Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi : ) Just wanted to drop a quick line to introduce myself. My 7 month old was diagnosed with CF in early November. She's our first child and will probably be our only. After six weeks in the hospital..she had pseudomonas and another bacteria..she finally came back home right before Christmas. Growth wise she's doing great..18 lbs 12 oz...a lil butterball. My husband and I are still kind of figuring out everything, but the knowledge is slowly accumulating..we're lucky enough to live near Children's Hosp of Cincy, so she's getting excellent care. I worked prior to having Piper, but am now staying at home and absolutely loving it..ironically enough I was laid off the week before I had her...makes you wonder. At any rate, feel like I'm rambling on, so will stop for now. I look forward to getting to know you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Welcome . You've come to the right place. There are so many different experiences on this list. Questions asked and questions answered. Maybe ever more than once. I have a 5 year old boy, with CF, and a 7 year old daughter,Alyssa with out CF. from Pennsylvania Spring was here and now Winters coming back YUCK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi , Welcome to the list. Wow...that is great that Piper is ( as you put it.... a " butterball " ). That way you have one less thing to worry about. Our son Elliot, first and maybe last, has cf and he is 11mths old. Once again welcome, Mom to Elliot 11mths wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 A very BIG welcome to you and your dear family .your wee one sounds precious. I know you & hubby could just eat her up :) I am that way with them too. I had 5 children . And they gave me 10 grandchildren. All truly a joy. Our ERIN has CF She is very , very well. She is an athlete and an honor SENIOR student. She is getting all her " stuff " ready to pack to go off to college in August too. She hasn't been hospitalized yet ,nor been on any IV's so far. We will keep our thoughts clearly aimed so hopefully she will remain this way. She does do the pulmozyme and the vest treatment . (while doing her homework-computer " stuff " or watching TV. Also does take enzymes with meals ,that's it .Your wee one will do well also. YOUR so right Your clinic is super!! Keep us posted with all your family doings .Ask any questions you'd like .There are so many here that are great folks & they WANT to help as well. Have a super weekend LOVE & HUGS, grandmomBEV Just a quick intro.. Hi : ) Just wanted to drop a quick line to introduce myself. My 7 month old was diagnosed with CF in early November. She's our first child and will probably be our only. After six weeks in the hospital..she had pseudomonas and another bacteria..she finally came back home right before Christmas. Growth wise she's doing great..18 lbs 12 oz...a lil butterball. My husband and I are still kind of figuring out everything, but the knowledge is slowly accumulating..we're lucky enough to live near Children's Hosp of Cincy, so she's getting excellent care. I worked prior to having Piper, but am now staying at home and absolutely loving it..ironically enough I was laid off the week before I had her...makes you wonder. At any rate, feel like I'm rambling on, so will stop for now. I look forward to getting to know you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi -- my baby should be 7.5 months old (but he's actually 10). He was premature due to a meconium ileus blockage that identified the CF. He struggles with weight gain. We will have another child but will do IVF to rule out CF. We also live near the Children's Hospital in San Diego and I also am now a stay at home mom and loving every minute. Welcome! Out of curiosity, what are you feeding your little butterball? We are on breastmilk with pregestimil added (along with rice and oil to the bottles). -- > Hi : ) > > Just wanted to drop a quick line to introduce myself. My 7 month old was > diagnosed with CF in early November. She's our first child and will probably > be our only. After six weeks in the hospital..she had pseudomonas and another > bacteria..she finally came back home right before Christmas. Growth wise > she's doing great..18 lbs 12 oz...a lil butterball. My husband and I are > still kind of figuring out everything, but the knowledge is slowly > accumulating..we're lucky enough to live near Children's Hosp of Cincy, so > she's getting excellent care. I worked prior to having Piper, but am now > staying at home and absolutely loving it..ironically enough I was laid off > the week before I had her...makes you wonder. At any rate, feel like I'm > rambling on, so will stop for now. I look forward to getting to know you all. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Welcome to the list . You'll find so much supprt and info here! 18 lbs is amazing.....congrats. My 27 mos old hasn't cleared 20 lbs yet but we're working on it! Jane mom of (11), Tony (9), (7), Meredith (5), Eleanora (2) rad/ftt/cf? and Lydia (3 mos). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 On 2/1/02 8:27:44 AM, PipersMommy0612@... stated: ##Hi: ) ## ##Just wanted to drop a quick line to introduce myself. My 7 month old was ##diagnosed with CF in early November. She's our first child and will probably ##be our only. After six weeks in the hospital..she had pseudomonas and another ##bacteria..she finally came back home right before Christmas. Growth wise ##she's doing great..18 lbs 12 oz...a lil butterball. My husband and I are ##still kind of figuring out everything, but the knowledge is slowly ##accumulating..we're lucky enough to live near Children's Hosp of Cincy, so ##she's getting excellent care. I worked prior to having Piper, but am now ##staying at home and absolutely loving it..ironically enough I was laid off ##the week before I had her...makes you wonder. At any rate, feel like I'm ##rambling on, so will stop for now. I look forward to getting to know you all. ## ## ## Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2002 Report Share Posted February 3, 2002 Welcome you will like this list there are a lot of wonderful people on here that are always eager to help. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2002 Report Share Posted February 3, 2002 Welcome, . I am also pretty new to the list. Our daughter, Emma is almost 4 months and was diagnosed with CF at 2 months old. It is a difficult time but sure to become easier in the months and years ahead. Emma is a little slow in the weight gain department but her doctor at Children's Hosp of Philadelphia is not too concerned. Best of luck to you and your little girl. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2002 Report Share Posted February 4, 2002 Hi Well, Piper certainly sounds like she's starting out to keep you on your toes!! Looking forward to hearing more from you soon. Mum to Cate 9yrs wocf and Sian 5yrs wcf Canberra Australia Quote Link to comment Share on other sites More sharing options...
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