Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 Cheers , that one was a goodie I haven't checked medscape bulletins for a couple of weeks, so I hadn't read this one. The link below opened fine without me having to log in with username etc btw, so hopefully those who are not members might find the same thing. Dare I ask about Jess? ----- Original Message ----- From: mmc@... Thought some of you might want to check out this link, its from Medscape so if you have never registered with them you will have to. It lists the old and new AEDs, their side effects and interactions, what goes with what seizure type, what can aggravate what seizure types http://www.medscape.com/viewarticle/489615 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 & Hill wrote: > Cheers , that one was a goodie > I haven't checked medscape bulletins for a couple of weeks, so I > hadn't read this one. The link below opened fine without me having to > log in with username etc btw, so hopefully those who are not members > might find the same thing. > > Dare I ask about Jess? > > Glad it worked for you So far........so good........but my that little girl is getting a tummy, even with me trying to slow down her eating Check in Dec 1st....... > > > ----- Original Message ----- > From: mmc@... > > > Thought some of you might want to check out this link, its from > Medscape > so if you have never registered with them you will have to. It > lists the > old and new AEDs, their side effects and interactions, what goes > with > what seizure type, what can aggravate what seizure types > > > http://www.medscape.com/viewarticle/489615 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Well my kiddie already has a big tummy on keto, and I'm hoping for the opp if and when he ever comes off it, but a bit of a diff scenario here after the abnormal fat distribution/catabolic dramas. I bet she is in heaven with 'normal' food, and I like the 'so far so good'. Can't ask for much more eh? Well, we can, but that'll do for now Dec 1st? Typically when things would hit the fan? ----- Original Message ----- From: mmc@... To: ketogenic Glad it worked for you So far........so good........but my that little girl is getting a tummy, even with me trying to slow down her eating Check in Dec 1st....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 & Hill wrote: > Well my kiddie already has a big tummy on keto, and I'm hoping for > the opp if and when he ever comes off it, but a bit of a diff scenario > here after the abnormal fat distribution/catabolic dramas. > I bet she is in heaven with 'normal' food, and I like the 'so far so > good'. Can't ask for much more eh? Well, we can, but that'll do for > now Listen to this, they had their Enrolment tonight for Girl Guides. I knew there would be all kinds of sweets afterwards so told her she could have 2 things, but only 2. I wasn't going to go (she's a second yr so not actually getting enroled herself) but then decided to. I go talking to one of the leaders and when I went to find her........seven different sweets on her plate! The little monkey, I told her she had to give me one. So she looked at them all carefully, most were chocolate in some form, and handed me the mini blueberry muffin - the smallest and most healthiest thing on her plate LOL > Dec 1st? Typically when things would hit the fan? Actually November is so if we make it through that month we will know for sure we have something working Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Can't say as I would be doing it any differently right now if I were her, hopefully the novelty will soon wear off though, lol. Roll on Dec then, seizure free through Nov but with a big tummy, sounds like an okay trade... ----- Original Message ----- From: mmc@... I go talking to one of the leaders and when I went to find her........seven different sweets on her plate! The little monkey, I told her she had to give me one. So she looked at them all carefully, most were chocolate in some form, and handed me the mini blueberry muffin - the smallest and most healthiest thing on her plate LOL > Dec 1st? Typically when things would hit the fan? Actually November is so if we make it through that month we will know for sure we have something working Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 , I gather from this that Jess is no longer on the KGD. Bet she's enjoying herself with all those sweeties! Is Jess just on Keppra now or is it with something else? Saro mmc@... wrote: > & Hill wrote: > > > >> Well my kiddie already has a big tummy on keto, and I'm hoping for >>the opp if and when he ever comes off it, but a bit of a diff scenario >>here after the abnormal fat distribution/catabolic dramas. >> I bet she is in heaven with 'normal' food, and I like the 'so far so >>good'. Can't ask for much more eh? Well, we can, but that'll do for >>now >> >> > >Listen to this, they had their Enrolment tonight for Girl Guides. I knew >there would be all kinds of sweets afterwards so told her she could have >2 things, but only 2. I wasn't going to go (she's a second yr so not >actually getting enroled herself) but then decided to. I go talking to >one of the leaders and when I went to find her........seven different >sweets on her plate! The little monkey, I told her she had to give me >one. So she looked at them all carefully, most were chocolate in some >form, and handed me the mini blueberry muffin - the smallest and most >healthiest thing on her plate LOL > > > >> Dec 1st? Typically when things would hit the fan? >> >> > >Actually November is so if we make it through that month we will know >for sure we have something working > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Jay wrote: > , > I gather from this that Jess is no longer on the KGD. > Bet she's enjoying herself with all those sweeties! > Is Jess just on Keppra now or is it with something else? Oh my goodness, sorry, just found this is my buried inbox. think I will share before I answer you Saro, a week ago got together with some of the moms from another list, the Cafe, some will know what I am talking of. Spent 5 days away wiht them, it was absoloutely amazing, something we said we were going to do for ages. But it took one of the mom's little girls passing away before we said This is nuts, life is too short, lets just do it! So we did! Am sharing this for