > > > Be careful you don't fall into the trap of over diagnosis of your > > elementary school age or God forbid even younger preschool apraxic > child. > > How can anyone assume an apraxic child has word retrieval problems > > when it could instead be motor planning problems? As a parent I > > believe that we are the best at giving our children the benefit of > > the doubt because you just may be the only one in the whole wide > > world that does. And guess what -your belief and benefit of the > > doubt and advocacy may be the saving grace that keeps your child in > > the mainstream long enough for him or her to prove that he belongs > > there. Even long enough for him to rise above the norm. Just the > > other day I spoke to a parent in Florida who told me her preschool > > child was diagnosed with apraxia and CAPD (that stands for central > > auditory processing disorder) The child had never been to a > > neurologist or developmental pediatrician either. Even without > > apraxia CAPD is not a diagnosis that can be definitive in preschool > > years -but why set this poor kid up even before he's in > > kindergarten? See now while some of you wonder or even confirm that > > your child has " word retrieval problems " this mom was told it was > > CAPD. But all of these children are dealing with apraxia -a motor > > planning disorder that makes it difficult to do or say (depending > > upon what the apraxia affects) things on command. > > > > Back when Tanner was preschool age he was tested average to above > > average in abilities prior to starting kindergarten by the Summit > > Speech School where he was schooled in out of district preschool > > placement. He was tested the same by private exams from neuroMDs > > and SLPs. Yet the public school when they tested him (if they were > > the only ones that tested him for example) found that Tanner was had > > low average abilities at best and " wouldn't make it " in a mainstream > > kindergarten class. Needless to say, once again, I don't believe > > everything I hear and questioned at the IEP " We aren't talking about > > rocket science class here, we are talking about kindergarten. What > > exactly is it that you think Tanner is not capable of doing in a > > mainstream kindergarten class? Finger-painting?! " And as you'll > > find in the archives my husband and I advocated for Tanner to be in > > the mainstream where the rest is history. Tanner not only " made it " > > in the mainstream -but as his kindergarten teacher said " he's one of > > the top students in the class " > > > > My advice is only provide accurate information about your child that > > leans toward the positive. If you are wrong it's because you are > > wrong -and not that you as a parent helped create your child's > > negative reality by providing false information. And if anyone > > believes that their preschool child with apraxia has CAPD or word > > retrieval problems -don't believe me...get a second opinion from > > someone who has a clue. For the sake of your child. Know that what > > they are dealing with is not understood by most -so most will assume > > the worst. And you know what -apraxia is not much different then > > stuttering down the road. It is a speech impairment...but in most > > of our kids today -with a few other little issues like low tone or > > sensory issues. Not cognitive or social or receptive ones. But of > > course treat a kid like he is learning disabled and tell the school > > he is and you may help create that reality. Then again you can > > have a child with mental retardation and apraxia -but that's not as > > common. So if you are going to assume anything -assume your child > > is smart. Really really smart. He or she has to be because he or > > she has a motor planning disorder to overcome -as well as ignorance > > and prejudice. And right now the only one you will hear this from is > > me. But if you change your belief and believe in your child - > > perhaps you'll hear it from your child down the road. I know I did > > and do! > > Here's some of his story > > http://www.cherab.org/information/familiesrelate/letter.html > > > > And in addition to " really really smart " know that most with > apraxia have a " phenomenal memory " which is one sign of a gifted > student. Let us know if your child is apraxic and doesn't have that > unusually strong memory. Also let me know if you need examples. My > theory is that strong unusual memory is due to having to remember > things long enough to express them while others their age just spit > out whatever comes to mind....and there you were -thinking that kid > has " word retrieval issues " Who's right? Who do you hurt if you are > wrong? > > > > This topic has come up before but here's just one of the archives on > > it. Kim any updates on your message below? If not or even if - Dawn > > perhaps you can comment on Abby's update too since this was a topic > > you brought up back when. > > > > > > Re: Is word retrieval problems a form of regression? > > > > > > Hi Kim! > > > > Some professionals still must just hate to say " apraxia " (since it > > doesn't exist in children right?) and perhaps " word retrieval > > problem " is the new buzz or something. > > > > Seeing the actual item is a " visual cue " and cues whether they