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salty skin

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My daughter has a burning saltiness--it almost stings your lips. Lick your lips

and then touch them to your daughter's forehead. As far as testing goes, I

would insist that your daughter be screened now. Don't take no for an answer

with the doctor--don't ask--tell the doctor that she/he will do the sweat test

on your daughter or you will see another doctor. Sometimes you have to get

ugly. And, if God forbid, your child should have this horrible disease, you

need to get in the practice of being assertive with the doctors now!!!!

Been there, done that and wish I had been on my pediatrician more--my daughter

was not diagnosed until 14 months after months of telling the doctor that I was

changing 12-15 dirty diapers a day. Just remember, this is your child and you

have to protect her. I would call the doctor in the morning and say when did

you schedule the sweat test-- I can do it on this day. Don't let her talk you

out of it. This is too important.

, mother to Ashton 3 with cf

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