two reasons - one to say how wonderful these lists can be (I have been on keto lists for close to 7 years now and you can make some real friendships) and second, to remind, we never do know what is going to happen (good or bad!), sometimes we just have to take a step into the unknown and do! Okay, sorry, yes, Jess came off the diet over the summer. She is now on 1000 mg Keppra and 2500 mg NOW brand Carnosine. If we make through Nov, it will be one year with no seizures. So please pray for us! > > > Saro > > mmc@... wrote: > > > & Hill wrote: > > > > > > > >> Well my kiddie already has a big tummy on keto, and I'm hoping for > > >>the opp if and when he ever comes off it, but a bit of a diff > scenario > >>here after the abnormal fat distribution/catabolic dramas. > >> I bet she is in heaven with 'normal' food, and I like the 'so far > so > >>good'. Can't ask for much more eh? Well, we can, but that'll do for > >>now > >> > >> > > > >Listen to this, they had their Enrolment tonight for Girl Guides. I > knew > >there would be all kinds of sweets afterwards so told her she could > have > >2 things, but only 2. I wasn't going to go (she's a second yr so not > > >actually getting enroled herself) but then decided to. I go talking > to > >one of the leaders and when I went to find her........seven different > > >sweets on her plate! The little monkey, I told her she had to give me > > >one. So she looked at them all carefully, most were chocolate in some > > >form, and handed me the mini blueberry muffin - the smallest and most > > >healthiest thing on her plate LOL > > > > > > > >> Dec 1st? Typically when things would hit the fan? > >> > >> > > > >Actually November is so if we make it through that month we will know > > >for sure we have something working > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Congrats ! That is awesome that she was able to come off the diet and NO SEIZURES!! How does she tolerate the Keppra? and side effects? We are curious because we are either going to be going back on keto or doing AEDs and Keppra is one the neuro talks about. Again, I am so happy for you and for Jess that this diet payed off and now you have seizure control. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 , Thanks for sharing. Sara told me she was going to the Keto Cafe get together. It must have been wonderful to meet people we know well through the lists. Sending positive thoughts your way for Jess to continue to be sz-free. Saro mmc@... wrote: >Jay wrote: > > > >>, >>I gather from this that Jess is no longer on the KGD. >>Bet she's enjoying herself with all those sweeties! >>Is Jess just on Keppra now or is it with something else? >> >> > >Oh my goodness, sorry, just found this is my buried inbox. >think I will share before I answer you Saro, a week ago got together >with some of the moms from another list, the Cafe, some will know what I >am talking of. Spent 5 days away wiht them, it was absoloutely amazing, >something we said we were going to do for ages. But it took one of the >mom's little girls passing away before we said This is nuts, life is too >short, lets just do it! So we did! Am sharing this for two reasons - one >to say how wonderful these lists can be (I have been on keto lists for >close to 7 years now and you can make some real friendships) and second, >to remind, we never do know what is going to happen (good or bad!), >sometimes we just have to take a step into the unknown and do! >Okay, sorry, yes, Jess came off the diet over the summer. She is now on >1000 mg Keppra and 2500 mg NOW brand Carnosine. If we make through Nov, >it will be one year with no seizures. So please pray for us! > > > > >>Saro >> >>mmc@... wrote: >> >> >> >>> & Hill wrote: >>> >>> >>> >>> >>> >>>> Well my kiddie already has a big tummy on keto, and I'm hoping for >>>> >>>> >>>>the opp if and when he ever comes off it, but a bit of a diff >>>> >>>> >>scenario >> >> >>>>here after the abnormal fat distribution/catabolic dramas. >>>> I bet she is in heaven with 'normal' food, and I like the 'so far >>>> >>>> >>so >> >> >>>>good'. Can't ask for much more eh? Well, we can, but that'll do for >>>>now >>>> >>>> >>>> >>>> >>>Listen to this, they had their Enrolment tonight for Girl Guides. I >>> >>> >>knew >> >> >>>there would be all kinds of sweets afterwards so told her she could >>> >>> >>have >> >> >>>2 things, but only 2. I wasn't going to go (she's a second yr so not >>> >>> >>>actually getting enroled herself) but then decided to. I go talking >>> >>> >>to >> >> >>>one of the leaders and when I went to find her........seven different >>> >>> >>>sweets on her plate! The little monkey, I told her she had to give me >>> >>> >>>one. So she looked at them all carefully, most were chocolate in some >>> >>> >>>form, and handed me the mini blueberry muffin - the smallest and most >>> >>> >>>healthiest thing on her plate LOL >>> >>> >>> >>> >>> >>>> Dec 1st? Typically when things would hit the fan? >>>> >>>> >>>> >>>> >>>Actually November is so if we make it through that month we will know >>> >>> >>>for sure we have something working >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Well its not my favourite drug......but not my least favourite either. Definite behaviour effects but not as bad as depakote or lamictal. Lets just say that I can live with Keppra at its current level but wouldn't be any fan of raising the dose. As far as being off the diet with none of those things, don't know that. Remember Jess is a bit strange in that she has regularly designated " s " months.....and we haven't hit one of those since we came off the diet. First one will be November....... michelle lloydandleslie@... wrote: > Congrats ! That is awesome that she was able to come off the > diet > and NO SEIZURES!! How does she tolerate the Keppra? and side > effects? We are > curious because we are either going to be going back on keto or doing > AEDs > and Keppra is one the neuro talks about. > > Again, I am so happy for you and for Jess that this diet payed off and > now > you have seizure control. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Well , I hope this November brings something new for Jess and that this can be the first of many sz free s months. Quote Link to comment Share on other sites More sharing options...
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