-- More info on what I've seen with phosphocholine, Vit E and 3-6-9

[Guest guest]

-- not sure if you saw my post

/message/52971

Here's an update -- My son is scheduled for a full Great Plains lab

workup this weekend, so I took him off all supplements 4 days ago.

He was SOOOO emotional this past two days that I gave him 3 NN 3-6-9

this morning (I almost felt like he was going through withdrawls!)

I did not give him his Thera Response, phosphocholine or Vit E

today because I wanted to try to get tests that were not tweeked by

supplements.

I would be interested in your opinion on adding supplements back

after testing. I was thinking of adding Bs first, then Omegas, then

Vit E then phosphocholine...

> Funny, I just wrote something similar. Now that we are seeing

> several

> families with this experience...I am really thinking vitamin E

> issues

> are directly contributing to sensory issues. I am a supporter

> of " evidence based medicine " . Even though all of this is

anecdotal,

> we are really collecting quite a bit of new information. Keep it

> up!! I just bought some phosphocholine (soy lecithin)...since

I've

> read enough to suggest it " might " help, and its completely safe.

> ph has leveled off on all his vitamin E surges...and is doing

> just

> awesome, but it would be nice to take him to the next level with

> intelligibility. Most people would not realize he talks any

> different

> than a normal 3 year old...but just last week someone asked where

> his " accent " was from. My husband told them he was from Brooklyn.

> Oh...didn't realize you guys were from new york. My husband just

> smiled. Too much energy to try to explain.... -

>

> I just posted that my daughter used to show side effects when I

> increased or reintroduced the EFA's (they were sensory and

emotional

> in nature). We also discovered later that she is deficient in

> Vitamin

> E. It is possible that we were worsening her symptoms with EFA's

> because it is possible it increased her demand for the Vit E

> (further

> depleting supplies). We stopped the EFA's, gave her Vit E at

400IU

> for a couple of weeks, then reintroduced the EFA's. In our case

she

> is now able to tolerate the EFA's without any side effects.

Perhaps

> this is also your son's case, or there may be another issue going

> on.

> It might be worth a try... I hope or some one else can

give

> you additional input.

>

>

>

> --- End forwarded message ---

>