are > > visual ones such as that or bringing two items together to symbolize > > two syllables or two words, touch cues (such as what Prompt is) or > > auditory cues such as in clapping out the syllables/words are all > > strong therapy methods to help with " motor planning problems " . > > > > If it was purely word retrieval seeing or not seeing the item would > > not make a difference. Have any of you seen an actor in a movie and > > just can't recall the name of that actor? You see the actor, hear > > that actor's voice, feel your friend's finger tapping your arm > > saying " who is that actor again? " You both know you know his name > > and yet you and your friend can't recall it. Now that's probably > > not word retrieval either -probably that's memory -but clearly > > visual cues don't always help there. Cues always help with motor > > planning. > > > > To me it's another " obvious " answer -it's clearly a motor planning > > problem. I could be wrong -but doubt it on this one. > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I don't know if your son has symptoms of hypothyroidism or not. I would look at his growth patterns, constipation issues if any, lethargy, fatigue,etc (go to the thyroid.about.com webpage for a list of symptoms). You could check his basal body temp every morning for a week before he gets out of bed and see if it is low on average (google " Broda thyroid " for more information on body temp and thyroid). I've never seen word retrieval issues listed as a symptom of hypothyroidism, but I have also noticed that " tip of my tongue " , searching for words, feeling myself when my own thyroid hormone levels are off. Your son's test results don't point to a thyroid problem. His TSH is below 2, and his total T4 is right in the middle of the normal range. If you suspect thyroid problems, I would ask his doc to test his free T3 and free T4. Those are better indications of thyroid status than total T4. TSH is a screening test. Oddly enough I've seen my TSH and my son's TSH vary quite a bit on tests that were only a couple of months apart (done by the same lab - CPL), so I don't know if the testing is inaccurate or if it really can just vary significantly over a short time. The TSH comes from the pituitary gland, so it essentially tells you how much thyroid hormone the pituitary gland is urging the thyroid to produce. It isn't a substitute for knowing free T3 and free T4, the thyroid hormones, if your child has symptoms of hypothyroidism. It's important to check free T3, not just T4, since some people have trouble converting T4 into T3 (T3 is the active hormone). The about.com thyroid webpage is a great source of information. good luck > > > > This may not be helpful, but I thought I'd add my experience. My son > > (ASD dx, no apraxia dx) had significant word retrieval issues for a > > couple of years. Those problems went away once we started treating his > > borderline hypothyroidism. If you haven't checked, test your child's > > TSH, free T3 and free T4 (not T7, total T4, etc). If the TSH is over > > 2, I would take it to an expert who can help you figure out if your > > child would benefit from a low dose of natural thyroid (we use > > armour). The upper end of the normal range for TSH is currently 3, but > > some people need it to be 2 or less to feel good. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I don't know if your son has symptoms of hypothyroidism or not. I would look at his growth patterns, constipation issues if any, lethargy, fatigue,etc (go to the thyroid.about.com webpage for a list of symptoms). You could check his basal body temp every morning for a week before he gets out of bed and see if it is low on average (google " Broda thyroid " for more information on body temp and thyroid). I've never seen word retrieval issues listed as a symptom of hypothyroidism, but I have also noticed that " tip of my tongue " , searching for words, feeling myself when my own thyroid hormone levels are off. Your son's test results don't point to a thyroid problem. His TSH is below 2, and his total T4 is right in the middle of the normal range. If you suspect thyroid problems, I would ask his doc to test his free T3 and free T4. Those are better indications of thyroid status than total T4. TSH is a screening test. Oddly enough I've seen my TSH and my son's TSH vary quite a bit on tests that were only a couple of months apart (done by the same lab - CPL), so I don't know if the testing is inaccurate or if it really can just vary significantly over a short time. The TSH comes from the pituitary gland, so it essentially tells you how much thyroid hormone the pituitary gland is urging the thyroid to produce. It isn't a substitute for knowing free T3 and free T4, the thyroid hormones, if your child has symptoms of hypothyroidism. It's important to check free T3, not just T4, since some people have trouble converting T4 into T3 (T3 is the active hormone). The about.com thyroid webpage is a great source of information. good luck > > > > This may not be helpful, but I thought I'd add my experience. My son > > (ASD dx, no apraxia dx) had significant word retrieval issues for a > > couple of years. Those problems went away once we started treating his > > borderline hypothyroidism. If you haven't checked, test your child's > > TSH, free T3 and free T4 (not T7, total T4, etc). If the TSH is over > > 2, I would take it to an expert who can help you figure out if your > > child would benefit from a low dose of natural thyroid (we use > > armour). The upper end of the normal range for TSH is currently 3, but > > some people need it to be 2 or less to feel good. