Meal plans formulated at Detroit Children's Hospital

[Guest guest]

I just found out that the meal plans that I left the hospital with at the

initiation of the diet were incorrectly calculated by the previous dietician at

Detroit Children's. The new dietician recalculated a few of my daughter's

meals and they came up to 3.7 and 3.8 (supposed to be 3.5 ratio)! Either that

or

the new dietician has made an error? Someone goofed.

Just thought I'd pass this information along in case anyone was needing to

recalculate their menus.

I find it increasingly difficult to trust any of the doctors or medical staff

that we deal with. When it all boils down, we - the parents, are the most

important aspect of our children's special needs. I now double check everything

just to be safe!

I will remember these feelings that I have as a parent and incorporated them

into my future as an occupational therapist when working with special kids *

" listen to the parents " !

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired, Ketokid since 12/03) and twin brother, (4

years), and

big sis Madison (6).

[Guest guest]

I suppose it was the first dietician who determined the ratio for 's

diet plan. She was started on 3.5:1 originally, but the 2nd dietician

calculated it out to be 3.7 or 3.8 after checking the ingredients and quantities

on a

few meals. At any rate, she was gaining too much (1.5 lbs in 6 weeks), and

losing seizure control so she jumped to 4:1. It's been 2 full days and no

seizures!! 's been happy and very verbal (does she come with an " off

button " ?) No, I love all the songs she's singing for me!

I will be on the look out for signs of acidosis, but so far, so good.

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired, Ketokid since 12/03) and twin brother, (4

years), and

big sis Madison (6).