Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Hi Friends, I have a ton of back post to catch up on, but that will have to wait. I am not doing so well these days. I am in the worse pain that I can remember. Please, take this from someone who knows first hand...never, never let yourself run out of pain meds! My doctor who writes my scripts has been out of the country for about a month, when it was time for MY refills, her office couldn't do it. Lily told me to try whoever is coving for her, but I didn't listen. Now I'm so sick, and in such pain! OMG! The pain is the worse! I don't even know if I had any withdraws, except for this pain! Lily called me yesterday, being the kind friend she is, and told me I needed to go to the ER. I hooked up the girls with friends, and called my ex- husband to take me. Got there at 8:15pm.....got home at 2:15am!!! Friends....never run out of pain meds!!! The doctor didn't come in my room until 11:30pm. At least I had my port! Started IV fluids, gave me a shot of morphine then phenergan....I almost threw up all over the nurse when the morphine hit! She said, oh..maybe I should have given the phenergan first. That didn't even touch my pain! The nurse said the doc said she could give me more morphine, but she didn't want to give it without phenergan..so the doc said it was ok. That barely touched this pain. Like I told this ER doc....very few times in the long 9 years I've been fighting with this illness has it ever brought me to crying....and boy was I crying last night...never run out of pain meds!!!!!! Please listen to me friends....never ever run out of pain meds. To end the ER story, they ended up giving me yet another shot of morphine before they sent me home. Now here is the part I don't understand....and it will be greatly appreciated if anyone can answer me on this.......my local GI & Dr. Lehman are in agreements that my pancreas is a " burn-out " ....but my amylase was elevated some last night. I ask to see the ER doc again, and I ask her......now isn't there any cause for concern that the experts say my pancreas is a burnout, and I'm in so much pain that I'm crying and my amylase is elevated? Isn't that something to be concerned about? Her answer... " I don't know. " And it was an honest enough answer, I left it at that..... She did give me a script for tylox, of all my long 9 yrs. with this illness, I don't think I've ever had that. Only 10 pills, but thats ok, do you know why friends? Because now I have something for pain~never, never, never, never run out of pain meds. When I started taking pain meds as a.....what do you call it? To keep the pain level down? I never believed it was actually working like that. Friends~it really is! I know, and its been the worse weekend of my entire illness....for a long time anyways! Good Luck out there~and remember these 6 lil' words.....Never Run Out Of Pain Meds!!! Now I'm off to bed. The girls are with there no-good father (wait! that wasn't a very fair shot at him...gotta get them when I can!) for the afternoon, so I'm off to sleep the rest of this morphine off....thank you all for listening. Lots of Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 , I'm so sorry you have been in so much pain. Man it just sounds terrible what you went though. It really seems as if you should have been admitted, especially with so much pain and elevated levels. I hope you start to feel better. Please take care of yourself. Angel > Hi Friends, > I have a ton of back post to catch up on, but that will have to wait. > I am not doing so well these days. I am in the worse pain that I can > remember. Please, take this from someone who knows first > hand...never, never let yourself run out of pain meds! My doctor who > writes my scripts has been out of the country for about a month, when > it was time for MY refills, her office couldn't do it. Lily told me > to try whoever is coving for her, but I didn't listen. Now I'm so > sick, and in such pain! OMG! The pain is the worse! I don't even > know if I had any withdraws, except for this pain! Lily called me > yesterday, being the kind friend she is, and told me I needed to go > to the ER. I hooked up the girls with friends, and called my ex- > husband to take me. Got there at 8:15pm.....got home at 2:15am!!! > Friends....never run out of pain meds!!! The doctor didn't come in > my room until 11:30pm. At least I had my port! Started IV fluids, > gave me a shot of morphine then phenergan....I almost threw up all > over the nurse when the morphine hit! She said, oh..maybe I should > have given the phenergan first. That didn't even touch my pain! The > nurse said the doc said she could give me more morphine, but she > didn't want to give it without phenergan..so the doc said it was ok. > That barely touched this pain. Like I told this ER doc....very few > times in the long 9 years I've been fighting with this illness has it > ever brought me to crying....and boy was I crying last night...never > run out of pain meds!!!!!! Please listen to me friends....never ever > run out of pain meds. To end the ER story, they ended up giving me > yet another shot of morphine before they sent me home. Now here is > the part I don't understand....and it will be greatly appreciated if > anyone can answer me on this.......my local GI & Dr. Lehman are in > agreements that my pancreas is a " burn-out " ....but my amylase was > elevated some last night. I ask to see the ER doc again, and I ask > her......now isn't there any cause for concern that the experts say > my pancreas is a burnout, and I'm in so much pain that I'm crying and > my amylase is elevated? Isn't that something to be concerned about? > Her answer... " I don't know. " And it was an honest enough answer, I > left it at that..... > She did give me a script for tylox, of all my long 9 yrs. with this > illness, I don't think I've ever had that. Only 10 pills, but thats > ok, do you know why friends? Because now I have something for > pain~never, never, never, never run out of pain meds. When I started > taking pain meds as a.....what do you call it? To keep the pain > level down? I never believed it was actually working like that. > Friends~it really is! I know, and its been the worse weekend of my > entire illness....for a long time anyways! Good Luck out there~and > remember these 6 lil' words.....Never Run Out Of Pain Meds!!! Now > I'm off to bed. The girls are with there no-good father (wait! that > wasn't a very fair shot at him...gotta get them when I can!) for the > afternoon, so I'm off to sleep the rest of