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 , obviously I'm not . But I wanted to reply my thought(s). Hopefully I'm accurate as to what was trying to convey. Simply put, why open up another can of worms for our kids by adding another dx to the mix. Our children have enough on their plates, and so do we. If you look at the typical developing child, I bet you will find " word retrival issues " at some point. However those parents do not run to the audiologist, or neuro-dev thinking there(might) be something wrong. I've asked myself why. It occured to me that we (probably as a group) have been so concerned about our children, so worried, that every little thing our kids do or dont do we are going to dissect. My now 5 1/2 yo Abby who is apraxic, had what originally thought to be " word retrieval " I brought that up here, probably about a year ago, (which by the way, is the same time that her language was on the verge of exploding) anyway, it was reminded to me then, that apraxia is motor planning disorder (duhhh to me)LOL. I still see her " groping " for a word now and then. Just the other day, Abby was trying to tell my husband and I a story about what she did in school. We watched her start and then stop several times, and open her mouth (grop). Then repeat. It took her several attempts. BUT she did it. And I know that was a pure apraxic moment for her. NOT word retrieval one. I once thought Abby might have CAPD-- because she confused a lot of her words- for example she signed (when she used to use her sign language) ball, but then pointed to a bowl- heard me say gas for the car, but signed the word grass. Siged Fireplace, but showed me the baby dolls pacifire. I did ask my SLP, and my audiologist about CAPD. I was told CAPD can be comorbid with any neurological disorders, such as ADD/ADHD, and including apraxia. HOWEVER, a child under 7 shoud not be tested, or " labeled " CAPD by anyone. First of all the testing is intense. Secondly, their auditory system has not reached full maturation. They would fail even IF they could endure the testing. However, parents and educators cAN help our children while their systems are maturing. But that is for another post. In the mean time, I think its best for our kids, and us too, to keep it simple, keep it all apraxia. Dawn in NJ > > > > Be careful you don't fall into the trap of over diagnosis of your > > elementary school age or God forbid even younger preschool apraxic child. > > How can anyone assume an apraxic child has word retrieval problems > > when it could instead be motor planning problems? As a parent I > > believe that we are the best at giving our children the benefit of > > the doubt because you just may be the only one in the whole wide > > world that does. And guess what -your belief and benefit of the > > doubt and advocacy may be the saving grace that keeps your child in > > the mainstream long enough for him or her to prove that he belongs > > there. Even long enough for him to rise above the norm. Just the > > other day I spoke to a parent in Florida who told me her preschool > > child was diagnosed with apraxia and CAPD (that stands for central > > auditory processing disorder) The child had never been to a > > neurologist or developmental pediatrician either. Even without > > apraxia CAPD is not a diagnosis that can be definitive in preschool > > years -but why set this poor kid up even before he's in > > kindergarten? See now while some of you wonder or even confirm that > > your child has " word retrieval problems " this mom was told it was > > CAPD. But all of these children are dealing with apraxia -a motor > > planning disorder that makes it difficult to do or say (depending > > upon what the apraxia affects) things on command. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I sometimes talk too much and don't keep it simple enough. Tina's message below is just one of many examples of what I was trying to say. ~~~~~~~~~~~~~~~start of recent archive: A small update thought I would share " ribbon1232000 " walkercolumbus@... Wed Nov 29, 2006 9:56 pm I was just catching up on the emails and thought I would share part of my son's story. My son was diagnosed with global apraxia. When he was little the school assumed he was slow and labeled him as MR which explained why he had difficulties so they said. It had nothing to do with the apraxia. Well I was told I was in denial and he wouldn't get very far my son's and our expectations were to high for him so they said. And of course the IQ testing was pretty low I refused to believe them. I knew in my heart that they were wrong. They wanted him to be in a special class I refused. I demanded mainstream placement in a regular class . I even purchased his computer programs and got a laptop plus the help of his slp who also was a reading specialist and his ot and a private tutor to help write an approperate iep. I truly believed in my