Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 > > Hoping for some help here and maybe some understanding. In April I > started having Gallbladder problems but all the tests have come back > negative. Finally, after not finding a solution, my surgeon decided > to do exploratory surgery, see if he could find what was wrong and > fix it, and if he couldn't find anything wrong he would remove my > gallbladder since all my symptoms pointed that way. Last Wednesday > was the big day and when they went in, my gallbladder was fully > diseased, inflamed, and covered in scar tissue. How could all of the > tests been wrong(27 pages of tests)? My question is, I was > diagnosed with CD two years ago in June and before then and since > then I have had episodes of high liver and bilirubin enzymes. Does > anyone think my CD has anything to do with my gallbladder going bad? > I'm not overweight, don't have high cholesterol, and I'm the first > one in my family to have their gallbladder removed, so so far it's > not hereditary. Something in the back of my head keeps making me > think this is related to the CD somehow. > > I would appreciate anyone's input. > > Thanks, > > Jeanette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 > > Hoping for some help here and maybe some understanding. In April I > started having Gallbladder problems but all the tests have come back > negative. Finally, after not finding a solution, my surgeon decided > to do exploratory surgery, see if he could find what was wrong and > fix it, and if he couldn't find anything wrong he would remove my > gallbladder since all my symptoms pointed that way. Last Wednesday > was the big day and when they went in, my gallbladder was fully > diseased, inflamed, and covered in scar tissue. How could all of the > tests been wrong(27 pages of tests)? My question is, I was > diagnosed with CD two years ago in June and before then and since > then I have had episodes of high liver and bilirubin enzymes. Does > anyone think my CD has anything to do with my gallbladder going bad? > I'm not overweight, don't have high cholesterol, and I'm the first > one in my family to have their gallbladder removed, so so far it's > not hereditary. Something in the back of my head keeps making me > think this is related to the CD somehow. > > I would appreciate anyone's input. > > Thanks, > > Jeanette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 > > Hoping for some help here and maybe some understanding. In April I > started having Gallbladder problems but all the tests have come back > negative. Finally, after not finding a solution, my surgeon decided > to do exploratory surgery, see if he could find what was wrong and > fix it, and if he couldn't find anything wrong he would remove my > gallbladder since all my symptoms pointed that way. Last Wednesday > was the big day and when they went in, my gallbladder was fully > diseased, inflamed, and covered in scar tissue. How could all of the > tests been wrong(27 pages of tests)? My question is, I was > diagnosed with CD two years ago in June and before then and since > then I have had episodes of high liver and bilirubin enzymes. Does > anyone think my CD has anything to do with my gallbladder going bad? > I'm not overweight, don't have high cholesterol, and I'm the first > one in my family to have their gallbladder removed, so so far it's > not hereditary. Something in the back of my head keeps making me > think this is related to the CD somehow. > > I would appreciate anyone's input. > > Thanks, > > Jeanette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 > > Hoping for some help here and maybe some understanding. In April I > started having Gallbladder problems but all the tests have come back > negative. Finally, after not finding a solution, my surgeon decided > to do exploratory surgery, see if he could find what was wrong and > fix it, and if he couldn't find anything wrong he would remove my > gallbladder since all my symptoms pointed that way. Last Wednesday > was the big day and when they went in, my gallbladder was fully > diseased, inflamed, and covered in scar tissue. There are probably a few people here who have a similar problem, but don't know it. Normally the scarring is on the duct, not the bladder, and this is probably where the doctor looked. In some of the early studies they talked about the obstruction of the pancreatic duct in related diseases and tropical sprue and of course obstruction or inflamation of the bile duct is also possible. The basic problem here is that we are not all the same (go figure that one) and the signals and tissues are distributed more in a uniform pattern, but differences do exist, the duct enters the pancreatic duct which enters the small intestine at the mucousa and goes right through the inflamed basal tissue. There is the other issue of secondary autoimmune diseases, if glandular proteins were expressed on the duct and surrouding epithelia (maybe as the result of some injury or developmental abnormality) antibodies to specific proteins may have developed targeting antibodies. The entire complex of organs associated with the small bowel can be affected by CD, this is known, autoimmune hepetitus, very common to find elevated liver disease markers in celiac disease. Obstruction or scarring of the pancreatic duct, very common in small children but normally heals on its own with GF diet. Type 1 diabetes and the gut are linked, alot of new information has come out about this and it appear that CD and T1D are more similar than previously thought. > How could all of the > tests been wrong(27 pages of tests)? Because they examined the duct and not the bladder itself? Because the disease is a rare autoimmune condition that they have no test for? > My