Re: , how is Langan doing?/Gretchen

[Guest guest]

U r very lucky. i hope if any of us finds ourselves in a situation like that,

we come out just as lucky. My prayers are with u and your child

(briana 7, LGS)

[Guest guest]

Gretchen,

Thank you so much for your kind words. You actually brought tears to

my eyes. = )

This all happened on Tuesday night of last week, although it feels

both like it was yesterday and like it was years ago. The docs think

it was fever induced, although we don't know what bug she had, and

possibly so hard to stop b/c of the lack of meds in her system. Sooo

we've upped the trileptal a little and keep a thermometer and motrin

around at all times now. And we try to get over the shock of it all

while all the while being so very thankful that everything turned out

the way it did.

Thanks again for being such a wonderful friend and support. Langan

is a very lucky girl, indeed, to have so many friends around the

world!

> > >

> > > Hi , I've been thinking of you guys. How is Langan

doing?

> > Lot

> > > more of walking I hope and NO seizures.

> > >

> > > Kristan is doing ok, the wean is going well, we are to start

> 2.5:1

> > > ratio today, but her dietitian hasn't gotten me the new recipes

> > yet,

> > > I hate it when she makes me wait! Still having seizures,

> everyday

> > is

> > > different, 5, 10, 15 or 20 a day. She is keeping up with her

> > > vocalizing, which we are so happy with and I have noticed her

> > trying

> > > to take a bit of weight on one leg, it's hardly noticeable, but

> I

> > can

> > > tell as I work with her on this and am hoping she will start to

> > take

> > > more weight soon on both legs, right now her legs just buckle

> when

> > > you try to stand her without the leg splints.

> > >

> > > Hope all is well. Take care.

> > >

> > > Satnam, mom to Kristan, 22 months

> > > Keto kid since August 2003 and currently weaning from the diet