son and knew with approperate accomodations and teaching he would succeed. The school didn't have much faith and thought I was wasting my money to the teachers and schools amazement he began to catch up and was soaring and reaching for the stars.I finally got that label removed. But it was a lot of hard work to catch up he was determined and won. Some even commented that they were glad I didn't give up and fought them all the way. And he taught them a very good lesson they won't soon forget. Well my son is now 15 and in grade 9 when I first met his teacher this Sept they had concerns like isn't this course going to be to hard for him. Do you want him to struggle ect .Well at the first mid term report the teachers were surprised he did very well. His first term report card was great to with a 75% overall average just 5% from the honor roll.I am a very proud mom. Just thought I would share sometimes the schools are so quick to label and place them in a nice neat box that can have a negative impact with out seeing the child and there true potentical. Stay positive and see what they can do not just what they can't. Sorry long and now I am rambling Tina C ~~~~~~~~~~~~~~~~~~~end of archive And if that didn't make it clear ....Give your child the benefit of the doubt even if you are the only one that does...and then if they fail at least you know you provided them the best chance to succeed. One day your child may thank you for always believing in them. I know Khalid, 's son who is now a successful college student after like Tina her parents had to fight to keep him in the mainstream because they too didn't believe he " belonged " there has thanked his parents. I don't care who diagnoses a preschool apraxic child with " word retrieval " or " severe receptive delays " or " CAPD " ...seek out of district second, third, opinions to prove it wrong....many times it is because most are clueless about what apraxia is...and that includes new to the diagnosis parents. Hope that I'm clear now. ) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Thanks Dawn!!! You know I believe in Abby too -can't wait to see you guys again for some more " ride therapy " at Disney. And to think it was less then 6 months ago we had the following conversation prior to meeting: " kiddietalk " kiddietalk@... Fri Jun 9, 2006 1:58 pm Re: Is word retrieval problems a form of regression? Hi again Dawn! Regression depends on a number of factors. The child's age, diagnosis, severity of that/those diagnosis, how long on the fish oils, how long off the fish oils... for just a few factors. I too once put Tanner's regression off the oils as devastating -you can read about that in The LCP Solution book or online here http://www.drstordy.com/stories.html (under apraxia) Zimet CCC SLP from this group who is now working for Georgia EI, was Tanner's EI therapist in NJ at the time and was the one that witnessed it first hand. But...Tanner's been on EFAs and in appropriate therapy for years (he's 9 now) His regression is still noticeable off the oils -but no longer is it devastating. Clearly he would no longer go back to being completely nonverbal like before. And...at some point I'm convinced that the regression won't be apparent to just about anyone at all. In fact there are members here now who have children that used to regress - but no longer do. Perhaps the EFAs got them to where they needed to be -and they are no longer needed for that aspect. But for my boys it's not an option. Speech and ADHD are not even close to the main reasons that most take EFAs. You see for us...heart disease runs heavy in both my side and Glenn's side of the family -both Glenn and I lost our Dad's when they were in their 50s which is sad. Our boys never got to meet their " Grandpa " on either side. And even more so for my boys because (wasn't going to say anything but) my just turned 46 year old athletic, strong and in great shape husband Glenn just had a sudden unexpected heart attack a few weeks ago. Thankfully he was on EFAs at the time (clinical research shows a 70% decrease in fatal heart attacks even in those who do have a heart attack while on EFAs) Also Glenn, is not only alive and well (thank God!) but as if that wasn't enough, the cardiologist actually said that my husband's heart is in very good shape outside of this one artery. We'll be going for a second opinion with Glenn and are probably switching his formula of EFAs to something called ultaEPA or something that Nordic Naturals tells me is a big one for heart health. I'm going to let the boys try that with their ProEFA too vs. the regular ProEPA. (starting tomorrow - let you guys know what I see if anything that's different) My boys know now more than ever before that no matter what... to be on and stay on EFAs the rest of their life -and both take fish oils on their own every day. (they both today at 9 and 11 know how to swallow capsules) For me for years and years I now I don't have to prove to anyone else that the fish oils make a difference in apraxia. ADHD, learning, memory etc. For at least a few years I don't try to cut back on EFAs to see if I can stop them either like I used to. For me it's obvious that they are healthy for us as humans -and not getting a supply of them, EFAs, daily to me would be just as