question is, I was > diagnosed with CD two years ago in June and before then and since > then I have had episodes of high liver and bilirubin enzymes. Then the liver condition needs to be followed, some conditions are not reversible, but some of the liver problems are due to vitamin deficiencies. > Does > anyone think my CD has anything to do with my gallbladder going bad? Probably, quickened its demise. > I'm not overweight, Very few celaics are overweight. The average 'non-fluid retain' weight of a silly-yak is 10% less than average. > don't have high cholesterol Few celiacs . . . . My last colesterol was 100 mg/dl. >, and I'm the first > one in my family to have their gallbladder removed, so so far it's > not hereditary. Probably not, this is just a spurious secondary condition, that tend to characterize CD. > Something in the back of my head keeps making me > think this is related to the CD somehow. I would be thinking what I can do to improve my liver. http://www.liverfoundation.org/db/articles/1022 " Can poor nutrition cause liver disease? There are many kinds of liver disease, and the causes of most of them are not known. Poor nutrition is not generally a cause, with the exception of alcoholic liver disease and liver disease found among starving populations. It is much more likely that poor nutrition is the result of chronic liver disease, and not the cause. On the other hand, good nutrition - a balanced diet with adequate calories, proteins, fats, and carbohydrates - can actually help the damaged liver to regenerate new liver cells. In fact, in some liver diseases, nutrition becomes an essential form of treatment. Patients are strongly advised not to take megavitamin therapy or to use nutritional products bought in special stores or by catalogue without consulting a doctor. " Cirrhosis is basically a scarring of the liver. " Adults with cirrhosis require a balanced diet rich in protein, providing 2,000 to 3,000 calories a day to allow the liver cells to regenerate. However, too much protein will result in an increased amount of ammonia in the blood; too little protein can reduce healing of the liver. Doctors must carefully prescribe the correct amount of protein for a person with cirrhosis. In addition, the physician can use two medications (lactulose and neomycin) to control blood ammonia levels. " I would get a substantila amount of my protein from well cooked cold water fish, like salmon, cod and the like. Vitamin A, B complex, D and E are helpful but be aware that excessive doses are not recommended and may aggrevate other problems. Keep an eye on what the % USRDA is and don't take more than 200% or and if you still believe you have a liver problem then testing of vitamin levels. I cut (literally) my vitamins as to get the minimal effective dose to alleviate symptoms. The Fish oil and Vit B complex does the trick. The basic problem is that many Celiacs have had chronic disease undetected possibly for decades so that chronic problems occur. You can think of CD in adults as an accelerated aging of the GI tract and associated organs. The more chronic the damage the longer the recovery the more babying the GI tract needs. That's the bad news, the good news is that there are lots of foods that if prepared properly can aid in the healing. I would consult the a nutritionist about the vitamin neccesities. Fish oil or flax oil contains the desired kinds of oils, in addition fish oil had vitamin A and fish is a source of protein that one can live almost live on. http://www.netdoctor.co.uk/health_advice/facts/vitamins_which.htm Also, there is the possibility that you may have an ongoing autoimmune disease, it may be autofacilitative or it may be stimulated by something in your diet, so that remnant 'allergies' may be triggering the conditioned. Recents studies of EMA and tTG indicate that pools of antibodies may persist, I don't think they are clear about the cellular response to tTG or secondary allergice or autoimmune targets but I would assume that tTG plays a persistent role in autoimmunities that remain. Because of this autoimmune diseases that have resulted from crossreation of dietary proteins may persist even though the principle cellular stimulus, Gluten, has been removed. The most likely causes are proteins of closer human-related animals, beef pork and lamb followed by chicken. These are prime targets already identified for collagen studies and potential mediators of autoimmune rheumatoid arthritis, non-DR mediated. The crossreaction problem is complex, and it could be allergies to other animals or plants, fortuitously. If these dietary proteins are maintaining secondary autoimmune conditions they need to be removed but also the doctor may consider generalized treatment of autoimmune diseases. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 > > Hoping for some help here and maybe some understanding. In April I > started having Gallbladder problems but all the tests have come back > negative. Finally, after not finding a solution, my surgeon decided > to do exploratory surgery, see if he could find what was wrong and > fix it, and if he couldn't find anything wrong he would remove my > gallbladder since all my symptoms pointed that way. Last Wednesday > was the big day and when they went in, my gallbladder was fully > diseased, inflamed, and covered in scar tissue. There are probably a few people here who have a similar problem, but don't know it. Normally the scarring is on the duct, not the bladder, and this is probably where the doctor looked. In some of the early studies they talked about the obstruction of the pancreatic duct in related diseases and tropical sprue and of course obstruction or inflamation of the bile duct is also possible. The basic problem here is