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Re: /Caitlin - Carnitor

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You might also like to try l-carnosine instead.It is not the same

like carnitine,it is different amino acid but it is also known to

help with children's development and speech.It can aslo help

to " normalize " EEG picture .I am very reluctant to give ph

Carnitor despite the fact he was prescribed it ( for no reason) as

in our SMEI group 2 kids had worsening of seizures after starting

Carnitor but had no adverse effect with over-the-counter form of

carnitine.I give ph l-carnosine and also DMG which is also known

to help with development/speech/seizure control.We are lucky our

insurance covered Carnitor as it is very costy to use on regular

basis without insurance.It is your personal decision what supplement

to give,hope you will make right choice for your kids

Natasha,mom to 2 years old ph,suspected SMEI/Dravet's

syndrome,keto kid since August 23 2004

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