silly as seeing how long my children can go without water without showing signs of dehydration. Yep -that's how much I'm into them. (and...not to mention that I believe that this group's kids have an edge on the typical children in the schools today because of the EFAs we are giving them for other reasons) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 To answer the question regarding whether anyone has a child with apraxia who presents with word retrieval issues, here's my post from October 7th 2005 (notice that's over a year ago!) " My son, now 4yrs, 5 months has a new SLP who says she believes that Nick has a " severe word retrieval problem " . She is talking about it like it is apart from the apraxia. I'm not clear if it is two different issues or another facet to the apraxia. Anyway, what ever the underlying cause, we still have this problem to address. Does anyone have any activities, strategies, war stories, experiences to share? I'm feeling as though someone has placed yet another horrible hurdle in front of my child and of course I'm researching to try to take some of the sting out of it. Hey, I can read-read-read or cry-cry-cry, right? On another note, Nick's at one Pro-EFA cap a day given every time I try to up him to more I get behavior that I'd rather not deal with. Suggestions on where to go from there would be appreciated, as he has stalled, and actually regressed a bit on sounds. He is speaking more though and I think that's why the sounds are slipping. That and the month + that he was without a therapist as we called the E.I. people every day and all the SLP's in the area trying to get him therapy. I'm trying hard not to feel kicked in the gut when I read of many of the children in this group with super memories. I'm hoping that even given those that there are some out there that have been there, done that with the retrieval problems or even someone going through it now that I can commiserate with. Thanks, McCann " I had only two responses to that post and those were from people who had children display what they or their SLP's considered to be word retrieval issues. One of those responses listed this helpful link: http://www.speech-language-therapy.com/wordretrieval.html and I quote from this article; " It is common for children with specific language impairments and developmental apraxia of speech to have word finding difficulties. " I might add that my Nick continues to have what appears to be severe " word finding difficulties " to this day. Have I or someone else been able to tell if it is motor planning or a true " retrieval " problem? No. Does it matter what's causing it or what we call it? Not in my mind. It matters that my son has a communication impairment that needs therapy, bottom line. I'm guess I am pleased to see this number of posts in response to this mom's post because a year ago there were only two responses to my plea; BUT I have to add I'm also concerned that some of these responses may have made a mom calling for help feel as though she was doing or saying something wrong. So I apologize for being long winded and I'll say what really matters: Take heart! No matter what they call any of it and no matter what happens, your child has you; a loving, caring mother to advocate for her and no matter what her struggles, please keep this as a mantra: she will be wonderfully okay, she WILL be wonderfully okay! All the best, McCann > > My dd has severe Apraxia of speech. Our private speech therapist has > mentioned that she noticed a bit of word retrieval issues with her. > She is 4yrs old and finally making some progress with her speech. > > Does anyone elses child with Apraxia have word retieval issues? or is > a seperate issue? > > Please help! Just when I think she is getting ahead, I feel like we > are being sent backwards. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 , obviously I'm not . But I wanted to reply my thought(s). Hopefully I'm accurate as to what was trying to convey. Simply put, why open up another can of worms for our kids by adding another dx to the mix. Our children have enough on their plates, and so do we. If you look at the typical developing child, I bet you will find " word retrival issues " at some point. However those parents do not run to the audiologist, or neuro-dev thinking there(might) be something wrong. I've asked myself why. It occured to me that we (probably as a group) have been so concerned about our children, so worried, that every little thing our kids do or dont do we are going to dissect. My now 5 1/2 yo Abby who is apraxic, had what originally thought to be " word retrieval " I brought that up here, probably about a year ago, (which by the way, is the same time that her language was on the verge of exploding) anyway, it was reminded to me then, that apraxia is motor planning disorder (duhhh to me)LOL. I still see her " groping " for a word now and then. Just the other day, Abby was trying to tell my husband and I a story about what she did in school. We watched her start and then stop several times, and open her mouth (grop). Then repeat. It took her several attempts. BUT she did it. And I know that was a pure apraxic moment for her. NOT word retrieval one. I once thought Abby might have CAPD-- because she confused a lot of