that we are not all the same (go figure that one) and the signals and tissues are distributed more in a uniform pattern, but differences do exist, the duct enters the pancreatic duct which enters the small intestine at the mucousa and goes right through the inflamed basal tissue. There is the other issue of secondary autoimmune diseases, if glandular proteins were expressed on the duct and surrouding epithelia (maybe as the result of some injury or developmental abnormality) antibodies to specific proteins may have developed targeting antibodies. The entire complex of organs associated with the small bowel can be affected by CD, this is known, autoimmune hepetitus, very common to find elevated liver disease markers in celiac disease. Obstruction or scarring of the pancreatic duct, very common in small children but normally heals on its own with GF diet. Type 1 diabetes and the gut are linked, alot of new information has come out about this and it appear that CD and T1D are more similar than previously thought. > How could all of the > tests been wrong(27 pages of tests)? Because they examined the duct and not the bladder itself? Because the disease is a rare autoimmune condition that they have no test for? > My question is, I was > diagnosed with CD two years ago in June and before then and since > then I have had episodes of high liver and bilirubin enzymes. Then the liver condition needs to be followed, some conditions are not reversible, but some of the liver problems are due to vitamin deficiencies. > Does > anyone think my CD has anything to do with my gallbladder going bad? Probably, quickened its demise. > I'm not overweight, Very few celaics are overweight. The average 'non-fluid retain' weight of a silly-yak is 10% less than average. > don't have high cholesterol Few celiacs . . . . My last colesterol was 100 mg/dl. >, and I'm the first > one in my family to have their gallbladder removed, so so far it's > not hereditary. Probably not, this is just a spurious secondary condition, that tend to characterize CD. > Something in the back of my head keeps making me > think this is related to the CD somehow. I would be thinking what I can do to improve my liver. http://www.liverfoundation.org/db/articles/1022 " Can poor nutrition cause liver disease? There are many kinds of liver disease, and the causes of most of them are not known. Poor nutrition is not generally a cause, with the exception of alcoholic liver disease and liver disease found among starving populations. It is much more likely that poor nutrition is the result of chronic liver disease, and not the cause. On the other hand, good nutrition - a balanced diet with adequate calories, proteins, fats, and carbohydrates - can actually help the damaged liver to regenerate new liver cells. In fact, in some liver diseases, nutrition becomes an essential form of treatment. Patients are strongly advised not to take megavitamin therapy or to use nutritional products bought in special stores or by catalogue without consulting a doctor. " Cirrhosis is basically a scarring of the liver. " Adults with cirrhosis require a balanced diet rich in protein, providing 2,000 to 3,000 calories a day to allow the liver cells to regenerate. However, too much protein will result in an increased amount of ammonia in the blood; too little protein can reduce healing of the liver. Doctors must carefully prescribe the correct amount of protein for a person with cirrhosis. In addition, the physician can use two medications (lactulose and neomycin) to control blood ammonia levels. " I would get a substantila amount of my protein from well cooked cold water fish, like salmon, cod and the like. Vitamin A, B complex, D and E are helpful but be aware that excessive doses are not recommended and may aggrevate other problems. Keep an eye on what the % USRDA is and don't take more than 200% or and if you still believe you have a liver problem then testing of vitamin levels. I cut (literally) my vitamins as to get the minimal effective dose to alleviate symptoms. The Fish oil and Vit B complex does the trick. The basic problem is that many Celiacs have had chronic disease undetected possibly for decades so that chronic problems occur. You can think of CD in adults as an accelerated aging of the GI tract and associated organs. The more chronic the damage the longer the recovery the more babying the GI tract needs. That's the bad news, the good news is that there are lots of foods that if prepared properly can aid in the healing. I would consult the a nutritionist about the vitamin neccesities. Fish oil or flax oil contains the desired kinds of oils, in addition fish oil had vitamin A and fish is a source of protein that one can live almost live on. http://www.netdoctor.co.uk/health_advice/facts/vitamins_which.htm Also, there is the possibility that you may have an ongoing autoimmune disease, it may be autofacilitative or it may be stimulated by something in your diet, so that remnant 'allergies' may be triggering the conditioned. Recents studies of EMA and tTG indicate that pools of antibodies may persist, I don't think they are clear about the cellular response to tTG or secondary allergice or autoimmune targets but I would assume that tTG plays a persistent role in autoimmunities that remain. Because of this autoimmune diseases that have resulted from crossreation of dietary proteins may persist even though the principle cellular stimulus, Gluten, has been removed. The most likely causes are proteins of closer human-related animals, beef pork and lamb followed by chicken. These are prime targets already identified for collagen studies and potential mediators of autoimmune rheumatoid arthritis, non-DR mediated. The crossreaction problem is complex, and it could be allergies to other animals or plants, fortuitously. If these dietary proteins are maintaining secondary autoimmune conditions they need to be removed but also the doctor may consider generalized treatment of autoimmune diseases. