Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Cammie and Mike Thanks for all the help. Caitie was on Valproic Acid before we started the diet and it help with her mycolonic jerks. We went off of it because it had to many carb's. Caitie is all g-tube feed. Our Nero was going to add Depakote (pills) because she is still having some 5 to 10 min jerks. But I will now talk to them and ask about the side effects. Caitie is still on zonogran,klonopin,keppra and going off of topamax. And are to start going off of zonogran. Sherri (mom to caitie) keto 4/04 4:1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Cammie and Mike Thanks for all the help. Caitie was on Valproic Acid before we started the diet and it help with her mycolonic jerks. We went off of it because it had to many carb's. Caitie is all g-tube feed. Our Nero was going to add Depakote (pills) because she is still having some 5 to 10 min jerks. But I will now talk to them and ask about the side effects. Caitie is still on zonogran,klonopin,keppra and going off of topamax. And are to start going off of zonogran. Sherri (mom to caitie) keto 4/04 4:1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Cammie and Mike Thanks for all the help. Caitie was on Valproic Acid before we started the diet and it help with her mycolonic jerks. We went off of it because it had to many carb's. Caitie is all g-tube feed. Our Nero was going to add Depakote (pills) because she is still having some 5 to 10 min jerks. But I will now talk to them and ask about the side effects. Caitie is still on zonogran,klonopin,keppra and going off of topamax. And are to start going off of zonogran. Sherri (mom to caitie) keto 4/04 4:1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 I think Depakene is liquid which means it probably contains sugar which would effect the portion size on the diet. Mike _____ From: cammie562003 Sent: Wednesday, October 20, 2004 12:35 AM To: ketogenic Subject: Re: Depakene Sherri, Depakene (valproic acid) and Depakote (sodium valproate) are known to cause problems with the diet. As the body metabolizes fat, one of the many " breakdown products " is an acid that is a direct precursor of valproic acid. There hasn't been a definite connection made, but it makes sense that could be the reason that many kids go " toxic " on depakene/depakote after they have been on the diet for a while. In addition, both the drugs and the diet can deplete carnitine. One of the two alone can do a pretty good job, but both together have a really good chance of seriously lowering carnitine levels. Both drugs can also stress the liver. They can cause increased ammonia levels. Increased ammonia levels along with increased acidosis from the diet can present yet another bad situation. I hope your doc is having you wean Topamax because it is a carbonic anhydrase inhibitor which also makes the body more acidic. It, together with the diet has caused some kids to become dangerously acidic. I don't understand why he would want you to start another drug, especially depakene, along with the diet. If it were me, I would ask exactly why he thinks that would be better than the diet alone. The diet usually does best without drugs on board to complicate things. Often, it takes some careful fine tuning of the diet to attain seizure freedom. It's important to give the diet a good chance to work on its own. Hopefully, your keto team can help you make changes, if needed, to adjust the diet to Catie's particular needs. Sometimes, after trying all options, a small amount of medication (one that is " more " keto friendly--really none of them are truly friendly) is added back and seizures improve. Hope this helps... Cammie > > Have a lot of you had to stop Depakene,after starting the diet? > Because our Nero wants to start it after we get off Topamax. Is it > because of the level get to high? > > Sherri (mom to Caitie)keto 4/04 4:1 " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Hello, So much information out here... This group is wonderful! For example, I have never cooked with pork rinds in my life, but will look for them so we can try keto chicken nuggets...... Anyhow, I've been reading the comments about Depakene, as our son was switched to Depakene from Depakote as we initiated his diet in June, 04. Our neuro said that Depakote had too many carbs and that Depakene was carb free. I've been reading so many comments that Depakote/Depakene interfere with the diet's ability to work anyhow, but now I'm really confused.... We had discussed a " wean " schedule for Colton's meds and Depakene was the last one we were going to address. I'm thinking I should discuss this with our neuro and hopefully work to reduce/remove the depakene before we address the others (carbitrol and keppra). Any thoughts? ~, Colton's mom, on the diet since June, 04. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 I understand that Depakene is the worst for interfering with the diet because it causes an increase in blood acidity. Carbitrol is bad because it is difficult to wean. It also increases cholesterol (according to someone here) which tends to increase on the diet too. Keppra, I don't know about. Usually you want to reduce or eliminate meds that are making things worse first. If you aren't sure, I would think that the depakene would be the best one to drop because of interference with the diet. Bill hemlockridgePA@... wrote: > Hello, > > So much information out here... This group is wonderful! For example, I have > never cooked with pork rinds in my life, but will look for them so we can try > keto chicken nuggets...... > > Anyhow, I've been reading the comments about Depakene, as our son was > switched to Depakene from Depakote as we initiated his diet in June, 04. Our neuro > said that Depakote had too many carbs and that Depakene was carb free. > > I've been reading so many comments that Depakote/Depakene interfere with the > diet's ability to work anyhow, but now I'm really confused.... We had > discussed a " wean " schedule for Colton's meds and Depakene was the last one we were > going to address. I'm thinking I should discuss this with our neuro and > hopefully work to reduce/remove the depakene before we address the others (carbitrol > and keppra). Any thoughts? > > ~, Colton's mom, on the diet since June, 04. > > > > Quote Link to comment Share on other sites More sharing options...
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