her words- for example she signed (when she used to use her sign language) ball, but then pointed to a bowl- heard me say gas for the car, but signed the word grass. Siged Fireplace, but showed me the baby dolls pacifire. I did ask my SLP, and my audiologist about CAPD. I was told CAPD can be comorbid with any neurological disorders, such as ADD/ADHD, and including apraxia. HOWEVER, a child under 7 shoud not be tested, or " labeled " CAPD by anyone. First of all the testing is intense. Secondly, their auditory system has not reached full maturation. They would fail even IF they could endure the testing. However, parents and educators cAN help our children while their systems are maturing. But that is for another post. In the mean time, I think its best for our kids, and us too, to keep it simple, keep it all apraxia. Dawn in NJ > > > > Be careful you don't fall into the trap of over diagnosis of your > > elementary school age or God forbid even younger preschool apraxic child. > > How can anyone assume an apraxic child has word retrieval problems > > when it could instead be motor planning problems? As a parent I > > believe that we are the best at giving our children the benefit of > > the doubt because you just may be the only one in the whole wide > > world that does. And guess what -your belief and benefit of the > > doubt and advocacy may be the saving grace that keeps your child in > > the mainstream long enough for him or her to prove that he belongs > > there. Even long enough for him to rise above the norm. Just the > > other day I spoke to a parent in Florida who told me her preschool > > child was diagnosed with apraxia and CAPD (that stands for central > > auditory processing disorder) The child had never been to a > > neurologist or developmental pediatrician either. Even without > > apraxia CAPD is not a diagnosis that can be definitive in preschool > > years -but why set this poor kid up even before he's in > > kindergarten? See now while some of you wonder or even confirm that > > your child has " word retrieval problems " this mom was told it was > > CAPD. But all of these children are dealing with apraxia -a motor > > planning disorder that makes it difficult to do or say (depending > > upon what the apraxia affects) things on command. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 I sometimes talk too much and don't keep it simple enough. Tina's message below is just one of many examples of what I was trying to say. ~~~~~~~~~~~~~~~start of recent archive: A small update thought I would share " ribbon1232000 " walkercolumbus@... Wed Nov 29, 2006 9:56 pm I was just catching up on the emails and thought I would share part of my son's story. My son was diagnosed with global apraxia. When he was little the school assumed he was slow and labeled him as MR which explained why he had difficulties so they said. It had nothing to do with the apraxia. Well I was told I was in denial and he wouldn't get very far my son's and our expectations were to high for him so they said. And of course the IQ testing was pretty low I refused to believe them. I knew in my heart that they were wrong. They wanted him to be in a special class I refused. I demanded mainstream placement in a regular class . I even purchased his computer programs and got a laptop plus the help of his slp who also was a reading specialist and his ot and a private tutor to help write an approperate iep. I truly believed in my son and knew with approperate accomodations and teaching he would succeed. The school didn't have much faith and thought I was wasting my money to the teachers and schools amazement he began to catch up and was soaring and reaching for the stars.I finally got that label removed. But it was a lot of hard work to catch up he was determined and won. Some even commented that they were glad I didn't give up and fought them all the way. And he taught them a very good lesson they won't soon forget. Well my son is now 15 and in grade 9 when I first met his teacher this Sept they had concerns like isn't this course going to be to hard for him. Do you want him to struggle ect .Well at the first mid term report the teachers were surprised he did very well. His first term report card was great to with a 75% overall average just 5% from the honor roll.I am a very proud mom. Just thought I would share sometimes the schools are so quick to label and place them in a nice neat box that can have a negative impact with out seeing the child and there true potentical. Stay positive and see what they can do not just what they can't. Sorry long and now I am rambling Tina C ~~~~~~~~~~~~~~~~~~~end of archive And if that didn't make it clear ....Give your child the benefit of the doubt even if you are the only one that does...and then if they fail at least you know you provided them the best chance to succeed. One day your child may thank you for always believing in them. I know Khalid, 's son who is now a successful college student after like Tina her parents had to fight to keep him in the mainstream because they too didn't believe he " belonged " there has thanked his parents. I don't care who diagnoses a preschool apraxic child with " word retrieval " or " severe receptive delays " or " CAPD " ...seek out of district second, third, opinions