this morphine off....thank > you all for listening. > > Lots of Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Dear , I just read this post about your ER visit..It hit home because I am in BURN OUT and was told by the pancraetic specialist at UCSF that my amlase and espec my lipase were shooting up and down...The Doctor couldn't believe the results and askes the lab to re run it 3 diff times!! They would be in the 2 thous range then drop to Normal within 4-6 hrs..He said he has never seen anything like it...Says that it happen once you have reached the degree of burn out that causes a change in you pancreas's biochemical profile..I have been told the same by my GI and PCP. Thats frustrating to me because im at hosp in agonizing pain and the average ER doc looks for elevated amylase/lipase in their diagnosis and treatment and when its not elevated or goes up and down-they don't know that Burn out causes these changes in relation to the secrection of Amy/Lip...Anyway...Just thought I would share that w/you-hope its of interest..Tske care linda Im praying for your whole family and you!!!! ERICKA liamhoha20 liamhoha20@...> wrote: Hi Friends, I have a ton of back post to catch up on, but that will have to wait. I am not doing so well these days. I am in the worse pain that I can remember. Please, take this from someone who knows first hand...never, never let yourself run out of pain meds! My doctor who writes my scripts has been out of the country for about a month, when it was time for MY refills, her office couldn't do it. Lily told me to try whoever is coving for her, but I didn't listen. Now I'm so sick, and in such pain! OMG! The pain is the worse! I don't even know if I had any withdraws, except for this pain! Lily called me yesterday, being the kind friend she is, and told me I needed to go to the ER. I hooked up the girls with friends, and called my ex- husband to take me. Got there at 8:15pm.....got home at 2:15am!!! Friends....never run out of pain meds!!! The doctor didn't come in my room until 11:30pm. At least I had my port! Started IV fluids, gave me a shot of morphine then phenergan....I almost threw up all over the nurse when the morphine hit! She said, oh..maybe I should have given the phenergan first. That didn't even touch my pain! The nurse said the doc said she could give me more morphine, but she didn't want to give it without phenergan..so the doc said it was ok. That barely touched this pain. Like I told this ER doc....very few times in the long 9 years I've been fighting with this illness has it ever brought me to crying....and boy was I crying last night...never run out of pain meds!!!!!! Please listen to me friends....never ever run out of pain meds. To end the ER story, they ended up giving me yet another shot of morphine before they sent me home. Now here is the part I don't understand....and it will be greatly appreciated if anyone can answer me on this.......my local GI & Dr. Lehman are in agreements that my pancreas is a " burn-out " ....but my amylase was elevated some last night. I ask to see the ER doc again, and I ask her......now isn't there any cause for concern that the experts say my pancreas is a burnout, and I'm in so much pain that I'm crying and my amylase is elevated? Isn't that something to be concerned about? Her answer... " I don't know. " And it was an honest enough answer, I left it at that..... She did give me a script for tylox, of all my long 9 yrs. with this illness, I don't think I've ever had that. Only 10 pills, but thats ok, do you know why friends? Because now I have something for pain~never, never, never, never run out of pain meds. When I started taking pain meds as a.....what do you call it? To keep the pain level down? I never believed it was actually working like that. Friends~it really is! I know, and its been the worse weekend of my entire illness....for a long time anyways! Good Luck out there~and remember these 6 lil' words.....Never Run Out Of Pain Meds!!! Now I'm off to bed. The girls are with there no-good father (wait! that wasn't a very fair shot at him...gotta get them when I can!) for the afternoon, so I'm off to sleep the rest of this morphine off....thank you all for listening. Lots of Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Oh, , I'm sorry you've had such a horrible time. Rest, and get better. Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 ka, This sure does sound familar, and frustrating for sure. I thought I knew what to expect with the burned-out pancreas, but then it goes & throws everything in a loop, thats for sure! While I was in the hospital, my surgeon ordered a CT scan.....he told me it came back normal, when I ask about my pancreas his exact words were.....it looks perfect. Now, I have a med-a-port & they can't use the dye they use for the scan in it. They stuck me twice to start an IV, but couldn't get it, of course. So they did it without the dye. Also they had me drink that nasty stuff, was suppose to be 1000ml, but I barely choked down 500. And then they didn't come get me for 3 1/2 hrs. I'm not sure how long that stuff stays in the ole' system, Lily told me a good 4-5 hrs. Maybe I was ok. But I wonder about how accurate the CT scan was, ya know what I mean? Of course your story is of interst! Anything I can learn about this is interesting, for sure! Thanks for sharing, and I hope you have a great weekend. Thanks for the prayers, they will certainly be returned! Lots of Hugs, ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Dear , I just read this post about your ER visit..It hit home because I am in BURN OUT and was told by the pancraetic specialist at UCSF that my amlase and espec my lipase were shooting up and down...The Doctor couldn't believe the results and askes the lab to re run it 3 diff times!! They would be in the 2 thous range then drop to Normal within 4-6 hrs..He said he has never seen anything like it...Says that it happen once you have reached the degree of burn out that causes a change in you pancreas's biochemical profile..I have been told the same by my GI and PCP. Thats frustrating to me because im at hosp in agonizing pain and the average ER doc looks for elevated amylase/lipase in their diagnosis and treatment and when its not elevated or goes up and down-they don't know that Burn out causes these changes in relation to the secrection of Amy/Lip...Anyway...Just thought I would share that w/you-hope its of interest..Tske care linda Im praying for your whole family and you!!!! ERICKA Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.