Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Congrats . is my oldest also. I have had 1 very healthy child who is now 4 and am now pregnant again! I know it is scary and worrysome but try not to worry and relax!! It is so great to see with his brother. He has advanced so much since having . Congrats Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi , A Big Congratualtions! Thanks for suggesting this group to me. I am new at this so I hope I am responding correctly. My daughter Trinity has been on the diet since Sep. 13, 2004 and her seizures are much much less and she is so alert. Hannah and Trinity have a lot in common. Trinity has cvi and we go to the geneticist on ///9 for our consultation/biopsy results. Sheryl, mother of Trinity > Lovely to read this , so pleased for you that are seeing such improvements in Hannah, and congrats on your pregnancy > > > > ----- Original Message ----- > From: Shapiro > > YES! We have ketones and about an 80% decrease in seizure activity! What a different baby she is. I feel like our prayers are slowly being answered. Hannah is still behind, she holds her head a little but that is it. She was recently dx with cortical visual impairment and we are still awaiting answers to her underlying mitochondrial and metabolic issues. Perhaps we will have answers soon....we just found out we are pregnant again. Hannah was our first and we always wanted a large family. The reality is a little scary though. Pray and keep your fingers crossed! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi , A Big Congratualtions! Thanks for suggesting this group to me. I am new at this so I hope I am responding correctly. My daughter Trinity has been on the diet since Sep. 13, 2004 and her seizures are much much less and she is so alert. Hannah and Trinity have a lot in common. Trinity has cvi and we go to the geneticist on ///9 for our consultation/biopsy results. Sheryl, mother of Trinity > Lovely to read this , so pleased for you that are seeing such improvements in Hannah, and congrats on your pregnancy > > > > ----- Original Message ----- > From: Shapiro > > YES! We have ketones and about an 80% decrease in seizure activity! What a different baby she is. I feel like our prayers are slowly being answered. Hannah is still behind, she holds her head a little but that is it. She was recently dx with cortical visual impairment and we are still awaiting answers to her underlying mitochondrial and metabolic issues. Perhaps we will have answers soon....we just found out we are pregnant again. Hannah was our first and we always wanted a large family. The reality is a little scary though. Pray and keep your fingers crossed! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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