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 > > Hoping for some help here and maybe some understanding. In April I > started having Gallbladder problems but all the tests have come back > negative. Finally, after not finding a solution, my surgeon decided > to do exploratory surgery, see if he could find what was wrong and > fix it, and if he couldn't find anything wrong he would remove my > gallbladder since all my symptoms pointed that way. Last Wednesday > was the big day and when they went in, my gallbladder was fully > diseased, inflamed, and covered in scar tissue. There are probably a few people here who have a similar problem, but don't know it. Normally the scarring is on the duct, not the bladder, and this is probably where the doctor looked. In some of the early studies they talked about the obstruction of the pancreatic duct in related diseases and tropical sprue and of course obstruction or inflamation of the bile duct is also possible. The basic problem here is that we are not all the same (go figure that one) and the signals and tissues are distributed more in a uniform pattern, but differences do exist, the duct enters the pancreatic duct which enters the small intestine at the mucousa and goes right through the inflamed basal tissue. There is the other issue of secondary autoimmune diseases, if glandular proteins were expressed on the duct and surrouding epithelia (maybe as the result of some injury or developmental abnormality) antibodies to specific proteins may have developed targeting antibodies. The entire complex of organs associated with the small bowel can be affected by CD, this is known, autoimmune hepetitus, very common to find elevated liver disease markers in celiac disease. Obstruction or scarring of the pancreatic duct, very common in small children but normally heals on its own with GF diet. Type 1 diabetes and the gut are linked, alot of new information has come out about this and it appear that CD and T1D are more similar than previously thought. > How could all of the > tests been wrong(27 pages of tests)? Because they examined the duct and not the bladder itself? Because the disease is a rare autoimmune condition that they have no test for? > My question is, I was > diagnosed with CD two years ago in June and before then and since > then I have had episodes of high liver and bilirubin enzymes. Then the liver condition needs to be followed, some conditions are not reversible, but some of the liver problems are due to vitamin deficiencies. > Does > anyone think my CD has anything to do with my gallbladder going bad? Probably, quickened its demise. > I'm not overweight, Very few celaics are overweight. The average 'non-fluid retain' weight of a silly-yak is 10% less than average. > don't have high cholesterol Few celiacs . . . . My last colesterol was 100 mg/dl. >, and I'm the first > one in my family to have their gallbladder removed, so so far it's > not hereditary. Probably not, this is just a spurious secondary condition, that tend to characterize CD. > Something in the back of my head keeps making me > think this is related to the CD somehow. I would be thinking what I can do to improve my liver. http://www.liverfoundation.org/db/articles/1022 " Can poor nutrition cause liver disease? There are many kinds of liver disease, and the causes of most of them are not known. Poor nutrition is not generally a cause, with the exception of alcoholic liver disease and liver disease found among starving populations. It is much more likely that poor nutrition is the result of chronic liver disease, and not the cause. On the other hand, good nutrition - a balanced diet with adequate calories, proteins, fats, and carbohydrates - can actually help the damaged liver to regenerate new liver cells. In fact, in some liver diseases, nutrition becomes an essential form of treatment. Patients are strongly advised not to take megavitamin therapy or to use nutritional products bought in special stores or by catalogue without consulting a doctor. " Cirrhosis is basically a scarring of the liver. " Adults with cirrhosis require a balanced diet rich in protein, providing 2,000 to 3,000 calories a day to allow the liver cells to regenerate. However, too much protein will result in an increased amount of ammonia in the blood; too little protein can reduce healing of the liver. Doctors must carefully prescribe the correct amount of protein for a person with cirrhosis. In addition, the physician can use two medications (lactulose and neomycin) to control blood ammonia levels. " I would get a substantila amount of my protein from well cooked cold water fish, like salmon, cod and the like. Vitamin A, B complex, D and E are helpful but be aware that excessive doses are not recommended and may aggrevate other problems. Keep an eye on what the % USRDA is and don't take more than 200% or and if you still believe you have a liver problem then testing of vitamin levels. I cut (literally) my vitamins as to get the minimal effective dose to alleviate symptoms. The Fish oil and Vit B complex does the trick. The basic problem is that many Celiacs have had chronic disease undetected possibly for decades so that chronic problems occur. You can think of CD in adults as an accelerated aging of the GI tract and associated organs. The more chronic the damage the longer the recovery the more babying the GI tract needs. That's the bad news, the good news is that there are lots of foods that if prepared properly can aid in the healing. I would consult the a nutritionist