Re: Hi C

[Guest guest]

Hi , Good to hear from you. I am still spending 90% of my time either in bed or resting in my recliner. I know it doesn't help as far as building up strength goes, but there isn't anything I can do about it. I was going to have my mother help me wash my hair tonight and I couldn't stand at the sink long enough to do it. So, guess I'll have to wash it in the shower. I like to shower at night and don't like to go to bed with wet hair. I can't use a hair dryer because of my useless arms. So - my sweetheart is going to blowdry my hair. What happened to our lives??? We planned to go bowling tonight with our 2 boys, their wives and our 3 little people. When it came time to get ready to go I didn't have what it takes. So, again my hubby went without me. This is what is the worst - family events that I can't go to.

I think I am starting to see some improvement though. Guess we will have to wait and see.

Hugs - a Blonewolflinda wrote:

Dear a B,

I just wanted to pop in to say ,"Hi ! " .....and to let you know I'm thinking of you.

I hope you are feeling better.........if not.......... then just please don't get any worse....!!

I'm so glad that you have a great doctor who works with you and even takes the time to learn all he can about each of your Special Diseases......so that he can help you !!

See if he will agree to being `Cloned '...We need more doctors like that .

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies > ATTACHMENT part 3 image/png name=949A7AF7-E926-11D7-BDA3-444553540000sig.png> ATTACHMENT part 4 application/octet-stream name=sig.jsp

[Guest guest]

Dear a B.

I'm sorry about your having to miss the bowling trip with your family......I wouldn't even have considered it.......I know I don't have the strength, and I'm not nearly as ill as you are.

You are lucky to have your Mother,and ` Sweetie' to help you with your hair, and the things you don't have the strength for.

As for building up your strength.......You have to have the strength to build up your strength, don't you ? It's just a vicious cycle. I joined the Y to build up my strength......but only attended two classes before I Flared......and haven't felt like going back......still Flaring too bad......I feel weak...my muscles ache, and the rash just keeps on refusing to go away. I'm down to 50mg. of prednisone a day now .......and still `cranking' as puts it.....Finally had my doctor call in a script for some Temazapam to help me sleep.....but I still wake up several times a night.

The thing that keeps me going is looking forward to seeing again next week......

What has Happened to our Lives ????...........LUPUS has happened to our lives......He Stole in and Stole our independance.......feelings of self-worth.....and Hope for a better tomorrow.......We can only wait him out, and refuse to give in to Him without `One Hell of a fight.!! '

I'm glad that you are able to begin to see an improvement, with your stomach problems......I'm keeping good thoughts and prayers going your way as always.

I'm really aching tonight.....I needed a haircut....but was too broke to go get it done......so I spent 2 hrs. standing at the bathroom mirror holding a hand mirror up and proceeded to chop away with scissors, a razor trimmer, and one of those little` trimmer thingies ' that you see on T.V. that trims up the hair line and neck.

Then of course I had to get in the shower to get all the hair off me.....My hair turned out pretty good, if I do say so myself.....But Boy .....am I tired and hurting.....But proud of myself too.......Wanted to look my best for .

Re: Hi C

Hi , Good to hear from you. I am still spending 90% of my time either in bed or resting in my recliner. I know it doesn't help as far as building up strength goes, but there isn't anything I can do about it. I was going to have my mother help me wash my hair tonight and I couldn't stand at the sink long enough to do it. So, guess I'll have to wash it in the shower. I like to shower at night and don't like to go to bed with wet hair. I can't use a hair dryer because of my useless arms. So - my sweetheart is going to blowdry my hair. What happened to our lives??? We planned to go bowling tonight with our 2 boys, their wives and our 3 little people. When it came time to get ready to go I didn't have what it takes. So, again my hubby went without me. This is what is the worst - family events that I can't go to.

I think I am starting to see some improvement though. Guess we will have to wait and see.

Hugs - a Blonewolflinda wrote:

Dear a B,

I just wanted to pop in to say ,"Hi ! " .....and to let you know I'm thinking of you.

I hope you are feeling better.........if not.......... then just please don't get any worse....!!

I'm so glad that you have a great doctor who works with you and even takes the time to learn all he can about each of your Special Diseases......so that he can help you !!

See if he will agree to being `Cloned '...We need more doctors like that .

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies > ATTACHMENT part 3 image/png name=949A7AF7-E926-11D7-BDA3-444553540000sig.png> ATTACHMENT part 4 application/octet-stream name=sig.jsp"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies