Guest guest Posted November 17, 2006 Report Share Posted November 17, 2006 Hi...I'm new to this list. I have been reading posts and I know that a lot of you are using Pro EFA and Pro EPA together. We have been using Coromega and I was wondering what you all think of that and can I use Pro EPA with it. The combination of omegas in coromega is a little different from Pro EFA. My grandson is 2.10 yrs and globally delayed. I suspect dispraxia/apraxia but he has not been diagnosed. He went through EI and they felt developmentally delayed with sensory issues. He is now in preschool 3 days a week in our school district. He is starting OT for 30 min a week for SID but the SLP at the school observed him in a small group and said he doesn't need speech. She said she had nothing she could offer him. His teacher (wonderful) and aid (equally wonderful) and family can't understand him unless we know his approximation for the word or we are right there and he is pointing and he is only using single words. We are on a waiting list at the local children's hospital for a speech and ot evaluation but were advised it will be a long wait. For his progress report the first nine weeks he received mostly ES - The student demonstrates Emerging Skill but may not achieve this goal within the duration of this IEP. His teacher feels that he will master the goals but much time in the first marking period was spent helping him deal with his adjustment to school...thanks for listening. Aggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2006 Report Share Posted November 17, 2006 Hi...I'm new to this list. I have been reading posts and I know that a lot of you are using Pro EFA and Pro EPA together. We have been using Coromega and I was wondering what you all think of that and can I use Pro EPA with it. The combination of omegas in coromega is a little different from Pro EFA. My grandson is 2.10 yrs and globally delayed. I suspect dispraxia/apraxia but he has not been diagnosed. He went through EI and they felt developmentally delayed with sensory issues. He is now in preschool 3 days a week in our school district. He is starting OT for 30 min a week for SID but the SLP at the school observed him in a small group and said he doesn't need speech. She said she had nothing she could offer him. His teacher (wonderful) and aid (equally wonderful) and family can't understand him unless we know his approximation for the word or we are right there and he is pointing and he is only using single words. We are on a waiting list at the local children's hospital for a speech and ot evaluation but were advised it will be a long wait. For his progress report the first nine weeks he received mostly ES - The student demonstrates Emerging Skill but may not achieve this goal within the duration of this IEP. His teacher feels that he will master the goals but much time in the first marking period was spent helping him deal with his adjustment to school...thanks for listening. Aggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 > > Hi...I'm new to this list. I have been reading posts and I know that a lot of you are using Pro EFA and Pro EPA together. We have been using Coromega and I was wondering what you all think of that and can I use Pro EPA with it. Hello, I give my son both Coromega and Pro EPA. I think that he may actually be one of the rare non-responders for EFAs, but we're giving them another try. I haven't had any bad effects (though we did the first time around when were doing only EFAs with no vitamin E. (CA - mom to , 2.6, verbal apraxia [and everything else resolved from the introduction of Depakote!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 > > Hi...I'm new to this list. I have been reading posts and I know that a lot of you are using Pro EFA and Pro EPA together. We have been using Coromega and I was wondering what you all think of that and can I use Pro EPA with it. Hello, I give my son both Coromega and Pro EPA. I think that he may actually be one of the rare non-responders for EFAs, but we're giving them another try. I haven't had any bad effects (though we did the first time around when were doing only EFAs with no vitamin E. (CA - mom to , 2.6, verbal apraxia [and everything else resolved from the introduction of Depakote!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 ...Thankyou for responding. I was beginning to think no one else used Coromega. How much Vit E are you giving. We are just starting that too. What is Depakote? Aggie in VA [ ] Re: Coromega & ? > > Hi...I'm new to this list. I have been reading posts and I know that a lot of you are using Pro EFA and Pro EPA together. We have been using Coromega and I was wondering what you all think of that and can I use Pro EPA with it. Hello, I give my son both Coromega and Pro EPA. I think that he may actually be one of the rare non-responders for EFAs, but we're giving them another try. I haven't had any bad effects (though we did the first time around when were doing only EFAs with no vitamin E. (CA - mom to , 2.6, verbal apraxia [and everything else resolved from the introduction of Depakote!