about the vitamin neccesities. Fish oil or flax oil contains the desired kinds of oils, in addition fish oil had vitamin A and fish is a source of protein that one can live almost live on. http://www.netdoctor.co.uk/health_advice/facts/vitamins_which.htm Also, there is the possibility that you may have an ongoing autoimmune disease, it may be autofacilitative or it may be stimulated by something in your diet, so that remnant 'allergies' may be triggering the conditioned. Recents studies of EMA and tTG indicate that pools of antibodies may persist, I don't think they are clear about the cellular response to tTG or secondary allergice or autoimmune targets but I would assume that tTG plays a persistent role in autoimmunities that remain. Because of this autoimmune diseases that have resulted from crossreation of dietary proteins may persist even though the principle cellular stimulus, Gluten, has been removed. The most likely causes are proteins of closer human-related animals, beef pork and lamb followed by chicken. These are prime targets already identified for collagen studies and potential mediators of autoimmune rheumatoid arthritis, non-DR mediated. The crossreaction problem is complex, and it could be allergies to other animals or plants, fortuitously. If these dietary proteins are maintaining secondary autoimmune conditions they need to be removed but also the doctor may consider generalized treatment of autoimmune diseases. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Jeanette, My 19 year old daughter had her gallbladder removed in January, which took everybody by surprise. She's all of 100 lbs, young, etc. But she has celiac, undiagnosed at the time, which I believe she has had most of her life. She has crohn's, which some MDs believe may be from undiagnosed celiac. Gallbladder disease is not uncommon under these conditions. Her tests were positive all the way. I had my gallbladder out last year. I believe I may have celiac, but haven't been tested. I just try to maintain gluten free and feel so much better. But I've been dogged by gallbladder symptoms for years, all tests negative. The HIDA scan invoked a full blown attack, but came back negative. Go figure. My doctor finally said Enough is enough, we're taking it out and yes, it was diseased. I have felt so good since then. Donna : Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Jeanette, My 19 year old daughter had her gallbladder removed in January, which took everybody by surprise. She's all of 100 lbs, young, etc. But she has celiac, undiagnosed at the time, which I believe she has had most of her life. She has crohn's, which some MDs believe may be from undiagnosed celiac. Gallbladder disease is not uncommon under these conditions. Her tests were positive all the way. I had my gallbladder out last year. I believe I may have celiac, but haven't been tested. I just try to maintain gluten free and feel so much better. But I've been dogged by gallbladder symptoms for years, all tests negative. The HIDA scan invoked a full blown attack, but came back negative. Go figure. My doctor finally said Enough is enough, we're taking it out and yes, it was diseased. I have felt so good since then. Donna : Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Jeanette, My 19 year old daughter had her gallbladder removed in January, which took everybody by surprise. She's all of 100 lbs, young, etc. But she has celiac, undiagnosed at the time, which I believe she has had most of her life. She has crohn's, which some MDs believe may be from undiagnosed celiac. Gallbladder disease is not uncommon under these conditions. Her tests were positive all the way.=========this is fascinating. I have been convinced for years that my sister has celiac disease. She is ultra thin - less than 90lbs at 5ft5, has osteoporosis, chronic diarrhea, funky teeth etc.  She also had her gallbladder removed.I wish she would be tested. She refuses because then she'd have to give up bread and pasta. UGHHShez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Jeanette, My 19 year old daughter had her gallbladder removed in January, which took everybody by surprise. She's all of 100 lbs, young, etc. But she has celiac, undiagnosed at the time, which I believe she has had most of her life. She has crohn's, which some MDs believe may be from undiagnosed celiac. Gallbladder disease is not uncommon under these conditions. Her tests were positive all the way.=========this is fascinating. I have been convinced for years that my sister has celiac disease. She is ultra thin - less than 90lbs at 5ft5, has osteoporosis, chronic diarrhea, funky teeth etc.  She also had her gallbladder removed.I wish she would be tested. She refuses because then she'd have to give up bread and pasta. UGHHShez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 I found an interesting article on Celiac.com that links gallbladder disease and celiac disease together directly. It even suggests that since gallbladder disease is one of the most commonly diagnosed ailments, that anyone who is affected by it should be tested for Celiac! Go figure. I think the medical community will get this all straightened out yet! I'm taking the article to my surgeon on Tuesday when I go for my check-up to see what he has to say about it. Jeanette, Tawny, Rottie, Stubby, and Samir Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 I found an interesting article on Celiac.com that links gallbladder disease and celiac disease together directly. It even suggests that since gallbladder disease is one of the most commonly diagnosed ailments, that anyone who is affected by it should be tested for Celiac! Go figure. I think the medical community will get this all straightened out yet! I'm taking the article to my