Re: doose syndrome-

[Guest guest]

,

Well, I'm not so sure we are heading in the right direction but I am glad to

have the Felbatol down because of the side effects. For us, it seems that

the increased dosages of drugs don't have any impact on seizure control but it

does have an impact on his behaviors which are getting more difficult to deal

with as he is getting older.

I'm curious about Doose Syndrome. Your description fits s

seizures types although he's never had a grand mal just myoclonics (drops) and

absences.

Recently, he's had gastro intestinal issues since July and we've wavered

with seizure control. Now he has a " skin Virus " and I think called Molluscum

which I think is causing more seizures.

He is still on the Atkins diet but I'm just confused as to what direction to

take in his treatment.

How is ? I think I've read that he is doing well and coming off

depakote. Good luck

[Guest guest]

Did I ever answer this ???? It was from the day before we went away on

holiday and I have lost track a bit

Re: doose syndrome-

,

Well, I'm not so sure we are heading in the right direction but I am glad

to

have the Felbatol down because of the side effects. For us, it seems that

the increased dosages of drugs don't have any impact on seizure control but

it

does have an impact on his behaviors which are getting more difficult to

deal

with as he is getting older.

I'm curious about Doose Syndrome. Your description fits s

seizures types although he's never had a grand mal just myoclonics (drops)

and

absences.

Recently, he's had gastro intestinal issues since July and we've wavered

with seizure control. Now he has a " skin Virus " and I think called Molluscum

which I think is causing more seizures.

He is still on the Atkins diet but I'm just confused as to what direction

to

take in his treatment.

How is ? I think I've read that he is doing well and coming off

depakote. Good luck