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 ...Thankyou for responding. I was beginning to think no one else used Coromega. How much Vit E are you giving. We are just starting that too. What is Depakote? Aggie in VA [ ] Re: Coromega & ? > > Hi...I'm new to this list. I have been reading posts and I know that a lot of you are using Pro EFA and Pro EPA together. We have been using Coromega and I was wondering what you all think of that and can I use Pro EPA with it. Hello, I give my son both Coromega and Pro EPA. I think that he may actually be one of the rare non-responders for EFAs, but we're giving them another try. I haven't had any bad effects (though we did the first time around when were doing only EFAs with no vitamin E. (CA - mom to , 2.6, verbal apraxia [and everything else resolved from the introduction of Depakote!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 My son uses Coromega. His speech therapist recommended it. I think it is great. It mixes great with orange juice and has no fishy smell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Initially we tried Coromega but my child is a resistant eater and it's easier for me to give him the Nordic Naturals oils in an oral medicine syringe. The oils are easier for him to swallow. Because Coromega is thick he was able to spit it out; it also triggered his gag reflex. > > ...Thankyou for responding. I was beginning to think no one else used Coromega. How much Vit E are you giving. We are just starting that too. What is Depakote? Aggie in VA > [ ] Re: Coromega & ? > > > > > > Hi...I'm new to this list. I have been reading posts and I know > that a lot of you are using Pro EFA and Pro EPA together. We have > been using Coromega and I was wondering what you all think of that and > can I use Pro EPA with it. > > Hello, > > I give my son both Coromega and Pro EPA. I think that he may actually > be one of the rare non-responders for EFAs, but we're giving them > another try. I haven't had any bad effects (though we did the first > time around when were doing only EFAs with no vitamin E. > > > (CA - mom to , 2.6, verbal apraxia [and everything else resolved > from the introduction of Depakote!) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 How old is he and how much does he take? Thanks for answering. Does he take anything else with it. I was thinking of using Pro EPA with it but nobody has said that they do that. We are giving 1 packet and also 200 IU of Vit E so far. Aggie Re: [ ] Re: Coromega & ? My son uses Coromega. His speech therapist recommended it. I think it is great. It mixes great with orange juice and has no fishy smell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Welcome Aggie! Many members on this board treat their child based on their individual needs. It seems the majority are using the ProEPA/Pro EFA and vitamin E route for their speech diet, but I chose what was best for my son which happened to be coromega. He was evaluated by a nurse practitioner who specializes in the autistic arena and uses the DAN protocol. Once testing was completed (blood, stoool, urine) we found a baseline for treatment. He was excelling with the coromega so I felt there was no need to change the formula. After a couple of years it was suggested I place him on a maintenance program and contine to give coromega with a regular multivitamin complete with zinc. The omegas certainly increased his myelination which then increased his production of speech and motor planning exercises with ST and OT. We have treated him for processing disorders (auditory/visual) as well since he scored below average and saw great results with that too. Overall the omegas have increased focusing and speech production. It was not complete without the intensive OT and ST he was recieving as well as correcting his leaky gut syndrome at a early age. As with all mothers, you know your child best and have motherly instincts that will guide you to the proper area of intervention. If no progress is being made after 3 months, there might be other underlying causes that need to be investigated. I broke it down with internal health, auditory, visual and cognitive areas. Each expert had their reports and I dissected each one to find the common area that needed the most help. Good luck to you and ask many questions from the experts, parents, and special needs arena to get the help your child needs. From my experience with the schools, they can only do so much. Money that came out of my pocket to pay for his supplemental services cannot replace the benefits of him entering a regular kindergarten class with some support. He is not at 100% but he has come so far from where he was at 2 years old. Please email me privately if you have any questions. I am not a doctor or ST or OT but maybe my path of early intervention may set off a clue as to where to get help. I wish you well, Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 My son is 2 1/2 and takes one packet of Coromega in the morning. I know some people give 1/2 a packet in the morning and 1/2 a packet at