Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 Hello. Andy our son has hearing aids. After waiting for them for two yrs. He is DD, but does not have the cauliflower ear. He has the behide the ear type. " blue " Andy is 10 yrs old. When he frist got his Hearing Aids, he could not belive all he was missing. I wish you luck in getting hearing aids that fit and work right. Craig Rhoden kwolters@... wrote: > I'm not sure whether I've posted this question, but now I need the > info! I > have experienced some hearing loss over the years and went to have my > hearing > checked. Low and behold there was enough loss to warrant looking into > > hearing aid. Because of the size of my ear canal, the recommendation > was for > a digital aid as they can be made smaller. Well....the aids came back > and > the left one wouldn't even go in, and the right one was a tight fit > and kind > of stuck out. However it was in enough for it to work and for me to > realize > everything that I've been missing hearing!! Because I'm Diastrophic > and have > the traditional " cauliflower ear " , there's isn't any flexibility of > the ear. > I don't think a behind the ear one would work because I don't have the > > ability to put anything back there. I'm looking for experiences from > others, > especially DD's on this subject. > > Kate from Michigan > ----------------------------------------------------------------------- > > [Click here for 1 month of FREE* MSN Internet Access!] > ----------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 Hello all, I think the hearing aid problem goes way beyond LP's. My grandma's hearing is not the best because of her age. The t.v. volume goes up and up and then when she can't hear me she accuses me of speaking too fast or not clearly when it's the same way I've spoken my whole life. It is nothing bad, she can hear, but those little things like blasting the tv are kind of annoying. She keeps telling me hearing aids are too expensive, she has no insurance, so she is not getting any. They are not poor by any means but that would be a big chunk for them as well. I think it is absolutely rediculous that value is not put on hearing like it is seeing. - __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 This sounds really great to me too. It always amazes me when they tell me they are not covered because they are not a medical necessity. I can't live without my aids and you definitely know that whoever it is that made that stupid decision does not have or know anybody with a hearing loss!!! Danette Baker Spokane Washington Who is already wishing it were spring LOL!!! -- Re: Hearing Aids I think this would be a great idea. There are plenty of grants and funding resources for children who need hearing aids, but very limited for adults. If there was a way we could push to have the Legislation to approve the bill to make health insurance cover hearing aids, many individuals would be able to continue to be productive and tax paying citizens in society! Without hearing aids, I will not be able to work and then go back onto Social Security and Medicaid. I'm too indpendent for that and I'm not physically ready to be unemployed! I know that individuals with SEDc are prone to have hearing loss and have cleft palate, etc. I'm not sure about other types of dwarfism have this type of a medical issue. a > > I would like to start up a database for individuals who are having > issues with hearing aids. This is where ANSI can help our > organization. Maybe VanEtten can share more light on the > subject. > > I believe we need to have numbers, showing ANSI this is the critical > need and maybe we can start moving forward with legislation for > insurance companies to cover hearing aids. We have a voice and we > need to raise it, loud and clear. Just think of all the baby boomers > out there who are also struggling with this issue. > > I've had hearing aids since 1992 and it's been a real struggle for > me. My HMO insurance paid for the first set, with a lot of medical > necessity issues. Cigna HC pitched in $1,100 on my next pair. Since > then, no other insurance will touch the claim. I would hate to go on > disability because I can not afford $6,000 digital hearing aids to do > my job. I too, have been involved with Voc. Rehab and make too much > money for them to help me, but don't make enough to make payments on > anything. > > Let's keep this conversation going, privately. Would anyone like to > start a Hearing Loss group of LP's? I'm sure there are other > groups for hearing loss that we can join and together we can network > and learn... > > Keep in touch and Happy Christmas to everyone!!! > > Cricket Lynch > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 I was waiting to see if anyone would bring this up, but no one has so I thought I would throw this in as well. I know the local Lion's club's will help with glasses, and some lodges will help with the hearing aids, too. I would ask the local organizations for their help~ if they can't help you, I am sure they can help lead you in the right direction. Patty Re: Hearing Aids I definitely cannot make any promises, however I was able to help a hearing impaired lady with the same kinds of financial glitches most of us endure, to get digital hearing aids by working with the hearing aid companies themselves---I literally went to the top. At present, I am trying to now assist a member of my Pain Group in the same way, hopefully. We will see. About how many LP's with hearing needs are facing the same problems? There may be more available directly from the hearing aid companies if one knows who to contact. I will certainly try my hardest. Since I was able to help one person this way, I will certainly be doing all I can to TRY to help each of you too, Cricket, a, if I can. In addition to hearing aids being covered by Medicare and/or other means, there needs to be dental coverage. I am in desperate need of dental care, and cannot get it anywhere. I even appealed to the Dean Of The Dental College at the university where I live! It's sad, but all too often those who need help the most, and deserve it, are the very ones who fall through all the cracks and red tape. Yet if I can help anyone else with their needs, then that is something perhaps. Adelaide Quote Link to comment Share on other sites More sharing options...
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