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, those sound like Jake's myoclonic seizures. He would drop his head

down, chin to chest, just a quick head bob, and sometimes roll his eyes at

the same time. Lasted about 3 seconds. It's all very confusing. Jake now

drops forward w/ force and smashes face first to the ground. Almost like

the myoclonic were the " small " version, and this is the biggie. From what I

understand, Jake's drop seizures are in the myoclonic family, all related.

Just much more severe and harsh. He no longer does the head drop

thing...since the diet. And sunlight used to make them worse.

There are also drops where you lose tone, those are different. Jake's are

drops almost like a jack-knife, when he goes stiff and rigid and falls

forward....

Barb Swoyer

Re: casey/corpus collasotomy

> Have you heard of this procedure for drop seizures? Do they call your

drops

> atonics? Just curious. Lately we're questioning what kind of seizures

he

> is having. After all of these years, still wondering. He has head drops

that

> sometimes involve shoulders when he will lean forward.

>

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