to prove it wrong....many times it is because most are clueless about what apraxia is...and that includes new to the diagnosis parents. Hope that I'm clear now. ) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 Thanks Dawn!!! You know I believe in Abby too -can't wait to see you guys again for some more " ride therapy " at Disney. And to think it was less then 6 months ago we had the following conversation prior to meeting: " kiddietalk " kiddietalk@... Fri Jun 9, 2006 1:58 pm Re: Is word retrieval problems a form of regression? Hi again Dawn! Regression depends on a number of factors. The child's age, diagnosis, severity of that/those diagnosis, how long on the fish oils, how long off the fish oils... for just a few factors. I too once put Tanner's regression off the oils as devastating -you can read about that in The LCP Solution book or online here http://www.drstordy.com/stories.html (under apraxia) Zimet CCC SLP from this group who is now working for Georgia EI, was Tanner's EI therapist in NJ at the time and was the one that witnessed it first hand. But...Tanner's been on EFAs and in appropriate therapy for years (he's 9 now) His regression is still noticeable off the oils -but no longer is it devastating. Clearly he would no longer go back to being completely nonverbal like before. And...at some point I'm convinced that the regression won't be apparent to just about anyone at all. In fact there are members here now who have children that used to regress - but no longer do. Perhaps the EFAs got them to where they needed to be -and they are no longer needed for that aspect. But for my boys it's not an option. Speech and ADHD are not even close to the main reasons that most take EFAs. You see for us...heart disease runs heavy in both my side and Glenn's side of the family -both Glenn and I lost our Dad's when they were in their 50s which is sad. Our boys never got to meet their " Grandpa " on either side. And even more so for my boys because (wasn't going to say anything but) my just turned 46 year old athletic, strong and in great shape husband Glenn just had a sudden unexpected heart attack a few weeks ago. Thankfully he was on EFAs at the time (clinical research shows a 70% decrease in fatal heart attacks even in those who do have a heart attack while on EFAs) Also Glenn, is not only alive and well (thank God!) but as if that wasn't enough, the cardiologist actually said that my husband's heart is in very good shape outside of this one artery. We'll be going for a second opinion with Glenn and are probably switching his formula of EFAs to something called ultaEPA or something that Nordic Naturals tells me is a big one for heart health. I'm going to let the boys try that with their ProEFA too vs. the regular ProEPA. (starting tomorrow - let you guys know what I see if anything that's different) My boys know now more than ever before that no matter what... to be on and stay on EFAs the rest of their life -and both take fish oils on their own every day. (they both today at 9 and 11 know how to swallow capsules) For me for years and years I now I don't have to prove to anyone else that the fish oils make a difference in apraxia. ADHD, learning, memory etc. For at least a few years I don't try to cut back on EFAs to see if I can stop them either like I used to. For me it's obvious that they are healthy for us as humans -and not getting a supply of them, EFAs, daily to me would be just as silly as seeing how long my children can go without water without showing signs of dehydration. Yep -that's how much I'm into them. (and...not to mention that I believe that this group's kids have an edge on the typical children in the schools today because of the EFAs we are giving them for other reasons) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 To answer the question regarding whether anyone has a child with apraxia who presents with word retrieval issues, here's my post from October 7th 2005 (notice that's over a year ago!) " My son, now 4yrs, 5 months has a new SLP who says she believes that Nick has a " severe word retrieval problem " . She is talking about it like it is apart from the apraxia. I'm not clear if it is two different issues or another facet to the apraxia. Anyway, what ever the underlying cause, we still have this problem to address. Does anyone have any activities, strategies, war stories, experiences to share? I'm feeling as though someone has placed yet another horrible hurdle in front of my child and of course I'm researching to try to take some of the sting out of it. Hey, I can read-read-read or cry-cry-cry, right? On another note, Nick's at one Pro-EFA cap a day given every time I try to up him to more I get behavior that I'd rather not deal with. Suggestions on where to go from there would be appreciated, as he has stalled, and actually regressed a bit on sounds. He is speaking more though and I think that's why the sounds are slipping. That and the month + that he was without a therapist as we called the E.I. people every day and all the SLP's in the area trying to get him therapy. I'm trying hard not to feel kicked in the gut when I read of many of the children in this group with super memories. I'm hoping that even given those that there are some out there that have been