night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Initially we tried Coromega but my child is a resistant eater and it's easier for me to give him the Nordic Naturals oils in an oral medicine syringe. The oils are easier for him to swallow. Because Coromega is thick he was able to spit it out; it also triggered his gag reflex. > > ...Thankyou for responding. I was beginning to think no one else used Coromega. How much Vit E are you giving. We are just starting that too. What is Depakote? Aggie in VA > [ ] Re: Coromega & ? > > > > > > Hi...I'm new to this list. I have been reading posts and I know > that a lot of you are using Pro EFA and Pro EPA together. We have > been using Coromega and I was wondering what you all think of that and > can I use Pro EPA with it. > > Hello, > > I give my son both Coromega and Pro EPA. I think that he may actually > be one of the rare non-responders for EFAs, but we're giving them > another try. I haven't had any bad effects (though we did the first > time around when were doing only EFAs with no vitamin E. > > > (CA - mom to , 2.6, verbal apraxia [and everything else resolved > from the introduction of Depakote!) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 How old is he and how much does he take? Thanks for answering. Does he take anything else with it. I was thinking of using Pro EPA with it but nobody has said that they do that. We are giving 1 packet and also 200 IU of Vit E so far. Aggie Re: [ ] Re: Coromega & ? My son uses Coromega. His speech therapist recommended it. I think it is great. It mixes great with orange juice and has no fishy smell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Welcome Aggie! Many members on this board treat their child based on their individual needs. It seems the majority are using the ProEPA/Pro EFA and vitamin E route for their speech diet, but I chose what was best for my son which happened to be coromega. He was evaluated by a nurse practitioner who specializes in the autistic arena and uses the DAN protocol. Once testing was completed (blood, stoool, urine) we found a baseline for treatment. He was excelling with the coromega so I felt there was no need to change the formula. After a couple of years it was suggested I place him on a maintenance program and contine to give coromega with a regular multivitamin complete with zinc. The omegas certainly increased his myelination which then increased his production of speech and motor planning exercises with ST and OT. We have treated him for processing disorders (auditory/visual) as well since he scored below average and saw great results with that too. Overall the omegas have increased focusing and speech production. It was not complete without the intensive OT and ST he was recieving as well as correcting his leaky gut syndrome at a early age. As with all mothers, you know your child best and have motherly instincts that will guide you to the proper area of intervention. If no progress is being made after 3 months, there might be other underlying causes that need to be investigated. I broke it down with internal health, auditory, visual and cognitive areas. Each expert had their reports and I dissected each one to find the common area that needed the most help. Good luck to you and ask many questions from the experts, parents, and special needs arena to get the help your child needs. From my experience with the schools, they can only do so much. Money that came out of my pocket to pay for his supplemental services cannot replace the benefits of him entering a regular kindergarten class with some support. He is not at 100% but he has come so far from where he was at 2 years old. Please email me privately if you have any questions. I am not a doctor or ST or OT but maybe my path of early intervention may set off a clue as to where to get help. I wish you well, Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 My son is 2 1/2 and takes one packet of Coromega in the morning. I know some people give 1/2 a packet in the morning and 1/2 a packet at night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 > ----- Original Message ----- > > ...Thankyou for responding. I was beginning to think no one else used Coromega. How much Vit E are you giving. We are just starting that too. What is Depakote? Aggie in VA We are only using 200 IU right now because he was having some negative reactions to 400. I think that we're probably ready to try 400 again. Depakote is an anti-seizure medication. We had NO IDEA that was having seizures (they were all happening in his sleep), but since he's been on the depakote, he is talking more, his sensory issues are basically gone & his motor planning is amazingly better. He is going to be discharged from both PT and OT at the end of December. in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 > ----- Original Message ----- > > ...Thankyou for responding. I was beginning to think no one else used Coromega. How much Vit E are you giving. We are just starting that too. What is Depakote? Aggie in VA We are only using 200 IU right now because he was having some negative reactions to 400. I