Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Thats Wonderful, Jill. I am so happy for you and your little Claire. Hope it keeps on. Hallie Diet Success Hi I am excited to say that Claire has now been seizure free for 4 months! As well as the seizures stopping she is making huge progress in her learning and socially. I never ever thought this would be possible She has been on the diet for 3 years and in that time she has experienced both her best and worst times. In fact she had her worst time just a couple of weeks before her seizures disappeared. Anyway, I just wanted to offer some inspiration to those who are struggling to control seizures and say that the seemingly impossible CAN become a reality . . . miracles DO happen! Sometimes it can take time though . . . in Claire's case 2 years 8 months. Take care Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Wonderful Jill - we have travelled a lot of that same road on here with you guys, often at the same times over the past few yrs, and like you, our very worst time ever came just before 's current seizure freedom. Funny old world isn't it.... Long may it last for both of them - like - forever.... ----- Original Message ----- From: Jill Hi I am excited to say that Claire has now been seizure free for 4 months! As well as the seizures stopping she is making huge progress in her learning and socially. I never ever thought this would be possible She has been on the diet for 3 years and in that time she has experienced both her best and worst times. In fact she had her worst time just a couple of weeks before her seizures disappeared. Anyway, I just wanted to offer some inspiration to those who are struggling to control seizures and say that the seemingly impossible CAN become a reality . . . miracles DO happen! Sometimes it can take time though . . . in Claire's case 2 years 8 months. Take care Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 It is so good to hear of people having success with the diet. Might it be an idea to have a sort of 'hall of fame' on the shared files where for those who want to, you could post a picture of your keto kid (if you so choose), with some statistics underneath which indicate eg age now, age started diet, how long on meds before diet started, when started diet, which sort of diet using, where in the world based, when your child achieved success (however you choose to measure that) Something like this might give hope to those thinking about starting the diet, or going through a particularly bad time and thinking of giving up. What do others think? Ginny At 06:05 03-10-04, you wrote: >Hi >I am excited to say that Claire has now been seizure free for 4 months! >As well as the seizures stopping she is making huge progress in her >learning and socially. > >I never ever thought this would be possible > >She has been on the diet for 3 years and in that time she has experienced >both her best and worst times. In fact she had her worst time just a >couple of weeks before her seizures disappeared. > >Anyway, I just wanted to offer some inspiration to those who are struggling >to control seizures and say that the seemingly impossible CAN become a >reality . . . miracles DO happen! Sometimes it can take time though . . . >in Claire's case 2 years 8 months. > >Take care >Jill > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 I like that idea, Ginny. Hallie Re: Diet Success It is so good to hear of people having success with the diet. Might it be an idea to have a sort of 'hall of fame' on the shared files where for those who want to, you could post a picture of your keto kid (if you so choose), with some statistics underneath which indicate eg age now, age started diet, how long on meds before diet started, when started diet, which sort of diet using, where in the world based, when your child achieved success (however you choose to measure that) Something like this might give hope to those thinking about starting the diet, or going through a particularly bad time and thinking of giving up. What do others think? Ginny At 06:05 03-10-04, you wrote: >Hi >I am excited to say that Claire has now been seizure free for 4 months! >As well as the seizures stopping she is making huge progress in her >learning and socially. > >I never ever thought this would be possible > >She has been on the diet for 3 years and in that time she has experienced >both her best and worst times. In fact she had her worst time just a >couple of weeks before her seizures disappeared. > >Anyway, I just wanted to offer some inspiration to those who are struggling >to control seizures and say that the seemingly impossible CAN become a >reality . . . miracles DO happen! Sometimes it can take time though . . . >in Claire's case 2 years 8 months. > >Take care >Jill > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 Hi Jill, that is such wonderful news. I am also wondering, did you do anything different? My little Kristan has been on the diet for over a year now and we haven't gotten control so we have decided to wean to see if she would be having the same amount of seizures on a regular diet, but will try the diet again if we find she was doing better on the diet. How old is Claire? Satnam, mom to Kristan, 22 months Keto kid since August 2003 and currently weaning from the diet > Hi > I am excited to say that Claire has now been seizure free for 4 months! > As well as the seizures stopping she is making huge progress in her > learning and socially. > > I never ever thought this would be possible > > She has been on the diet for 3 years and in that time she has experienced > both her best and worst times. In fact she had her worst time just a > couple of weeks before her seizures disappeared. > > Anyway, I just wanted to offer some inspiration to those who are struggling > to control seizures and say that the seemingly impossible CAN become a > reality . . . miracles DO happen! Sometimes it can take time though . . . > in Claire's case 2 years 8 months. > > Take care > Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 Jill Just curious, is Claire off meds? Congratulations! I know you have been through so much in the last couple of years and I commend you for sticking to the diet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Jill Thanks so much for posting that encouragment. It helps a great deal to hear about such results, especially after a while on the diet. I'm sure you would have preferred to have had instant results (as would I, but that's not happening), but I am so pleased to hear that Claire is doing so well now. Caitlin, Lily's mom > Hi > I am excited to say that Claire has now been seizure free for 4 months! > As well as the seizures stopping she is making huge progress in her > learning and socially. > > I never ever thought this would be possible > > She has been on the diet for 3 years and in that time she has experienced > both her best and worst times. In fact she had her worst time just a > couple of weeks before her seizures disappeared. > > Anyway, I just wanted to offer some inspiration to those who are struggling > to control seizures and say that the seemingly impossible CAN become a > reality . . . miracles DO happen! Sometimes it can take time though .. . . > in Claire's case 2 years 8 months. > > Take care > Jill Quote Link to comment Share on other sites More sharing options...
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