there, done that with the retrieval problems or even someone going through it now that I can commiserate with. Thanks, McCann " I had only two responses to that post and those were from people who had children display what they or their SLP's considered to be word retrieval issues. One of those responses listed this helpful link: http://www.speech-language-therapy.com/wordretrieval.html and I quote from this article; " It is common for children with specific language impairments and developmental apraxia of speech to have word finding difficulties. " I might add that my Nick continues to have what appears to be severe " word finding difficulties " to this day. Have I or someone else been able to tell if it is motor planning or a true " retrieval " problem? No. Does it matter what's causing it or what we call it? Not in my mind. It matters that my son has a communication impairment that needs therapy, bottom line. I'm guess I am pleased to see this number of posts in response to this mom's post because a year ago there were only two responses to my plea; BUT I have to add I'm also concerned that some of these responses may have made a mom calling for help feel as though she was doing or saying something wrong. So I apologize for being long winded and I'll say what really matters: Take heart! No matter what they call any of it and no matter what happens, your child has you; a loving, caring mother to advocate for her and no matter what her struggles, please keep this as a mantra: she will be wonderfully okay, she WILL be wonderfully okay! All the best, McCann > > My dd has severe Apraxia of speech. Our private speech therapist has > mentioned that she noticed a bit of word retrieval issues with her. > She is 4yrs old and finally making some progress with her speech. > > Does anyone elses child with Apraxia have word retieval issues? or is > a seperate issue? > > Please help! Just when I think she is getting ahead, I feel like we > are being sent backwards. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 , motor planning is not limited to what the brain is planning to carry out.. but the transmission from the brain to the mouth. Or brain to limb (Limb apraxia) Or brain to eye (Ocular apraxia) etc... Have you ever seen your child open his/her mouth to say something, but nothing comes out. It's actually a horrible sight to see. Abby has done this many many times. Her brain knows exactly what she wants to say. The problem is her mouth doesnt know how to get it out. Cannot (motor) plan and execute it. Somewhere between the brain and the mouth, something gets lost in transmission. Im not an expert on word retrieval. I didn't spend endless nights up on the pc reading about it, lol. But I think thats just a mater of the child knowing the word, knowing how to say it, knowing the motor planning of the tongue, lips, etc for the word. But for some reason cannot remember the word at that very moment. My older son (ADHD and CAPD) does exhibit this at times. However so does my " typical " daughter. Dawn in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 Thank You .... Thank you for listening to me. Marisa > > > > My dd has severe Apraxia of speech. Our private speech therapist > has > > mentioned that she noticed a bit of word retrieval issues with her. > > She is 4yrs old and finally making some progress with her speech. > > > > Does anyone elses child with Apraxia have word retieval issues? or > is > > a seperate issue? > > > > Please help! Just when I think she is getting ahead, I feel like we > > are being sent backwards. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 , motor planning is not limited to what the brain is planning to carry out.. but the transmission from the brain to the mouth. Or brain to limb (Limb apraxia) Or brain to eye (Ocular apraxia) etc... Have you ever seen your child open his/her mouth to say something, but nothing comes out. It's actually a horrible sight to see. Abby has done this many many times. Her brain knows exactly what she wants to say. The problem is her mouth doesnt know how to get it out. Cannot (motor) plan and execute it. Somewhere between the brain and the mouth, something gets lost in transmission. Im not an expert on word retrieval. I didn't spend endless nights up on the pc reading about it, lol. But I think thats just a mater of the child knowing the word, knowing how to say it, knowing the motor planning of the tongue, lips, etc for the word. But for some reason cannot remember the word at that very moment. My older son (ADHD and CAPD) does exhibit this at times. However so does my " typical " daughter. Dawn in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 Thank You .... Thank you for listening to me. Marisa > > > > My dd has severe Apraxia of speech. Our private speech therapist > has > > mentioned that she noticed a bit of word retrieval issues with her. > > She is 4yrs old and finally making some progress with her speech. > > > > Does anyone elses child with Apraxia have word retieval issues? or > is > > a seperate issue? > > > > Please help! Just when I think she is getting ahead, I feel like we > > are being sent backwards. > > > Quote Link to comment Share on other sites More sharing options...
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