think that we're probably ready to try 400 again. Depakote is an anti-seizure medication. We had NO IDEA that was having seizures (they were all happening in his sleep), but since he's been on the depakote, he is talking more, his sensory issues are basically gone & his motor planning is amazingly better. He is going to be discharged from both PT and OT at the end of December. in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 That is fantastic . You must be so relieved that he is doing so well. [ ] Re: Coromega & ? > ----- Original Message ----- > > ...Thankyou for responding. I was beginning to think no one else used Coromega. How much Vit E are you giving. We are just starting that too. What is Depakote? Aggie in VA We are only using 200 IU right now because he was having some negative reactions to 400. I think that we're probably ready to try 400 again. Depakote is an anti-seizure medication. We had NO IDEA that was having seizures (they were all happening in his sleep), but since he's been on the depakote, he is talking more, his sensory issues are basically gone & his motor planning is amazingly better. He is going to be discharged from both PT and OT at the end of December. in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 That is fantastic . You must be so relieved that he is doing so well. [ ] Re: Coromega & ? > ----- Original Message ----- > > ...Thankyou for responding. I was beginning to think no one else used Coromega. How much Vit E are you giving. We are just starting that too. What is Depakote? Aggie in VA We are only using 200 IU right now because he was having some negative reactions to 400. I think that we're probably ready to try 400 again. Depakote is an anti-seizure medication. We had NO IDEA that was having seizures (they were all happening in his sleep), but since he's been on the depakote, he is talking more, his sensory issues are basically gone & his motor planning is amazingly better. He is going to be discharged from both PT and OT at the end of December. in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 - How did you find out was having seizures? What prompted you to pursue this and how was it determined that he was having seizures? Thanks, Amie > Depakote is an anti-seizure medication. We had NO IDEA that was > having seizures (they were all happening in his sleep), but since he's > been on the depakote, he is talking more, his sensory issues are > basically gone & his motor planning is amazingly better. He is going > to be discharged from both PT and OT at the end of December. > > in CA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 - How did you find out was having seizures? What prompted you to pursue this and how was it determined that he was having seizures? Thanks, Amie > Depakote is an anti-seizure medication. We had NO IDEA that was > having seizures (they were all happening in his sleep), but since he's > been on the depakote, he is talking more, his sensory issues are > basically gone & his motor planning is amazingly better. He is going > to be discharged from both PT and OT at the end of December. > > in CA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2006 Report Share Posted November 25, 2006 > - How did you find out was having seizures? What > prompted you to pursue this and how was it determined that he was > having seizures? I'll reply to the whole list since i think that seizures are likely a big unknown factor for many of our kids. We found out that was having night time seizures because our developmental pediatrician strongly encouraged us to get a 24 hour EEG for him because so many of the kids that she sees in their practice are having them and the parents have no idea. We then went to three different neurologists to get consensus on whether or not to treat them and, after getting 2 out of 3 voting " yes, " we decided to. It was the best decision that we ever made for our son and has had, by far, the biggest impact on his life. If anyone would like more detailed info, please feel free to email me off list. (in CA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2006 Report Share Posted November 26, 2006 > - How did you find out was having seizures? What > prompted you to pursue this and how was it determined that he was > having seizures? I'll reply to the whole list since i think that seizures are likely a big unknown factor for many of our kids. We found out that was having night time seizures because our developmental pediatrician strongly encouraged us to get a 24 hour EEG for him because so many of the kids that she sees in their practice are having them and the parents have no idea. We then went to three different neurologists to get consensus on whether or not to treat them and, after getting 2 out of 3 voting " yes, " we decided to. It was the best decision that we ever made for our son and has had, by far, the biggest impact on his life. If anyone would like more detailed info, please feel free to email me off list. (in CA) Quote Link to comment Share on other sites More sharing options...
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