surgeon on Tuesday when I go for my check-up to see what he has to say about it. Jeanette, Tawny, Rottie, Stubby, and Samir Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 I found an interesting article on Celiac.com that links gallbladder disease and celiac disease together directly. It even suggests that since gallbladder disease is one of the most commonly diagnosed ailments, that anyone who is affected by it should be tested for Celiac! Go figure. I think the medical community will get this all straightened out yet! I'm taking the article to my surgeon on Tuesday when I go for my check-up to see what he has to say about it. Jeanette, Tawny, Rottie, Stubby, and Samir Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Hi, I developed appendicitis and had my appendix removed three weeks after the initial blood test that showed I had levels over 12 times normal for CD (AND two weeks before I actually got the results because the allergist's office mailed them to the wrong address!). blood test - April 6 appendectomy - April 30 test results finally relayed to me - May 15 The allergist told me that he suspected that the appendicitis may have developed because of the celiac disease since the appendix attaches to the small intestine! Then upon going to my first face- to-face support group meeting about 2 days later, I asked the other six celiacs in the room if they had had appendicitis. Of the six in the room, three had had appendicitis and the other three had had their gall bladders removed. While it may have been coincidental that those particular individuals happened to attend the meeting, with seven of us having had an organ removed, appendix or gall bladder, I think that a link between celiac disease and this type of problem is clear to me. Now, maybe the medical community needs to do more research...... Yours, Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Joy, I had my gallbladder removed, back in 2001, due to I was having so many attacks. The gallstone was about the size of about the end of my pinky finger. I wasn't about to go through it again, so decided get rid of the gall bladder. I haven't had any problem with my appendix yet, so far, but know eventually I will, due to the skin disease I have, which is Dermatitis Herpetiformis, which is similar to CD. Hope you're feeling better. In Regards, Donna Dean & Donna ' Appaloosa Horses www.donnaappaloosahorses.com Welcome To Donna ' WebPage http://donnaevans.multiply.com Donna ' Blog WebPage http://www.myspace.com/9586741 Re: Gallbladder Disease > Hi, > > I developed appendicitis and had my appendix removed three weeks > after the initial blood test that showed I had levels over 12 times > normal for CD (AND two weeks before I actually got the results > because the allergist's office mailed them to the wrong address!). > > blood test - April 6 > appendectomy - April 30 > test results finally relayed to me - May 15 > > The allergist told me that he suspected that the appendicitis may > have developed because of the celiac disease since the appendix > attaches to the small intestine! Then upon going to my first face- > to-face support group meeting about 2 days later, I asked the other > six celiacs in the room if they had had appendicitis. > > Of the six in the room, three had had appendicitis and the other > three had had their gall bladders removed. > > While it may have been coincidental that those particular > individuals happened to attend the meeting, with seven of us having > had an organ removed, appendix or gall bladder, I think that a link > between celiac disease and this type of problem is clear to me. > Now, maybe the medical community needs to do more research...... > > Yours, > Joy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Donna, When I look back at all the grief that my mother (and my grandmother who we suspect was a celiac) went through before being diagnosed, I'm doing really well. It was tough right after the surgury because they had me eating lots of chicken noodle soup, saltine crackers, whole wheat bread, oatmeal..... I could go on and on, but you can guess that I was having a lot of problems (bloating, gas, indigestion, lack of energy, slow bowel movements, etc.) that I was told were " normal " for someone my age recovering from an appendectomy and laproscopic surgury! At least, with the test results I knew what was causing the problems and I was just happy that the allergist had insisted on running the blood test because I would have gone on eating gluten, continuing to damage my system. The allergist felt that an earlier warning might have prevented the surgury, but by then probably I think the basic damage had already been done. I don't think that two weeks would have changed things much. It would have been difficult to convince me to go GF on just a blood test with no other severe symptoms at that time! I started cleaning out my pantry on May 15. I didn't realize at first how much I would have to dump and I probably got rid of a couple of items that I now know were actually GF, but it was still better to err on the conservative side given my physical condition (and mental state, you have to realize that I was feeling pretty confused right then). And almost immediately, within a few days of going GF, I could see a big difference! What I did to cope: I took on several " projects " around my yard. I started landscaping a strip between me and my neighbor (My half is about 40 feet long by 8 feet wide) adding a park bench, colorful pots filled with cactus, stepping stones, etc. etc. So, as one neighbor put it yesterday as I was finishing trimming the big tree in my yard: This winter on a nice rainy day, I can sit in my kitchen sipping tea and admiring my beautiful yard. On nice days, I can also rest on the park bench between the houses admiring the cactus and colorful pots. BTW, my plan is to enjoy the tea with some nice GF scones or muffins baked to celebrate my accomplishments on November 15 (6 months after going GF!). Its really tough to do a lot of baking between May and September here in Phoenix. Joy > > Joy, I had my gallbladder removed, back in 2001, due to I was having so many > attacks. The gallstone was about the size of about the end of my pinky > finger. I wasn't about to go through it again, so decided get rid of the > gall bladder. I haven't had any problem with my appendix yet, so far, but > know eventually I will, due to the skin disease I have, which is Dermatitis > Herpetiformis, which is similar to CD. Hope you're feeling better. In > Regards, Donna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Donna, When I look back at all the grief that my mother (and my grandmother who we suspect was a celiac) went through before being diagnosed, I'm doing really well. It was tough right after the surgury because they had me eating lots of chicken noodle soup, saltine crackers, whole wheat bread, oatmeal..... I could go on and on, but you can guess that I was having a lot of problems (bloating, gas, indigestion, lack of energy, slow bowel movements, etc.) that I was told were " normal " for someone my age recovering from an appendectomy and laproscopic surgury! At least, with the test results I knew what was causing the problems and I was just happy that the allergist had insisted on running the blood test because I would have gone on eating gluten, continuing to damage my system. The allergist felt that an earlier warning might have prevented the surgury, but by then probably I think the basic damage had already been done. I don't think that two weeks would have changed things much. It would have been difficult to convince me to go GF on just a blood test with no other severe symptoms at that time! I started cleaning out my pantry on May 15. I didn't realize at first how much I would have to dump and I probably got rid of a couple of items that I now know were actually GF, but it was still better to err on the conservative side given my physical condition (and mental state, you have to realize that I was feeling pretty confused right then). And almost immediately, within a few days of going GF, I could see a big difference! What I did to cope: I took on several " projects " around my yard. I started landscaping a strip between me and my neighbor (My half is about 40 feet long by 8 feet wide) adding a park bench, colorful pots filled with cactus, stepping stones, etc. etc. So, as one neighbor put it yesterday as I was finishing trimming the big tree in my yard: This winter on a nice rainy day, I can sit in my kitchen sipping tea and admiring my beautiful yard. On nice days, I can also rest on the park bench between the houses admiring the cactus and colorful pots. BTW, my plan is to enjoy the tea with some nice GF scones or muffins baked to celebrate my accomplishments on November 15 (6 months after going GF!). Its really tough to do a lot of baking between May and September here in Phoenix. Joy > > Joy, I had my gallbladder removed, back in 2001, due to I was having so many > attacks. The gallstone was about the size of about the end of my pinky > finger. I wasn't about to go through it again, so decided get rid of the > gall bladder. I haven't had any problem with my appendix yet, so far, but > know eventually I will, due to the skin disease I have, which is Dermatitis > Herpetiformis, which is similar to CD. Hope you're feeling better. In > Regards, Donna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Joy, That is great you're doing so much better. It's amazing on how many things wheat/gluten is in. When I found out it was also in medications, shampoos, etc... I was baffled. I'm also real careful at reading labels. There's about three stores that I go to that sell wheat/gluten products, and I have gotten a bigger selection on things I can have, and it's really helped. The GI doctor I'm going to now has been an blessing, and he has me on the right track now. He let me know of a store I could get foods I could eat. I went in there and didn't know where to start, I had so much to choose from, it was awesome!! I also found out Hy Vee's down here has an health food area in their store, and also carry lots of wheat/gluten free products. It's great to have an variety again. Donna Dean & Donna ' Appaloosa Horses www.donnaappaloosahorses.com Welcome To Donna ' WebPage http://donnaevans.multiply.com Donna ' Blog WebPage http://www.myspace.com/9586741 Re: Gallbladder Disease > Donna, > > When I look back at all the grief that my mother (and my grandmother > who we suspect was a celiac) went through before being diagnosed, > I'm doing really well. It was tough right after the surgury because > they had me eating lots of chicken noodle soup, saltine crackers, > whole wheat bread, oatmeal..... I could go on and on, but you can > guess that I was having a lot of problems (bloating, gas, > indigestion, lack of energy, slow bowel movements, etc.) that I was > told were " normal " for someone my age recovering from an > appendectomy and laproscopic surgury! > > At least, with the test results I knew what was causing the problems > and I was just happy that the allergist had insisted on running the > blood test because I would have gone on eating gluten, continuing to > damage my system. The allergist felt that an earlier warning might > have prevented the surgury, but by then probably I think the basic > damage had already been done. I don't think that two weeks would > have changed things much. It would have been difficult to convince > me to go GF on just a blood test with no other severe symptoms at > that time! > > I started cleaning out my pantry on May 15. I didn't realize at > first how much I would have to dump and I probably got rid of a > couple of items that I now know were actually GF, but it was still > better to err on the conservative side given my physical condition > (and mental state, you have to realize that I was feeling pretty > confused right then). And almost immediately, within a few days of > going GF, I could see a big difference! > > What I did to cope: > > I took on several " projects " around my yard. I started landscaping > a strip between me and my neighbor (My half is about 40 feet long by > 8 feet wide) adding a park bench, colorful pots filled with cactus, > stepping stones, etc. etc. So, as one neighbor put it yesterday as > I was finishing trimming the big tree in my yard: This winter on a > nice rainy day, I can sit in my kitchen sipping tea and admiring my > beautiful yard. On nice days, I can also rest on the park bench > between the houses admiring the cactus and colorful pots. BTW, my > plan is to enjoy the tea with some nice GF scones or muffins baked > to celebrate my accomplishments on November 15 (6 months after going > GF!). Its really tough to do a lot of baking between May and > September here in Phoenix. > > Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Where to start? I was finally diagnosed with CD a little over three years ago. Before that, I was diagnosed numerous times with IBS; which in fact, I really did have and still do. But after I was diagnosed with CD, I kept having pains in my upper abdomen. The doctor ordered a sonogram and my gallbladder was full of sludge. I still haven't done any research with the relation between the two, but I still wonder. I have never been overweight either, nor had high blood pressure, high cholesterol. When the doctor did my initial blood work before diagnosing me with CD, I had very high liver enzymes. That's what prompted them to admit me to the hospital and figure out what was going on. A week in the hospital and I had a diagnosis. Hope this helps and I hope I didn't go back and forth too much. It's worth looking into and maybe one day we will have a definite answer from the experts! Good Luck! Becky > > Hoping for some help here and maybe some understanding. In April I > started having Gallbladder problems but all the tests have come back > negative. Finally, after not finding a solution, my surgeon decided > to do exploratory surgery, see if he could find what was wrong and > fix it, and if he couldn't find anything wrong he would remove my > gallbladder since all my symptoms pointed that way. Last Wednesday > was the big day and when they went in, my gallbladder was fully > diseased, inflamed, and covered in scar tissue. How could all of the > tests been wrong(27 pages of tests)? My question is, I was > diagnosed with CD two years ago in June and before then and since > then I have had episodes of high liver and bilirubin enzymes. Does > anyone think my CD has anything to do with my gallbladder going bad? > I'm not overweight, don't have high cholesterol, and I'm the first > one in my family to have their gallbladder removed, so so far it's > not hereditary. Something in the back of my head keeps making me > think this is related to the CD somehow. > > I would appreciate anyone's input. > > Thanks, > > Jeanette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 I have also had problems with high liver enzymes and irritable bowel syndrome. I have had my GB checked about 4 times in about 10 years. I have had CD for 8 years. Alirmaz74 wrote: Where to start? I was finally diagnosed with CD a little over three years ago. Before that, I was diagnosed numerous times with IBS; which in fact, I really did have and still do. But after I was diagnosed with CD, I kept having pains in my upper abdomen. The doctor ordered a sonogram and my gallbladder was full of sludge. I still haven't done any research with the relation between the two, but I still wonder. I have never been overweight either, nor had high blood pressure, high cholesterol. When the doctor did my initial blood work before diagnosing me with CD, I had very high liver enzymes. That's what prompted them to admit me to the hospital and figure out what was going on. A week in the hospital and I had a diagnosis. Hope this helps and I hope I didn't go back and forth too much. It's worth looking into and maybe one day we will have a definite answer from the experts! Good Luck!Becky>> Hoping for some help here and maybe some understanding. In April I > started having Gallbladder problems but all the tests have come back > negative. Finally, after not finding a solution, my surgeon decided > to do exploratory surgery, see if he could find what was wrong and > fix it, and if he couldn't find anything wrong he would remove my > gallbladder since all my symptoms pointed that way. Last Wednesday > was the big day and when they went in, my gallbladder was fully > diseased, inflamed, and covered in scar tissue. How could all of the > tests been wrong(27 pages of tests)? My question is, I was > diagnosed with CD two years ago in June and before then and since > then I have had episodes of high liver and bilirubin enzymes. Does > anyone think my CD has anything to do with my gallbladder going bad? > I'm not overweight, don't have high cholesterol, and I'm the first > one in my family to have their gallbladder removed, so so far it's > not hereditary. Something in the back of my head keeps making me > think this is related to the CD somehow.> > I would appreciate anyone's input.> > Thanks,> > Jeanette> All-new Yahoo! Mail - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
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